i was taken off vicoden....

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hurtingbad
New Member


Date Joined Jul 2009
Total Posts : 9
   Posted 7/3/2009 6:02 AM (GMT -7)   
VIEW IMAGE   Posted Today 7:01 AM (GMT -6)    VIEW IMAGEVIEW IMAGE
Helllo,My  name is Sherri, I am 48, have chronic pain and I have fibromyalgia. I guess that is what it is,because test after test has been run on me, and there is no logical explanation for my pain. 2 doctors have said "yes",it could be fibromyalgia.
          My story is:
                        I have been on Vicodin for years now, it has helped me to get through my day and I was able to work my normal work week, with lots of overtime ( 13 hour days ). I am not married, I have to support myself so I do have to work to take care of me. Yes, I have tried everything else it seems in the med dep't, nothing worked. My Vikes ran up to 4-5 a day. I did not abuse it and take any more than needed. ( Even tho ,I still felt pain ).I would take Tylenol.The dreaded Vikes helped me get through MY DAY!!!! Otherwise, I was not able to live my life,such as having too work.
 
My doctor sent me to pain mangement,I had an appointment June 29th,he put me on 25mg. Lyica,2x day,and 15 mg. meloxicam,2x day. I have no vicodens, so this is cold turkey. I am on my 4th day, I am fine,no withdrawals, nothing. Just in excruciating pain.....I am going nutd. The good thing is, I was off these past 3 days,I go back to work tomorrow. I work for the state as a dietary worker on my feet all day, busy as hell. I am will ng to give this Lyrica a chance,I will see the PM doctor in 3 weeks. Should I stick this out? Or try to get more of my Vicodens?
 
                        I am wondering, is this a blessing in disguise? What is the meaning of changing something that worked for me to something that does not?

Smoochie
Regular Member


Date Joined Jun 2009
Total Posts : 71
   Posted 7/3/2009 6:34 AM (GMT -7)   
The darn doctors do this crap all the time, they dont want us to become dependent upon the narcotics, but they are the only thing that works, Lyrica is also a medication that causes addiction. I also have Fibromyalgia as well as severe spine issues, I have been on every medication ou can think of and have had three surgeries now and a pain pump installed and I am still taking oral pain medication, 10 pills a day, and my pain is only cut sown, now I know I am on the more severe end, but my doctors had me on Lyrica 300 mg twice a day for seven months when we decided it wasn't helping he took me off of them and I went through the worse withdrawel symptoms, the only thing that was worse was when they took me off oxycontin. Anyway I digress, the point is if the pain medication was making it to where you could function at work then there was no real reason to not take them, Lyrica cause me to feel sleepy, it also causes you to drop things and makes me feel dopey, not a good feeling. I would recommend contacting your physician and telling him/her that the vicodin was working and the Lyrica is not and see what he says and if he will not change it back get a new doctor, I have had to do that in the past myself, let me know if I can be of any help to you, and good luck!
 


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 7/3/2009 12:01 PM (GMT -7)   
Hi hurting,

I actually have a different opinion. I am on Lyrica & I LOVE it. It took about 4-5 weeks for it to really start helping, but after that I was able to cut back on my pain meds & to be more alert & able to function for longer periods of time at work (though I would rarely work more than a 9 hour day -- occasionally 11, but then my PM would yell at me :).

I also used to work with a lady who had very severe fibro. She was on Ultram & something else (don't remember) & it was helping her some, but not that much. She would get home from work & just crash -- not able to do anything for her family, including cooking which she used to really, really enjoy. A couple of months on the Lyrica & she was much better. She just took the Lyrica & some kind of OTC anti-inflammatory (Motrin??) and was able to start doing a bit more. Her PM prescribed a physical therapy program for her (very slow progressing) & over the next several months she started getting her life back -- able to come home from work & cook for her family, help her kids with homework, go for short walks with her husband. She is not pain-free, but she found that the Lyrica helped her enough to do the PT & the combination really gave her her life back without all the risks of narcotics.

As far as Lyrica being addicting, I think was Smoochie meant is that it is habit-forming. You usually cannot just quit it without there being severe side effects (I start twitching really badly if I go for more than a day without it). In my experience, that can be managed by slowing cutting down the dose, or substituting another anti-convulsant for the Lyrica. It is not at all the same experience as trying to get off of a narcotic & you cannot get addicted to Lyrica (addiction=willing to lie, cheat or steal in order to get more of the medication; I've never heard of anyone that desperate to get Lyrica).

The other possibility is that you are not on a high enough dose of the Lyrica for it to help. They cannot put you on a really high dose to start with. Often, though, people may need up to 300mg 3x/day in order to benefit the most from it (I can't take that much b/c I get too sleepy, but others can & do). It takes some time to build up to that level.

My recommendation would be to call your PM first thing on Monday morning. Let him know that the pain is horrible & that it is affecting your work. Your PM will know what is the best course of treatment for you -- wait-and-see, more Lyrica, or some narcotic. It really is important to try to find a PM that you trust. If you already have a great PM, then try to realize that all patients respond differently to meds. For some people, 50mg of Lyrica once or twice a day is plenty, for others, they need much more to get the pain under control. I think you need to give your PM this new information (the Lyrica is not helping enough) & see what he says.

I will definitely say a prayer for you that you can get something to help you ASAP before the pain starts to get out of control. Try to take it easy this weekend & give your body a chance to relax. For that matter, you may need to consider cutting back your hours at work. I know it is so tough to consider that -- we need money, it is hard to find employment right now, the boss doesn't care about ADA regulations, etc. I've used all those excuses myself, but at the end of the day, there are always more jobs & you only have one body. If you can't leave your job or cut back your hours, maybe ask your PM is s/he has any suggestions for modifications to your workspace or body mechanics to try to cut down on the stress to your body from being on your feet so much. :)

peace,
Frances
Moderator -- Depression Forum


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/3/2009 12:47 PM (GMT -7)   

Hi Hurtingbad and welcome to Healing Well. I do hate to hear you are having such pain. But thats one thing we all have in common-pain.

I do not know if you are aware of it or not but the FDA is putting thru a big push on awareness of Acetomenophen in Vicodine & Percocets, any narcotic with Acetomenophen  because of the potential of liver damage. They are not going to stop making the drugs but they are bringing it to the public of making changes. Did you ask the dr why he/she stopped the Vicodin, if not you should have. I bet its because of the taking of Tylenol with it.  

I see Frances gave you some great input on Lyrica. From what I have been reading it has really helped alot of people with Fibro. But like with any medication it is not a one dose helps everyone drug, you may need your dose increased over time. And like she said it takes some time to see if it will help. If it were me, I would be willing to give Lyrica a chance especially after what I have read about it. We never know if a drug will work unless we give it a try. Its your decision.

I do hope you will hang out with us here on the forum. We have some really nice people on here and we learn so much from each other. Best place I know to come to and get some great pointers on things. Also, Healing Well has a Fibro form so check it out too. Take care and keep us posted.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/3/2009 12:59 PM (GMT -7)   
Hi, HurtingBad,
Welcome to the chronic pain forum of Healing Well. Always sorry to learn of another person in pain, but there's no better site for support than Healing Well. We're not doctors, though, but can share our experiences and what we're learning along the path of chronic pain.

Did I read your post correctly that you were taking tylenol in addition to the vicodin? Because that could be one of the main reasons your doctor took you off of them. I also don't know if your any of your doctors checked your liver enzymes (blood test) because if they were high that again could be why someone would take you off the vicodin immediately. If you read on some of the other threads deaing with this issue (they're all on this first page right now) you'll see that it is dangerous to take too much tylenol (acetamenophen). Right now 4000mg/day is the maximum, but I recently heard that liver damage occurs between 5000-7000mg/day. So there's not much of a gap there. Two extra tylenol in addition to your vicodin could do it, let alone the fact acetamenophen is in many other products like NyQuil and TheraFlu.

Frances has given you some good information. It seems your doctor has started you on a very low dose of lyrica, and that's normal. I wouldn't wait the 3 weeks to see him to provide input about how much pain you're in. I don't know if he/she has someone on call over the holiday weekend, but I'd definitely call Monday morning as Frances suggested. And although it's hard, switching to other medications may be safer for you in the long run if you have a good pain management doctor.

Hope this helps a bit.

Again, welcome.

PaLady

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 7/3/2009 1:56 PM (GMT -7)   
I am also on Lyrica , but not for fibromyalgia. I take it for the severe nerve damage in my low spine.
Lyrica is a good pain medication and it has had really good outcomes in the treatment of fibromyalgia. Like any new medication, PM doctors start at a low dose and then gradually increase it. I believe the standard dose is around 300mg a day for fibro, but am not sure. Lyrica tends to make some feel "drunk" or a bit "out of it" for a day or two while your body adjusts to the medication or increase in dose. Give it a bit of time to see how it is going to effect you. Most PM doctors start someone on Lyrica at either a 25mg dose twice a day or 50 mg twice a day to see how you tolerate it , and then increase it as you report back. I take 600 mg a day. 200 mg, three times a day. That is the maximum daily dose of Lyrica.
As far as taking you off vicoden goes, he may have taken you off it because of the fact that you have been on it for so long, accompanied by the fact that you said that you take more tylenol with it, he may have had concerns over the amount of tylenol.
If I were you, I would give the Lyrica a chance, you may find that you either don't need as much vicoden as you were taking or you may find that you can take the Lyrica and that will cover the pain levels that you have.
If this does not work well for you, call your PM and discuss your options with him. After all, that is what you pay him to do.
Best of luck to you,
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
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