I too have trouble with CP and my son...It isn't the actual Illness but the pain meds that cause the problems..He is almost 16, has an attitude anyway, and now he likes to go around calling me a "Drug Addict"...every day...Lots of fun...
I hate Boats!!!!
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 5mg. 2X in the morning
Post Edited (anice) : 5/19/2009 5:45:47 PM (GMT-6)
You are not the first to say the patch was not covering their pain and you are also on a low dose. I started out on the 25's and they did little for my pain. After being increased to the 50's it did help somewhat. You are right about the different brands and I say that from reading what the other members have written here that used the patch too. I started the patch in the spring and as our temps got higher here in Tx thru the summer I found it extremely difficult to be in the heat. If I was in the sun and got hot it caused too much medication to be released and then by day 3, it felt like there was no medication left in the patch and I started having withdrawal symptoms. I ended up being taken off of them and that was fine with me. I like being outside and they definetly interferred with that. As someone else mentioned, if you had better pain control you could do more things with your children and feel like you are more of a part of their life. Please get with your dr on this and see about making a change.
Being a divorced parent is difficult enough. Add health problems to the mix and its just plain hard at best. But, then raising children is probably one of the hardest jobs I ever had. The most important thing is just let those kids know you love them no matter what and you will always be there for them. There are many things you can do with them that does not require spending money and it will fit in with how you are feeling at the moment. Quality time is what they need. One of the others mentioned many things you can do with lthem like playing board games or cards, things like that. Get some puzzles and work on them together as a project. When my daughter met her husband, he was in the middle of a nasty divorce that had been dragging on for nearly a year. At that time his daughter was 2 1/2 yrs old. He agonized over not being with her every day and becoming a part-time parent. I told him then, all you need to do is make sure she knows her daddy loves her and is always there for her no matter what. She is 14 now and has adapted very well. In fact she is now living with him and my daughter. Do not let guilt slip in because you cannot afford to buy their every whim either.
I know from experience that many adults do not understand CP and with that said, no, children cannot and do not get it when you say you are hurting or not feeling well because of the pain. If adults can't get it we certainly cannot expect a child to get it. Besides, thats just something that is beyond their world at that age. They do not mean it to be looked upon as uncaring or selfish as a rule. Personally, I kept my health problems very low key when it came to them. I did not want them strressing over something they had no control over, and yes children can stress at a very early age. My health problems were my burdens not theirs.
Again, if you pain is under better control than what it apparently is, you will be surprised at how much better you can maybe feel. Take care. Susie