we can finally prove we're in pain soon

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Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 6/30/2009 12:42 AM (GMT -7)   
Hello Everyone, it's 12:30 am here and still not sleepy lol. Well anyways, I was reading through some stuff on some chronic pain websights about research and stuff and I found this very interesting tidbit I thought I should share. I guess researchers have actually found a way to measure pain and HOW much pain one is in. here is a little piece from what I read (again I did not write this upcoming part)-
 
Scientists at Oxford University in the UK have found a way to both identify the existence of pain and measure it's intensity using brain imaging techniques such as functional maagnetic resonance imaging (fMRI).  In a series of studies, they were able to pinpoint distinct differences between the brains of people who have pain and those who don't.  They found that pain incerased the blood flow to certain parts of the brain roughly in proportion to the intensity of the pain.  While most of the senses (hearing,  sight, etc.) activate only one part of the brain, pain can activate more than a dozen different parts of the brain. 

The goal of the researchers is to collect brain scans from many different people with varying types and levels of pain, which would then be used to build a generalized model.  Once the model is developed, the scans of individual pain patients could be compared to it in order to identify the type and intensity of their pain. 

I am so excited about this discovery.  Can you imagine what a huge difference this could make for us?  Until now, pain has been subjective.  Doctors have had to rely on their patients' estimates of how much pain they are in, based largely on a less-than-accurate pain scale that each individual interprets somewhat differently.  When this new model becomes available, there will finally be an objective way to measure pain.  Think about some of the changes this could bring:
  • Doctors might be more inclined to prescribe necessary pain medications when they can “see” our pain.
  • Family and friends may be more understanding of our limitations when they have visual evidence of the severity of our pain.
  • Clinical trial results would be more accurate and useful because the amount of pain relief (or lack of it) could be measured accurately rather than just estimated by participants.
  • The effectiveness of different treatment options could be monitored and treatments fine-tuned to meet our individual needs.
  • Having proof of our pain levels should make disability cases easier to win. 
  • Attorneys representing personal injury cases would be able to demonstrate the severity of their clients' pain. 
  • We should be less likely to be accused of being a drug seeker when we can offer verifiable proof of how much pain we're in. 

Well this almost all of the info. I just thought it was cool and seems exciting to finally someday when we want to prove we're in pain we can have the proof, so awesome to me!!!

 

-hellokitty



Chronic Pain Moderator

Dx-Gallstones at age 14 that caused Fibromyalgia in 1998. Chronic Pancreatitis at age 15 from Pancreatic Divisum. Fell down cement basement stairs on my bottom in 2001. Got severe migraines after the epidural from my 2nd childbirth in 2002. Was rear-ended by a lady doing 55mph in 2004 then 2 months later rolled my car down a hill and did even more damage to my back. Depression caused by having chronic pain. Asthma from allergies.

meds- Suboxone for pain, Cymbalta for pain and depression, Lyrica for pain and migraines, Imitrex for migraines, Ibprofen for migraines, Ventolin Albuterol inhaler for asthma. Phenergan for nausea, Seroquel for sleep.

"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much."         -Mother Teresa


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 6/30/2009 12:56 AM (GMT -7)   
Thats interesting. I look forward to the day when the legit CPers can have their battle won.. My giveaway is my bloodpressure. Its relatively low (like 120/70-ish) I was in so much pain between my back and a round of diverticulitis last week when I went to the hospital and they took my bloodpressure it was 207/170. They couldn't get pain medicine IVed into me fast enough. Mine has never been that high before though, almost immediately it was down to 140-ish. Its funny how our bodies give away things like pain. Drs aren't stupid. (Of course you would need a file showing what your blood pressure is normally.) I get diverticulitis so much I am always in and out of the ER. It will be interesting to see how this turns things for people.
RX's: Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 5x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Ambien CR (bedtime); Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Smoochie
Regular Member


Date Joined Jun 2009
Total Posts : 71
   Posted 6/30/2009 2:45 AM (GMT -7)   
Hello Kitty,
I too had heard of this and boy do I know what you mean, I had to go to the ER once because of my back pain and I told them I was on Percocet and had taken about two hours earlier, the female doctor (I have some better names for her!) cane in and asked my symptoms so I told her I had muscle spasms, outragous pain in my back a killer headache and I had been vomiting all day, she went and got the Chief of the ER and a few medical students and proceeded ecplaing my case as a drug seeker, I was florred and never more embarassed in my life, I would love the opportunity to prove my pain id real, if she had asked me she would have known that I already had three surgeries on my back and still haven't had relief, but most doctors dont give a crap, ya know what I mean. Anyway thanks for posting that up there it was very informative.
 
Thanks Again
Smoochie

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/30/2009 9:59 AM (GMT -7)   
            This would be an awesome tool for someone like me.. who has experienced so much... And is unable to correctly relay how they feel. I get alot of questions... like
 
"Where does it hurt."
"It doent hurt"
"How does it hurt?"
"It doesn't hurt, there is pressure from the inside pushing outward."
"Can you explain how this hurts?"
"It doesn't hurt, it is extremly itchy with muscle weakness underneath the itching."
*sigh*
No wonder I frustraite my doctors to no end.
In the end my doctors asks
"What makes the sensations better?"
" Oh! Well I use _____"
 
   Pain. Wonderfully unique to each and every one of us....
I have no doubt that when my daughter skinned her knee that it was 10.
When I was riding constant waves of no less than 8 / 10 slobbering on myself.... that was "my" brains Idea of 10. This "measure tool" could prove to be very very useful.
 
*huggs*
dani
 
p.s. awesome find!
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/30/2009 12:00 PM (GMT -7)   
Kitty,
Can you give us the citation information - in other words, where did you quote this from? It looks like it's someone reacting to a study rather than part of the scientic study itself.

To be honest, I think it's a bit naive. Many of us have plenty of "proof" of what's causing our pain already. If you've come to the point of needing a major spine surgery, for example, there's no surgeon who's going to do it without an MRI showing the problematic areas. It's true in some cases where no source of pain can be determined, then maybe such an MRI would help, but it's still not going to deal with the issue of drug diversion and physician's fears about that. I think that's the main reason we have such difficulty getting properly treated. If someone created a pill which someone really no one wanted to divert because no one wanted to use it except legitimate pain patients, I bet our physicians would do a 180 and would be as concerned about our pain as they are about cancer or other diseases. Because the fear would be gone for them, and the DEA and whoever else is going to get their hands in the pie would be off their back. Ok, I'd better stop ranting here!

Sorry, I got a ittle carried away!

PaLady

Smoochie
Regular Member


Date Joined Jun 2009
Total Posts : 71
   Posted 6/30/2009 4:29 PM (GMT -7)   
I had a pain management specialist who did 13 nerve block on my back, he insisted that I was healed even though I never told him that, unfortunately he didn't care, of course he is no longer my specialist. I would love to say that the doctors would believe the pain if they saw it on the MRI, but I have had 14 of them in three years, I have been through four doctors and three back surgeries and the only thing I have come to a conclusion about is that the doctors would rather put you through hell rather than give you narcotics. You would think it was coming from their own personal stash,lol. It has been my experience that it doesn't matter if you have proof or not, either you have a good doctor or you have a bad one!
 


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 6/30/2009 4:31 PM (GMT -7)   
chronicpainconection dot com

Source: 
Leake, Jonathan (2009, June 7). Scientists discover way of measuring pain. TimesOnline, from http://www.timesonline.co.uk/tol/news/uk/health/article6446494.ece


Chronic Pain Moderator

Dx-Gallstones at age 14 that caused Fibromyalgia in 1998. Chronic Pancreatitis at age 15 from Pancreatic Divisum. Fell down cement basement stairs on my bottom in 2001. Got severe migraines after the epidural from my 2nd childbirth in 2002. Was rear-ended by a lady doing 55mph in 2004 then 2 months later rolled my car down a hill and did even more damage to my back. Depression caused by having chronic pain. Asthma from allergies.

meds- Suboxone for pain, Cymbalta for pain and depression, Lyrica for pain and migraines, Imitrex for migraines, Ibprofen for migraines, Ventolin Albuterol inhaler for asthma. Phenergan for nausea, Seroquel for sleep.

"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much."         -Mother Teresa


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/4/2009 6:50 AM (GMT -7)   
Wow I'm so glad they are looking into this. Years ago I had a specialist who dealt with Migranes. He used an MRI to look at the blood flow. He could always pinpoint my pain level. I think alot of doctors have used this in there treatment as a tool but was never proven. Hence the start of new technology....

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all

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