Hi I have a condition called Deep Multiple Vascular Malformations and I started a website www.vascularmalformations.org and it is a website designed to help people with this condition and any other conditions related to chronic pain. I also have a blog where I post all my trials and tribulations, and there also is a forum where I have different topics. So feel free to check out my site and tell me what you think on my contact us page or leave a comment on my blog or forum page. You can also email me at firstname.lastname@example.org! Thank you have a nice day!!