Morphine for Diarrhea - the drawbacks

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Morgoth
Regular Member


Date Joined May 2008
Total Posts : 177
   Posted 6/4/2009 2:38 PM (GMT -7)   
I'll keep it as short as possible.  I suffer, amongst a lot of other things, from chronic diarrhea for more than 20 years now (average of 8 hours a day) and 15 years of chronic intestinal bleedings (Hemo as low as 5.1).  I can no longer have blood transfusions as the blood is broken down immediately resulting in even more bleedings.  No cause has been found.  My body no longer tolerates vitamins or minerals, either orally, IV or IM.  I'm literally living on water and (stale) bread.  For the past 4 years I've been detoxing in a final effort to find out what was wrong through extrememly detailed research of a clean system.  Nothing.  Now, all that is left, is morphine and anti-epilecptic medication.  It's the morphine I'm worried about.
 
I had morphine before, but for limited periods.  I was on opium derivatives for more than 20 years, but codeine and opium tincture didn't do the trick.  Morphine reduces my diarrhea and my bleedings.  This is the only chemical that has any significant effect, we tried all the rest.  Now my doctors have to give me morphine for the rest of my days just to keep me alive.  I can deal with pain, but what troubles me is that I'll turn into a zombie again like I did years ago before I copletely detoxed.  The min. dosage required is 120 mg a day (MS Contin) but this is the absolute minimum.  My doctors are already talking about a dose in the hundreds of mg a day, even up to and including 1,600 mg in the worst case scenario (more is certainly lethal).
 
I would like to know if anyone had or has any experience with prolonged morphine treatment, we're talking years here.  The only positive issue here is that I don't take it as a pain killer so when I grow accustomed to the use I don't need to increase the dose and the side effects should diminish.  ALthough I fear I might no longer be able to function properly with too high a dose.  120 mg is tolerable but I don't know what higher doses will do in the long run.  If course I'll be addicted but there is no other option left.  I just want to know what I'm facing here.  My doctors haven't given such doses to anyone but termnal cancer patients.  They got their figures from the Mayo Clinic and th US Government (I live in Belgium) but both were unable to provide more details about long-term use of high doses.  This is pretty much experimental as my intestines are rather unique.
 
Any insight in what to expect is welcome as well as any help, if that is possible, on how to counter the effects of morphine addiction without additional medication.  Dietary advice that might reduce morphine drawbacks and such, if this is technically possible of course.  I know the chemistry but don't know much about dietary requirements (living on water and bread).  The idea is that with the diarrhea more or less under control, vitamins and minerals could be absorbed through "food".  A new concept to me!
 
All help is most welcome.
To stand and be still at the Birkenhead Drill is a mighty bullet to shew.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/4/2009 2:48 PM (GMT -7)   
Morgoth,
I so wish I knew something about this, but all I can offer right now is support for all you're going through. I just can't imagine all your must be dealing with physically.

If you are still working, you're an amazement. I remember from before you made some adjustments in your work activities, but I don't know how you can have any energy with eating so little.

I wonder if anyone on the other parts of the forum might be able to offer some input, especially those dealing with GI disorders.

I wish I could help more.

PaLady

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/4/2009 3:16 PM (GMT -7)   
All I can say in MAM O MAN!!!!

You have it rough. I don't have any answers to your questions just like PAlady but I will wish you all the luck in the world. Others on here I know have taken higher doses of morphine. Give them some time they will respond to you.

You will find out all of us here will help you through anything you have to go through...

Your in my prayers
Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/5/2009 8:34 PM (GMT -7)   
Hi Morgoth,

I too wish I had something to offer you, but I've never been on morphine. I too have serious problems with drug resistance, although probably not as bad as yours. I've only been at this 2 1/2 years, and we're talking different drugs & different circumstances.

I admire you very much. I cannot even begin to imagine being in your situation for a week, let alone 20 years - both physically and emotionally! You are truly an inspiration! I very much hope that the morphine helps you & does not affect your mental capacity significantly, and that one day science will advance far enough to give you some answers AND help treat you!

Best of luck to you! I'll be keeping you in my prayers!

Skeye

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 6/6/2009 8:27 PM (GMT -7)   
Have you tried Provigil (generic: modafinil)?
It has helped me a lot in the past with the sleepiness & zombie feeling. It is not covered by all insurance companies, so be sure to check that out before filling it, but it works wonders for me.

good luck!
frances
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