I'm scared - got endo report

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PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/18/2009 3:43 PM (GMT -7)   
Hi, dear friends (really my family),
Well my GI doctor called me late this afternoon after I had left a couple of messages requesting the biopsy report from my endoscopy last week.

It could be worse. That's the good news. But it's not great. I have Barrett's esophagus, with some mild dysplasia (cell changes) which are not cancer but sort of precancerous. I have to double my prilosec dose and work with my diet and supposed to raise the head of my bed (oh yea, would be great for my neck), and of course all kinds of dietary changes. Now I can't even enjoy some comfort foods.

Right now I'm not looking for solutions or information. I just need hugs and shoulders. It's scary. My insurance ends in less than 2 weeks. Doctor wants me to try doubling the prilosec, and if symptoms don't decrease in about a month he wants to add another medication and if that doesn't work another endoscopy. He wants to repeat the endoscopy in 6 months even if my symptoms do improve. And me with no insurance.

Somehow, somehow I'll figure this out. I just pray that the hospital will take me on as a charity case if needed, if I'm not eligible for Medicaid.

I don't think my brain is wrapped around this yet. You know of all things this is not the area of my body I would have expected to have problems with. As an aging female, one things of breast cancer, cervical or ovarian. But I've never had any kind of chronic acid reflux or anything.. This has all come up in the past several months. I know the stress of CP has to have contributed.

And I'm angry. I'm tired of LOSSES. Even something as simple as enjoying late night M&M's (I'm not supposed to eat for 3-4 hrs. before bedtime now!). And now two more pills to add to the stack. Got to remember to take the prilosec on an empty stomach. Remember this. Remember that. Fill out the SSD forms. Try to get some kind of insurance. Make an appeal to my 401K to see what hardship money they'll let me have. I want to scream. I want to cry. And I am scared.

Thanks for letting me vent. I know you all understand what adding yet another health issue feels like. I suppose I'll be visiting the GERD forum, but I'm not ready for information yet. I need to process all these emotions - and with people who understand what it feels as the problems keep piling up.

PaLady cry

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/18/2009 4:14 PM (GMT -7)   
I'm dropping tears as I type. I'm so sorry you had to get results like that. Its just another thing added to the long list of sorrows. I understand late night M&M's aren't going to help how about if they made M&M's the size of easter bunny eggs that might help alittle.....

If I know you at all you will cry for a few hours then buck up and trudge through what you have to get done.

I guess we will lay off stealing WhiteBeards garbage cans for a few months...

You'll be in my prayers
Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/18/2009 4:28 PM (GMT -7)   
PAlady, I am sorry to hear the news. As you state it could be worse but at this point in our lives, every little bit hurts. Change is not easy when we are being made to because of some one or some thing we don't like (CP). Take your time to grasp the fullness of the report, rejoice that it is not worse and wait for emotions to be cried out. It is ok to get mad and you know that. Just don't get mad at yourself. You will make it through this but the M&M employees are going to get a shock. You are a very strong person but not exempt. This is where your strength will have to be more visable. You are with people that care and understand. Thanks for all you do for us.

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 6/18/2009 4:35 PM (GMT -7)   
PaLady, First of all, please accept a soft hug from me:
((((((((((((((((((((PaLady))))))))))))))))))))
Now concentrate of breathing. Try to relax if even just a little bit... I really am so sorry about this. I know it wasnt' what you were expecting. When it all soaks in, I know you-you'll become an expert on all the information you get from doing your own research. And that really is a good thing-to become knowledgeable. I know you have been struggling with the insurance running out,as all of us would be. You are a very intelligent lady, I know you have been weighing your options and trying to figure out what to do. Bless your heart, PaLady.

I understand you are tired of losses. You have been through alot and have had alot of things unnecessary being thrown at you. I do wish I had the answers for you. I know it is overwhelming. We all are here for you and will always be every step of the way. You are not alone. You do have all of us pulling for you. You have our love, support, encouargement, shoulders and anything else you may need along the way. I wish I knew the right words to say to you. I wish I knew what I can do for you. I know you don't need something else to deal with and certainly not another health related issue. I am here for you PaLady. We all are. Vent as much as you need to. Try to imagine your CP faimily in your living room all around you giving you hugs. That is where we are.
Anice

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/18/2009 4:59 PM (GMT -7)   
PaLady,

You gotta know that I am right there with you. A couple weeks ago it was me who was waiting for test results on the mammogram. Boy was I scared. OK, well now you have some troubling news and I know all about first reactions.

But think about this. Barretts is becoming very very common these days and many people just have to watch it and nothing ever gets any worse. I know you are troubled about more losses and having to make some changes ie, in your diet and meds, but you will do that and you will be ok. I just know it.

As for the financial part that you discuss, I am so upset for you and have been for months. Wonderful people like you shouldn't have to go through this at all. You are such a wonderful asset to this family and all your advice is so sage. I just hate that you have yet another problem to worry about. I am here for you and always will be. You have my email, so feel free to contact me at any time you want to talk. I offer you good thoughts and positive energy to get through this time and a shoulder to lean on any time you want it.

Gentle hugs.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/18/2009 5:38 PM (GMT -7)   
PaLady - I too have Barretts. Mine has either healed over or is healed completely. They can't tell for sure, but they haven't been able to find it in the last 4 EGD's they have done. Including the one a couple weeks ago while I was in the hospital. Has your doctor thought of switching to something else besides the prilosec? For me prevecid and aciphex work better. I did have the surgery because of the Barretts, high refluxes, and the PPI's not helping anymore. I kinda flipped out when I first found out about the Baretts myself, but have come to terms with it. I guess it helps it has somehow vanished also the last 6 months. As I said though, they aren't sure it it is actually gone or just healed over and is deeper now.
My GI and surgeon told me there are a lot of things that can be done to stop Barretts even when low dysplasia is present. They told me that usually they want to watch it close with frequent EGDs. I have to go every 6 months at least now. I also got the speech and pamphlet about how we can't have the comfort foods anymore. That sucks. I have added them back a little though. I have a weakness for chocolate, I can't help it.
Take care,
Bill

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/18/2009 5:52 PM (GMT -7)   
I want to respond to each of you, but my eyes are tearing over from reading all your kind words.

Bill - it helps to know someone else who has it. I haven't been on the prilosec that long, only about a month, and at 20mg. So now it will be 40mg. And in a month or so if it's not improving he wants to try a different med - probably one of the ones you're mentioning. But without insurance all I can do is hope it's something he has samples for and a pharmaceutical has a program for someone with no prescription coverage. I'm looking into some not too expensive health insurances, but none of them have prescription coverage. Even the adult basic program in our state (which has about a 2 year waiting list) doesn't have Rx. coverage.

One day at a time. One day at a time. Right?

Anice - you had all the right words! Lindaloo - thanks for sharing and I know you understand. And thanks for telling me Barrett's is not that uncommon. It's something I have to learn about. If insurance and money weren't issues I don't think I'd be as anxious.

Fatherjohn, Laurie....your comforting words mean more than I can say.

I really do feel supported. You are my lifelines, my rocks.

Thank you!

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/18/2009 7:03 PM (GMT -7)   
     Lady,
 
     You are so wonderfully articulate. You care about others with an ease I havnt seen in years. Your ability to be a beacon of light in terribly dark times makes me want to aspire to be more. To try harder. It is hard to know your heart is breaking and there is so little that I can do to help. *warmest huggs*
 
    
 
     PAlady's Pre-Midnight Snack!
   
 
2 cups sugar
1/2 cup light corn syrup
1/cup hot water
1/4 tsp salt
2 egg whites
1 tsp vanilla
1/2 cup *chopped pecans
 
Combine sugar, corn syrup, hot water and salt in saucepan (dark* or clear NOT porcelin). Cook to boil stirring constantly, Cook, without stirring, to 250F, hard-ball stage. Remove from heat. Beat egg whites untill stiff. Pour hot syrup slowly over egg whites, beating constantly. Add vanilla and beat until candy forms soft peaks and begins to lose its gloss. Add nuts. Drop by teaspoonfuls onto wax paper.
 
  I wish I could help in some way. Your so wonderful and kind. To everyone, from all walks of life. In prayers and hearts.
 
*huggs*
dani
 
 

TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 6/18/2009 7:09 PM (GMT -7)   
Perhaps to settle nerves just a BIT....

My Endo was virtually the same as what you are reporting. Gave me some antibiotics to clear the Barrett's, and some medicines for the stomach issues, and things were right as rain in ten days or so.

I did have to wait for the biopsies, then a doctor to read them once they came in, but it was fair as far as a process went.
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer
Meet My Wife And Me


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/18/2009 7:15 PM (GMT -7)   
Hi Palady,

I was about to head off to bed, as I've barely slept in the last few days (horrible nightmares on top of all my normal problems) & over the last several weeks, but especially the last several days, my vision & function of my eye has drastically changed for the worse, so I'm having a real hard time seeing, let alone reading (I will be calling my doc first thing in the morning), BUT, I just saw this thread & knew that I had to respond. Okay, that's more than enough about me, that's not why I am writing, YOU are the one who needs love & attention right now, and I don't want to take away from that.

Your post had tears coming out of my eyes. I'm serious. I'm just so frustrated, and heartbroken, and mad, and scared for you! Life just seems to be throwing you curve ball after curve ball & it just isn't FAIR! Why does it seem that the best people always seem to be dealt the worst cards? Palady, you have one of the biggest hearts of anyone I know!! You are so compassionate and caring, and wise. You are always the first to offer comfort and support and reassurance. I don't understand why God is being so hard on you.

I wish that I could be there for you in person & give you a great big comforting hug & a shoulder to cry on! I can't imagine how scared you must be, with your insurance ending, this new, "unknown" diagnosis, as well as all the changes that you have to make (no m&m's, or comfort food, which is HUGE to us in the world of CP sad). I know that you are so tired of being disappointed. It is very very hard on you emotionally, grieving such losses. As if we didn't have enough physical problems, alone, to deal with! But try not to think of everything at once. I know you have to; you have to deal with these things, but what I mean is, if you can, try to take things slowly. Don't get too far ahead of yourself, if you can help it. Take things one step at a time. One day at a time. One hour at a time! I know that you'll get through this! You are SO strong!! And we are all here to support you -- in any way we can.

As for raising your head at night - I know that is going to be REALLY hard for you with your neck! You have a hard enough time finding a good pillow to use, and now, you are expected to change your sleeping arrangement?! I know that you don't have the money right now, or not in the foreseeable future, but I sure wish that there was some way that we could get you some kind of electric bed, that allowed you to create an incline, so that you could still sleep with your head raised, without jeopardizing your neck!

Have you been talking to anyone? A therapist, or even your cousin? I know you know how to handle things like this professionally & that you can talk freely with us, but it still might be helpful to talk with someone in person (again, how I wish I could be there for you!). I'm worried about you! You really are like family, and I hate to see you hurting so much, both physically, economically, and emotionally! Please, do email me ANY time, day or night, if you need to talk - you know I don't sleep! I really do feel love for you & others on this forum, and care about you deeply! Please remember that. And if there is anything, anything that I, or we, as a forum can do to ask, don't be afraid to ask us! We all care about you!

Sending you all the love & hope, and positive thoughts I can muster! You are always in my thoughts & prayers, but I will try to step it up a level for you :-)! (((((((((((((((((Palady))))))))))))))))))). Sending you big, soft, gentle hugs - the kind that make you feel so safe and warm!

Please take care of yourself! Let yourself cry & grieve as much as you need to, it's part of the healing process!

Many hugs & love,
Skeye

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2281
   Posted 6/18/2009 8:11 PM (GMT -7)   
((hugs))
Moderator -- Depression Forum


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 6/18/2009 8:21 PM (GMT -7)   
Hi PA Lady,
First, I will send you tons of gentle hugs, and some comforting ones as well.... yeah   You don't need more medical concerns at the moment, but it is far better for you to know that you do have the problem than to keep things in the dark. You have the insurance for the time being to get you started, and that will be long enough to get you hopefully enrolled in the prescription assistance programs for your meds.
That also gives you some time to work on the insurance concerns and the 401 K.
I don't know enough about the esophagus problem to help specifically, but in reading the other posts, it seems that this medication has a good chance of taking care of the problem, with the right diet changes and medical watching.
Hang in there dear lady. I'm glad that you reached out and asked for some support. It's hard to do sometimes, especially when we are scared and feel alone. The wonderful thing about here, is that we are never as alone as we once were. There are always a few family members hanging around.....
Hugs again,
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/18/2009 9:37 PM (GMT -7)   
Hi sweet friend!

I'm so very sorry this is all happening to you! I wish I was there to give you a hug in person but long distance will have to do. (((((HUGS))))) My suggestion would be to just rest. Don't worry about reading and learning all about this newest thing...just rest your head.

Then take a look at a lot of the options out there for help with insurance and medications. You already know that most of the drug companies will give free meds to those in need. Plus, your state should have an insurance policy you can get on a sliding scale...like free or just a tiny bit. The Red Cross is always a good source of help, even if you just need someone to sit down with you and help look over all of the paperwork. I'm sure it's overwhelming to have to do this all alone. I know I couldn't do it.

This is the time when you will see how strong you really are, PaLady! WE know you are but now you will see it too. I hate these times of life but it will pass and you will get through it with your dignity in tact and the faith to carry you through.

Hugs,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/18/2009 9:44 PM (GMT -7)   
Hi PAlady, I'm so sorry to hear about the Barretts. But even worse to have to change your diet as well, not good. Those old M&Ms are a great lifter when your spirits are down. I guess like all changes you will find it hard at first but after awhile you will find another source to lift those bad days, laughter or the comfort of a good movie or sometimes an animal can really help. I really feel for you with the health insurance uncertainty, it must be a huge worry for you. You deserve a guardian angel to wave her magic wand to solve all issues. My heart goes out to you, golitho

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/18/2009 9:48 PM (GMT -7)   

((((((((((((((PALady))))))))))))))

XXOO
Patti


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/18/2009 9:55 PM (GMT -7)   
PAlady, I just returned from work, another late one. The problem about raising the head of the bed is not difficult. I have helped several people do it. I simply cut blocks out that would fit under the heardboard or posts which raised the head of the bed. That way your neck does not get messed up but your head is elevated. If you think it would work I can get these for you. Just a thought. Hope you get some sleep tonight.

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/18/2009 10:00 PM (GMT -7)   
PaLady -
I have heard that they have come out with a generic of the Aciphex. I just got a prescription for aciphex and it wasn't the generic for some reason. Maybe it hasn't gotten to the States yet. Anyhow, most GI doctors I have dealt with will give out a lot of samples. They get a lot of them. I never had to ask, but when I had to go to Nexium they just gave me a months worth because they knew my insurance would argue and that is what they wanted me on twice a day for a month. I hope your GI is like mine. I was first diagnosed with Barretts a little over 3 years ago. It was found just prior to me having the reflux surgery the first time. I haven't been on PPIs the whole time since my surgery, only once in a while if things flare up. I believe it has been about a year and a half since they last found it in a biopsy and I have one more 6 month EGD that if clear will let me switch to yearly EGDs. My GI told me the best time to take the PPI is 30 minutes before you eat if possible. I guess it gives it enough time to go to work before food gets in the way.
Everybody on this forum is great. It really makes me smile to see everyone here pick each other up and care so much even when dealing with so much themselves. If you have anymore Barretts or GERD questions don't be stranger to the GERD/ Heartburn forum either.

Take care,
Bill

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/18/2009 10:16 PM (GMT -7)   
Bill - thank you so much. My brain is pretty fried right now, but I know I'll have lots of questions and it's nice to know there's someone here on CP dealing with the issue. GI stuff is new to me - except I had my gall bladder removed when I was 19 - 40 years ago! But no problems since until now. So I will be asking and be over on the GERD forum when I have some energy. It all just feels so scary right now.

BTW what is Aciphex? I don't even know any of the meds. Just that zantac didn't work. And I asked my doctor today about the difference between prilosec and nexium and he said they were "first cousins". My real cousin is a pharmacist, so I do have someone to ask. I'm getting a 90 day supply of the prilosec (2/day). At least if nothing else that's OTC here in the states, but much more expensive. Still, I know a family member would buy it for me if I needed it. The problem will come if we have to start switching and playing with different meds. I don't want to think about that now. I'm going to make like Scarlet O'Hara and think about it all tomorrow. Probably not even tomorrow, as I'm waiting for my dentist to call to see if I can get a crown replaced before the end of the month. And an eye appointment next week. And 2 PT sessions left that I don't want to let slide! And then I'd better pop in one more time to my PCP's office. UGHHHH!!!!!!!!!!

Fatherjohn - my PT recommended something like that, because I know I couldnt' use a wedge which is what's recommended. Honestly, I'm not even sure how my neck and back would do with any kind of elevation. My neck is so fragile.

Thank you everyone. I can't thank you enough for your kind words and hugs and gentleness. Whatever would I do without you????

(((((((((((My Healing Well Family))))))))))))))

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/19/2009 12:06 AM (GMT -7)   
PAlady, I'm very happy on the nexium, it has really settled my stomach issues and appears to have no side effects but this is only my third month of taking it. Good luck with your meds, what a nightmare!! Golitho

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/19/2009 6:24 AM (GMT -7)   

PALady,

2 months ago I found a pillow from Mediflow that is a Water/Fiber pillow.....it costs about $40 and has a 90 day money back guarantee.  It has been the best purchase I have made, I posted about it when I got it.  I've been using it every night, it is the ONLY pillow I have used that actually allows me to sleep comfortably, it cushions your neck and is not too swishy because of the fiber.  I've spent hundreds over the years since the cervical fusion on pillows.  With your GI problem I think you will find this a helpful solution for your neck.

mediflow.com   I got mine at a CVS where they sell Durable Medical Equipment.

((((((((((((((((((PA))))))))))))))))))))))))

XXOO
Patti


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 6/19/2009 7:18 AM (GMT -7)   
PaLady, I wanted to stop in and see how you are doing this morning. I have really been thinking about you. It is such a blow to you, I know. I hope you were able to get some sleep last night. When things are thrown at us, and we get major blows, I know sleep is hard to come by. But I hope that you did sleep some. You need to be able to rest your mind and your body so that you can be strong enough to deal with all this. I really do feel for you. You are so well thought of by all of us here. And you are often one of the first to jump in and give it all you have to help others here. You sure do have a special gift to be able to do it like you do. I personally think you are right up there with the M&M's as for as comfort! You are going to get through all of this. And we are here to hellp you in every way that we can. Please try to hold you head above water and tread for a while. You will soon be strong enough and ready enough to get after it and yet again conquer another one of life's major problems... You have alot of fight left in you. And you will be able to soon pull it out.You can do this, I know you can!
Anice

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/19/2009 7:34 AM (GMT -7)   
PaLady -
Achiphex is another PPI. From what I understand they all are similar, but certain ones work better for different people. Prilosec didn't do anything for me. I did take Prevecid for a while and it worked pretty well. I was on Nexium after a couple ulcers showed up from a lot of biopsies. Nexium worked really well, but I had to get samples because my insurance wouldn't pay for it. Achiphex in my opinion is between Prevecid and Nexium. Some people I know like it a lot better than any other PPI. My son also takes it and hasn't had any problems with it and it has stopped his reflux issues. I had heard they were releasing a generic of Aciphex, but haven't seen it myself yet. I am using Aciphex right now and I haven't noticed any side effects with it. My surgeon wanted me on Protonix for a month after my recent Nissen revision, but my insurance said I had to use Aciphex first.
Take care,
Bill

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/19/2009 9:56 AM (GMT -7)   
Wow.

My eyes area tearing again as I read all your posts. You don't know how much each and every one of your posts, your words, mean to me right now. I am still scared. I know that's normal. So much coming at me all at once. And it wouldn't be solved but would be much relieved if I knew I'd have health insurance. i don't want to get political but this is personal to me, and so any of you in the U.S. who are looking at how this issue is being dealt with, please think of me and others like me. I can't afford private insurance. I'm not yet eligible for Medicare, although yes once I get through SSD and go through the 2 year wait I will be. But I'm nearly 60 now anyway. It's kind of off topic but not really because it's PERSONAL to me not political. The state low income option in PA has a 2 year waiting list, and yes you can buy into it for $330/month and that's with no prescription coverage. I am over the limit for Medicaid because of having more than 2K in a 401K, which I can't really access right now without a ton of paperwork. And the other options that I might even be able to afford through my insurance company aren't going to cover things like repeat endoscopies to check and see how these precancerous cells are doing. Just know that if you don't know anyone who's stuck in this position, you do now. And it adds I'm sure to the stomach acid I'm producing. Ok, I'll stop on this. I don't want to turn this thread in a different direction. This IS about my fear.

Bill I've never heard of Aciphex, but that doesn't mean much because I'm knew to all this. I do wonder if prilosec is working. Just took it 2X yesterday, and honestly sometimes it seems it feels worse right after I take it - is this normal? It certainly has helped more than the Zantac, which didn't do anything, and I know you have to take these things for awhile for them to work. I apologize to anyone here as I should be asking these questions on the GERD forum, but I'm not up for going over there yet. I don't think I can yet look this one in the face, if you know what I mean.

To anyone here I haven't mentioned by name, please know that doesn't mean I don't have each of your responses in my heart. I thought about all of you last night as i was lying in bed, and it was more comfort than I can tell you. I knew I could come here today and ramble and vent and ask questions and I knew you'd all be here.

Thank you. Thank you. Thank you!

PaLady

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 6/19/2009 12:47 PM (GMT -7)   
PaLady, I completely understand every word in your post. It isn't political. It is personal. And I can really feel your frustration. It is an unfair(to say the least) situation. Your insurance runs out. Replacement insurance is terribly expensive and doesn't offer medication coverage. And you can't get Medicaid or Medicare. It is a bad situation. I wish I knew someone or knew how I can help. SOMETHING should be done about this. And you can't access your 401K? What is so sad is that you are probably not alone in this type thing. There are probably many in this same position. And it concerns me for them too.My main concern in this is you. You are having all this thrown at you.I wish there was some type of adviser out there who could help lay it all out and help you with which options would best suit you. I wonder if there is someone like that available, who would do it at little cost if any..... But, this is so unfair. You need insurance.I shouldn't even send this post. Things aren't coming out like I mean for them to. But I care so much for you. And to have you facing all this stuff is, well we a know... You do have a plate full. Let us know if there is something we can do for you. Research? Phone calls? PaLady, just come here and tell us how we can help, and it's a done deal. In the meantime, we are all here for you. yeah Anice

Post Edited (anice) : 6/19/2009 1:52:18 PM (GMT-6)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/19/2009 2:56 PM (GMT -7)   
Anice,
You help more than you know! Your words are so comforting, along with everyone else's. And if I come up with something you can all help research, believe me I'll let you know. I've been doing a lot of that over the past few weeks and fortunately my professional background helps. But what it's showing me is how tough it is for many people. You're right; it's not just me. There are lots of us falling through cracks that are far too wide. But I'd better stop because we can't get political here, nor do I want to. But it's an eye opening experience for me!

The little that's left in my 401k (I've been taking out a lot over the past couple of years; had no choice) I am only now learning has a lot of strings attached as it's in an annuity. I didn't realize it. It's not only about penalties, it's rules about how the money can be taken out. I had planned on living off of that until SSD got approved. I did talk to one of the financial counselors there and finally pulled it out of him that well, maybe, there's a hardship options I could TRY for, and that's what I have to do, but I've got to write a detailed letter and get a bunch of other stuff together and heaven knows what documentation they'll ask for. Right now, though, I'm focused on medical appointments which are adding up fast in the next 10 days. What ticks me off is that the 401k people send it all back to my former employer, the college wherer I used to teach but left in 1992. There are still people there I know, and it's embarassing to have to lay out my guts in front of them all. The college was like a little gossip mill. And it's not like it's in a medical office where confidentiality rules woud apply. So all I can do is ask for people to treat the information confidentially, but heaven knows who will get copies of what.

Just remember there are lots of other people out there like me. Some probably on tnis site; we've had a lot of people not have insurance coverage for periods of time who post here.

So thank you, Anice, truly!

I feel so bad I have not responded to each of you, but know that you are in my heart. I'm afraid to try to name everyone right now because I'll forget someone!!

Dani- I do have to ask about that recipe. Is that an ok thing for someone with my problems? It sure sounds good! And your words were so moving.

Skeye - I worry so about you, but I continue to believe there will be something out there in the future.

Patti, Sandi, Golitho, Tony, frances, Bill, Laurie, Fatherjohn, Lindaloo and of course, my dear friend, Chutzie! My hugs to each one of you!

PaLady
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