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straydog
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Date Joined Feb 2003
Total Posts : 13469
   Posted 6/14/2009 6:38 AM (GMT -7)   
Hey Everyone,
 
I have alot of back pain  when I walk or stand on my feet for about 20 minutes. In addition to the extra pain, before I know what is happening I am walking bent over. Now, I do have terrible posture from back pain that was under treated for so long. I am working on that in my pool. If I go to the store or some place like WalMart I always grab a basket to hang onto. For one thing call it vanity, but I cannot stand seeing myself walking bent over like an old woman of 100. I am not 100 yet, but I am working on it-slowly I hope.  I do walk with a cane, it helps with my balance issues but even with my cane I still slump forward. When I went in for my pump refill Monday I spoke to my dr about this. She tells me this is a natural reaction in some instances with people that have back pain. She says as we move our bodies forward this opens up the space in the facet joints. I always make sure I have on good shoes when I leave the house or know I am going to be up on my feet alot in the house too. She suggested I try the Dr Scholls gel shoe implants. She has back problems and has found these to help her since she is on her feet alot during the day. Has anyone tried these and if so did they make a difference?
 
Thanks, Susie
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/14/2009 7:11 AM (GMT -7)   
I have never tried them. Just wanted to post and tell you I'm so sorry you're having these issues. I'll send you some fairy dust.......

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/14/2009 8:56 AM (GMT -7)   
Susie, I also walk with a cane qiute often. I try and watch what shoes I wear and I even get most of my shoes as slip ons since I have a difficult time bending over. My feet are just too low to the ground. I find that adding the Dr. Scholls gel pads is great as many shoes today do not have very good insoles. I know that you have to be choosey about what shoes to wear as well. I find the gel inserts are great and do help. They don't help the nerve pain but the stress on the feet is better. I am not sure if others have tried them but I find them worth the cost.

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/14/2009 9:08 AM (GMT -7)   

Straydog,

I haven't tried the gel inserts...but I just got orthotics that are so comfortable and new Tennis shoes that have a solid sole.  I feel like I am walking with my shoulders up instead of slooped for the 1st time since my surgery.  Total for Inserts and shoes was $300, I HAD to get them, I have been falling more frequently and my PMD told me he thought this would help.  I do feel more stable!  He gave me a prescription so I could write this off on my taxes.

It hasn't helped the nerve pain or the leg dragging, not sure if it will!  If it keeps me upright though and prevents the unwanted trips, I'll be very happy!

Keep us posted!

XXOO
Patti

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 6/14/2009 11:49 PM (GMT -7)   

Hey thanks for the thoughts and yes, I meant inserts, whew it was late when I typed that one lol.

Patti, my young niece began having severe lower back pain in her early 20's. She ran the gambit as most know of trying to find out what was wrong. She had some minimal findings on her MRI but was told this was not the source of her pain. She had found a new dr and guess what, he gave her a script for the orthotics you are speaking of and for the first time in years the kid was pain free. Her ins would not cover the expense. She paid $300 for them but she said at that point she did not care because of the relief she finally got. I think the dr said on x-rays it showed her pelvis was some what not in allignment and it had everything thrown off.  She was so glad she found this new dr, but said it really hacked her to think of the money spent on specialists and not getting any relief for so many years.

I have found I do much better with a good pair of lace up tennis shoes comfort wise. What I do is prop my foot up on either a step here in the house or on my little step stool and I can bend enough to get a sport sock  and shoe on.

Its to WallyWorld tomorrow in search of gel insoles.  Susie


crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/14/2009 11:56 PM (GMT -7)   
Susie,
I also use inserts from a place called Hapad, Inc. I probably have the website somewhere. My PT gave me the catalog and told me which ones to buy. They're not gel, but you replace the insole in your shoe with them. I have them in my tennis shoes and a couple of other pairs. They are cheaper if you buy them online. If you want me to search for the info, let me know, although you may just want to buy the Dr. Scholl's ones.

I also have a lot of Birkenstocks, which I used to be able to wear all the time. Now I'm using them a bit as the weather is warming up, but didn't use them in the winter (I used to use them as "slippers" with a pair of socks in the house all winter, but this year I got some mules that I put the good inserts into). Geesh....hope I'm making sense! It's late!

I can't even wear slippers around the house or walk around in my bare feet. Too painful.

PaLady

modelmaker
Regular Member


Date Joined Feb 2009
Total Posts : 168
   Posted 6/15/2009 12:39 AM (GMT -7)   
Susie,

I suffer the same problem with posture and walking. In my case, multiple fusions have left some of the back muscles atrophied because the fusion removes the need for and the ability to function properly. The result, as with you, is a forward stoop. In my case, the movement is all at the T12-L1 level because everything below that level is fused. The pain can be excruciating after even a small, slow-going walk. When I shop, I really depend on the cart for support. And I am only 64!!

As for shoes and insoles, I think I have tried just about everything out there. What I have found that works best is a good pair of walking shoes for proper support and a Dr. Scholes gel insole to absorb shock. Then I have to always think about standing straight when waking. That's the hard part. It takes a LOT of effort and is painful. But if I can move my center of gravity back over my hips where it should be I can walk for longer distances. But it will still be limited by pain eventually. I no long get the exercise I need so I also use a recumbant stationary bike indoors. It is soo boring but it works to at least exercise the legs and hips. I wish I could offer more help but I just haven't founn anything better.

Modelmaker
Degenerative disc disease since 1985, 4 back surgeries, fused from L2-S1, instrumentation. Being treated for chronic pain. Oxycodone 30 mg. IR. Candidate for SCS in the future.


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 6/15/2009 1:00 AM (GMT -7)   
I have found all of this really interesting. I usually walk around the house bare footed. No one ever told me not to. And I feel really stupid to have not thought about it before... And when I go somewhere I usually put on some sort of flip flop b/c they are easier to get on. At work, I would wear crocks... Okay, I need to invest in some better shoes. And I will try the Dr. Scholl's gell inserts. It may make a big difference for me. Thanks for the education!!!(seriously!)
Anice

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 6/15/2009 1:12 AM (GMT -7)   

PaLady, thank you so much on your offer. I think I will try the gel insole first, If that is not much help then I will let you know about th others. Thanks for responding. I do want to know if you have gotten the results of your scope and endo yet> Hope its all good news.

Modelmaker-yes, you described my posture to the letter lol. And yes, before I know it the neck and shoulders are slumped forward and the pain begins. This situation has really gotten to me. Oh yes, the pain is something when trying to upright my body, I know what you are saying. I literally stop dead in my tracks and try and get myself straightened back up. I love to walk and even tho its painful I refuse to give in on this ome. Walking is about the only form of exercise I get because of the pain pump it limits different motions with the body. I have done alot of water therapy in the past and I have begun again at home because of having a pool.  I still remember the exercises so I am back at that.

We had a client that was fused as you were. He had many redo surgeries without success and then finally his ortho said here is what we can try and beyond this we are out of options. It literally made hs back a broom stick, but would you believe he had a great result. His pain level dropped to a minimal amount  and you could see in his eyes how much better he felt afterwards. He said it was the best thing that ever happened to him. He was a fairly tall thin man as I remember and his dr said structure wise he was a great candidate. 

Well, I am going to try and go nod off for a bit, thanks  aain both of you...Susie                                                                                                                                                                                                                                                                                                                                                                   


crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/16/2009 12:10 AM (GMT -7)   
Susie,
Well, this thread is going wild again! But thought I'd let you know
the colonoscopy was all clear; no polyps or anything. Not so lucky on the endo.
Doc saw some inflammed tissue he sent for a biopsy. I'm supposed to wait
two weeks to call them, but I'm going to start leaving messages tomorrow.
With my insurance running out, I need to find out things ASAP, although I'm
guessing it will just mean staying on meds. Yet another Rx to fill by 6/30!
Tomorrow I have a dentist appointment, and next week a follow up with
the opthlamologist. Does it ever end??? It may sound strange but as long
as there's nothing immediatley life threatening it may be a relief to be
without insurance for a couple of months. No doctor appointments! And I've
already got my pain meds for 90 days.
Thanks for asking!

PaLady

Hound-Dog
Regular Member


Date Joined Oct 2005
Total Posts : 183
   Posted 6/16/2009 12:42 AM (GMT -7)   
I use a pair of elbow length crutches to increase my ability to walk and stand around.The handles allow my arms to take some of the weight off my legs and also straightens up my spine at the same time.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/16/2009 8:07 PM (GMT -7)   
Hi Susie,

I apologize, but I have not read the rest of the thread, other than your initial posting, because
of the wide posts. I don't have CP in my back, but I do get back pain if
I stand for several hours - I have bad posturing, and apparently had some pretty
strained vertebrae, because for whatever reason they are not in correct alignment
(when I saw the osteopath last week, he was shocked that I wasn't experiencing back
pain all the time; fortunately he was able to adjust them, so that they are positioned
correctly now & remarkably I hurt much less upon standing for long periods of time now).
Having been a competitive swimmer & working for an orthopedic surgeon, I was
taught that proper foot support is crucial for your entire body, but especially your back.
So I did decide to try some of those gel inserts (OTC ones from Walmart). They
actually did help, although I found that they were hard to size correctly. I have
size 9 feet, and they sold inserts for "size 6 -9 W" (one size fits all, sort of thing)
and they were tiny; they only covered 3/4 of my foot. I wish that you could
test the size of the insert first! But, if you can find the right size, I think you will
find them at least somewhat helpful. And if you can't find an OTC one you like, you
can have custom made inserts made by an orthotics place. Best of luck!

Skeye
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