Screaming pain during Sleep Apnea 2nd test

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Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 5/14/2009 7:26 AM (GMT -7)   
Went in last night for my second test for Sleep Apnea, to find out which kind of machine I'll be on. They figured it would be the CPAP-ASV (I think that is right - White Beard?).

Got to sleep right away at 10. Then woke up to use the bathroom at midnight, which was early. Usually once a night at 3am.

Then at 2am. Then at 2:30. By this time I realized it was going to be a barn burner and it was. Breakthrough of 10s easily. The poor physical therapist technician wanted to do anything she could to help with the pain, and it was difficult to get her to understand that this is a regular occurrence in a CPer's life. Took a breakthrough dose of Morphine, and was finally able to get back to sleep around 3:30am.

I wonder how valid that study will be, with the constant wakeups, and extra narcotics in the bloodstream.

Worst part of it is that the breakthrough sessions are continuing on. Feet, legs, arms and hands but the worst is the face this morning.

I HATE PAIN!!!
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer
Meet My Wife And Me


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/14/2009 10:36 AM (GMT -7)   
Put out a call for Mr. WB. Hopefully he'll be by soon.

Chutz
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
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White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 5/14/2009 12:09 PM (GMT -7)   
Tony
From what you said they probably got enough sleep time from you to get a good setting for the titration so they can get you set up with a machine. I think they require at least 2 or 3 solid hours of sleep to get enough data. I can't remember the exact amount of time they require for a valid study. You are probably OK there. Do you normal wake up in the night with really bad pain? If so I would think that would should  be addressed by your pain doctor. But I know what your talking about, I often wake up from pain in the night! Waking up in the night during the sleep study will not hurt the study, the  study is after all suppose to be a representation of your normal sleep habits so that should not be a problem! I don't think the extra meds in your system will be any worry either. Hopefully they will get your study read and get you set up with the machine and you will start getting some good sleep. Sounds like your gon-a-be a hose head soon! smilewinkgrin
 
White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 5/15/2009 4:41 PM (GMT -7)   
Hi Tony,

Sorry to hear that you had such a rough test! Hopefully they were able to get all the data they needed before your pain kicked up a notch. Hopefully you are feeling better today!

Skeye

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 5/15/2009 5:01 PM (GMT -7)   

When I had my test done I was in alot of pain.  They still got the reading they needed. (Moderate Sleep Apnea) 

Keep us updated.....

 

Laurie


Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 5/15/2009 8:42 PM (GMT -7)   
Laurie
I didn't know you had sleep apnea too! Are you on CPAP? Have you ever been over at the Sleep apnea support forum?

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 5/16/2009 8:16 AM (GMT -7)   

Yep I just found that out about 6 months ago.  We talked about the CPAP and decided that I would lose 30 lbs and go from there.  I just hit the 30 mark last week.  I need to go back in and spend the night again and see if the results changed any.  I've always been a small person, but with all the CP and medications I put some weight on.  The doctor felt if some of the weight was off that I might get different readings the next round of tests.  I believe I have 19 episodes during my test.

This thread acually reminded me that I need to call and make an appointment.  In some ways I should of gotten the machine.  But during this time I was having a VERY hard time with the pain.  I didn't sleep at night for more than two hours.  The CPAP would of just made it harder for me to sleep while getting used to it.

Nope havent been to the that forum didn't even know there was one.....lol  I guess I will jump over there and look at it.  My sister has the CPAP machine but I dont think she uses it that much.

Laurie


Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 5/29/2009 6:59 AM (GMT -7)   
White Beard said...
Tony
From what you said they probably got enough sleep time from you to get a good setting for the titration so they can get you set up with a machine. I think they require at least 2 or 3 solid hours of sleep to get enough data. I can't remember the exact amount of time they require for a valid study. You are probably OK there....
White Beard


No, they called back yesterday and apologized for not getting back with me about the test; they didn't get enough data to fully sample for mask/machine it appears. Scheduled the THIRD test for tonight. I guess my appointment with my PCP yesterday did more good than it seemed like.

Now, to let my PM know that I'd like to go forward with his suggestion of a test for SCS implant.
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer
Meet My Wife And Me

Post Edited (TonyMcGuire) : 5/29/2009 8:02:14 AM (GMT-6)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 5/29/2009 3:36 PM (GMT -7)   
Good Luck to You Tony! Hope tonight goes well for you! With all these sleep studies you will soon be an old Pro at it! Let us know how it all turns out!
 
White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 5/29/2009 5:27 PM (GMT -7)   
Not quite the 'old pro' at the studies as you, but I'm getting up there. :)
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer
Meet My Wife And Me

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