Post Edited (White Beard) : 6/10/2009 12:01:07 AM (GMT-6)
White Beard, it sounds like you had a full day but as you progressed through it, things have gotten better. You doctor sounds like he has a heart. I am glad that he is listening to you and willing to look at options. It is not that we want these doctors to cure us (that would be ok) we just want someone to listen, show they care and try and make life a little more enjoyable. Why is that too much to ask? Why can't these well trained men and women slow down and be real with us? I know the whole insurance battle and the malpractice issues come in to the mix but we are still human beings and we deserve to be treated that way. Maybe I will take my stethoscope with me to my appointment with the PMS Monday and ask him if I can check and see if he has a heart. I can see that I am not doing well right now as I have been trying to send a few posts to get my mind off me but the struggle is there. You be blessed and I will continue to pray for you. You have been through a lot. How is the house thing going? I hope you are not involved with any building projects.
I am so proud of you for speaking up and wow what a wonderful PM Dr. you have! Most of the Neurologists I have seen sound just like yours, they are either non commital or ready to give you a life sentence even though they don't truly know WHY you have certain symptoms. I've been to the best of the best the last ones words were "I don't know and can't really pinpoint why you have this severe of Nerve Damage but would you like me to tell you what your outcome will be.....I said WHAT are you kidding me? NO THANK YOU, I will face whatever it is when it happens, tell me now and I'm sure to be there faster!!! I asked him how he can tell me my outcome when he can't pinpoint the reason, he looked at me dumbfounded, like I was the loony...geez. When I returned to my PMD I said PLEASE NO MORE Neurologists or NS unless things either worsen or I need surgery. They offer me nothing but a large balance to pay! If you are thinking of relocating maybe stay in short driving distance to your PMD, he is a keeper.
Skeye, you are so right, DO's have a way different philosophy about the body, kind of like Naturopaths, Homeopaths and other Natural Practitioners. I would definitely be on lots of added drugs if I did not do alot of the Alternative treatments and Nutritional supplements.
White Beard, I hope you get some relief from your injections and the testing you have reveals an answer for you!
Hi White Beard,
Wow did you ever have a horrible time with the neuro but I am so glad you dressed him down, boy he needed it. I cannot tolerate people lying and I do not care if its a dr or who ever. You were absolutely within your rights to correct him on what he did or did not do in your care. Those guys have a God syndrome and egos that surpass it all. You understand that in all of his practicing years you can bet only a handfull of people have ever taken him to the mat as you did but he deserved it. For him to have the gall to tell you that you are concentrating on the negative versus the positive tells me alot about that jerk. I must admit, as bad as I feel for you having to endure his presence however long it was, I did have a good chuckle because now that I have seen your pic, I can see you dressing him down and making him squirm lol.
I have to agree with you on the PM dr thing and moving and trying to find a new one as good as what you have. If I were in your shoes I certainly would have to think long and hard on that situation. Its like looking for a needle in the haystack fiding a really good dr of any kind. Just from reading on this forum we see how people are treated every day even by their PM drs and some are getting no care to speak of.
I think I have found a PM dr very much like your own. I had my pump refilled Monday, and my dr always see's me once the nurse is finished with me. She just comes in the room and sits down in a chair and we visit. We go over how I am doing and then we just have chit chat time which is refreshing. She does not require me to make a regular checkup appt, she said no reason to since I am there every 6 weeks for a pump refill. My dr is a big game hunter, she is leaving for Africa to go on a hunt. She told my nurse that while she is on vacation that if I get into trouble I can be given a increase in my pump. She said I know you are alot more active now and pain will get bad again, but I do not want you being in pain with me on vacation. I have never had a dr ever worry about whether I will be in pain while they were on vacation lol.
Prior to coming in to see me she saw a lady in her mid 70's with a pump that was not doing well at all. She said the lady was in horrible pain because she was extremely under-medicated in her pump due to a dr that had no clue about pumps and medications. I saw this little lady leave the office and she truly had to have assistance to walk, pain was all over her face, so sad for someone to have to live that way. I said well, now that she is your patient, did you tell her that you would get a fair amount of that pain turned around and get her to feeling like a human again? She grinned real big. She said, its criminal what happens to these people and these drs who have no clue. She said so many of these drs think they cure people and when they can't they do not know what to do. Its like hitting a brick wall head on.
I have a feeling when you see your PM dr again, he starts getting the ball rolling towards investigating what is going on with you. That's worth alot in a nutshell. Susie