Post Edited (emily837) : 5/14/2009 8:44:54 PM (GMT-6)
Ok where do I start?????
All this is based on what I went through with my kidneys. I always would feel flank pain to low all the way up to HELLO this hurts (10). I would have stones on occasions then there were these moments when they could never find a stone. I knew I had pain, I would bleed when I went to the bathroom. (orange, brown and also blood red) I would pee these little flakes. I would go to the urologist then the second urologist. Had surgery and then was sent to a Nepherologist.
Surgery finding.... I had so many infections that the tissues inside of my kidney is sloughing. Tissue is dead. All the infections and stones combined with alot of sugeries caused Nerve Damage.
If I were you I would get opinions many of them. It took me 10 years to find out. Its uncommon but I believe it more common then they lead onto cuz doctors are not looking at this correct.
I now see a PM doctor for this is permenant.
I hope you might find something in this post to point you in the right direction...
My prayers are with you
laurie, thank you so much for your response. I certainly hope it isn't anything so severe as what you have experienced, but i also know that SOMETHING is causing that pain---it seems awfully coincidental to have 3 infections at the same time and have my urologist say that it is all coincidence.
I'll ask if i can get a referal to another urologist. I'm kinda trapped because there is only one in the area, so i'll have to travel at least 30 minutes for one referal and further if i need a third referal.
I appreciate hearing that somebody out there has had the experience of stones when they couldnt' find them----all the tests pointed to stones---plus like you i've been passing flakes and bloody urine, but the uroligist said the flakes were just debris because the test on one of the flakes came back as not consitant with a normal kidney stone compistion-