Update on Treatment

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LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 5/24/2009 11:18 AM (GMT -7)   
Ok I have been so busy replying to posts since my last appointment that I have posted an update yet.
 
I went to the PM and we went over how the 3 nerve blocks went.  I had sat down with my husband the night before to think over what has happened so far.
 
Most of you know I started with 3 injection 1 every other week.  Its been two weeks since the last injection which ended the series.  I feel I gained a 25% relief in pain on my right urological side.  The injections sucked, one gave me a migrane and an ER trip, one hurt REALLY bad and the other went fine.  But after talking with the hubby we agreed any relief is worth any complication minus death of course.  My only concern about continuing is getting off track with the right and left sides.  I would love to have them both with some relief at one time.
 
I told the doctor.  She set me up with 6 sets of injections every monday.  We will alternate each week on each side.  Hopefully this will give a combined relief.  After the six weeks we will see how long I sustain some pain control.
 
I told her my pain meds cover my daytime while I'm at work.  They have only presribed 4 percs 10/325 a day.  With my work and all the lifting I do I take my first one at 4:30 am and my last at 6 pm then I'm out for the day.  So she prescribed Tramadol.  I started to laugh.  I used to take them a long time ago and they worked like asprin.  She informed me there are new ones that are time released over 24 hours and we would start out with 200 mg and possibly go up to 300 mg.  I used to take 50 mg so maybe this will make a difference.  There are two of these pills on the market but one gives you an immediate peak effect so she told me to take it at night to cover the baseline pain I have during the night.
 
We even talked about when the disease progresses what we will do.  There are 7 doctors in the pain group.  6 deal with moderate CP with guidelines on what they can prescribe.  Then there is 1 that deals with longterm severe pain.  He is allowed to presribe more and at higher levels.  She said he has to educate himself on a regular basis with classes and seminars. We are hoping this won't be for another year or two.  She told me not to worry they will handle my condition for years to come.
 
Ok now I think I covered it...lol
 
Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 5/24/2009 5:19 PM (GMT -7)   
Hi Laurie,

That is GREAT that you are getting some reliefs from the blocks! Of course, the relief isn't ideal, but at least you are getting enough of it that you feel that they are worth continuing. Hopefully each block will give you more relief, and for a longer period of time (like they are supposed to, if they seem to help at all). I hope the med chance also helps you out! I personally think that the night is the worst time to be in pain, although unfortunately for me & many others, it seems to be the time in which our pain is at its worst. Hopefully this will be no longer true for you!

hugs,
Skeye

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/24/2009 9:11 PM (GMT -7)   
Laurie

I do hope this works well for you! You have been through allot already I do hope this gives you some relief! I must say, I have followed some of your post, for such a young woman you sure have allot going on with your different medical problems and trying to control your pain, and then dealing with your husbands Gulf war complications, and your sons problems. An then to top it all off you post here and try to help everyone with such a pleasant attitude!. I personally don't know how you do it all and still maintain such a positive attitude! What ever your Doctors are doing for you, I sure wish they could bottle it up and pass it around, because what it is doing for you is truely remarkable! And I do hope it continues to work well for you!

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/24/2009 11:49 PM (GMT -7)   
Laurie, I wish you good luck with the tramadol and keep us posted as to if it helps..
I'll be watching...
Soft Hugz for now with thoughts of success with these injections and meds...
Hope you get low pain days...
((((((((((((((((((((Laurie))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/25/2009 12:06 AM (GMT -7)   
Laurie,
I have to echo all the other thoughts, especially those of White Beard. You have been through so, so much in your life. I certainly hope you can get some relief for yourself. You have more than earned it!

PaLady

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 5/25/2009 9:10 AM (GMT -7)   

Thank you everyone for your posts.  In my mind any relief is better than none.  I will jump thru hoops if even 1 procedure out of 100 would work even for a short time.

WhiteBeard and PAlady.....  Your post brought tears to my eyes.  I have never really looked at everything all at once.  In fear if I did I would collapse in on myself.  I try and deal with one thing at a time.  Plus my mother instilled in me that everything happens for a reason.  We might not understand while we go through the hardships but in the end it will become clear.

I've also grown to love this forum in such a short time.  Before I felt alone and dealt with everything on my own.  Now I've found a place I can have support and also support others that I love to do.  If one choice bad or good helps another it is all worth going through the choice from the start.  Laughter helps me make it through everyday. My family has the best sense of humor we can laugh at the worst of events even if we are crying.  Outsiders think we are insane... yeah

Once again thank you all for replying

Laurie


39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all

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