Another day...

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Michael - SA/TX
Regular Member


Date Joined Jun 2009
Total Posts : 23
   Posted 6/26/2009 9:13 AM (GMT -7)   
You'd think that living in the South - going through a heatwave, with no rain or weather systems in sight; one with chronic pain would feel better; but today is turning out to be one of those days.

Last night was one of those nights where I tossed, and turned - groaning, and moaning - ear plugs in my ears so maybe I could drown out the white noise and computers groaning more loudly than I was...

...morning came - and the sun was shining, but not upon me; I'm in a lot of pain.

Waking up, one hand was reaching for the cigarettes and lighter - while another was reaching for the methadone, ibuprofen and tylenol.

It's taken three years to be put on a medication that has killed the pain as well as the methadone has, but nothing really completely touches the aching, burning, stabbing - that seems to never leave like mosquitoes buzzing around my head in a malaria infested swamp.

It's been a little over an hour now, and the meds have kicked in to some extent, making me now able to move around like I'm in my 60's; instead of on my last breath like father time; feeling like my limbs are heavy as buckets full of cement.

I look to the sky, and back down to my keyboard; rubbing my eyes - trying to figure out if this is just yet another sobering reality; or a nightmare that I can't awaken from...
- Michael
- 26 Years Old
- Male
- San Antonio, Texas - USA

* Chronic Pain / Nerve Damage / Neuropathy
* Seizure D/O
* Migraines / Bleeding
* Anxiety / Depression / Insomnia / ADHD
* Respiratory Issues - Asthma, COPD, Lung Disease (Pneumothroax Disorder)
* Hot Flashes / Sweating

* Methadone / 10mg / 3 times daily for pain
* Baclofen / 20mg / 3 times daily for pain
* Ibuprofen / 600mg / 3 times daily for pain
* Tylenol / 650mg / 3 times daily for pain
* Propranolol / 40mg / Twice daily for migraine, B/P
* Protonix / 40mg / Twice daily for acid buildup, nausea
* Buspirone / 5mg / 3 times daily for anxiety
* Singulair / 10mg / Evening for breathing
* Phenergan / 25mg / 4 times daily for nausea
* Flonase / Allergies
* Imitrex / 25mg at onset for migraine, 1 tablet every 2 hours not to exceed 8 tablets in 24 hours
* Proventil / Asthma, COPD
* Asmanex / 220mcg / Asthma, COPD
* Combivent / Asthma, COPD


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/26/2009 9:41 AM (GMT -7)   
     Morning Michael,
  
   I am sorry you are having such a hard time of things sad
 
...morning came - and the sun was shining, but not upon me; I'm in a lot of pain.
 
     You know what I love about mornings? The air. It is always so crisp and cool here in high altitude desert. I like things that are constant as so little in my life was constant for a very very long time.  :-)
 
 
while another was reaching for the methadone, ibuprofen and tylenol.
 
Don't hate, im so.. Noobie? New? To other people with chronic pain. I was curious before when you mentioned it? Now im really curious..  Why do you take both ibuprophen AND tylenol? what does one help with that the other doesnt and vice versa? If im being nieve again, tell me ill stopp buggin ya
 
nothing really completely touches the aching, burning, stabbing -
 
Oh dont I know it! Hear ya there. Im rather fortunate thou, my doctor seems to know just what to do about the degeneration and inflammation long before I ever say anything. You know I once made it to my procedure appointment having never gone above a 6? Crazy cool :-)
 
So... Im gonna talk bout something, and dont laff! No giggling allowed! Serious stuff...When I realized that the damage to my spine had gotten to an irreversable point, and was told so, nicl,y repeatedly until it sunk in... I went to a pain psychologist. I stayed with her for a VERY long time and we re defined "me". From my reactions to pain, my responses to pain, to having pain as a part of my life, But!not what defines me. It would take me all day to list all the things we changed / worked on. I know that sounds easy... but it isnt and it took 4months to make my life changes , reactions to pain, permanant. Have you ever seen a pain psychologist? Miss Mary was awesome I miss her terribly. Felt like parting ways with a good friend.  :-)  
 
*huggs*
dani
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Michael - SA/TX
Regular Member


Date Joined Jun 2009
Total Posts : 23
   Posted 6/26/2009 9:57 AM (GMT -7)   
Good Morning Dani,

Yes, the air does tend to be nice in the mornings; but when you get up at 10am - that air has come and gone. Today was a late waking day for myself, but with no children and no prior obligations for the day; my bed was the next best thing.

When I went out and checked the mail - it was already 95F - I read the low only got to 79F last night; so I think that crisp air stayed way north of me today...I know what you mean about things being constant...consistancy is always nice, but it's been hard to look towards the nice things as of late - without sounding to negative.

Oh, I never hate; "why do I take both" - you know, I don't have a good answer. Tylenol doesn't touch is much - Ibuprofen doesn't touch it much - so I suppose that I combine the two in the hopes that maybe they'll work together. HOWEVER, with you pointing this out - it's made me realize, that it's not a good thing; especially since I have GI issues. The last thing I need right now is some kind of a bleeding ulcer, so I owe you a thank you...I'll switch down to one or the other - instead of both. Gotta keep my tummy, and kidneys in good working order..it's just the pain makes you do stupid things.

I've found I'll do nearly anything in vain, just to try to get some relief. I've found myself taking 20 showers a day - one after the other...

Kudos on your strides with erasing it. I've never been good at the pain scale...then again, the pain nearly brings tears to my eyes, so I normally am always WAY up there...

I've never even HEARD of a pain psychologist, I didn't know they made such a thing.

I do know however that the counselor I'm scheduled to meet with next week is located within the PM&R clinic, so perhaps she works exclusively with people who suffer from pain.

It would be nice to meet with someone for once who could perhaps help me learn to cope with things...to give some kind of another reaction other than snapping at someone wallering in self pity....

I know that I have a long long life ahead of me, so learning some form of techniques would be of great assistance. (chomps on a granola bar)

I guess I've just come to terms with, I'm going to have good days, I'm going to have bad days....and to learn to tell the difference between a good, and a bad. A year ago, I would've told you EVERY day was a bad day - and I learned to pick myself up off the floor.

...however with so much going on right now, I'm back ON the floor - and finding it more difficult to get up due to pain and my head.
- Michael / 26 yo / San Antonio - Texas

* Chronic Pain / Nerve Damage / Neuropathy
* Seizure D/O
* Migraines / Bleeding
* Anxiety / Depression / Insomnia / ADHD
* Respiratory Issues - Asthma, COPD, Lung Disease (Pneumothroax Disorder)
* Hot Flashes / Sweating

* Methadone / Baclofen / Ibuprofen / Tylenol / Propranolol / Protonix / Buspirone / Singulair / Phenergan / Flonase / Imitrex / Proventil / Asmanex / Combivent


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 6/26/2009 10:24 AM (GMT -7)   
On the liver/kidney front, you may want to ask about compbining Morphine (IR - instant release) with Methadon as a BreakThrough (TBT) medication. Although maybe one of your other meds may be designed for that - I'm not a doctor amd so only suggest to you that you might ASK about it based on my own experience. But I know that combination has been a Godsend to me. As you no doubt know, we are alll as different with our pain med need as our pain meds are different.
I, myself, went through 3 different injections designed to completely deaden nerves to the bottoms of my feet. amd my body didn't react to the injection at all. Not 1 of the 3. Which brought me to Methadone.

It certainly sounds like you've been around the world a few times, but probably without seeing Spain.

All the best - without pain some day.
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer
Meet My Wife And Me


Michael - SA/TX
Regular Member


Date Joined Jun 2009
Total Posts : 23
   Posted 6/26/2009 4:16 PM (GMT -7)   
Tony,

Thanks - I really appreciate that piece of advice.

As right now my only true "pain" medication is Methadone - it's the best I've got.

The doctors are working on pushing Lyrica through as a MAP drug...so I'm twiddling my thumbs being patient on that.

I used to be on MS Contin, with Norco as a breakthrough - and unfortunatly I've not been real responsive to Morphine therapy in the past; unless it was given as an IV drug. I've tended to be more partial to Hydromorphone or Demerol than the Morphine - even the hydromorphone tablets have been more effective.

...I've not yet been on a trial for ANYTHING for breakthrough pain. I'm "new" to the Methadone train - only about 6 months, and to be honest I'm kinda laying my head low grumbling to myself because I don't want to be to "greedy" to the doctors as of yet. I'm quite worried that if I begin to complain about still being in pain they're going to think I'm "seeking" which is FAR from the truth - and although the Methadone has been a godsend, I don't want it taken out of my hands - it's just not cutting it for 8 hours a day.

I suppose you could say I'm waiting to become a bit more of an established patient before bringing it to their attention further.

Injections, scare me. The main clinic said they're risky - and to not try them if the Methadone/Baclofen therapy is working. It works, but only for about 4 - 5 hours, leaving a good 2 - 3 hours of pain inbetween each dose.

I've got to speak up, but I'm scared that it will ALL be taken away and they'll get the wrong signals from me....does that make sense?
- Michael / 26 yo / San Antonio - Texas

* Chronic Pain / Nerve Damage / Neuropathy
* Seizure D/O
* Migraines / Bleeding
* Anxiety / Depression / Insomnia / ADHD
* Respiratory Issues - Asthma, COPD, Lung Disease (Pneumothroax Disorder)
* Hot Flashes / Sweating

* Methadone / Baclofen / Ibuprofen / Tylenol / Propranolol / Protonix / Buspirone / Singulair / Phenergan / Flonase / Imitrex / Proventil / Asmanex / Combivent


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 6/26/2009 4:32 PM (GMT -7)   
Michael,
I understand that you don't want the Docs to think that you are trying to get one over on them...but pain is pain. They know that Methadone, while great for long term pain, isn't going to work that well on its own...That's why they give us BT meds. I take 120 mg. Methadone a day...60 mg. every 10-12 hours...then I have Oxycodone 15 mg. for the BT pain...1 every 6 hours. Don't feel like a criminal for asking for help. They do know about us needing the BT meds. So, next time you go see your Doc. make sure and tell him the truth. He will surprise you...

Me.
 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 20 units at bedtime with Solostar Pen                                                                   

 

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