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Mystic_Duck
Regular Member


Date Joined Jun 2009
Total Posts : 52
   Posted 6/9/2009 11:57 PM (GMT -7)   
Hey to all!
Ive been searching for a site lik this for a loooonnnngg time, which probably most of u can relate to....anyway, im 19 years old and hav lived with chronic pain for 3 yearss now, i hav surgery twice a year ( the last one being 10 days ago) and of course, hav to tkae many pillz to control the pain. I live in montana, so there is no support group for pain that i can go to, so i turned to the web, and am very glad i found this site.
 
I get quite frusterated and depressed and anxious sometimes (which you guys probably know something about... ;) ) and i do have some friends and family to talk to but they just do not get it- any of it, which doesnt exactly help....
 
Anyway, i just wanted to say hi to everyone here, and intro myself and about me.... i m going to try to be as regular as possible with updating and giving advice, but i tend to hav issues with regularity, so please if i dont respond, im not mad or i didnt leave, im just bing irregular...haha.... ok well hope u guys r all doing relatively well!
 
 

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/10/2009 1:33 AM (GMT -7)   
MDuck, We normally welcome new people to this forum. I can tell you that some don't post as much this late as drugs have taken effect and if they are not asleep  they wish they were. You state that you have surgery twice a year. If you don't mind, what are the surgeries for? You say this has been going on for three years, what treatments have you been on during that time. What part of Montana are you from? That happens to be where I grew up. I hope to hear more from you as we get to know each other. I started my sentense with Chronic Pain in Montana 11 years ago. Please look over some of the current threads and just join in as you feel led. Hope your day is a low pain day.

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 6/10/2009 2:19 AM (GMT -7)   
Hi and welcome! This is such a great place for support. I am very inconsistent with my posting, lol and everyone understands. What kind of surgeries do you have?

Mystic_Duck
Regular Member


Date Joined Jun 2009
Total Posts : 52
   Posted 6/10/2009 2:58 AM (GMT -7)   
I actually grew up mostly in lancaster penn., but for about 6 years have lived in billings!

I have endometriosis, which has to do with your reproductive system( if you want more info you can ask or google it, but it gets pretty gross and i dont want to freak anyone out...) and a big problem with adhesions. the endo implants have moved onto my intestines and my adhesions have started to grow in rope form actually.... but anyway my surgeries have been laparascopies for endometreosis ablation and lysis of adhesions, which does help, just very short term. Im also on Lupron and provera to control the endo implants- and the lupron sends me into menopause... which just makes it so much more fun, but it has helped quite a bit! i have a pain management doctor and ive been on quite a bit of stuff but now ive been on mscontin and msir both 30 mg, and i take ketoprofen to control inflamation now, b/c this last surgery, evidently they found quite a bit of inflam. My pain spikes on average about every other week to once a week and i use fentanyl transmucosal to get it back down. Im lucky in that my ob/gyn doctor is probably one of the best doctors period, he really cares and it kills him that he cannot fix the problem. my pain doc is also a wonderful one, which definately helps.( but i have had quite a few run ins with bad ones... stories u guys will probably hear sometime)

Other than that, i am in college and just barely made it through my first year, and am just in a very odd place because i do not know what to do.... I always wanted to be a doctor....ironically, but i know there is no way i can handle med school in this condition... i couldnt even make it to 3 classes a day last term... so i do not know what to major in because i dont know what kind of a job i could even hold... which im sure a lot of you have had trouble with. As you can probably tell, i have quite a bit of insomnia.... which cycles with the pain mostly, but theres also times where i am just too worried about the next years, the next semester of school, and just the next week- again, im sure at least some of you can relate....

Ummm i believe thats a briefish summary, if there is anything else you want to know, feel free to ask!

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/10/2009 6:02 AM (GMT -7)   

Hi Mystic Duck,

Welcome to our Family!  I grew up in Levittown, PA not too too far from Lancaster!  I am so sorry for your diagnosis and pain you are dealing with at your young age.  I admire that you are able to attend College with this situation.

You definitely have found a home here with us, everyone here lives in CP, all different reasons.  Emotionally we are on a daily roller coaster ride depending on how the pain level is that day.

I don't always post either but I DO come on and read the posts several times a day to check in on all my friends.

I am so happy that you have a Dr. who you trust and understands, that is definitely a challenge for a lot of CP people.

I hope you have a low pain day and look forward to getting to know you.

XXOO
Patti


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 6/10/2009 6:27 AM (GMT -7)   
Why not major in Pain Management Psychology, as you've got experience with pain, I think you'd make it good in
psychology and you could so help so many people..and good pain management psychologist are a dime a dozen
Just a thought or something for you to consider...Welcome, there are lots of very good folks here and rant any time
we don't mind...
Hugz and lots of them...
((((((((((((((((((((((((((((((((((((((Mystic Duck)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/10/2009 10:45 AM (GMT -7)   
Hi, Mystic,
I want to add my welcome to those of others. I'm having a not so hot week with some tests and such so am not posting as much as usual.

I am so sorry to learn of all you're going through at such a young age. I went through a lot of things in my early 50's with bad fibroids and such, but to have this happen in your teens...well, I just wish I could give you a hug.

Have you been to a major teaching hospital that specializes in these problelms? I just wondered because new treatments are coming out all the time, so please don't give up on the possibility of med. school. One of our other younger members, Skeye, is struggling with college, too, and she wants to become a vet. We all plan to take our pets to her, so you could become our doctor.

Yes, maybe it's seems daunting now. Just take one day at a time. And even if you can't finish medical school for some reason, there are lots of careers in health care that might not mean as much school BUT where you still could do a lot of good (I'm not sure what your interests are).

I'm glad you found us, and don't worry about posting irregularly. We're a pretty irregular bunch around here!

Again, welcome.

PaLady
p.s. Everyone from PA always ends up being from the "other" end of my state!! smilewinkgrin

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/10/2009 11:45 AM (GMT -7)   
Hi MDuck,
Welcome! Im very glad to meet you. I do hope you have a quick recovery and are able to somewhat get your days back. Another poster said something , that well, makes alot of sense really...
 
"it good in
psychology and you could so help so many people..and good pain management psychologist are a dime a dozen
Just a thought or something for you to consider...Welcome, there are lots of very good folks here and rant any time
we don't mind..."
 
     **I had to see a pain psychologist every 5 days or so for over 4mos. She was awesome. Yes, I know the "stigma" surrounding psychology, but mygoodness she taught me so much and gave me skills for re building my life which included (but not limited to) bio-feedback, pilates, stretches, research about what s wrong with me. Understanding the complexities of pain, the bodys reaction to pain, the mental aspects of pain ( I get the Onion joke now hehe), the brains checmical and emotional reaction to pain... and i feel the rambling settling in..
Anyway, pain psychology gave me back control of "me" if that amkes any sense. Would be a VERY comendable feild of study i think .
 
*huggs*
dani
:-)  
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/10/2009 2:19 PM (GMT -7)   

Mduck, thanks for giving us more information. My father was from Hershey and part of his family still live in Lancaster. I grew up in the Billings area and our farm was 50 miles east of Billings. We used to go to PA every year until the family disenagrated. After my sister who lived in Lancaster died, I have not been back there (1988). I know a little about endometriosis and each woman who suffers can have different levels of pain and when the pain is experienced. From what you have said, you have implants that go beyond a limited location which probably causes more pain. I also know that for some women, reaching menopause can be a blessing as the implants can be limited. Without getting to personal, I know that at your age some of this could probably be overwhelming. I hope you have a wonderful support system. Don't let the pain nor the side effects rob you of your dreams. Even if it takes you longer to get through school, it could help you focus on something besides the pain and what causes it. Most of us on this forum have lost many things due to chronic pain and we fight constantly to hold our ground. I am glad to see you continuing on this forum. Blessings!

By the way, I have been asked numerous times if I am a Catholic Priest with the name fatherjohn. The answer is no but I have been a pastor for 27 years and now I am the director of a college program for men and women who have come through drug and/or alcohol addiction. I hope you have a great week. 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/10/2009 5:08 PM (GMT -7)   
Hi Mystic,

Your name keeps reminding me of the movie Mighty Ducks! I loved that movie when I was little.

Okay, well, back to the point! I also want to welcome you to HW. I have read your post on my other thread, and I am so honored that you took the time to write to me, having just joined! I'll respond to you there at some point (hopefully tomorrow), but I'm not feeling very well at the moment (I woke up to a lovely stomach bug), so I'm just sticking to a few brief replies for today.

I'm sure that the others have already told you how wonderful HW truly is, and how it has been a Godsend for many of us - me included (I apologize for not having read the other posts).

I am very sorry to hear about your endometriosis. What I know about it, I have learned from others here (yes, you are not alone, we do have other members with endo) & it sounds horribly painful! I can relate to your resulting struggle through college. I am just a few years older than you - 21 yrs in fact - and have been dealing with CP since I was 18 yrs. So far, I've struggled through 5 out of my 6 semesters with CP. I won't go into all the details here, because it is a whole story in itself, but just know that you are not alone! If you ever want to talk about it, I'm more than willing & can give you my e-mail at any time.

So, I wish to extend to you a warm welcome to the Chronic Pain board at Healing Well! I think I can speak for all of us when I say that we are most happy that you have found us!

Skeye

Oh, I forgot to mention that my form of CP is severe retro-bulbar eye pain resulting from a pretty severe traumatic injury that I had to one of my eyes two and a half years ago. We still do not know exactly what is causing my current pain, as all of the damage resulting from the trauma was either surgically fixed, or has healed, yet the pain never disappeared, and in fact the function of my eye (which was also effected by the injury) has been getting progressively worse. We know some "pieces of the puzzle," just not how to fit them together. To date, my pain has been completely resistant to treatment. I've been through just about every non-narcotic pain medication, anti-inflammatory, & nerve block/injection, as well as many opioid pain medications with no results (although this is supposedly very typical of the type of pain/condition that I have). Right now, we are still experimenting with fentanyl patches, which are our last hope in terms of conventional opioids. So far I've not had any luck, but my doc isn't quite ready to give up. After the patch is exhausted, then we have to think about turning to more radical measures. However, I'm pretty terrified by what may be to come, so I'm pursuing just about every form of alternative medicine/treatment that I can think of, that I have not tried in the past. Right now I'm working with a homeopath MD, a DO who practices craniosacral therapy, an acupuncturist (who I've been working with for the past year), and a practitioner of Chinese medicine. I'm hoping that one, or a combination of these therapies will provide me with some kind of relief.

And one other thing. I just went back to your post & saw that you mentioned insomnia. Sleep difficulties (as well as depression) are very very common side effects of CP. I suffer from both of them, and unfortunately, yet again, we have yet to find a medication or other form of treatment which helps me with either of these. I usually get about 3 - 5 hrs of sleep a night because of pain. On really bad days, I don't sleep at all. If you stick around, you'll most certainly hear about this from other people as well. It's a vicious cycle! And I also noticed that you mentioned about how you get pre-occupied with the next week, next semester, next year etc. My piece of advice is to slow down! If you look to far ahead (as with anything, but esp CP) you are going to find it overwhelming. I used to always think ahead as well - at the very least I'd think & plan ahead for the next day & the remainder of the week. I've found that now, with my CP, I can literally only think ahead to the next hour, at most! Otherwise I get too overwhelmed and stressed out & then that only makes my CP worse! So try to take it easy & not get too far ahead of yourself!

Post Edited (skeye) : 6/10/2009 6:41:33 PM (GMT-6)

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