White Beard Volume (2)

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straydog
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Date Joined Feb 2003
Total Posts : 13451
   Posted 5/29/2009 9:47 PM (GMT -7)   
Hi White Beard,
 
I decided to start a volume 2 since the other one was getting lengthy and they do not like for us to get over 3 pages.
 
I have been away for awhile, got down sick with a crohns flare, that stinks, you have UC-well, I was dx-d with it as well back in 05 after a scope. Got sick but a different sick than crohns. How do you keep your UC under control? My internet modem went south on me and I had to buy a new one, then had problems with the phone line and had to get a repairman out here and been busy with the grandson too.
 
I read about the findings of the MRI and really do hate to hear whats going on there.  I do not blame you a bit fo being concerned and nervous.You sure have alot on your plate at the moment, well actually for awhile.  Yep, seen more people have Eppies with no change than ones that it worked for. Just another bandade to cover things up with. My old pain mgt dr I went to in the 90s for so long told me they rarely work on people. That came straight from the horses mouth. I said I always felt like it was a way to pad the bill and he looked at me and grinned real big, because Eppies are not cheap.I think you said your 2nd one is the 10th of June-my birthday, maybe it will bring you good luck, lets all hope & pray for that one. What were those people thinking at the facility about giving you a Xanax right before the procedure. They need to look in the PDR and see just how darn long it takes for one to take effect. If you have the Xanax at home, I would take it 45 min before the procedure and not say one stinking word to them. But you have to do what you feel it is right.
 
I hate to say it but I am really beginning to get a bad attitude towards drs these days. I guess its from own personal experience and then coming here and reading what some of the people are getting put thru needlessly, it just makes a knot in my stomach. I think the old saying ; Ignorance is Bliss; may be correct. Its like you said in the other post, sometimes having too much knowledge can be bad because we know about alot of this stuff. I am in total agreement wih you on that one. I know I got quite an education in the medical end of things when I worked. I ended up with alot of knowledge and in many ways this knowledge has prevented me from doing alot of things that has been recommended by drs over the years.
 
You have been busy building the new deck/porch. Have you found some muscle yet that can move the frame around back for you? I am quite sure you are paying dearly for the work you did and I really do understand where you are coming from with the frustration of trying to do things and then get kciked in the butt by your body for doing it. That a hard one to come to terms with as far as I am concerned. Memorial day I decided to trim 6 holly bushes behind my pool. I started around 7:00am and walked in the back door at 1:45 when I finished. First time I have done that in  7 yrs. I also had no clue of the time and how long it took me either. I ended up in the shower, 2 pain pills and stretched out after that little ordeal. I am outside no later than 7:00am every day, messing around in the yard or messing  with my flowers and stuff. I have yet learned how to pace myself. Tuesday morning I decided since it was really cool out to try mow the yard. For the past 7 yrs my yardwook has been left to my yard guy. Prior to that I did all the yardwork, it was my therapy  lol. The grass was not high, it just looked better topping everyhing off. Well, I could not pull hard enough on the rope to get it started, my mower generally starts on the 1st pull. So, I went in and asked hubby to start it for me. I got both the front & back mowed and it just felt good doing something I use to do. I set my speed control not too far from the snail rate, otherwise this mower puts you at a run lol. I had some trouble moving around by evening and was totally exhausted by the time I finished. 
 
I cannot help but think once your roommate moves out some of your stress will be relieved somewhat. That has to be a really stressful living arrangement. Getting the divorced finalized will also be another weight off your shoulders. Yes, it is tough seeing a for sale sign go up in your yard, I have been where you are at right now before.  But here is to the new chapter that will open up in White Beards life before too long. Its only got to get better the way I see it, its your turm now for something good to come your way. I think you know that is the way all of us here feel about you. ....Susie
 
PS: Still have to return the card for the digital frame-will try to do that over the weekend.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/29/2009 10:56 PM (GMT -7)   
Straydog
Thank-You I really appreciate all your support! So your Birthday is the 10th, mine is 7 days later! Actually I was born on Fathers Day, and every so many years it falls on Fathers Day! I agree with you about the Epidurals, but the Doc wanted me to have them before I see a surgeon, the 2nd I get the EMG done. We got the porch moved yesterday, and I finnished putting it together today and tonight ( actually yesterday and last night!) so it is all done now. I can't hardly use my left arm, it hurts so bad, as well as my neck! I am glad he increased my break through meds! Your right Susie getting this divorce finalized will be a big weight taken off my shoulders! I talked to my Lawyer yesterday, I am hoping we can get a court date soon, and get this thing over with!
Thanks again Susie for everything!
White Beard
P.S. Let me know how that Card works in your frame
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 5/30/2009 3:15 PM (GMT -7)   

Hi White Beard,

Well, I planned to return the card I bought for the digital frame today but that was not to be. You know the one I bought was the wrong size, rats, the story of my life lol. I was sick as a dog this am when I got up. I believe what I ate for dinner last night did me in, my fault tho. Our grandbaby called after his nap yesterday wanting to be taken out to dinner last night lol. Yes, he calls for breakfast, lunch, dinner just whatever he can get. He knows the number on speed dial. He likes Golden Corral because I let him carry his plate and pick out his food, of course he loves the chocolate cake. I ate their ground beef patty and red meat does not work well with me. I spent the bigger part of the morning talking to the porcelain gods and then finally stopped long enough to get a Zofran down.

So, I guess tomorrow will the day for me to run to Walmart and get the card business handled. I plan on getting me a float and a thermometer for the pool. I think my pool should be warm enough to get in by now. Its a hot one here today, so far 92 out and thats warm enough for me. I do not do well in the heat, thats why I do all of my outside work so early in the am. When its this warm my portable oxygen tank gets too warm and I cannot stand that. I sat in this float type chair at my daughters last weekend and really liked it and just found out where she got it.

So, you are a Gemini too lol. I am for sure a true one per my daughter lol. I have a funny one-I have been telling everyone this past year that I would be 57 in June. Well, I will be 56, not 57. I have no idea where that came from, but I was talking to my sister a few weeks ago and I told her our brother had turned 60 on his birthday in April. I always know his age because he is 3 yrs older than me. Well, she informed me I was wrong on both lol. So, I decided to feel a year younger than I thought I was. How I got screwed up on that one is beyond me lol.

I hear ya, sometimes we have to jump thru the hoops with these drs whether we want to or not. Not a very sign with that left arm pain and the neck pain. Curious to see how the trip goes with the surgeon.

Yes, it will be a big relief to get the divorce business done and behind you for sure. It has to be really stressful with the living arrangement, my hat is off to you, I just do not have the right temperment, I am afraid I would become so bitter having to see that person day in and day out, that it would just get right down ugly lol. But we gotta do what we gotta do sometimes. My daughter & her hubby are in a child custoday situation that has been going on for nearly a year now. The mother is not really fighting them so much as she is just goofy and does not show up for hearings and things like that. My daughter says that physically, mentally and financially this how done them in. They finally have a trial set in the first part of July, and we are really hoping this is the end of it before school starts again. This has really been a tough year for my grand daughter too. The poor thing has such stomach issues just from nerves alone. She missed the last day of school and had to be taken to the dr.

Have a decent weekend and try to rest up since you have the deck taken care of. Susie



White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/30/2009 3:41 PM (GMT -7)   
straydog
So you will be 56? you were born in 53? See I will be 58, the 17th I never did see much in Birthdays, Just another day! We have been in the 80's I am not overly fond of hot weather! give me 50's at night and 65 to 75 during the day and I would be fine! Anyway hope you have a really nice Weekend straydog!
White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 5/30/2009 9:49 PM (GMT -7)   

Hi Straydog:

We have something else in common - my birthday is June 10th too!  and I am an identical twin.  I married a Gemini as well (his bday is the 20th).

Whitebeard:

I'm glad you got your deck done, but I'm sorry that you are in so much pain because of it.  I pray that your next epidural gives you significant long-lasting relief!

Lorie

 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/30/2009 10:12 PM (GMT -7)   
bluejet2
Thanks, you know I never have had very good luck with epidurals in my back, I have have had the steroid injuctions in my shoulder and they would last for months, but not in my back! But I will admit they usually last longer than just a few days! But I am glad I got that porch done! one more task I can mark off my list! Anyway Tuesday I get the EMG done and the next injection on your birthday, maybe that will bring me luck! Lorie so you are a Gemini and also and identical twin? Thats pretty neat! You know my soon to be ex was also a Gemini her birthday is today or yesterday it was the 30th!

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 6/2/2009 11:15 PM (GMT -7)   
Well I had the EMG done this afternoon, I think it is kind of funny, a couple of months ago I guess I made an appointment with my neurologist for a follow up after he sent me to a clinic in Chicago, while at that appointment I told him about the problems I have been having with my arm and neck, he ordered a cervical MRI and a follow up appointment with him 5 or 6 weeks later. He was very curt with me at that appointment and I kind of felt like he was blowing me off, or he was just real busy that day! Anyway a few days later I went to my Pain Doctor for my monthly refill appointment I mentioned to him about my problems with my arm and neck. As you might remember from my post, he ended up ordering a bunch of test, including another MRI, lots of Xrays and blood work and a EMG of my left arm. Well today I got the EMG done, by the same Neurologist that I had seen and who had ordered the MRI of my neck. He acted like I was a stranger and like he had never seen me before??? He asked me who ordered the EMG and why? I told him that I had mentioned to my pain Doctor about the problem I was having and then he ordered all these test and how after looking at that first MRI of my neck that he ( the neurologist had actually ordered) my pain doctor had given me the Epidural injection at the fusion site and I was sceduled for another Epidural on the 10th the same day I am suppose to see him about the results of the MRI, he gave me real odd, kind of quizzical look, and then proceeded with doing the EMG, he was thorough and explained everything, as he was doing it. I even commented to him that I appreciated the explanation of what he was doing and why! But he still acted like he didn't know me, or had ever seen me before??? Anyway the nerve conduction study part, ( where they tape electrodes onto you and then shock you ) that was all normal. Then the other part of the test that measured the electrical activity of the muscles, this is where he puts a needle into the different muscles and then has me contract that muscle by moving my arm or hand in different ways and pressing against the resistance of his hand. Anyway he said if they were normal that would be the end of the test , if they were abnormal he would have to do further testing and he would have to put the needle into the different muscles in my neck to further test the origin of the problem! Well I ended up getting the needle into the muscles in my neck, all of this portion of the EMG test was all abnormal. He even kind of acted surpriised by the reaults as he was doing the test, and asked me about where I had my disc fusion! Anyway after it was over and as he was walking out the door he made a statement, but didn't explain and he did not stick around for me to ask what he meant. He said, "well this test proves you are not making this up! you do have a legitment problem with definite denervation, I will get the results to your Pain Doctor so he can determine what he wants to do next" I thought that was an odd statement to make, I know for fact my pain doctor did not think I was making this up, I am wondering if maybe he did???, as I have only seen him a couple of times. And the last time I saw him I thought he was blowing me off. Now all I have to do is wait till the 10th for my follow up with him and then the second epidural.

White Beard


  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/3/2009 12:20 AM (GMT -7)   
White Beard,
I guess my reaction to what your neurologist said at the end is what???? It does sound like that doctor didn't believe you, but why on earth you'd be making all that up....I don't get it. I mean you've got a history with your surgeries, etc. I'm glad your PM is stepping up to the plate. Sounds like you need another neurologist!

But I'm glad the EMG is over. No fun - especially when things are abnormal.

Glad you told us how it went. I thought I remembered you had something scheduled today, but wasn't sure. Fatherjohn and I have a "party" day next Monday! smilewinkgrin

PaLady

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 6/3/2009 5:00 AM (GMT -7)   
Whitebeard:
 
I am glad the EMG is over and done with - I know it can be a very painful test.  The last one I had on my legs I got a similar reaction from the doctor doing the test, (a doctor I had worked for in the past).  I think he was so used to getting negative results from people who were "abusing the system", that when he did mine and starting getting results that proved I had a legitimate problem, he didn't know what to do with himself.  He got antsy/excited, and kept apologizing every time he had to shock me, and said that he knew he must be causing me pure agony.
 
Every couple of years Social Security Disability does a review to make sure that you haven't "miraculously" gotten better, and the last time I had one done on me, they sent me for an I.M.E. (Independent Medical Exam), and the doctor as well as his Nurse and x-ray tech kept saying that they were so sorry to see me in such pain, but that it was a welcomed change to see someone who truly deserved the benefits getting them.  It's sad that we are the exception and not the rule!
 
W.B., I know you are going through a rough time right now, and I truly am sorry that you are in so much pain.  I pray that the procedure on the 10th gives you some much needed, long lasting relief.  Now that your deck is done, please put a nice lounge chair out there, sprawl out, relax, and admire a job well done!  Put some ear plugs in, or even better, some headphones with your favorite music so you can ignore any further critisizm!  By the way, I loved your poem on the subject.You should take some pictures of your handiwork and attach them to one of your posts so we all can admire your work!
 
Feel Better W.B.,
 
Lorie
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 6/3/2009 6:03 AM (GMT -7)   
Awe WhiteBeard, it was rude of that doctor to even think were making this up, Geezee..Sorry you have to put up with him..
Sure hope these injections might work for you..I've been thinking of you and wondering about you..Keep posting so we can get the updates..
lots and lots of soft hugz
((((((((((((((WhiteBeard))))))))))))))))))))))))))
Lots of those hugz too...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/3/2009 6:21 AM (GMT -7)   
Hi WhiteBeard,
What a JERK this Neurologist is and how cruel to make you wait for the results! I don't know if I could have kept my mouth shut when he made the comment...."well this test result proves your not making this up?" Please let your PMD know how you were treated, hopefully, this will be the last time he refers to this Dr.!
I hope you get your answers soon and some well deserved pain relief!
Thanks for sharing!
((((((((((((((((((((((((WB)))))))))))))))))))
XXOO
Patti

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 6/3/2009 6:59 AM (GMT -7)   
Thanks Chart, Bluejet, and PALady
 
This whole ordeal with this neurologist is kind of weird! Being the fact that he is the one who ordered the MRI of my neck and all, I would have thought he would be the one to really address the problem, and  handle everything, but instead it is my Pain Doctor! When I first told this Neurologist about my arm, I told him it reminded me allot of when my disc went bad and then I had to have the discectomy and fusion. That is when he said he would order the MRI, and as it turns out that disc fusion  is what now causing me my problems. I got blown off and given the run-around for months back then, and now this Neurologist kind of reminds me of some of the Doctors I had seen  back then. I hope History doesn't repeat its self! Maybe it is because,  I am able to do stuff that I shouldn't really be able to do, with the damage that I had, I know that is how it was back then, all I had was severe pain, and the Doctors never could explain why I wasn't a quad and showed no real physical deficit other than pain. Even now I can move my arm and fingers, it is just that it hurts  when I do, and the constant pain from my elbow down into my fingers, and the pain in my neck! My main complaint just like before is Pain!  Anyway his statement and attitude just took me by surprise,  and admittedly also kind of bothers me!  Thanks for listening and let me vent! I really do appreciate it! I will keep you posted on how it goes!
 
White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/3/2009 11:07 AM (GMT -7)   
White Beard,
I wonder if part of the treatment you received (which, by the way is similar to kinds of treatment I've received over the years) is because doctors don't want to have to start treating PAIN because that means those awful meds they don't want to prescribe. So it's easier for them to push us aside for as long as possible.

You know the neurologist I've seen for over 25 years (I've gone to that office for that long, but unfortunately the neurologist I really liked retired a few years ago) for my seizure disordre is fairly blase. He pretty much has been used to me being healthy, seeing me once a year and doing a basic neurological exam that took about 5 minutes, doing some blood work and giving me a script for my anti-consulvant meds and that was that. Then I was injured and everything started to change. He would order tests but then refer me off for additional treatment. Refer me to PM's who did nothing but injections. Refer me back to my PCP who wouldn't prescribe any narcotics until she knew I was pretty much on my way to surgery - then she gave me two vicodin/day, one of which was so I could get some sleep. I was horribly sleep deprived and didn't know it. I'm saying all this because the neurologist was and still IS the specialist who should be treating a lot of my pain because a lot of it is nerve pain, but he tells me they're 'not set up for that.' I wonder if your neurologist just didn't want to acknowledge your pain because he didn't want to have to deal with it.

Either way, it's wrong for you to have been treated that way. I am getting so sick of this!

hugs,

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 6/3/2009 10:10 PM (GMT -7)   
Thank You PALady

It kind of irritates me too! I am just so Thankfull that I have such a good and caring Pain Doctor! I don't know what I would do without him! I do hope you are doing OK to PALady!You have that double scope job coming up don't you? I hope that all goes well for you! I assume you have your driver all set up? Did they tell you that you should have someone with you for so many hours afterwards? Anyway I will be thinking of you and hope everything is OK for you!.

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/3/2009 10:19 PM (GMT -7)   
White Beard,
Yep, they're scoping out both ends on Monday! I'll remember to tell them to do the endo first, like you suggested! LOL My cousin will be driving me (had to ask for a ride - you'll get to know the drill). They always say to have someone stay with you but I have never done that. My cousin doesn't live that far away. Heck, I came home and stayed alone after I got out of the hospital from my double fusion! When you're alone, you test and learn the limits. Sometimes the CYA policies from hospitals and doctors are just that, as you well know. So I use my best judgment. I'm not stupid about it, but rarely is it needed. If I wasn't feeling well once I got home, my cousin would hang out. She only lives about 10 minutes away, and I have neighbors if it was a real emergency. I just dread the prep on Sunday!!

BTW, did you ever read Dave Barry's colonoscopy blog? (he's a humorist writer) It WAS hilarious when someone sent to me awhile back after they had their colonoscopy. Not so funny now! LOL

PaLady
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