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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 5/19/2009 3:15 PM (GMT -7)   
I apologize for not being around very much these days.  It would seem that the Spring bug has hit me and I have been trying to help hubby with the yard as well as planting a ton of flowers in the front (Hubby says I have too many LOL). 
 
Anyway, I just wanted to touch base with everyone and let you all know how the plight of "My life" is going at this point.  First off I have been making tons of phone calls trying to get WC of Wyoming to tell me what they have decided as far as setting me up with Pain Psychology.  They are taking their own sweet time about it and I am really getting agravated here. nono   Why can't they just approve my "Hoop jumping" and get over with it for pete sake?  I'm not asking for the world on a silver platter here...Just to have my pain at a decent level!
 
God I hate buracacy (sp)!!  This is not only getting old but way too much!  I have tried to reach my case manager, who is suppose to return my phone calls in a timely manner and I get nothing!  Time to write that letter PA!
 
(For those of you who don't know...Wyoming Worker's Comp has been a pain in the arse for the past 9 years for me.  They have, I believe, stalled my case for their own good purposes and I have been in contact with a state Senator that is on the board of review for the entire system.  It apparently is being overhauled but I have seen little change.)
 
Ugggg!!!!  Again with the answering machine at my case manager's office!  I am so sick of this!
 
Anyway back to me......I'm still in so much pain that now it is getting to the point where I am holding off my regular bathing practices because its so hard to get into the tub and the shower is clear down stairs.  Hubby is now totally taken over the household chores and I feel like a failure as a wife because I can't even put the dishes in the dishwasher cause it hurts so much.
 
Going to talk to doc in June (that's my next appt.) to see if we can up my meds a bit.  I've been only getting about 3-4 hours of sleep a night as well so I nap during the day.  Oh and gee now I am having bladder incontinence because I can't move fast enough to get to the bathroom.  Gee ain't life swell with CP!?
 
You all know how I hate venting to everyone.  It seems so trival since you all are in so much pain as well and have your own problems too.  But....today is a bad day once again and I'm pretty frustrated.  Anyway...I am going to close for now, because I just can't type anymore.
 
Hugssss and well wishes to all my CPers
 
Love
 
Scarred
What doesn't kill us only makes us fight back harder! :P


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 5/19/2009 4:19 PM (GMT -7)   
I am sorry you are having such a hard time. It shouldn't have to be a struggle to get the help you need. I think the system just makes things far too complicated than it needs to be. Maybe it is in hopes that people will just get tired and give up. But you don't do that. Never give up without getting what you set out to accomplish. You can do this. We are here to give you the support and encouragement that you need to get through it.

Maybe asking for an increase in your meds will help. Hopefully your PM will do that.Just explain that you aren't getting adequate relief at you current dose. And hopefully the increase will bring you some comfort and help you rest more.

I understand about your husband having to do most things around the house. It does make you feel bad. I know it makes me feel that way. But he understands that it isn't because you don't want to do those things-you just can't. You have done your share before and then when things get better, you'll do them again. I am in the same boat right now. I have started to do a little more than I was doing. But still not alot since my surgery. I do only what I think I can do. I have cooked a few meals but nothing hard and nothing that was too time consuming.

Hang in there friend. You'll get through this. One this CP has brought to our lives is that it makes us tough. If you can get through a day on CP, then you've accomplished alot!!!lol
Anice

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 5/19/2009 4:19 PM (GMT -7)   
Oh Scarred, u are not a failure!!! It sounds like u have been blessed with a wonderful husband who does seem to understand CP somewhat!

Im sorry ur having such problems with WC! It sounds like today was a bad day for you....i do hope tomarrow will be a little better for you....im sending u gentle hugs!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 5/19/2009 8:33 PM (GMT -7)   

Hi Scarred:

I, too, am sorry that you are in so much pain, I can relate - I've been at a steady 8/9 for several weeks now, with days where it's a 10+.  Stress just makes the pain worse or our tolerance less.  I'm glad that your husband is so supportive - my husband and kids are the only thing that keeps me going most days.  Hang in there! 

Lorie 


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 5/19/2009 8:50 PM (GMT -7)   
Scarred, It is good to hear from you just not good to hear what you are continuing to have to go through. I am also glad that you have a husband that cares enough to pitch in and help out. I have dealt with many couple that the husband seems to think that no matter what, there is womans worm and mans work. I have conducted hundreds of weddings and the vows that most people used included "for better or worse." It is easy to say those words on a wonderful celebrative day but another thing when things are not going well and the respect and true love continues to shine through. With the disappointment with WC, allow the fact that you have such a wonderful husband make the difference for you each day.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/19/2009 9:52 PM (GMT -7)   
Scarred,
I have been wondering how you were doing and missing you! I was just about to post to see if I could snag a response, so it's good to hear from you, but like fatherjohn said not so good to hear how things are going.

I would also ask your doctor if he can help any in this process. Light any fires for you. Sometimes calls from a doctor's office can scare people, especially if he says you're getting more symptoms (or worsening symptoms) because of the wait. Something that might make them liable under the law, but I'm taking a shot in the dark here.

I do hope you get some relief and can get back to your warm baths. I know those are soothing for you. And maybe take it easy on the outdoor work!

(((((((((((((Scarred))))))))))))))

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 5/20/2009 12:48 AM (GMT -7)   
I wanna thank each of you for your warm and encouraging responses. I knew that if anyone would understand what I was going through it would be my friends on HW.

Anice; It is always a pleasure to hear from your end of the table and I think that a bump in meds will at least bring me some kind of relief. So we shall see what happens on that end of the spectrum. I'm not giving up ever. That is one of my vows to myself that I made a long time ago when this first began. I will fight for myself for I know there has to be something out there that they can do. Of course this is not only a selfish act either...for in my mind I think with one good outcome it helps someone else as well. So if by me being direct with WC and more agressive with my care I hope to also attain information for others out there that are in pain as well.

Shannon; You know I always enjoy reading your posts. After dealing with this stupid desease for so long I think as a patient we tend to look for a miracle. Sometimes this can be good and sometimes not, but for me the fight goes on and I won't give up until I am decreased on my pain.

Jet; Everyone says "Pain lets us know we are alive." But geez does it have to rage for so long? I truly know what you are going through and I wish I had a magic wand to take away each one of my CPers pain. Since I haven't been sleeping well its really gotten to my psyche and its driving me insane that I can't get a good nights sleep. I do think that our sleep patterns have tons to do with how we interact during the day because if we don't get our 8 hours of recoop sleep it makes us grouchy and totally unbearable to live with. This increases our pain and that makes it even worse. Even though the weather here has been great, the new humidity factor that I am now dealing with living in KS is beginning to make it impossible to deal. Too the hot flashes are totally out of control and I really need to get into a doc to see if the ovaries are conking out on me.

FJ; It is always a pleasure to see you. I think that when couples take their vows some just think that its only as long as they want them to be, then when its outlived its usefulness they begin to do whatever they want instead of realizing that they have a partner in this journey too. When I said my vows to my husband 13 years ago (celebrating our 13th year in 4 months) I did not take those words lightly and neither did my hubby. For Better or Worse....In sickness and in health. He tells me its his job to make sure that I am comfortable and to try and help me out as much as he can. For all that we have gone through in our marriage I am proud to have a husband that is so supportive and will do anything for me.

PA; I knew that you'd be worrying about me before to much longer and I sooo miss you. I wrote my email to my senator in Wyoming and am waiting to hear back. I don't think that it is fair to say that a person needs this treatment and then make them jump through tons of hoops to get it accomplished. Our system for health care is so deranged and messed up that it needs completely overhauled. I've heard and seen so many be dumped, harassed, and screwed around by the WC system not only in WY but in other states that it amazes me that no one has screamed sooner. Maybe they have and its just taken this long to have someone listen, but its unfair treatment and its gotta stop. I will march to Washington DC if I have to just to be able to get us CPers the proper treatment. I want our voices heard from each state and each city and each town. We Will NOT Stand For This!

Anyway, gotta close for now. Sorry that I made this so long.

Hugs

Scarred
What doesn't kill us only makes us fight back harder! :P


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/20/2009 5:12 AM (GMT -7)   
Hi Scarred,
I'm so sorry I didn't write to you earlier and also that your pain is raging again. I wish I had more to add to what the others have said but some very smart compasionet people got here before I did and they are much better at the support thing than I am. I just wanted to say, I'm here praying that your pain will let up. As PA said, maybe the Spring in all it's glory got to you and took hold of you and while out helping your Husband maybe you overdid it a little? I know I often get myself in trouble the very same way! Please be well little Sister!
We all care for you!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis headed for Hawai and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" on their way to the Middle East w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 5/20/2009 5:55 AM (GMT -7)   

Hi Scarred,

I am so sorry that you are having pain worse then usual......I hope you are feeling better today!

(((((((((((((((((((Scarred))))))))))))))))))))

XXOO

Patti


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/20/2009 11:08 AM (GMT -7)   
Oh my gosh, scarred, I'm so sorry they are giving you the good old run around,
sure wish these thing were easier for those that like you are truly hurt and hurting
too many bad apples spoiled it though, anyways,
I'll be thinking of you and sending hugz...
don't over do it in the garden...
so far my topsy tervy tomato plant is still alive..
((((((((((((((((((((((((((Scarred)))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 5/20/2009 7:10 PM (GMT -7)   
Hi Scarred,

I too am sorry to hear that you are in so much pain & are still getting the run-around from WC! I wish they would just open their eyes & picture a day in your shoes. Maybe then they would feel differently! Hopefully they will start getting back to you soon, and your PM will be able to help you out in the pain department when you see him/her next month.

Glad to see you are back! I missed you too! Be careful with that yard work, take your time & don't overdo it! (((((((((((((((Scarred))))))))))))))))))

hugs,
Skeye

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 5/21/2009 11:45 AM (GMT -7)   
Scarred, I just wanted to drop in and see hope that you are feeling a little better today. I am still thinking about you.
Anice

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/21/2009 3:57 PM (GMT -7)   
Scarred,
Are you starting to get ready for another Beach Party??? I'll need a little help once I get ready to get it off the ground!!

PaLady smilewinkgrin

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 5/21/2009 3:57 PM (GMT -7)   
Hey all. I had to take yesterday off from the puter. Did too much I guess. You should see my flower garden! It's growing like crazy and all but about 6 of my plants are up and growing like mad! It's nice to see that I can grow things once in a while LOL. Anyway....pain level is down a bit from when I last posted. Yesterday it was so horrible I cried all day. Hubby felt so bad for me that he let me curl up beside him while I cried like a baby. I hate it when I get days like this....makes me feel so bad. Anyway, hugsssss

Scarred
What doesn't kill us only makes us fight back harder! :P


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/21/2009 4:00 PM (GMT -7)   
Scarred,
We were posting at the same time! Be sure to read my post!

PaLady :-)
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