i finally get my pain pump

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kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 6/26/2009 4:35 PM (GMT -7)   
hi all, sorry i have been out of sorts, i know a few asked what was going on with me- thanks! i have finally got the date- thursday the 2nd. i am so happy. i can't wait to get my pump. i can't believe what a long journey it has been. well just thought i would update the info as i am looking forward to this surgery. (sounds crazy) i am off to make some stroganoff!!!
RX's: Oxycontin 80mg 2x's daily; Dilaudid 30 mgs 5x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea) Cymbalta 60mg 2x's daily (pain from fibro); Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 6/26/2009 4:38 PM (GMT -7)   
Congrats....I am so glad that you finally have some good news. Good luck on the 2nd..

Me.
 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 20 units at bedtime with Solostar Pen                                                                   

 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/26/2009 6:21 PM (GMT -7)   
yeah  
Cool, I really hope it provide some releif for you
 
*huggs*
 dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 6/26/2009 6:50 PM (GMT -7)   
Ktnn thats great news. I do hope the pump will be a success for you. One thing I don't know if you saw my post on is, refilling the pump is painless. It shoud not be a painful experience at all believe it or not. If you have pain when its being filled then something is being done wrong. The first 6 months after surgery, my stomach was completely numb then over time the feeling came back. I have a PortACath in my chest and when its accessed which is once a month there is no pain there either. So, try not to sweat the small stuff lol.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/26/2009 6:56 PM (GMT -7)   
CONGRATULATIONS Kttn!! You have been waiting for this for SO LONG! I'll say a prayer for you! I hope that the surgery goes well & that you will soon be pain free, or at least closer to it!

hugs,
Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/26/2009 10:46 PM (GMT -7)   
Kttn - that's GREAT! Congratulations! I hope it goes well for you on the 2nd - it's right around the corner!

Hugs,

PaLady

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 6/27/2009 2:34 AM (GMT -7)   
Congratulations.
I love mine. It totally changed my life for the better. I no longer have to remember to take my pain medication. I receive a constant dose all of time. I don't have to worry if a patch is lasting 48 or 72 hours. I don't have to worry whether a patch is going to stick or fall off. I never run out of pain medications at the end of the month. I don't have to worry about pharmacy refills for my main stay meds. And the very best is that I have dramatically less side effects. It's a miracle....

My surgery was done on an outpatient basis. Make sure you invest in a surgical binder, even if your doctor does not recommend one. They make all the difference in the world during the first week or two while the pump is securing itself in with scar tissue and settling into position. It is abdominal surgery, so you can expect about a 6 week recovery period. Once everything heals you will hardly notice the pump. In the beginning, I found that clothing with elastic waists were the most comfortable. There are different models available. I do wish I had inquired about the one the allows you to give yourself small period boluses of medication during different times of the the day. The ability to give yourself an extra 5% dose at 8:00 p.n. when my pain acts up would be great. It would eliminate the need for large amounts of extra break through meds. Now is the time to as questions, before the put the pump in and not after. I am glad that I only and a 20 ml pump and not a 40 ml one. I need refills every 2 1/2 - 3 months instead of 6 months. I think this is good because there are times I do not want to wait 6 months before my solution is changed. For example if a medication or combination of meds in not working, I would rather change them sooner than later.Changing meds in a pump is not as easy as getting a new rx at the end of the month.

Good luck

Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative disease called “Multiple System Atrophy”. a very rare neurodegenrative disease ..i.e. brain rot.  Mobility issues,, O2 , intrathecal pump, neurostimulator, neuropathic pain,  spasticity, central apnea, oesteoarthritis, colitis...etc..etc.

 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/27/2009 7:56 AM (GMT -7)   

Kttn,

Congratulations, that is wonderful news!  To not have to worry about taking pain meds or refills would be so nice.  The 2nd will be here fast!

XXOO
Patti


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 6/27/2009 1:04 PM (GMT -7)   
thanks everyone, i am so happy i can't wait. i am wincing in pain right now and i just keep telling myself a few more days to go. i am unsure as to wether my pump will be refilled at 4 weeks or 6, thats the one question i didn't ask. everything else i had learned from here and asked or on medtronics website. i am looking forward to cutting this pill stash in half. i'll update soon after the surgery, thanks again!
RX's: Oxycontin 80mg 2x's daily; Dilaudid 30 mgs 5x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea) Cymbalta 60mg 2x's daily (pain from fibro); Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/27/2009 2:08 PM (GMT -7)   
Wow Congrats!!!!!

Just to think of waiting for refills is HEAVEN. I'm happy you finally get one, enjoy it for us who don't have one...

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 7/5/2009 10:53 AM (GMT -7)   
UPDATE....
 THANKS EVERYONE FOR ALL YOUR SUPPORT!
 
I finally have my pump in permananetly. I am so happy! For those of you who are really ineterested let me give you the good and the bad.
 
I aways say bad news first. So here we go. The bad news was that the cathetar from the pump was lying on one of my nerves, once I woke up I was crying from the pain. The Dr was called back and he took me back into surgery, just local- he had to know when the pain was letting up. The pain would almost radiate, go away and then back, go away and then back again. He said day by day the pain would give up, and so far he is right, I am almost walking without help now. There is some minor pain in my abdomin from the procedure and I have to have a bandage wrapped around me 24/7. I just have to be cautious of everything.
 
The good news! I am pain free, yes 100& pain free, in my lower spine! OMG i thought it would never happen! Only my upper spine (neck) and middle upper back are still in some pain but nothing my pain pills can't handle for reducing the pain. I am so happy I can't wait to be back to normal everyday chores. I can actually cook again! Praise God and moderine science! 

RX's: Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 5x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Ambien CR (bedtime); Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

Post Edited (kttn251977) : 7/5/2009 1:24:07 PM (GMT-6)


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/5/2009 11:23 AM (GMT -7)   
Ktnn, I just read all of this thread. I assume you now have your pump. I do hope all is going well. And I hope you are able to see the difference it is making. Good luck to you. Please post whenever you feel up to it and let us know how you are doing.
Anice

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/5/2009 12:25 PM (GMT -7)   
Kttn: sure hope your still getting good results from
your pain pump and that you continue to improve...
You have my thoughts and well wishes...
HUGZ
(((((((((((((((((((((((((((((((((((((((((KTTN))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 7/5/2009 12:29 PM (GMT -7)   
Thanks Anice & Chartreux, I was actually editing my update while y'all were typing in your comment. Thank you for wishing me well. My lower spine, as i mentioned above, is without pain. Which by all standards to me is a miracle. I never thought a day like this would exist! I have my check up on Monday to make sure nothing is out of place. So I will write again to update. Thanks again, that was sweet of y'all to check in on me.


RX's: Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 5x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Ambien CR (bedtime); Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/5/2009 4:43 PM (GMT -7)   
Congratulations Kttn! That is WONDERFUL to say the least!!!

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/5/2009 5:05 PM (GMT -7)   
Kttn,
That is AWESOME news! Congratulations!!

PaLady

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 7/10/2009 1:05 PM (GMT -7)   
well so far everything is healing up nicely. **yeah** its a strange feeling to have this thing in my hip. there is a slight bulge from the disc in my hip; nothing uncomfortable.
those of you who had the operation does the bump from the pump go down any?

next appt in 2 weeks, hopefully suchers will come off then.
RX's: Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 5x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Ambien CR (bedtime); Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/10/2009 1:48 PM (GMT -7)   
Kttn:
I'm so very, very glad for ya! Sure hope you keep healing good and
improving each day...lots and lots more soft hugz...
Maybe try ice on the bump, but that's just a guess...
(((((((((((((((((((((((((Kttn))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********

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