Hysterectomy at 25
4 laproscopic surgeries since 24
Cervical stenosis in C3 & C4
Meds - percocet 3x day : nexium : xanax :
Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E
In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz
Sorry to hear that Laurie.
Let me ask you, does your hubbie work so much because he has to or he is simply a workaholic. Should he have an option, he should try and make time to find out what he has and get plenty of rest at once. His health problems are not going to get better exerting himself like that, it could only make things worse. He seems tough though, however, we all have our breaking-points. Sometimes our body talks to us and we don't listen. Been there done that.
Reading the symptoms, I just can't figure it out and connect the dots. I am baffled. Did he get a full blood test, something really thourough? They might find something like that.
My though are with you and your family.
Whitebeard yes I will keep you posted. Whats going on with him acually interests in on an educational level also.
Straydog... In 1994 my husband was experiencing stomach pains and cramping. He went to Madagen Medical Center on Fort Lewis. The testing and procedures started. In the end thats what the Dx was. They pleaded with him to stay at the hosptial to postpone his release from the Army. By this time we had already picked up our tickets on base to fly to Florida. He promised the doctors he would see the doctors at the VA in one month as soon as we get back. They wanted liver biopsies and to do the removal of blood. They agreed and let us go. During this trip my mother in law had large prayer groups by large I mean 2000+.
One month later we returned he went straight to the VA. First blood test came out low iron levels. They retested a dozen times over 3 months each time came back low. Doctors asked him many times if he had gone to the VA in florida for the removal of blood. But we hadn't. So we thought it was gone or had been misdiagnoised. On occasions his iron level will get high but he loves meat, his steaks are his best friend. He likes his beer he says he helps with the pain he feels. (yes I know its an issue that we deal with he should cut back ALOT) Over the years its came to mind about getting it checked but this man is like he-man, (thats what I call him) he can do anything, hes stubborn, hes strong, hes independent, and he hates taking time out to see doctors. When he has free time when not working from 4:30 am to 4:30 pm 6 days a week hes coaching all the kids sports (thats what tore his rotary cuff), we spend time as a family and we do activities. He always says lifes to short and he wants as much time with the kids and me. I know if he doesn't take care of himself how will he be able to do everything he wants to.
This whole thing is like a puzzle to me. I've sat on HW in all the forum looking and researching. I want to be able to select the right specialists and find enough information for his PCP to head him in the right direction. I'm a major organzation freak. I will be the one filling out all the paperwork, reseaching and making the appointments. I will have to go with him for he has a hard time expressing with speech somethings. (He stutters on occasions at times hes in a slight fog.) If I go with him to appointments he can't cancel cuz he wants to work an hour over at work. (Hes very dedicated to his job they would fall apart without him) Pete will understand this one...lol Sometimes I think I should demand that he get off work when hes suppose to that at 2:30 everyday.
But THANK YOU I would never of thought that Hemochromatosis symptoms would be anywhere near what hes feeling. I guess this is the reseach project for tonight....
Laurie thats why I responded to your post.. I saw alot of connections with the hemochromatosis reading your post. Its very possible the disease was mild in the beginning but thats not to say its has not changed, it can do that. I did not like seeing a 26 yr old with scarring on her liver from this disease, that made the light come on for my daughter that this was not something to kiss off. With her its been a progression of different health problems cropping up as time goes by, such as diabetes three years ago.
You hubby is the typical man when it comes to health. But, in all fairness to you and his children, living for the moment is great if you are single, ask him if he would like to live long enough to see his children grow up and play with grandbabies with you. I am battling with mine right now over his diabetes being way out of control. He is on pills now, he has three months to get his act together or else its shots. His mom was diabetic and lost part of her leg to the disease he has the same potential, severe circulation problems in both legs, they are black at the bottom instead of the normal color. I finally had a belly full of his BS and I just laid it out to him-you have a one grandchild that idolizes you, you profess to me nearly daily how much you love this child and how much he means to you. If you love him as you say you do, take care of yourself for him if for no other reason. I reminded him how much that little boy depends on his PawPaw, Pawpaw can fix or make anything in that little guys mind. When we are young and your alls age we really do think we are bullet proof, I was the very same way until I got sick. It has been a real eye opener.
Get him to submit to lab tests to monitor the iron levels, thats the key factor in not letting the iron get high. My daughter works a fulltime job too and arranges to have her labs done late in the day and she has found a place to do her blood on Sat.
One of my favorite sayings is: you can lead a horse to the water to drink, but you cannot make him drink:lol.
Just read up on it and get him involved to see what can come along with this disease. Like I said, it does not ever go away once you have it. My girls PCP ref her to a gastro for the treatment and he has been great with her...Susie
I say hes stubborn but I will have to admit I am more stubborn. I will get him to do everything I want and I will kill him with kindness the whole time...
If I take the lead he will continue to follow up on all this.
Once again thank you and I will find the right specialist for him within the week