I finally got an attorney!

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Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 5/16/2009 1:14 AM (GMT -6)   
My husband and I went to see an attorney the other day that specializes in social security disability cases. He said that he couldn't believe  that I had been turned down the first time. He sounded very positive that this thing will go through just fine. He read from the book of disabilities and all of my problems fall under every one of them. My brother is a lawyer and he recommended him. He said that he had worked with him on a couple of cases and he was really good. We left his office with a good feeling.
This flare that I have been going through since Dec. is about to get  on my last nerve. I've been so sore all over that I have been sleeping (HA! HA!) on top of foam pillows placed all over the top of the bed. I've been using my cane to  help me walk because my balance is off.
I have now gained 25 lbs. between the increase of the Neurontin (which I have now decreased back to my normal level) and this crazy edema that's going on. My hair continues to fall out and I have the energy of a dead fly! Oh well, it could always be worse, right?
I've only had 4 of those headaches that you wish someone would shoot you in the head in the last month which is an improvement. One of the doc's that I see wants me to "lose the fluid naturally " by walking, sweating and decreasing my fluid intake. I have Sjogrens for crying out loud! I have to drink. So I'm doing it my way. Lasix and doing  a little walking in short trips that I will increase gradually. I feel like if you would stick me with a pin that water would shoot out of me.
MY PCP is so understanding. He wrote for pain meds an my Valium that I take for muscle spasms or at the start of a headache. I just love him.
Well, enough for tonight. I hope everyone feels a little better tomorrow.
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 5/16/2009 2:29 AM (GMT -6)   
I wish you all the best with SSD. I'm just getting things together to start mine. I want to get the doctor's reports together so I know what they say, because if the right words aren't used and acceptable diagnoses I'll be denied for sure (will probably be denied the first try anyway, but I'm going to give it my best shot!).

I've been putting on weight slowly over the past year and I know some of it is due to lousy eating and decreased activity, but I'm beginning to wonder if the neurontin is a partial culprit. Still, I need it. My left ankle has been swollen off and on since my back surgery and I've had all kinds of tests including by the cardiac and circulatory folk, but they say there's nothing showing up indicating any blockages or P.A.D. or anything. It does change worsen with standing and I was squatting a lot playing with some cats yesterday and last night my ankle was all puffed up. Got it down today but I know some of this weight must be related to meds. It's tough to get it off when you can't exercise. Cutting back the comfort eating woud help, I know!

Anyway, i hope you have success with your efforts and get SSD on your next try with the attorney!

Take care,


Post Edited (PAlady) : 5/16/2009 6:39:48 PM (GMT-6)

Veteran Member

Date Joined Feb 2009
Total Posts : 999
   Posted 5/16/2009 3:27 AM (GMT -6)   
Nurse2 & PAlady, I know that weight gain goes with some of the meds and generally, we are less active than we used to be. I was on neurontin but it did not work for me. I had lost 25 lbs before my surgery last year, I did the disciplined fruits and vegtables, bought a juicer, quit the sugars etc. I wanted the surgery to have all the possible chances to work. I managed to put most of the weight back on but since I have been on methadone, I don't eat as much and the weight is slowly coming off. I eat less that my wife and I am amazed that the weight does not come off faster. I am now thinking that even more than the meds, the depression that often goes with CP is a contributing factor to the weight gain. I have been reading the number of people who are here on the forum that have either applied, are planning on applying or have and have been denied and I thought wouldn't it be great if an attorney were to put together a packet of information to gather as one gets ready to file, knowing that it is not uncommon for someone to be turned down several times and sometimes having to pay an attorney to help. Are the issues of weight gain, depression etc part of the supporting information with consideration for disability. This may sound strange but it seems so common that it is hard to deny. Anyway, probably due to a bad night but as I wait for sleep or morning our minds go starnge places. I hope both of you get your disabilities approved with no problem.

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3602
   Posted 5/16/2009 10:40 AM (GMT -6)   
I am so glad you gat an attorney Ireally believe that this will make a difference for you, I know how discouraging it is to be rejected for SSD, and the flimsy reasons they give for why you aren't qualified when you really are! Having an Attorney....well let him take some of the burden he's getting paid for it, and you can worry about other things, and I am sure you have more than your share of things to worry about! You have allot on your plate right now! And I wish you all the Luck in the world with it!
I do hope you get your application in soon, as it seems to take SS so long to even approve or disapprove them. Anyway I kind of worry about you having to go on medicaid, I think medicare is so much better! The sooner you get your application in the better! I know it is none of my bussiness, and medicaid varies from state to state,  but  allot of the medical seems some what limited, and I know the area I live allot of Doctors will not even accept it, primarily because it takes the state so long to pay,  if they do! If nothing else it just seems to be more of a hassle. I do hope you get it approved the first time! I am sending positive thoughts your way, that it will!
I can't say much about the weight, as I am more than a few pounds over what I should be! PALay I also eat lousy, to many Micky Deee's Breakfasts and Culvers Lunchs! And I am not a great salad eater, I like meat!  and cheeses and pasta, breads, and potatoes, and ...well .....let us just say I like FOOD in general! yeah
You know fatherjohn  neurontin didn't work for me either and it messed up my vision, so I don't use it. Actually when they started me on the Baclofen that helped with the pain just about as much as anything except the pain meds! You are rtight that CP and depression go together, depression can be funny though, some people eat allot when they are depressed and gain allot of weight, others do just the opposite and don't wan't to eat all, and lose a bunch of weight! So it is hard to tell! But the neurontin does seem to make allot of people gain weight!
White Beard
White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Veteran Member

Date Joined Mar 2009
Total Posts : 1158
   Posted 5/16/2009 11:51 AM (GMT -6)   

I have always wondered why it takes so long to be approved or denied.  My youngest had asthma so bad that he had a machine at home for treatments, many many surgerys for tubes to be put in his ears.  He was deaf the first 3 months of his life and had 4 yrs of speech therapy.  Washington state denied him 2x but then when we came to Tennessee the judge approved it within minutes.  Makes ya think.

I'm happy for you that you have got an attorney to fight for you.

I started laughing about your fluid intake comment.  I have the same problem with doctors disagreeing.  My urologist says drink drink and drink more.  My cardiologist says to only drink a small sip of water to just wet my mouth.  I also take Lasix daily for fluid retention for my flareups of CHF.

Once again I'm thrilled you have help on your side


Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Post Edited (LLPLUV) : 5/16/2009 10:56:17 AM (GMT-6)

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