Not doing so hot lately

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Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/5/2009 10:11 PM (GMT -7)   
Hi good friends:
 
Well, it's been a while since I posted and vented how I am doing, so I think I will take this opportunity to bend ya all's ear, if you don't mind.
 
My fibromyalgia has been killing me for quite some time now and I have increased my Lyrica and I'm taking my percocet, but I am still having a lot of pain all over my body, but especially in my feet and legs.  I'm getting a little depressed to and I'll tell you why.
 
about two weeks ago I had a mammogram and all of a sudden they called me out of the blue and said I needed a repeat of a film on my L breast.  So, fat dumb and happy I go in and they tell me OK the film looks good but the doctor wants an ultrasound just to make sure.  Again I go back and have the ultrasound.  Then the tech calls the doctor and he reads the scan and says do another one.  So she does another one.  Then he comes over and does a third.  Then he tells me there is an "area of concern"  and I need further testing, something called a PIM test.  So on Monday I go for that.  He says he sees something that is very small but has irregular edges, which does not sound good to me.  So now I am worried.  And any of you who know about fibro, know that stress makes everything hurt much worse, so I am hurting for sure.  This weekend is going to be a long one for me.  I can't wait for Monday to get the results of this new test out of the way.
 
For those of you who pray, please pray for me.  For the others, just send positive thoughts my way please.  I truly thank you.
 
God bless you all, wonderful healing well family and thanks for letting me burden you with my worries this time.  I truly appreciate you all being here for me.  Hope I get some sleep tonight. eyes
Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 6/5/2009 10:25 PM (GMT -7)   
Lindaloo

I know this is easier said than done, but please try not to jump to conclusions about this, I do understand your worry, I will say a prayer for you now, and I will keep you in my prayers. We are always here for you Lindaloo, I do hope you can get some sleep tonight!

I do wish you only the Best!

Peace be with YOU!

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/5/2009 10:43 PM (GMT -7)   
Thanks Whitebeard. You are a sweetie. I will try to get some sleep now. I thank you for the prayers, good friend.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/5/2009 11:20 PM (GMT -7)   
Lindaloo,
I know what some of that waiting is like. I've never had a PIM test - I'm not sure what that is. I have had needle biopsies, and fortunately everything's always been benign. I have fibrocystic breasts, which tends to make films and such hard to read.

The waiting, I think, is the worst. Know I'll be sending you healing thoughts. And please don't hesitate to vent your anxiety or any other feelings over the weekend!

(((((((((((((Lindaloo))))))))))))

PaLady

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 6/6/2009 3:08 AM (GMT -7)   
Hi Lindaloo,

I am so sorry to hear about this. Without going into detail, I very much understand what you are going through right now. And waiting is so stressful and hard, but you will get through this. Please (like PAlady said) do vent your anxiety. I think that it definitely helps to get it out.

Do you have anymore details about the test? It sounds like you have a great doctor who is getting things done quickly.

I am going to pray for you Linda.

Flower

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/6/2009 4:37 AM (GMT -7)   
Hi Lindaloo, my thoughts and positive vibes are with you. Waiting is always such a trying time, lets hope that all is fine and they're just being overly careful. But what fantastic health carers you have to be so thorough. Best of luck and keep us posted, golitho.

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/6/2009 5:34 AM (GMT -7)   
My Dear Girl, I hope you are able to put this worry on the back burner this weekend. I know it's tough to keep your thoughts at bay so try doing something you enjoy rather than something you feel you have to do, like housework. Take a walk or a drive, try not to be alone if you can and try to laugh, it helps. I know what you are feeling but don't jump to conclusions! Chances are it's nothing! The odds are in your favor! I'm glad you have a good Doc who is cautious, thats a good thing. I'll pray for you.
Big Hugzzzz from your Brother>>>
>>>PETE!!!!!!
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis headed for Hawai and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" on their way to the Middle East w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/6/2009 6:14 AM (GMT -7)   
((((((((((((((((Lindaloo))))))))))))))))))))
XXOO
Patti

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 6/6/2009 8:26 AM (GMT -7)   
Lindaloo, You have a big extended family who cares about you. You have our support on this or anything else you need. You know we are here for you now and always. And just to say "don't worry about it" is alot easier said than done. I think we all know that. I know it will be a long weekend for you. Maybe try instead to keep your mind busy with other stuff. Read a book.Take a walk. Call a friend you haven't talked to in a while. Take a hot shower. Read a book. Look up something on the internet you always wondered about. Listen to soft music. Listen to upbeat music.Go to a local playground/park,close your eyes and just listen to the childrens' laughter. Reorganize your sock and panties drawer. Rent a movie to watch.Come here often. Okay, I'll stop. I just wanted to offer a few suggestions of some things you can do to keep your mind occupied. Sorry, I didn't mean to go overboard with it.lol I will be thinking about you. And I will be praying for and for your results. Please don't make yourself sick with worry this weekend. I wish I had the magical words for you that would help... Just remember that we all care for you and we will be thinking about you. Keep your head up!!!
I am sorry you have been having a increase in pain. I do hope you are able to get some relief soon and start to feell a little better.I really do.
Anice

Post Edited (anice) : 6/6/2009 9:29:22 AM (GMT-6)


janet s.
Regular Member


Date Joined Feb 2005
Total Posts : 67
   Posted 6/6/2009 9:02 AM (GMT -7)   
Lindaloo,

I just wanted you to know that I, too, will be thinking of you and praying for you too. I also suffer terribly from fibro, along with its terrible anxiety and pain. I know I'd probably have a similar reaction as yours to the test you need to get done now for your breasts, but please hang in there, and muster up all the positive feelings you can now. I know that's almost impossible to do, but attitude is everything. Do deep breathing, relax, whatever it takes for you to calm yourself down. I bet everything will turn out to be fine, but we all have to have some of life's scares.

I'm here whenever you need a shoulder to lean on. Support means everything to give and to take! :D

With gentle hugs,

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/6/2009 9:26 AM (GMT -7)   
Lindaloo, First off, it is good to hear from you. I know that when we don't hear from someone for awhile it usually means there is something going on. I also know the depression you are in is not easily handled and overcome. It seems crazy to me that being in pain causes depression and depression can cause us to experience more pain. Weall know the felling of waiting for the results of a test and not being able to just get it and go from there. Our minds like to play the what if game on us as if we already don't have enough going on. To say, don't worry about it, does not take it away but it does show that people care. I hope that you can find times this weekend that all the pain and what ifs are distracted and you get some pease of mind. I will definitely be praying for you and I know that you will keep us updates. Blessings!

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 6/6/2009 11:04 AM (GMT -7)   
lindaloo, sounds like if it is anything, that its being caught in the very early stage if they needed an ultrasound more than once. i too have a lump, though its not growing, and i panicked at first. i just lost a friend who was only 26 to breast cancer but then i thought, its not a big deal until the dr says to worry about it. and lumps run in my family. so don't worry about it until you need to.
as far as fibro i take cymbalta as well as lyrica and it has made a big difference in my fibro. have you considered it? maybe see if you can get a months full for a trial. lyricas website has a lot of info for fibro.... i know how badly it can hurt. i hope this finds you well. curl up to some turtle ice cream (well, its my favorite) and get your mind occupied, reading or something. i am sure things will be fine.... we all love you & hope this finds you well..... have a lpd...
RX's: Oxycontin 80mg 2x's daily; Oxycodone 30mg 5xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed); Amitriptyline 25mg 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Abilify 5mgs at bedtime (depression); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/6/2009 7:33 PM (GMT -7)   
Hi Linda,
I dont know you.. But
Prayers going up.
"Before we call, He answered."
*warmest huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/6/2009 8:38 PM (GMT -7)   
You guys have made me feel so much better. Thank you all my wonderful family. I decided to take your advice and went out with a good friend pricing sewing machines. She is in the market to buy one. ( I taught her how to sew years ago and now she is like a pro). She is also like an adopted daughter to me, so today I loaned her one of my embroidery machines until she can save up to buy the one she wants. Anyway, it rained all day and I was hurting like crazy, but being with her really took my mind off of my problems and reduced my worry for the day at least. Now it is night time and I am back to worrying. I tell you Monday can't come fast enough.

Originally I had to make the appointment for Wednesday, because it conflicted with my daughter's job and a follow up dr.s appt. she had, but she took the day off, cancelled her appt and said she would take me on Monday. I really appreciated her doing that for me. I didn't ask her to, she just offered. I am really blessed and have to keep those things in mind.

But all the things you all wrote brought a tear to my eye. Thank you for caring about me and supporting me through this time of worry for me. I thank all of you and love you all. I really do.

I definitely will post as soon as I get the results. They told me I should know on Monday, so I hope that's true.

Flower asked me if I had any details about the test. All I know is that they inject me with a dye in my arm and check the circulation to the affected area. That's all I can remember. I was pretty shaken up at the time, so that's the best I can do. Sorry.

Well,I will try to get some sleep. One more day to get through until Monday. I will continue watching TV and movies on the DVD.

God bless each and every one of you. And my heartfelt thanks, once again.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 6/6/2009 8:57 PM (GMT -7)   
Hi Linda,
I just want to wish you nothing but good news once this test is done. I've had two lumpectomies in my right breast, and I was only in my early 20's at the time. I know how scary all of this is, but hang in there and know that we are all pulling for you and wishing you nothing but good news.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 6/6/2009 9:41 PM (GMT -7)   
Lindaloo,

You are in my prayers, and those of Chomp and Koshka (link to prayer in my signature).

All the best to you to carry you through this trying time.
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer
Meet My Wife And Me


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/6/2009 10:17 PM (GMT -7)   
Lindaloo,
I just want you to know in advance you'll be in my thoughts Monday but I may not be communating much that day, since that's when I have a colonoscopy and will had sedation. I wanted you to know in case you didn't see a respoonse from me on this thread on Monday!

((((((((((Lindaloo))))))))),

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/7/2009 6:38 PM (GMT -7)   
Oh, Linda! You poor thing! As if it isn't enough to be hurting so badly, but to have all this extra stuff on your mind! You must be terrified! Even though there is a good chance that the irregularity is nothing, you can't breathe a sigh of relief until the waiting is over. I know that it is a lot easier said than done, to get this off of your mind, but I'm glad that you went out with your friend, and I'm glad that you are confiding in us! You know we'll help you through this!

It's times like this when I really wish that I could do something more than saying a few comforting words! Maybe you can go find your hubby & have him give you a nice relaxing foot massage! For some reason, those always help to relax my whole body, & you deserve to be pampered!

I hope that you are able to get a good, restful night's sleep. Tomorrow is a new day; your wait will be over & hopefully it will bring both good news & decrease your stress level, which will give you a bit of a break in the pain department! I'm sending you all the positive thoughts that I can muster AND I will be keeping you in my prayers! (((((((((((((((((Lindaloo))))))))))))))))))).

All the best, and lots of hugs,
Skeye

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 6/7/2009 11:18 PM (GMT -7)   
Hi Lindaloo:
 
I just wanted to add my well wishes and let you know that you will be in my thoughts & prayers as well.
 
I found a small lump about 2 months ago that doesn't seem to be growing in size, but it originally felt deeper, and now it feels closer to the skin and more defined if that makes sense.  I have been procrastinating on getting it checked out because I just had a breast exam by my PCP about two weeks before I discovered it which now that I say that, it sounds really stupid of me to be trying to excuse it away like that. 
 
I'm sorry you are having to go through this scarey experience, but I thank you for sharing it - it has made me think twice about my procrastination, and I am going to make that necessary appt. to get mine checked.
 
Lorie

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/8/2009 5:49 AM (GMT -7)   
Lindaloo

I have been in your shoes. I was also made to go out and spend the evening with a friend. Which was fate for I met my husband, we've been married for 18 years now. My results were positive in the long run. But the good news is I've been cancer free for 14 years now. Mine had nothing to do with the breast but the cervics and uterus.

All the advice I can give you is, have faith, think about yourself (spoil yourself some) and get well needed rest. During this time it will be emotional and stressful. With having CP it adds more stress also. So take a deep breath and find some good and laughter in your life.

You will be in my prayers
Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/8/2009 12:47 PM (GMT -7)   
Lorie,

Oh you must go and get checked. Thank you for your well wishes and thank you for sharing with me your situation. I will pray for you too.

All of you sweet people, thanks so much for being there for me. I was told I would definitely know the results today, but it's looking more and more that they lied. I have made several calls to both the radiologist and to my referring doctor's office and nobody seems to care that I am on the edge of my seat over this. I had the test today this morning. Nobody told me I would be radioactive afterwards, so my daughter had brought her two children. She had to drive all the way back home to leave them with my husband and then drive back (each way 45 minutes, not to mention the gas), to pick me up again. Some communication would be nice here.

Anyway I'll post as soon as I hear anything.

Thanks again all of you wonderful people. God bless you all.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 6/8/2009 1:13 PM (GMT -7)   
Linda
I hope you get the results today, so you won't have to go through more of the waiting game! I know how frustrating that can be, waiting to get results! Anyway we will be here waiting to hear from you!
Take care my friend!
 
White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/8/2009 5:30 PM (GMT -7)   
Lindaloo,
I wasn't going to sign off until I found this thread. I'm so sorry and frustrated it seems you were made to wait longer than needed. And to not give you the other information! It just sadly seems that's what is more the norm in health care than not. And there's no reason you couldn't have been given a sheet with information in advance.

I do hope you found out some positive results later this afternoon and just haven't posted yet, but since you posted in the middle of the day, I'm guessing you probably didn't hear. Even a phone call to tell you they didn't have the results yet would have been nice. Especially in these situations.

(((((((((Lindaloo)))))))))

Again, post your anxiety or frustrations or whatever here as you go through this!

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/8/2009 5:45 PM (GMT -7)   
I was hoping you'rd have posted some news too, I hope you're doing ok emotionally, thinking of you, golitho

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/8/2009 5:59 PM (GMT -7)   
Yep, PA and FJ had good news today and things always run in three's so you're next!!! Sorry they lied about giving you results today and didn't, thats cruel! I wonder how they would feel if it were them waiting? Oh thats right, they are the privliged ones! They don't have to wait like us commoners! Sorry but sometimes the powers that be in the medical world just really piss me off! You hang in there dear girl> It will all be over soon! I'm so sure it's nothing!
Your Big Fla. Buddy,
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis headed for Hawai and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" on their way to the Middle East w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 

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