Friday!! waaahooooo Koffee Klatch Time!

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Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 6/4/2009 9:52 PM (GMT -7)   
Welcome to Friday!! For those who are new or to anyone who has never joined in our Koffee Klatch, please come on in! tongue This is a tiny bit of time each day where we just have fun and the 'P' word (p a i n) isn't allowed...lol Anyone who suffers from disorders on Healing Well is welcome no matter what your condition. So, join in and have some fun today!

The question for today is...What's your bedtime routine? And, since I post this just before I hop into bed here on the West coast USA, I'm going to relinquish the first post to whoever comes along. I'll post my routine later.

Hugs,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/4/2009 9:56 PM (GMT -7)   
I read, usually something light and fluffy like a thriller, I have my heat pack snuggled against which ever bit of me is in most need, my wrist braces on for carpel tunnel, my nose buried in my book and I'm happy.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 6/4/2009 11:31 PM (GMT -7)   
I clean the seals on my Liberty CPAP mask , then I take out my pony tail and put my pony tail back in but on my front right side of my head and then fold it over and put clips in to hold it in place! Then I wash my face and beard really well and I leave my beard wet, and I swab my nose with saline gel ( just inside each nostril) then I put on my Liberty mask and hook up my hair elastics on it ( it is my mod to keep my nasal pillows in place on my mask) and then after I get my mask on I turn on my O2 concentrator and then hook up my VPAP hose to the mask and put the Pulse Ox on my finger and breath deeply into the mask and then my VPAP machine turns on and I turn off the lights and hopefully fall asleep! Oh yes I forgot to mention I hit the controls of my remote for my bed and get the bed in a nice recliner type position, sleep in a Fowlers position as I can not lay flat! Here is the place to see my mask mod and what I use to look like wearing the mask. ( my beard was short then)
http://www.apneasupport.org/viewtopic.php?t=16079&start=15&postdays=0&postorder=asc&highlight=liberty

White Beard
If you get to the site just scroll on down this is what I look like when I go to sleep!
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 6/5/2009 12:29 AM (GMT -7)   
Hehe Fluffy Thriller! Im grossed out and odd enticed by Richard Laymon lately *shiver* I just finished reading "cuts" oh my gosh I got the heebies jeebies for days 8O)


check the door locks 3 times
Wrapp up my busy lil sleepers
check door locks again
Grabb my Luv Bugg ( I got a lovie, gotta problem with that?)
curl up to my Kindle
Nora Roberts here I come!
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/5/2009 1:51 AM (GMT -7)   
I take my bottle of water (dry mouth) have computer ready to go, lay down between 9 and 10, wait until wife goes to sleep at 11 or 12 then I get up, eat a bowl of cereal, work, get on forum, watch TV until between 2 and 4 then back to bed until 6 or 7 then off to work. It just doesn't get more exciting than this.

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 6/5/2009 3:26 AM (GMT -7)   
I eat a bowl of cereal and oatmeal and watch television and read some verses.

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/5/2009 6:24 AM (GMT -7)   

Go to the cabinet to take meds, brush my teeth, change into my nightshirt, go back to the kitchen make sure the dogs have water, pop my herbal heat pad in the micro for 2 minutes, shut off all the lights, lock doors.....place the heating pad on the pillow, get into bed and play the adjust the pillow till it feels just right game, finally get it where I want it lay my head down and wham I'm asleep....sleep for about an hour and then up every 2 hours after that.  I'm exhausted reading what I do lol

XXOO
Patti


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 6/5/2009 9:58 AM (GMT -7)   
WhiteBeard, I typed in the address you gave to see what you look like, it went to an apnea support site. I don't know what I did wrong!
 
Okay, my night routine is to take a hot bath with my book for about 30 minutes, if I can. Sometimes baths are in and out due to the p... then I get dressed, brush my teeth and get in bed. I'll read more while husband watches tv,then turn the heating pad on(husband turns it off for me a little later), and try to sleep. Nothing too exciting...
Anice

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/5/2009 11:36 AM (GMT -7)   
Anice...go to the page that White Beard posted...I just cut/pasted. Then go down the page and there he is in all his glory! and that wonderful white beard. ;-) What a handsome guy and I'll bet he's even better looking without the CPAP mask on...lol

What we need is a more current picture of him.

Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/5/2009 11:55 AM (GMT -7)   
What a variety of routines but we all seem to end in a similar way. Learning to deal with the 'P' word and yet get some sleep.

Let's see...the weekend routine is a bit different from the week nights but similar. Usually hubby heads toward bed and that's my signal to quit whatever I'm doing and head for bed. My goal is always to hit the bed about the same time hubby does but somehow that doesn't happen often. Probably because I'm the one who "puts the house to bed".

Usually it's jammies first, then I get on the forum and post the Koffee Klatch for the next day and if there are newbies or someone who hasn't had a response I try to post to those. Then I go through the house taking care of last minute things.... check dog's water, lock doors and check to see if windows are closed, run dishwasher if it's ready, make sure the cat is IN (she's a real pill come summer time...loves to chase bugs outside at night..lol), if grandson is staying with dad then I feed and water his birds, do potty routine <blush>, sometimes

Then off to kitchen to check blood sugars for the night and take some insulin for over night, sometimes I get a bowl of cereal or other snack to enjoy in bed because by this time hubby is sound asleep and his CPAP machine is humming away. Darn...didn't get there early enough for snuggle time again! Find glasses and current book I'm reading, pile on bed with book and cereal and munch away. Then begins the dance of the cat who's trying to get her nose into my cereal bowl. She tiptoes onto my book and gets as close as she possibly can before I push her back. I leave a few tablespoons of milk in there for her. She isn't too fond of milk from the carton but inhales the stuff if it had cereal in it first. Go figure...she's a cat!...lol wink

Then it's back up and brush teeth, turn on electric blanket if I haven't already and pile in. I'm one who also wiggles and squirms and joggles and waggles, all while on my back. But the pillows have to be JUST right as do the sheets and blankets. I can feel any wrinkle beneath me and will not sleep if it's there. Then the reading starts. And awake or asleep, hubby gets a back rub while I read. smilewinkgrin I feel wide awake when I hit the pillow but about 1 paragraph and my eyes weigh about 3 tons. Put down book, turn off light and out I go.

Then the night time routine kicks in. Somewhere between midnight and 2 I'm up from pain. So it's off to my recliner in the living room to spend the rest of the night. If I'm having an exceptionally painful day I start my night there because laying on my back is even more painful, especially for long periods of time like over night. Once in the recliner I pile on my favorite blankie, turn on the TV to keep me company and out I go for an hour or 2. Asleep/ awake/asleep/awake, etc... You all know the drill. If my blood sugars go low I'm up again, if they are high I'm up with a headache. This is why us fibros love afternoon naps. ;-)

I've probably over estimated your curiosity here but that's my routine...
Chutzie scool
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 6/5/2009 6:44 PM (GMT -7)   
Hehe...........fascinating.  Thanks for sharing.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/5/2009 9:06 PM (GMT -7)   
First I must say, we are a strange lot, aren't we? For me it differs when I'm south alone or north with my wife and pets. One thing that is a must for me is two 16oz bottles that were 1/2 full then put in the freezer on their sides. It leaves one side frozen and when I fill them with water and put them in coozies, they stay cold for the max of 6 hours I'll be in bed. Like FJ, I get really bad dry mouth from my meds and snoring! Then it's into th B.R. to take care of all my dutys which can take up to 20 minutes, I can't fall asleep dirty! Yuk!! Then I round up my 4 pillows plus one 5' body pillow and turn on my heating pad. I take a mouth full of pills and climb in. Like Chutzie it takes me a while to get everything just right, a pillow wedged here another there, one between my legs and get the heating pad to stay exactly in the small of my lower back. If I'm up north it means doing all of this in bed with my loving wife and Rose the wonderhound right between us with her front paws sticking into one of us and her back paws in to the other! By the time I get completely comfortable, it's time to get up and pee again! This usually happens at least once an hour if I'm lucky and don't drink to much fluids after dinner. If I do it only means more trips to the B.R. The fine surgeons at Johns Hopkins rearanged my plumbing when they took out my prostate so none of those miracle pills you always see on TV for old guys will do anything for my problem! While working I get about 4 hours and up to 6 on weekends! Anymore than 6 and my body parts get together and have a mutany! They tell my brain that If it dosen't get this hunk of junk up and moving, everything will rust and corode and just plain stop working. Kind of like the Tinman when he gets wet! Sometimes they have a little riot in the wee hours and make me get up and move around some or maybe sit up for awhile before they allow me to go back and fix all my pillows again! Sorry if I am aluding to the "P" word, it was impossable to describe night capers w/o at least suggesting it just a little! Well, thats about it in a nutshell dfull of pillows and hound paws!
Good Night all I hope you all sleap great tonight!!! I have to go play w/ some pillows now! I'm hoping to be able to catch up w/ everyone tomorrow! I posponed my fishing trip till next weekend and will be here (south) alone this weekend> I'll explain tomorrow!
Love Y'all!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis headed for Hawai and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" on their way to the Middle East w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/5/2009 9:28 PM (GMT -7)   
Let's see, a general summary would be that I'm up, down, and all around, all night long!

I tend to be in my pj's long before I go to bed. I spend time here on HW for a while, then I take my meds, brush my teeth & put my lidoderm patch on my face (I look like the phantom of the opera). After that I usually watch TV in bed for a little while (I know, you're not supposed to do that). I usually head for bed between 12 & 1 am. Anything earlier is pretty much worthless, because I know that I am hurting too badly to sleep. I make sure that I have water with me (I too suffer from that awful dry mouth). Eventually I fall asleep (usually sometime between 3 & 5 am), but then I wake up often with pain. When I wake up (and then can't get back to sleep), sometimes I'll get up & watch more tv, do work, or come on the computer, but often times I just lay there, willing myself back to sleep & trying, unsuccessfully, to ignore the pain.

Speaking of bed, I think that it's time for me to head there...

Sweet dreams everyone!

Skeye

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 6/5/2009 10:10 PM (GMT -7)   
Chutzie
I aim to please! Cut and paste this one! This picture was taken this past Feburary!

http://www.apneasupport.org/viewtopic.php?t=20162&start=15

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/6/2009 5:00 AM (GMT -7)   
White Beard you look so distinguished, a definate wise old soul to guide us with your knowledge. Love the round glasses- touch of Harry Potter to add the magic, golitho

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/6/2009 9:21 AM (GMT -7)   
Ditto!!Very handsome.

Chutzie

http://gallery.heyhubby.us/main.php?g2_itemId=162

btw, if anyone is in need of a place to park pictures to share...the site above, with a picture of me and hubby at our wedding, is free for the asking. Hubby keeps the site maintained for any and all online friends to use as a way to share pictures. You might see some folks on there who you recognize by name on the forum. The site is free, no ads, no commercials, no nothing for a free place to post pictures to share. See...there IS a free lunch sometimes.

Just go to the main page, http://gallery.heyhubby.us/main.php , click on REGISTER on the far right, and when hubby gets on his computer next he will send you a password. He most often gets them done the same day you send your request.

If you would like to be on the map associated with the site you can also give him a general location of where you live. Like a town/state or even a county/state...whatever you are comfortable with. Just that easy. Enjoy~~
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/6/2009 7:21 PM (GMT -7)   
Hey Chutzie, what a beautiful family. I'm not very good with computers so I can't promise to send one of us but I'll try to rope my daughter in to helping me, its lovely to put some faces with the cyber families. Best wishes, golitho
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