CP Meds and Food

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fatherjohn
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Date Joined Feb 2009
Total Posts : 999
   Posted 6/20/2009 11:54 AM (GMT -7)   
This may sound strange but does your medications and CP have an affect on your appitite and what foods you eat. We have had some threads lately that discusses if we like to cook, what we like to cook etc. I am one who loves to cook for my family but I don't care if I eat much. My wife is a little concerned as I have lost over 20 pounds in the last month. She told me that my pants are lookin g big on me and I have to wear a belt to hold up just about everything I own. With the SCS implanted 2 weeks ago, I can't wait to get my belt off when I get home. I had the transmitter placed above the belt line on the right side of my back. I normally sleep on my left side so that has been good as far as laying down.
 
I am not sure but I think the Lunesta that I am taking has affected how things taste and I have not wanted to eat much. I try and drink several bottles of citrus flavored water (no sweatners) each day but I eat very little. I know some people would love to have the problem of weight loss but am down 35 pounds since I started my surgeries last year. It is hard to find something that I think will taste good and then who wants to eat when you are not hungry. Last night I ate a small piece of carrot cake but all I ate all day was a bowl of cereal, a slice of cheese and some crackers with a couple cookies. Do any of you have the same problem and if so, what have you tried. I am thinking of trying to keep some healty snacks with me all day and try and keep snacking on them.

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/20/2009 12:38 PM (GMT -7)   

FatherJohn,

I have the opposite problem, I gain weight.  I don't eat much either, I agree my meds have cut my appetite.  I had a hormonal meltdown when the neck ruptures occured, I gained 35 lbs. in 30 days and was unable to eat at that time.  My diet after the surgery was mostly water and soups!  Had numerous tests done and they discovered I had very low adrenal function....the shock to my system from the ruptures literally fried my hormone system, it caused early menopause and cortisol malfunction.  Since then I have been on numerous supplements to try and kickstart the adrenals....just recently it has begun to  show signs of life.  From all the years of attending Seminars and  listening to and working with Homeopaths, Naturopaths, Chiropractors and Nutritionalists it is instilled in me that the foods we eat DO affect our Health.  Especially what we eat at Dinner, our healing cycle is at night so what we feed our body before bedtime is what our cells have to work with.  I lost my way for a while with my diet, felt sorry for myself and began to eat alot of comfort foods, sweets, ice cream then salty to balance the sugar lol, from that short spurt I gained an additional 15 lbs.  Not only did I gain weight but I found myself with indigestion and acid reflux, it was awful and I knew I had to do something with my diet.  I also am allergic to sugar, hows that for a sucky situation!!  CP and then NO SUGAR....geez!

Currently, I eat mostly veggies, fresh fruit and meat. I have started pre planning snacks like a piece of fruit or veggies and a handful of nuts or a piece of fruit/veggies and cheese.  With the amount of pain meds we all take eating foods in their natural state vs. bagged, bottled or boxed seems to provide the fiber we require to keep our systems moving.  I do allow myself a sweet treat on occasion and believe me I enjoy it while I'm munching it but the next day really really feel like crap.  I also think to myself if I'm fat eating like this I shudder to think what would happen if I ate all those yummy foods that are calling my name as I grocery shop!  I have finally started to lose between 1/2-1 lb. from all my efforts, so I guess its worth while.  

I feel for you because we fat people all joke about people who are too thin, but I know its as traumatic as being overweight.

Thanks for this post...you always come up with interesting topics that keep us sharing!!

XXOO
Patti 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/20/2009 1:22 PM (GMT -7)   
You know my appetite shifted and I think it started with my fusion surgery. I used to carry around an extra 20 lbs, which I put on when I quit smoking back in 1990. Then around the mid-1990's I changed my diet and got healthy and took off the 20 lbs. and kept them off until the past couple of years. Funny, I lost my taste for a lot of the 'comfort' foods during that time and had an appetite for mostly healthy things. And then can CP and eventually the fusion. The healthy things I used to love - like a large salad nearly every night (because I don't like veggies so this is how I got mine!) - and a nice piece of meat on my little grill I totally lost the taste for last year. And, of course, along with that started slowly returning to eating fast foods, fries, slowly putting the weight back on. The big hit came of course with those halloween M&M's that never left. And the 20 lbs. plus came back on. And has stayed.

When I lost the weight in the 90's I felt reasonably good, was healthy, could exercise. Now, well, you know. I really wonder about my cortisol levels, too, Patti, but then probably all of us have high cortisol levels with chronic health conditions and stress.

So now I've got this new thing in my life with Barrett's esophagus, and early cell changes. And this is scary. I need to take some of that weight back off, and I need to get back to eating healthy but it seems like it's one loss after another and I'm so tired of that. Couldn't I at least have my comfort foods, if I have to live with this CP? I guess not.

So, Patti, I may have to start taking a page from your book. But I wish I had my appetite back, because I did learn to change my eating habits before, but I wanted something to eat.

I think I am eating so crappy because I don't have an appetite. Does that makes sense???

I hope we can get a thread - maybe this one or another - where those of us struggling to eat healthy can support eachother. All these meds can't possibly be good for our GI systems, but then for the most part we have little choice.

Glad you started this fatherjohn.

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/20/2009 1:48 PM (GMT -7)   
Patti & PAlady, I can relate. Beore I was first injured, I was very active and enjoyed eating more that I should have. Then came a life that I was not as involved in. I worked but the physical part was not there. I was not using very many meds as I tried to go without as much as possible. PT, exercises, staying busy and the eacting continued and I went up to 220 lbs. That was before my surgery last year. I went on a veggie and fruit diet with a few bonuses for being good and I lost 20 lbs in a little over a month. I wanted the fusion to have a great chance so I worked to get the extra pounds off. Then I put the weight back on as I continued to enjoy those comfort foods like we all do. Then came the SCS unit and I lost some before it was implanted and did not know I was down to almost 190, Now I am not hungry and i struggle wth when it comes time to eat, nothing sound good because I know it won't taste good. Today I had some nuts and I just had a piece of whole wheat bread with peanut butter on it. I wish had did not eat it though. I still have weight that can be lost but the appetite is gone right now.

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/20/2009 2:26 PM (GMT -7)   
Well Hello Friends!
I just had to reply to this one! I love to eat! It's a the curse of growing up in an Itallian family. All my elders told me to clean my plate, have seconds, it's good for you, kids in Africa are starving and wish they could have that little peice of meat/fat on your plate and MUNGA~MUNGA!!! Now, I have to watch what I eat and suffer! I can't remember the last time I wasn't hungry! I eat when I'm happy, I eat, when I'm sad, stressed, cellebrating something, pissed off at something, starting something new or ending something, sick or healthy! I really do have a eating disorder! I'm 6'3" and around 275 right now but was over 300lbs as resient as last winter. I dream of not being hungry but it hasn't happend yet! Being w/ my wife now has been a blessing as I'm not overeating as much now. She also has me doing a lot of physicall chores, good for losing weight, not good for my CP!! I keep hoping that the smart guys & gals who research obesety will discover a cure for people like me! Until then, I'll be hungry!
Love Yuze Gise!!
Fat Hungry Pete!
PS>> FJ, after my prostatectomy, I was cut from my navel to my pelvic bone, I couldn't wear a belt as it would put the buckle right on my scare. I switched to suspenders and never looked back! You should try them! People think I'm trying to set some kind of fashion statement, I show them my scare which is crossed by last winter's hernia scare!! Looks like a cross!
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis headed back to Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" on their way to the Middle East w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/20/2009 2:37 PM (GMT -7)   
Pete, Hey buddy good to see you checking in. When I retire I want to take cooking classes to learn how to cook Italian. I mean the real thing. It was good to get the email thing straightened out. I am so glad that you are going to be able to spend more time with your wife. It will take time to get all the honey do lists in order I can imagine. They say that being retired is being just as busy but having more control of your schedule. Take time to relax and enjoy a good meal.

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/20/2009 2:37 PM (GMT -7)   

PA and FJ,

Its a vicious cycle...and PA you are correct, CP wears on our hormone system, alot of people don't realize this, our sleep is interrupted not just because of the pain but because the pain has caused a disruption in our Cortisol levels, I had mine tested several times, I have too much at night and not enough during the day....interesting I can fight the fatigue during the day and make myself do things...which in turn just taxes the hormone/cortisol/adrenal levels further.   We are really like the walking dead (sorry for this but don't you feel like that sometimes?), we have severe pain, we take drugs, the pain is exhausting the drugs are supposed to cut the pain and then make us more tired..... so along comes meal time and seriously who has the energy to prepare healthy foods, its so much easier to grab a box of pasta and meat and wahlah theres a meal...not very healthy for anyone but especially we CP'ers.  Cooking and eating healthy takes effort! 

Just recently I've started making Sat or Sun my cooking days, this morning I stir fryed 4 different veggie dishes, so they are ready for me  to reheat.  I also made a huge salad with leafy greens lots of cucumbers, red peppers, carrots, tomato....the salad will stay fresh for 3-4 days so again it makes it easy to stay with my plan.

I do know that Acid reflux is reduced by cutting out foods that make acid, sugar, coconut pie lol, dairy, coffee..the more veggies we eat the more alkaline or pH balanced our body becomes preventing overacidification of the system.  You could also drink a green drink, like SuperGreens or Greens first or juice veggies!  I have a friend who is a Nutritionist and she says "small changes make big differences in the body" just start by making dinner your healthiest meal, mostly veggies, lots of good oil and you will notice big improvements within a few weeks.  She also recommends sipping lots of water with lemon throughout the day.

I guess my dream would be to be Oprah and have a cook  that way it would be done for me yup I could get into that very happily.....hahahaha!

Its not easy but it sure makes sense!
XXOO
Patti

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/20/2009 2:45 PM (GMT -7)   
Patti, what time is dinner? We should have a cookbook for CPers. I am sure for all of us, old habits are hard to break.

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/20/2009 3:08 PM (GMT -7)   
Pete, As I was rereading your post I had to laugh. Maybe we could all get together compate scars. Now that would be a scary thing. To give you an idea, Your heighth and weight also stuck out to me. The guy that bent me in half when I was injured was 6'3" and weighed 250 and was 15 years younger than me. I weighed about 185 back then and I am 6'.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/20/2009 5:11 PM (GMT -7)   
I would love to see you guys in suspenders - ala Larry King! LOL

Oh, Patti, I just can't give up some of those things. Dairy is a big one with me, although truthfully I haven't eaten that much of it. Used to put cheese on those salads I no longer am eating. I used to eat a lot more eggs then got too lazy to even make those. You're so right about having the energy to cook healthy meals. And they ARE more expensive. I can make a meal from the dollar menu at McD's, albeit not a healthy one.

I want Oprah's chef and a personal trainer and a massage therapist for after the trainer gets done with me! :-)

PaLady

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/20/2009 6:13 PM (GMT -7)   

I love all of you so much!! 

XXOO
Patti


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/20/2009 6:46 PM (GMT -7)   

Ok,  you won't believe this. My wife and daughter went shopping all day so it was just me. I had a desire for pineapple. I went to the store and then I thought a banana would be good too. I sliced the fresh pineapple and grilled it. I also cut the banana up and caramelized it in a pan with a little butter and brown sugar(just a pinch). Then I took some marion berry jam with a little lemon juice and cooked it into a syrup. I put the pineapple on a plate with some whipped topping, then the caramelized bananas and then the berry syrup poured over it. I have to stop watching cooking shows. No room for dinner.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/20/2009 6:50 PM (GMT -7)   
    Dear FatherJohn,
 
 
     I do not think my appetite has changed. I am or seem to be parched all the time, and take water everywhere thou. I have been unable to enjoy food fully for a very very long time. But! Never ending line of folks willing to try my new concotions and tell me what they think.
 
     *huggs*
   dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/20/2009 8:02 PM (GMT -7)   
I have noticed in the last 2 years my eating habits have changed. I'm not hungry most the time I have to make myself eat. I'm always cooking for my family but by the time I'm done I just want to sit down and rest.

I have always been a very light eater. I love salads and meats with fat taken off. My chicken is always white and skinless. But I am slightly overweight. Doctor says its due to all the medications I take. Plus my metabolism is shot to heck for my poor eating habits.

Fatherjohn what you made to day sounds so GOOD I might have to try that!!!!

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/20/2009 8:09 PM (GMT -7)   
Laurie, I think I might be in trouble. My wife came home and I told her what I made and I did not save any for her. I can relate with cooking and then when you sit down you just want to relax and eating seems to take effort. There are times that I can't hardly stand but I want to cook and when it is done so am I.

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/20/2009 8:27 PM (GMT -7)   
Hoky Smokes Bullwinkle! Bananas, pineaple and berry syrup? Wow! FJ, you sound like quite the desert guy! That sounds like something I would have made way>way>way back when the goofy smoke was clogging my brain! Although, it probably would have had some spam in it too!
Silly wabit, tricks are for CP'ers!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis headed back to Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" on their way to the Middle East w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/20/2009 9:34 PM (GMT -7)   
Pete, you are too much!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/20/2009 11:20 PM (GMT -7)   
ROFL with images of fatherjohn & pete concocting a variety of appetizers, entres and desserts - all with suspenders! And pants, of course! shocked

I'm thinking this is the start of some kind of reality show.... rolleyes

PaLady smilewinkgrin

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 6/21/2009 4:06 AM (GMT -7)   
411111111111111111111111111111
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer
Meet My Wife And Me


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/21/2009 5:58 AM (GMT -7)   

Picture this.....FatherJohn and Pete doing a Cooking Reality Show....I think we would all tune in for that lol....wait I think all of HW family would show up for that one!!

XXOO
Patti


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 6/21/2009 6:30 AM (GMT -7)   
i had severe nausea/vomiting with my meds so i am never hungry. plus the pills work better on an empty stomache. to me anyhow. my pcp switched me from phenegran to a drug called reglan, may be mispelled, but i have had no issues since taking it. also, when i feel sick my CP dr will always allow a phenegran shot. they think i might have ms so i am ok to stop in any time for torrodal or phenegran. like torrodal helps much, but its better than going to the ER and gambling with the drs. i hate their snide comments about my meds. i eat maybe 2 meals a day and never large ones, but i actually gained weight from it. though i am thirsty all the time. as long as i can hold down water to swallow my pills i feel good. you can always resort to toast or something if you feel bad. maybe discuss it with your dr and see if there is anything you can do to help. hope you feel better soon.
RX's: Oxycontin 80mg 2x's daily; Oxycodone 30mg 5xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed); Amitriptyline 25mg 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Abilify 5mgs at bedtime (depression); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

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