Co-Forum Moderator for Chronic Pain
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, central apnea, collagenous colitis, pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair
Chronic Pain Moderator
Dx-Gallstones at age 14 that caused Fibromyalgia in 1998. Chronic Pancreatitis at age 15 from Pancreatic Divisum. Fell down cement basement stairs on my bottom in 2001. Got severe migraines after the epidural from my 2nd childbirth in 2002. Was rear-ended by a lady doing 55mph in 2004 then 2 months later rolled my car down a hill and did even more damage to my back. Depression caused by having chronic pain. Asthma from allergies.
meds- Suboxone for pain, Cymbalta for pain and depression, Lyrica for pain and migraines, Imitrex for migraines, Ibprofen for migraines, Ventolin Albuterol inhaler for asthma. Phenergan for nausea, Seroquel for sleep.
"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much." -Mother Teresa
Yes I am being followed by pain specialist etc. I go to a natural pain relief center. I have had all the tests done, seen every kind of dr. I was treated for tmj and that is corrected now. It is now a chronic pain issue and my body is very sick. I am not producing or releasing any endorphins. All my pathways are mixed up. I do not have migraines. It is a continuous headache on both temples and has always been there and is always the same. This has been ten years. Not all of it bad but enough of it. This headache has been there since Sept 2007 and severe since Oct 2008. I am being weaned off the MEslon so that the natural products can work as the script meds are blocking the process. Any narcotic med i have taken has never helped with this pain. I've tried different kinds of meds etc etc. The people at the center tell me I will get better but it will take some time as my body has been sick for so long. I am just exhausted in the process unfortunately and relief so badly.
Thanks for your thoughts and listening to me. It has been a very difficult weekend.
I second what Francis said about cranial-sacral. I have just started lymphatic massage as I have lymph swelling on my left side and my therapist was talking about cranial and how it's similiar. I also used mandable massage with my TMJ(I know your is better now) and it really helped mine. it definately can't hurt!
Frances, thanks for all the info. I was treated by a neuromuscular dentist, actually two of them for my tmj and they have corrected the problem. I do wear a bottom splint, it was made in a way that my muscles are relaxed. Once I am in better shape with less pain I will be getting braces done again. The injection I had done in 2003 were trigger point injections, several of them. I didn't get much relief from those. Right now every time i go to Toronoto to the clinic the dr. gives me trigger point injections and nerve blocks. So my whole head is frozen, no pain and i can get some sleep for at least one night. If I lived closer, we are four hours away, I could go every week and get all my treatments. But unfortunately we can't do that. My DH has to work. Funds are getting pretty low and I don't know what we will do. His brother has offered to borrow from him. so desperately want to get better. I have had enough pain to last a life time as have many of you. It is no way to live. I have no quality of life right now. I continue to look for answers. We are staying with the Toronto clinic for now as no one else has any answers. They tell me not to give up that i will get better. We have not met a more caring group of people who are honest and caring as these people at the Toronto clinc.
Hope everyone has a low pain day and some sunshine in their day!!! Sun really helps those endorphins to flow!!!!
Post Edited (tmjpain) : 7/6/2009 8:35:43 PM (GMT-6)