trying to figure this out

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sayyadina
Veteran Member


Date Joined May 2009
Total Posts : 1343
   Posted 6/19/2009 6:05 PM (GMT -7)   
I've been having issues with pain for a long time. Probably back to at least 2003. All over my body, achy bruised feeling in my limbs & torso. Fatigue too.

Been to a lot of different doctors, with no on figuring this out.

I've seen
1 GP
1 Infectious Disease Specialist
1 Neurologist
2 Naturopaths
1 Rheumatologist
1 Cardiologist
1 Lyme Disease Specialist (Who completely ruled out Lyme)

Been going over my blood work results.

2003
ESR & Rheumatoid factor normal
ANA & Streptozyme negative

2005
ANA negative
TSH normal
Liver function normal
ESR normal

2006
TSH normal
Mono spot negative
Sed rate normal

2009
CBC, Urinalysis, Protein, Liver function & Thyroid normal
Sodium & CO2 slightly low


Have had xrays & MRIs of my head, neck & back, all normal.

Has anyone else experienced this? What doctor was able to figure it out?

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/19/2009 9:03 PM (GMT -7)   
Hi and welcome!

Have any of the doctors ever considered Fibromyalgia? It's all over body pain, basically. First off they need to eliminate any other disorder that has the same symptoms...which it looks like they've done. Then they need to check for what are called 'Tender Points'. Here are a couple of links to how that is done some good definitions of fibro.

http://en.wikipedia.org/wiki/Fibromyalgia#Diagnosis

http://www.nlm.nih.gov/medlineplus/ency/article/000427.htm

As you will read on these pages, a rheumatologist is probably the best one to diagnose this disorder. My primary doc did mine but had a rheumy confirm it. Don't stop until you have some answer whether it's fibro or not. You need to know. We do have a fibromyalgia forum if you'd like to join us over there and see if things sound familiar.

Good luck and keep us posted,
Chutz
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/19/2009 10:38 PM (GMT -7)   
:-)  
 
     Hi Sayyadina,
     Welcome :-)   I am very glad to meet you. I am new here as well, so far everyone seems very nice. I hope you stay and get to know some of the other people.
I am very sorry to hear you have chronic pain and dont know cause yet. It sounds like you ve been all over and very proactive in trying to find a solution. It must be very frustraiting and exhausting shakehead   Im afraid I dont know much about differant types of illnesses associated with chronic pain.... BUT... the other folks here will probably have good ideas. Anycase, just want to say Hello :-)
 
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/20/2009 3:16 AM (GMT -7)   
Welcome Sayyadina,

Chutz seems to have some good advice research the items she has given you. Hopefully you will find some solutions. Pain is NEVER easy to live with but knowing what is causing it lightens the stress with dealing.

By the way Welcome and hopefully you will stay with us and join our family. Here you can talk about anything doesn't have to be about pain, tell us all about yourself and if you have a pet we all LOVE pets stories.

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/20/2009 8:43 PM (GMT -7)   
Hellow Sayyadina and welcome. Sorry that I had to meet you here but we are glad you are here! It is a loving, carring place w/ wonderful people who are great listeners and really good friends. I'm so sorry to hear you have one of those frustrating ailments that no dr. has been able to figure out. You are not alone here. There are many others here who suffer w/ similar ilnesses which have yet to be identified. Although I'm not one of them, I believe them with all my heart, why would anyone make up something so horrable? I did suffer for 3&1/2 years not long ago w/ a physical problem that all the docs, shrinks and my family said was in my head after much testing showed nothing sort of like you! I was at my wits end and almost to the point of just giving up when a young intern (practice Dr.) discovered exactly what was wrong w/ me!!!!!! So please don't give up! These expert dr's can miss something and often do! I know it can be extreanly frustrating but there is a reason that is causing your pain, don't let them tell you there is not! Keep the faith my Sister, You too SKEYE!!! Someone is going to find out what it is!!!
Your Friend,
Pete
PS>>> Welcome to you too DANI!!!!!!!
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis headed back to Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" on their way to the Middle East w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/21/2009 12:13 AM (GMT -7)   
smilewinkgrin  
   Hehe, Hi there Pete
 
   *huggs*
    dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/23/2009 5:17 PM (GMT -7)   
Hi Sayyadina,

Welcome to HW! I'm sorry to hear about all your pain & especially that you still remain undiagnosed. I know how hard that is!! I am in the same boat...been dealing with this for 2 1/2 yrs & still nothing (and yet my symptoms keep progressing). Basically, I had a traumatic injury to my eye several years ago & came close to losing the eye & now I am stuck with severe chronic pain (which we have yet to be able to control in any way) & diminishing vision & function of the eye. I just saw a new doc today, a rheumatologist, but it was a waste of time. Fortunately, I expected it to be so ahead of time. One of my docs thought of some abstract condition (although 90% of the symptoms didn't fit with my case from the beginning) & so sent me there. As I expected the doc didn't have much to say. He thinks it might be RSD/CRPS (which has been mentioned before, so, nothing new), but that is out of his territory. He did seem genuinely upset, though, that he couldn't help. Even though I expected this outcome, it was nonetheless disappointing. I'm just scared that no one is going to figure this thing out & that it is going to keep getting worse (as it is already doing) & I'm going to end up losing all my vision in this eye (not that it hasn't already been irreparably damaged) AND be stuck with the severe chronic pain that has plagued me fore 2 1/2 yrs.

Not having a diagnosis is scary & frustrating, and disappointing, so I truly hope that someone comes up with something for you soon. Chutz's idea of fibro & seeing a rheumatologist sounds like a good one to me. Can't hurt anyway.

As for your "herd," wow! They must be hard to take care of with all your pain! But I am quite jealous! I'm on the road to becoming a vet & I want to work primarily with large animals. I'd love to have horses, goats, and a couple cows one day (alpacas are great too)! I just need to figure out this whole CP thing, so that I can make it through the rest of my schooling (one more year of undergrad & then hopefully vet school).

Skeye

Oh - another thing. Have you ever tried any alternative therapies? If you are willing to try & can afford it, you might think about trying something like acupuncture, cranial-sacral therapy, or seeing an osteopath who practices cranial-sacral manipulations. Sometimes, when conventional medicine can't help us, alternative therapies can do wonders!

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 6/23/2009 8:30 PM (GMT -7)   
Sayyadina, I want to welcome you to this forum. If you are looking for hope, support,encouragement, compassion, understanding, friendship and much more, you have come to the right place. I think you will come to enjoy it here much more than you thought possible. I know it sure has helped me alot. I don't know how I could have made it the past couple months without it.

I am sorry that you are having such a hare time with your pain and with getting a proper diagnosis. I do hope that you will soon see the "right" doctor who can give you a diagnosis and start the treatment that will help you get relief as well as the answers.
anice

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/23/2009 8:36 PM (GMT -7)   
Hi Sayyadina,

I know how tough it is to not have a vet school in your state. Connecticut does not have a vet school, nor any contracts (reserved spaces) with any vet schools, so you have to apply non-resident to every one, unless you establish residency in a state that has a vet school. Unfortunately, CT is well known as the worst state to apply to vet school from. Every other state in the country at least has contracts, even Maine! I've actually worked as a vet tech at a mixed small-large animal practice for going on 7 years! I work mostly part-time -- now just weekends only, except rare occasions, as I'm in college the rest of the week. You actually do NOT have to be certified to work as a technician (I am not, although I was planning on taking the exam, but a year or two ago CT changed the rules so that you have to take an accredited 2yr program before you can take the exam). It does somewhat depend on the practice that you work at though (some vets will only hire certified techs, others will hire either). Believe it or not, I've actually been working at the practice the longest out of any of the tech's now & am the head technician anytime I work! I love my job so much. It's been really hard with both school & CP, but I think I would go nuts without it. It is like a release for me. I spent 20 hrs there this weekend; I was exhausted, hurting, and very happy!

It doesn't matter if it takes you a while to work your way towards your goal, it will still be there (everyone here has helped me realize that). I've had to drop multiple classes (some half-way through the semester). I've come very close to dropping out completely; I'm still not sure that I will be going back this year, or semester (I say that every semester, but can never make a decision, even know I know the one that I should make & that my docs are pushing me to make. But I suppose no decision is a decision in itself). But I really want to just get through this year, as it is my final year. After that I will definitely be taking at least a year, if not more, off to try to get this CP & everything else under control before (hopefully) heading to vet school.

Skeye
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 3:26 PM (GMT -7)
There are a total of 2,734,292 posts in 301,200 threads.
View Active Threads


Who's Online
This forum has 151323 registered members. Please welcome our newest member, judy.
332 Guest(s), 13 Registered Member(s) are currently online.  Details
cupcakespinkgal, Psilociraptor, tennisplayer, Albannach, jennydancingfish, Scaredy Cat, Girlie, ChickNorris, U B Tough, Cowboy10, peanut307, JackH, Broncofan18


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer