Post Edited By Moderator (Chutz) : 5/1/2009 11:40:26 PM (GMT-6)
Hi Jillmp and WELCOME!!!
Gretchen, I have just recently posted my results on LDN. I think you may have been misinformed about LDN, you can stay on pain meds! It is my understanding that at the regular 50 mg. dosage you can not stay on Opioids, this is the dosage used for Drug/Alcohol addiction. LDN is 3.0 or 4.5 mg. I am in contact with the Pharmacist at Park-Irmat Pharmacy in NY, they are more then willing to answer all of your questions. I also read on the LDN site that you should stop PM's, not so according to info received from them. Hopefully, that will happen but if it doesn't and the pain level is reduced then it is considered a success!
MS, Crohn's and Fibromyalgia (among others) LDN trials have proven to be 100% successful in some cases! I have non Diabetic Peripheral Neuropathy both legs/feet, assorted areas of nerve damage from triple rupture of CS with Fusion, there are disc bulges of LS but no real apparent cause of the nerve damage. Normal pain level is between 8-10+ daily, since starting LDN I am functioning between 5-8, what a difference...do I still experience level 10 yes but it is not constant.
See my post Update Low Dose Naltrexone!
Do you have any links to the MS studies? I am not aware of any reliable double blind studies that have shown anything more than a mild decrease in symptoms. I was told that LDN studies were inconclusive for progression management. Despite that I am very hopeful that LDN can be used to manage symptoms. Let me know if you can give me a link.
Post Edited (Gretchen1) : 5/2/2009 11:50:13 AM (GMT-6)
Do a google search for Low Dose Naltrexone, the 1st site that pops up is the actual site, you will find lots of information that should help answer your questions. I believe they prefer we not post links on HW.
Jillmp I understand your hesitation in establishing with a new Dr.....but if you feel stongly that it may help you, why not see if there is someone you can contact on the LDN site....or print some of the research to take with you for your next appointment, maybe if he sees it in print, he may change his mind?
I also have swelling of the feet from PN, more on the left + lymphaedema of the left leg, this is better from the LDN...I wear tennis shoes most of the time because the pressure of the tied laces does help to keep the swelling down. The only sandals I can wear are the Crocs flip flops, they have enough support and cushion to walk in, they are roomy so even when the swelling is bad they are wide enough....don't do this often though because the Phoenix heat seems to make the swelling worse, my toes look like snausages after an hour or so. I also have Jobst stockings, but the pressure makes the nerves flare! So as annoying as it is, I stick with my tennis shoes most times.
Thanks I found it right away. It is a huge site! I did find three study results. Unfortunately, not real good news for MS. It showed what I already know...it seems to help some symptoms. It is not showing much promise as a progression treatment. I appreciate the info very much!
You sound miserable!! I am very sorry. I hope you get some relief real soon!! Please keep us posted.