Scared for my father

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leve198777
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/17/2009 4:48 AM (GMT -7)   
Hello, anyone reading this, my name is Levi, i have a father who when i was only 2 was robbed at gunpoint and shot 3 times inside a car. He survived, but barely, The bullets all hit his thigh and shattered the bone and he had a rod put in. After 8 surgerys he is doing a bit better but here is where the story gets worst. at the time of the shooting he was givin infected blood (Heptitus C) and that along with the shooting hes been in cronic pain. for 17 years he has been in this pain. He also has degenerate back disease and is on social security for Pain, nothing else. He had a decent quality of life when he was on Oxycoton. He was still in pain but able to go to by football games and spend time with all of his children.
 
We have bonded real well and now ever since here in ohio they have been making any long term pain patience go to these pain clinics he has been doing horrible. He can barley get off the couch without going into tears. They prescribe him morphine sulfate (which medicade desided febuary that they wern't going to allow him to take brand name)since his doctor wont prescribe him anything else and thinks my fathers a drug addict just because my father has a little pride and doesnt like showing his pain to others he wont act like hes in pain he seems semi-normal on the outside and now after all this time he has lost hope hes always in horrible pain and im afraid hes ready to take his life. all because one star had to OD on the same medicine my dad takes. I mean hell the clinic originaly perscribed my dad methodone which nearly killed my father and my dad told them he was allergic when it ended up swelling his mouth toung and throat nearly closed ive tried talking to a couple medical lawyers in my area and they all say we have no case. and if a doctor is allowed to do that and not get punished because he wouldnt answer the calls my dad made to him asking the doctor what to do. then i dont no. Im'm at the point in which ill do anything to help him even if that means.....well robbing a darn pharmacy.... I guess what im asking is is there anything i can do to help him? he's in pain day and night even in his dreams he cant escape. So if anyone knows anything i can do ill really appreciate it thanks in advance.
 
 
If you want to contact me with any advice or just to give your 2 cents

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/17/2009 5:45 AM (GMT -7)   
Dear Levi,

Welcome to the chronic pain forum. I hope you find some help here with your situation. I really feel for you and understand how you must be so worried about your dad.

I heard from others on this forum about medicare and medicaid taken oxycontin off of the choice list, so to speak. You are not alone. Maybe others have had similar problems finding adeqate pain control relief. I am sure there will be others to come on and give you some advice. As for me, I'm afraid I don't have any, only to wish you well and to welcome you to the forum. You will be in my prayers, Levi, as well as your father. Don't give up hope.

Gentle Hugs,

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 6/17/2009 6:02 AM (GMT -7)   
Levi,

I want to welcome you, as well.

My advice is a bit different.

If I were you, I would take my father's story to the newspapers.

"Local man shot by robber, now having his life shot down by Medicair." type of story.

DO NOT ROB a pharmacy. You'll almost certainly caught very shortlly. Then you would MAYBE help your father ONCE. That would be a very short use of your life, regardless of how much love and pride it demonstrates for your father. It would be better to stay on the outside and fight the good fight, although this would also be the harder fight.

I am sorry that I have no other advice to give. If I think of anything else, I'll post back on the healingwell.com site.

I do wish the best for your father, you and your family.
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer
Meet My Wife And Me


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/17/2009 9:29 AM (GMT -7)   
   Good Morning Levi,
     Im very glad to meet you. Welcome to healing well. I do hope you will stay. Maybe? You Dad would want to come too? There are many here, like your dad? Knowning others and the ideas and things they have tried for pain releif has been an indescribable comfort to me. Perhaps you father would like it here too.
 
  Im so frustraited! To hear what you have to say reguaring Medicare! For a few weeks now MANY have gone through EXACT same thing! So frustraiting! Im sure you must feel just helpless and Iw ish more than anything, that there were something I could do.
 
     Someone posted about same thing recently.. cant remember who, but someone made awesome suggestions for resources for help.. Im gonna sift through em see if I can find it.
 
*warmest huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/17/2009 9:33 AM (GMT -7)   
 Found it!
 
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


leve198777
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/17/2009 10:10 AM (GMT -7)   
Thanks for the support, really I appreciate Linda, Tony, and Dani thanks for welcoming me ive been looking online for days on how to help, It's just hard to fatom. and Tony, thats good advice but my dad would never agree to it due to how they humiliated him when our house was raided due to my dad for growing his own medical marijuana to help with nausia and it was a way to help his pain. even though he didnt grow much, he was ridiculed and the paper wrote that my dad was busted for having a drug lab. so the paper is out of the question. I hope you guys dont judge much here. and dani thanks for the link ill look into it and i hope to start becoming a part of this community

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/17/2009 10:34 AM (GMT -7)   
Dear Lev,
 
     That is alot of stress! Sounds increadibly stressful and somehow I always feel a bit more sore when stressed! Serious. Dont think for one little moment that anyone here would ever dream of judging another soul.
 
      Since I just cant imagine what all your dad is going through.... Maybe some ideas instead. I heard sometime around feburary, that some states allow the use of that particular pain control method.. But the news story also talked about controversy amongst federal laws vs. state laws.
 
     There are some wonderful "roman cammomile and lemon grass" blends of tea. I think even a less potent version is sold at local grocers stores. But maybe a local co-op or health food store would provide better tea mix blends. For "oh my goodness" nausa I use just straight cammomile blends or cola syrup (childrens section). Once met a lady who swore by Valerian root tea.. but it makes me very sleepy so I dont drink it very often. That really only ideas I have, I know thou that some folks here, were able to get help from thier doctors. Some talk of suppositories that have mild to moderate side effects .. seems to depend on individual person thou. Thats about all the ideas i can think of.
 
     Hang in there
 
(huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 6/17/2009 9:05 PM (GMT -7)   
Dear Leve:
 
I just wanted to welcome you as well.  I truly am so sorry for how bad your Dad is suffering.  Has anyone ever suggested that he may be a candidate for a Spinal Cord Stimulator or Intrathecal Pain Pump?  I have both and would be very happy to answer any questions I can that you or he may have about them.  There are others on this forum that have one or the other or both as well.
 
It sounds like he has two issues: 1) Medicare will not cover the drug that helps him the most, and 2) His doctors will not try any other medications to see if there is something that will work better for his pain.   As Dani said there are several others that are facing the same issue with Medicare and the post that I believe he is referring you too does have some wonderful suggestions.  As far as the doctors, I'm wondering if he could change doctors? 
 
I believe that there are pharmacuetical companies that are working on pain medications made from marijuana and they are available in some states.  Maybe give a little more thought to Tony's suggestion about contacting the newspaper.  It sounds like one picture of your Dad would make it very obvious that he wasn't running a "drug lab".
 
Please keep us updated on how you and your Dad are doing.
 
Lorie 
 

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 6/17/2009 9:24 PM (GMT -7)   
Leve,

I'm not sure whether you are just looking for advice about getting your dad medications, but I'm wondering whether he has tried any other treatments for his pain. There are a lot of different treatment modalities that many of us rely on to help us either in place of or in addition to medications. I'm sure others could add more ideas, but here are a few for a start:

physical therapy/aqua therapy, massage/osteopathy, acupuncture, chiropractic (only if an MD who has looked as scans has approved it first), injections, radio frequency, TENs, neurostimulation, braces/wraps, topical gels

Please know I'm not suggesting that your dad shouldn't be on meds, just that if getting meds is not possible that there are other treatments that might be helpful to him.

best wishes,
Frances
Moderator -- Depression Forum


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 6/17/2009 9:27 PM (GMT -7)   
Leve, I want to welcome you to the forum. It is obvious that you love your dad and hate to see him suffer through the pain that he is in. It is such a tragic story. And that he was also infected with hep.c to add to all of this. My heart really goes out to you and your dad. It is so wrong that he isn't getting the appropiate care he needs to help him deal with his pain. That is inexcusable! Is there a pain management doctor that accepts his insurance? He needs a different doctor completely... I feel so bad for ya'l. I am sorry I don't have any good advice. I just care... And I will keep you both in my thoughts and prayers. Please let us know how the situation is going.
Anice

leve198777
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/18/2009 9:18 AM (GMT -7)   
Frances_2008 said...
Leve,

I'm not sure whether you are just looking for advice about getting your dad medications, but I'm wondering whether he has tried any other treatments for his pain. There are a lot of different treatment modalities that many of us rely on to help us either in place of or in addition to medications. I'm sure others could add more ideas, but here are a few for a start:

physical therapy/aqua therapy, massage/osteopathy, acupuncture, chiropractic (only if an MD who has looked as scans has approved it first), injections, radio frequency, TENs, neurostimulation, braces/wraps, topical gels

Please know I'm not suggesting that your dad shouldn't be on meds, just that if getting meds is not possible that there are other treatments that might be helpful to him.

best wishes,
Frances

Hes tried most of those (cant remember which ones) and I'm not sure but i belive none really helped, well to justify there costs and well, yea i am looking for advice not exactly on medication but what i can do to increase his quality of life herbs or anything thats cheap and can help even a fraction. and you didn't sound like you were saying he shouldn't be on medication


leve198777
New Member


Date Joined Jun 2009
Total Posts : 6
   Posted 6/18/2009 9:33 AM (GMT -7)   
bluejet2 said...
Dear Leve:
 
I just wanted to welcome you as well.  I truly am so sorry for how bad your Dad is suffering.  Has anyone ever suggested that he may be a candidate for a Spinal Cord Stimulator or Intrathecal Pain Pump?  I have both and would be very happy to answer any questions I can that you or he may have about them.  There are others on this forum that have one or the other or both as well.
 
It sounds like he has two issues: 1) Medicare will not cover the drug that helps him the most, and 2) His doctors will not try any other medications to see if there is something that will work better for his pain.   As Dani said there are several others that are facing the same issue with Medicare and the post that I believe he is referring you too does have some wonderful suggestions.  As far as the doctors, I'm wondering if he could change doctors? 
 
I believe that there are pharmacuetical companies that are working on pain medications made from marijuana and they are available in some states.  Maybe give a little more thought to Tony's suggestion about contacting the newspaper.  It sounds like one picture of your Dad would make it very obvious that he wasn't running a "drug lab".
 
Please keep us updated on how you and your Dad are doing.
 
Lorie 
 
 
 
Not sure but the Intrathecal Pain Pump is like (or is) A morphine pump isn't it? if so then he has tried to get one but insurance only will pay for surgery we would have to pay for the pump and the refills and thats alot of money I belive father said something like in the thousand(s) a month (dont quote me on that) but thank you for your support and about the doctor thing, um thats complicated father before all his problems (became horrible) saw a general practitioner (sp?) who he saw but due to a new law here he was outsourced to a pain clinic that is located in the "ghetto" of the nearest city which is a hour drive from here and thats the nearest one  and there hes seen by 3 diffrent doctors who all pee test him every visit and are real jerks ive got to see it once and was floored by the lack of care there
 
Like i said before any tips on herbs or anything thats real cheap that you guys belive helps back & or nerve pain appreciate it
 email is leve198777@yahoo.com if you would like to write me 
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