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Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/4/2009 6:54 PM (GMT -7)   
Hi, I just couldn't sleep and was browsing and found this. Thought I would try it.
 
Conditions: polyarthritis consisitng of rheumatoid arthritis, osteoarthritis, ankylosing spondilitis, occipital neuralgia, sjogren's syndrome, osteoporosis, detached retina, macular degeneration. Medication: Enbrel - great, prednisalone 7.5ml, amlodopine, ibuprofen cream and tablets, morphine on occasions but it makes me sick,tylex, diazepam, pamidronate. cortico steroidal injections in skull every three months, various eye drops and other moisturisers for sjogrens.Past medication: Gold, methotrexate, numerous anti-inflammatories, other drugs I've forgotten.
 
Attitude: positive - retired and have done BA, MA and am studying for PhD in literature - study is an excellent painkiller for low to medium pain. I laugh as much as possible and am also a good listener - and modest!! Problems - chronic pain, unable to sleep well, trying to fend off depression. Best things in life: My faith, My superb husband, my family - loving but struggling to understand, my two chihuahuas and my cat who love me even though they don't understand, but they have wonderful empathy.
 
I find sleeplessness a problem because i have nobody to talk to and I love company.
 
I am nearly seventy - but twenty six when I'm up at the uni. Love being with teenagers and young people who may be old but are young!
 
That's all Folks!!!

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 7/4/2009 8:23 PM (GMT -7)   
Welcome Arthur

I understand the not sleeping bit! There is nothing worse than being awake night after night. I am jealous about your dedication to continued education. I love literature and the hardest thing that happened to me was double vision at night. What type of literature is your favorite? I am an Edith Warton and Henry James fan.

I noticed that you mentioned you wrestle with a tad little of depression. Depression is one of the primary causes of sleepiness. Have you discussed this with your doctor?

Welcome to Healing Well and the Chronic Pain forum.


Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 

Post Edited (Stella Marie) : 7/5/2009 12:18:48 AM (GMT-6)


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/4/2009 9:23 PM (GMT -7)   
Nice to met you Arthur! but sure wish it was under better circumstance, now with that being said,
you'll meet a lot of nice folks here and our Thursday night chat can be somewhat fun, if not
interesting...
Chartreux is a cat breed and I like cats, I currently have a Snowshoe (TICA breed) and an average
lil black kitty, both are just 1 yrs of age, the Snowshoe is Remington or Remy and the other is named Chancellor
or Chance as we got him by chance. Remy we rescued....
Anyways, was nice to meet you
Lots of soft hugz...
(((((((((((((((((((((((((((Arthur))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 7/4/2009 9:40 PM (GMT -7)   
Welcome to Chronic Pain, 'Art'.

Post Edited (Tony McGuire) : 7/4/2009 11:08:24 PM (GMT-6)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/4/2009 11:21 PM (GMT -7)   
Hi, ArthurItis,
Well, it's the wee hours of the morning and I'm unfortunately still up, so you won't be alone if you post in the middle of the night most of the time!

I just wanted to welcome you to the chronic pain forum. I'll try to respond more when I'm a little less groggy!

PaLady

Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 7:46 AM (GMT -7)   
Stella Marie said...
Welcome Arthur

I understand the not sleeping bit! There is nothing worse than being awake night after night. I am jealous about your dedication to continued education. I love literature and the hardest thing that happened to me was double vision at night. What type of literature is your favorite? I am an Edith Warton and Henry James fan.

I noticed that you mentioned you wrestle with a tad little of depression. Depression is one of the primary causes of sleepiness. Have you discussed this with your doctor?

Welcome to Healing Well and the Chronic Pain forum.

Well, I'm working on Thomas Hardy for my PhD so probably I would say he is my favourite, although I also love Robert Browning's and Gerald Manley hopkin's poetry. Reading is such a wonderful escape from the pain. By the way, I don't cope well with anti-depressants, i can't stand feeling half-doped, I really need to feel in charge of my body and my mind - that tells you a lot about my problem with pain, doesn't it! I feel I should control it! My doctor is absolutely fab and knows that several kinds of sleeping tablets have the revcerse effect on me and wake me up - like feeling i want to vacuum my house and everybody else's in the middle of the night - which is daft because my mobility problems mean i can't vacuum at all!

By the way, thanks for the answer - it all helps


Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 7:53 AM (GMT -7)   
Chartreux said...
Nice to met you Arthur! but sure wish it was under better circumstance, now with that being said,
you'll meet a lot of nice folks here and our Thursday night chat can be somewhat fun, if not
interesting...
Chartreux is a cat breed and I like cats, I currently have a Snowshoe (TICA breed) and an average
lil black kitty, both are just 1 yrs of age, the Snowshoe is Remington or Remy and the other is named Chancellor
or Chance as we got him by chance. Remy we rescued....
Anyways, was nice to meet you
Lots of soft hugz...
(((((((((((((((((((((((((((Arthur))))))))))))))))))))))))))))))))))))))))))))))))))))

I like the sound of your cats! Mine is an eighteen month old British Shorthair and is the colour of dark grey rain clouds which is why he's called Nimbus. He is a talking cat - when he can't see me anywhere he shouts: 'Mamma! Mamma' and if I don't respond he then shouts: 'Helllooooo  Helllooooo Hellooooo' I would love another but my two chihuahuas Bambi and Chico feel threatened enough as it is. As they come in from outside Nimbus jumps on one, puts his paws round his neck and rides on his back like a jockey as Chico tries to run away! Really they all do get on very well, it's just that Nimbus is an idoit!

Thanks for the reply, Chartreux, it really cheered me up.


Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 7:54 AM (GMT -7)   
Tony McGuire said...
Welcome to Chronic Pain, 'Art'.
 
Thanks, Mac!! See you around!

Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 7:56 AM (GMT -7)   
PAlady said...
Hi, ArthurItis,
Well, it's the wee hours of the morning and I'm unfortunately still up, so you won't be alone if you post in the middle of the night most of the time!

I just wanted to welcome you to the chronic pain forum. I'll try to respond more when I'm a little less groggy!

PaLady
 
Thanks for the welcome PAlady - hope you're feeling less groggy soon. I feel much better - when I'm up - it's just when I lie in bed the pain lies on top of me - not sexual, just smothering - no thrill there then.

Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 8:09 AM (GMT -7)   
Thanks for the welcome PAlady - hope you're feeling less groggy soon. I feel much better - when I'm up - it's just when I lie in bed the pain lies on top of me - not sexual, just smothering - no thrill there then.
arthur Itis

Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 8:11 AM (GMT -7)   

I like the sound of your cats! Mine is an eighteen month old British Shorthair and is the colour of dark grey rain clouds which is why he's called Nimbus. He is a talking cat - when he can't see me anywhere he shouts: 'Mamma! Mamma' and if I don't respond he then shouts: 'Helllooooo  Helllooooo Hellooooo' I would love another but my two chihuahuas Bambi and Chico feel threatened enough as it is. As they come in from outside Nimbus jumps on one, puts his paws round his neck and rides on his back like a jockey as Chico tries to run away! Really they all do get on very well, it's just that Nimbus is an idoit!

Thanks for the reply, Chartreux, it really cheered me up.


Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 8:13 AM (GMT -7)   
Hi Stella

Well, I'm working on Thomas Hardy for my PhD so probably I would say he is my favourite, although I also love Robert Browning's and Gerald Manley hopkin's poetry. Reading is such a wonderful escape from the pain. By the way, I don't cope well with anti-depressants, i can't stand feeling half-doped, I really need to feel in charge of my body and my mind - that tells you a lot about my problem with pain, doesn't it! I feel I should control it! My doctor is absolutely fab and knows that several kinds of sleeping tablets have the revcerse effect on me and wake me up - like feeling i want to vacuum my house and everybody else's in the middle of the night - which is daft because my mobility problems mean i can't vacuum at all!

By the way, thanks for the answer - it all helps

arthur Itis


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/5/2009 8:22 AM (GMT -7)   
     
   Dear Arthur Itis,
 
       Good Morning! My name is Dani.  :-)   It is very nice to meet you. I hope you decide to hang out for a while here at Healing Well. This is a wonderful place for tools and resources reguarding all medical conditions.
 
       I am afraid I don't know much about medications or conditions. But! I do hope you are able to find help with sleeplessness and depression. It seems to me that a vast majority of chronic pain patients suffer from both. Your doctor will know what to do about that for sure.
 
     By the way, I don't cope well with anti-depressants, i can't stand feeling half-doped, I really need to feel in charge of my body and my mind - that tells you a lot about my problem with pain, doesn't it! I feel I should control it!
 
        There are so many medications that do not have this side effect you mention. In the last few years *whistles* alott of really neat advancments. Might be worth another look *shruggs* who knows  :-)   ? 
 
         *huggs*
           dani
         
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 8:30 AM (GMT -7)   
Hi Dani,
Thanks for your message and thanks for the advice which I will, of course., follow up.
It's so nice to receive so many positive, helpful replies. I'm sure I'm going to like it here.
best
arthur Itis

Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 7/5/2009 10:19 AM (GMT -7)   
Hello.... and welcome.... I'm pretty new myself...... what a great informative group of people here..... I have really learned a lot from them!

I love your attitude :)

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 7/5/2009 10:25 AM (GMT -7)   

Hi ArthurItis,

Welcome to HW and our FAMILY!  We are a loving, caring bunch of wonderful people who know just the right words to say to each other when we need advice or a hug!

I am with you on staying positive, some days it takes alot of faith and effort to SMILE but I find the first one the most difficult tongue !  I usually come on HW and start reading posts and it does help to know I'm not alone and it definitely keeps me going!
I wanted to say hi and look forward to getting to know you!

XXOO
Patti

 


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/5/2009 10:39 AM (GMT -7)   
Hi Arthur, I just wanted to welcome you to the forum. I am sure you will enjoy being around such wonderful,caring,compassionate,supportive and understanding people. Please post as often as you want to.
Anice

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/5/2009 10:53 AM (GMT -7)   

Hi ArthurItis,

I too want to welcome you ro Healing Well. One thing about it, you certainly have enough health issues to cause your pain, RA & AS are two big hitters. Wow! So glad you found us, I think you will find eveyone friendly and helpful. We are always willing to pass on any tips that we think may help another person. Its such a mixed bag you never know what we can come up with lol.

You will find with most CP patients depression plays a role, they seem to go hand in hand. They even claim the antidepressants can alleviate some of the pain according to their studies. I for one deal with depression and thank goodness for my medication. There are so many different kinds on the market, its a matter of finding one that works for you. I think alot the old, old types made people feel sedated. I am not interested in that, I have things to do and being zonked out is not one of them, or have a medication that gives me a hangover the next day. I cannot stand feeling that way and will not take any medication that does that to me. I have a 4 yr old grandson and I spend a lot of time with him and I certainly need a clear head when it comes to him lol.

Sleep, jeesh, what is that. I have not slept in my bed in so long, that I think I have truly forgotten what that is. I am up usually till 5:am then a quick cat nap.When I stop long enough during the day I am know to nod off sitting in my chair-thats my sleep habits-so poor, and I wonder why I am tired, right.

I hope you will hang out with us. We really do have a great group of caring people here and we understand each other better than most. Take care & keep us posted.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/5/2009 1:35 PM (GMT -7)   
I am overwhelmed by the number of wonderful, positive posts i've received in just one day. it's such a relief to take off the mask and unpack all the problems that build up behind it and know that the people you are talking to understand exactly what you're saying. I'm really looking forward to chatting more.
I'm a bit mixed up with which buttons I'm supposed to be pressing at the moment, but
Draka, Straydog,Anice,EDT, and everyone else - thanks for your hugs
arthur Itis yeah xxxxx
Better to try all things and to find all things empty, than to try nothing and leave your life a blank
 
 

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