HELP ME HELP MY WIFE....PLEASE!!!!!

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greeneyedmonster
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/22/2009 10:06 AM (GMT -7)   
My wife has degenerative disc desease. She has had 3 surgeries thus far. Her back is fused  four levels up starting from S-1. She has had one fusion done in her cervical area and needs to have 3 more levels done. She has a bulging disc in her theracic also whisch is causing her the most pain. Long story short, we went to another hospital to get a second opinion because we were tired of the runaround here, yada yada yada, got a second opinion, used their pain management doctor as suggested (without being released from the first PM doctor) ( we did't know) and now we have no pM doctor. My insurance has set us up to go see a pyichiatrist for Pain Management? Does this sound right? She was taking delauded until last week. She has been taking percocet until this a.m. and is now out and starting to withdraw. If this psychiatrist can't or won't help, what do we do?

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/22/2009 10:34 AM (GMT -7)   
     Good Afternoon Greeneyedmonster,
 
     I am very glad to meet you. I am new here aswell. I do hope you can introduce your wife to healing Well community. So much to learn from one another here. The support and feed back are truly a life saver.
    
My wife has degenerative disc desease. She has had 3 surgeries thus far. Her back is fused  four levels up starting from S-1. She has had one fusion done in her cervical area and needs to have 3 more levels done. She has a bulging disc in her theracic also whisch is causing her the most pain.
 
     Are you still in communication with the Doctor who did the fusions? How long ago was that done? Who is overseeing this latest surgery"3 more levels done"?
 
 
Long story short, we went to another hospital to get a second opinion because we were tired of the runaround here, yada yada yada, got a second opinion,
 
     Second opinion about the need for x3 more fusions or for a differant methods of pain management? Gosh, im sorry if I ask alot of questions, shakehead
 
used their pain management doctor as suggested (without being released from the first PM doctor) ( we did't know) and now we have no pM doctor.
 
     Did this other PM know the surgeon you are going to use for the x3 fusion? Did they know you were comming to them for a second opinion ... on the fusions?
     Did they suggest someone else to use for the fusion process? smhair
 
  pyichiatrist for Pain Management? Does this sound right
     I saw a Pain Psychologist for a VERY long time. We worked on so many things it would take me all day to list. We always had a full plate and alot to learn and integrate into my life. Miss Mary helped me so much. I know many others here use pain psychologists aswell.
 
She was taking delauded until last week. She has been taking percocet until this a.m. and is now out and starting to withdraw.
      Those are some very serious medications. She needs to call her doctor to tell them she is withdrawling right away. It can be very dangerous to her health to withdrawl like that. The doctors usually have a gradual plan... It seems to me these planns take week if not MONTHS to get done. I have never heard of a psychiatrist taking care of withdrawl. Usually doctors are the ones who oversee, the gradual decrease / withdrawl meds. It is my understanding that it is a very precarious position, physically, and it is important to have a plann.
 
If this psychiatrist can't or won't help, what do we do?
    What kind of psychologist are you seeing? did they say why she needed to go to that one in particular?
 
 
Sorry to bombard you with questiong, I know everyone else here is a wealth of knowlage and will be able to give sound advise for sure. I really hope everything is okay for you guys.
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


greeneyedmonster
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/22/2009 10:46 AM (GMT -7)   
Yes we are still in communication with the doctor that did the last fusion. The dr. that did the 1st 3 no longer accepts insurance. same dr. wants to do the next three, but both dr.s want to monitor her for a while. 1st dr. wants to fuse disc in thoracic, but 2nd dr. doesn't. 2nd dr. is most creditable. 1st PM dr. was a local clinic, I had to get her out of there!  MHNET is with my insurance, they set us up with this psychiatrist.  We have gone from dr. to dr.  @ this hospital, no body want the responsibility to do this. We went from the surgeon that did the last fusion, to the pain management director to our pcp to the pain management director to a sports med. n and rehab dr. to another pain mgmt dr. all inthe same hospital. They suggested she go t the ER when he ran out. The ER says go to rehab. WHAT about THE PAIN?

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/22/2009 11:00 AM (GMT -7)   
   Dear Greeneyedmonster,
 
     Are any of those doctors communicating with one another? Know about one another?
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 6/22/2009 11:55 AM (GMT -7)   
OMG!!! one little mistake, and an inocent one at that, and it causes so much grief. Your wife must be going through some serious anxiety right about now. Not having your pain meds is one of the worst things to happen to any of us with CP...I know, because I am going through it right now. My son is Bipolar just turned 16 and has always blamed me and my CP issues for all of his troubles. I can't do the physical things he wants, I have a hard time doing stuff at the house..like cleaning, cooking, all the things that a mom should do. So he decided that if he got rid of my methadone things would be better. So, he flushed them. As soon as he did it he started crying and telling me how sorry he was. He didn't think about how it would make me feel. That's all part of the manic part. So, I have been puting of calling my Dr. because I am scared of what they might do. They may dismiss me on the spot and not help me get through until my next appt. Or, as some of you have said, they may be understanding and help me. Well, I finally called and left a msg. with the nurse. I was going to talk to my doc in person but had a hard time getting in to see her so I left a msg. Am still waiting to hear back from them. Luckily I had put a few days worth in a daily pill container and so Ihave 3 days worth until I really freak out. The pain is worsened by the fact that I am Type 2 Diabetic and my blood sugar levels are out of control right now. I just started insulin. My anxiety is way up there. I don't take anything for it, so I hope I can get through this..

Good luck with your wife. Tell her we all understand.

Me.
 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 10 units at bedtime with Solostar Pen                                                                   

 


greeneyedmonster
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/22/2009 2:50 PM (GMT -7)   
we just came back from the shrink.....suboxone.....go figure.......all we can do now is wait and see what happens....she is holding up quite well at the moment....

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/22/2009 4:13 PM (GMT -7)   
   Dear greeneyedmonster,
 
     I am greatly relieved that she is getting some help.  Some oflks have good things to say about suboxone. I am very glad she is holding up well. Stay as relaxed as possible. Maybe there is something she can do or work on to keep ehr mind off things ?
 
 *huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/22/2009 4:46 PM (GMT -7)   
Dear Greeneyedmonster,
Welcome to the chronic pain forum of Healing Well. We're not doctors here, but this is a great support group.

What I'm thinking might have happened is that the pm doctors thought your wife was doctor shopping. I don't know if she had a written contract with the first pm doc, because often they require it and usually it includes not seeing anyone else for pain mangement. It sounds like in the course of getting the second opinion you might have stumbled into a behavior doctors consider a no-no. Generally with good reason, but in your wife's case it sounds like maybe miscommunication.

Many people have to go through a lot of hoops to get and continue to get pain medications. Often a pain psychologist can be very helpful, but they also may have wanted to see if there were any addiction issues with your wife.

Yes, it is this difficult for most all of us. It's sad but true. You could try explaining it to both pm doctors, and say your wife really only wants to go to one, and to decide on that one and agree to not seek pm services elsewhere.

I wish you luck with everything.

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 6/22/2009 7:07 PM (GMT -7)   
Greeneyedmonster, welcome to this wonderful and encouaging site. None of us really want to be here but after being here for a little bit it starts feeling like home and sometimes better than home. I want to first, thank you for all that you are doing for your wife. She is blessed to have you around to help. Not evey spouse, family memeber or even friends understand the issues connected with chronic pain. I also encourage you to do what you can to keep the anxiety level down as we all know that sends the pain up the scale. I would suggest that you take the time to write a letter to the 2 Pain Specialists explaining what took place and how it was a mistake in communication. i would also ask for a chance to come in and try and resolve the misunderstanding. You could even hand deliver the letters to their offices. Maybe one or both will be open to the communication and a better relationship will be built. You really don't have much to lose. It is also common for the Pain Specialists to send their patients to a psychologist or psychiatrist to help help them identify possible treatments as well as rule out addiction issues. I hope that you are able to get things straightened out as you wife continues to work through the pain. Again, thanks for being there for her.

greeneyedmonster
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/23/2009 1:07 PM (GMT -7)   

First and foremost, thanks to all for the replies. secondly, sorry for dropping off of the map last night, it was to say the least - strange.  she took the suboxone and it seems to be working. She is actually doing fine right now without any pain medication. 

As far as all of "ya'll's" comments, it would take me a week to reply to all of your posts. But I will give you an update instead.  Yes, "doctor shopping" is the term. One of the details that I left out is the Delaudid (sp) that the PM doctor gave her at the clinic. ( I can't stand the thought of her being in that cheesy place)!!!! Once the "D" word awas mentioned, nobody wanted to go near her, and why was he prescribing this stuff to her? I did some research on this stuff and it's like 8 times the strength of morphine. And for any of these doctors that think she is taking any of this stuff recreationally, hasn't watched her cry herself to sleep every night.  At the present time, it looks like my wife has returned and the monster has left - ( the pain, I call it " the monster" - i don't know what ya'll call it here) I just pray that this isn't temporary.  I'm a Christian and up until recently had accepted that my prayers had actually been answered and the answer was NO. I am ashame do f my weakness of faith in my father here recently. If this was a long test, I blew it in the last section. I know that I am babling here, but I have nobody to talk to about this that understands other than my wife.  All she wants is some normalcy in her life - is that too much to ask for?

I know that I left a lot of details out of her overall condition and what we've been through, and am sorry for leaving out the details. Sometimes I just feel like it's me against the monster and i can't capture and tame  it!!!!!!!!!

I'll shut up now.....

Post Edited (greeneyedmonster) : 6/23/2009 2:25:06 PM (GMT-6)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/24/2009 1:30 PM (GMT -7)   
I need to welcome you to our family. And no you should not shut-up..lol We talk about everything here even off topic. Need to vent, we are always here.

I'm sorry your wife has to go through all this pain. I never like to hear that someone is in pain. But of course here we all are..

I wish you luck and keep us updated

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 6/24/2009 4:16 PM (GMT -7)   
I take Suboxone for chronic pain and I love it. But alot of people dont seem to get good pain coverage from it. But suboxone will defiently keep her from withdrawals. I hope your wife is doing well. I wish I could of answered earlier but I just got back from camping and have a severe sun burn lol. If you have any questions about suboxone then feel free to ask me, I have been on them for 11 months, so I know quiete a bit from expereince.

-hellokitty

Chronic Pain Moderator

Dx-Gallstones at age 14 that caused Fibromyalgia in 1998. Chronic Pancreatitis at age 15 from Pancreatic Divisum. Fell down cement basement stairs on my bottom in 2001. Got severe migraines after the epidural from my 2nd childbirth in 2002. Was rear-ended by a lady doing 55mph in 2004 then 2 months later rolled my car down a hill and did even more damage to my back. Depression caused by having chronic pain. Asthma from allergies.

meds- Suboxone for pain, Cymbalta for pain and depression, Lyrica for pain and migraines, Imitrex for migraines, Ibprofen for migraines, Ventolin Albuterol inhaler for asthma. Phenergan for nausea, Seroquel for sleep.

"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much."         -Mother Teresa

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