I am so sorry for all you are going through. I know that there are always people sicker than I am when I read these boards. I agree that you need to see the ED specialist before even thinking about more surgery.
I will pray for you to find out what's wrong and get some relief.
Post Edited (White Beard) : 6/28/2009 7:22:15 PM (GMT-6)
I really can't add anymore to whats already been posted by OUR Family already, just want to send you a big soft giant hug!
Wow, this is just not good news at all. I assumed after this second surgery things were really going well for you. I am so sorry to hear that is not the case at all.
I have some info I am going to post that may help you put some weight on. This stuff really does work and its very nutritional. I have crohns disease and when I get to the point of having to go on bowel rest or end up in the hospital in a bad flare, they give me these fruit type drinks caused Breeze's, they are made by Boost. I order mine online and they are a little costly but very much worth it. I always have some on hand for the just in case days with crohns. I cannot stomach Ensure or Boost, but the Breeze drinks are great, these are always ordered by my gi when I get stuck in the hospital. A very good friend of mine's Dad was really sick and lost alot of weight, like you tall & thin to begin with and really could not afford to be losing weight. I told her about the Breeze drinks and she went online and ordered them for her Dad. In 3 months he gained 13 pounds and his dr was just ecstatic and wanted to know where they came up with the drinks and such. She told him the story. Now, he is recommending these to his patients who have similiar problems.
Any chance of trying a different HRT medication. Man, I have been there and done that from having a hysterectomy, I feel for you. By any chance are you on medication for the depression? If not, please consider going to your PCP and explain what is going on in that dept and try to get something to help you out. Being as stressed out as you are sure isn't helping you any. Take care and please come here and post to us.
Shannon, I have not sounded in yet and as I sit here tonight, waiting for my meds to take effect and hopefully allow me to get a few hours slepp before going to work, I notivced something that I feel was neglected it the posts. It seems that the hernia needs to be taken care of. The hernia could be cause by a weakness due to the body weight and health of the muscles and tissue possibly too weak. You must gain weight in order to have the surgery. The Dr thinks that if you gain weight it could mean no more surgeries. Now the part that is missing. You say you always have been thin but may I ask why? If it is not due to purging or self imposed starvation, then I can understand the Dr. not wanting to lable you as ED. Why is it that your weight is so low?
I have recently lost weight, I believe partially due to the meds I am on and flat out not being hungry. I reallize that loosing too much weight will hinder my body to function properly so I have to make choices. I make myself eat. I have always loved to eat and before this I loved to eat too much. Food does not taste good to me and I simply don't feel hungry. My wife helps me by checking to see how much I ate. She even tells me that if I eat 4 to 6 small meals or snacks a day it will help. I try and have things around that I used to like and eat them in small quantities. I try and stay away from sweets but I reward myself a little ice cream if I am good. I don't want gain more weight, I am just trying to stop loosing weight.
Is it possible that you also don't feel like eating and thus you don't. Have someone keep you accountable. By all means continue to work with the professionalOur bodies were meant to be healthy.
I did not realize you had UC, oh, I do know where you are coming from in the food thing. I developed a bad attitude towards food which resulted in a 32 lb weight loss last year in 3 months. My gi hit the roof because the weight loss was too fast. I had no appetite and at that time went as long as 2 days at a time with no food. My PCP and gi were frantic, flu season was hitting, I was not eating or sleeping and getting any rest to speak of. I still have bad food issues, I guess thats something that will be with me forever. GI saw me a week ago, lost 10 pounds in three months-got the raised eyebrow look. This food problem is typical with CD & UC people from what my gi tells me. Its discussed at every appt plus he sent me to a nutritionist. Peanut butter sandwiches are my main stay and no red meat, veggies & fruits are limited because of the skins or seeds. Ever try to peel a grape lol?
Hang in there, I sure hope the little one and you get better soon.
Thanks Susie, my gi has said the same regarding IBD and food..like u i am unable to eat red meat (used to LOVE a good steak), most veggies, fruits are out and milk is gone to. (along w/ my fav. icecream!) lol
Anyways, just wanted to thank everyone again. Today is tough, daughter is in hospital w/ Flu, mycoplasma phenomnuia (sp). She is spend her second nite there tonight. I came home while husband is there for a few hrs, and my body just fell apart...my joints are killing me and in the last 4hrs i have been in the bathroom 15x.....should make for an interesting hospital night...lol
hope u all are out having a nice 4th of july with ur families and are feeling well.....
Shannon, wow so sorry to hear about the little one, jeesh. Well, at least she is getting her medical needs addressed and those little ones bounce back so fast.
I imagine all the stress you have been under lately has kicked up your UC, not a good time for that to happen, but then there never is a good time for that. Try to keep yourself hydrated-really easy to get dehydrated when dealing with the bathroom issues. I was not talking about the regular Boost drinks, I cannot handle them. They make another nutritional drink called Breeze, thats the one I was talking about. Those should really help you out.
I got overheated this morning when it was still early. We had a new shed built so we were putting some thing in it and i just got too hot. I ended with a raging headache, shakes, terrible nose bleed and leg cramps. Needless to say I have been in the cool air since that took place. I had planned to go to my daughters and swim & cook out. I am waiting till later to go over when its a little cooler, at least down to 95 lol.
Please take care of yourself and keep us posted on the little one is doing.