should I ask for a different BT Pain med?

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uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/8/2009 6:44 PM (GMT -7)   
 
 
Hello all...
I go to the Dr. tomorrow morning and I was wondering about asking for something different for the BT pain...I have been taking Oxycodone 15 mg. but they honestly haven't worked for quite some time.  Originally I was just going to ask for the 30 mg....I actually have already asked and she wanted to wait until I got the Supartz to see if that helped the pain in my knee..she thinks it has to do with the knee and not the back.  Anyway, I go tomorrow...
 
I have been reading that some of us take Dilaudid for the BT pain and was wondering if it was better then the Oxycodone 15mg. Also wanted to know about Opana or Atiq?  Anybody have any suggestions as to what might be comperable or better than the Oxycodone? 
 
Need help tonight so I can ACT like I know what I am talking about....
 
Me.

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 20 units at bedtime with Solostar Pen                                                                   

 


Mystic_Duck
Regular Member


Date Joined Jun 2009
Total Posts : 52
   Posted 7/8/2009 7:25 PM (GMT -7)   
hey there!

I hav been in ur same situation! and it is no fun at all, and im sorry ur going thru it too. i was on oxycontin 30 mg and then oxycodone 15mg for breakthrough, and i was taking two at a time and it wasnt doing much...( i could take 1 -2) and it just was lik when is it gonna work? but i went to my doc and had the same convo and he put me on mscontin for the extended release and then msir 15mg 1-2 as needed and it really made a huge difference! the first week or so i did get some side effects just kinda lik lightheadedness when it first kicks in but that went away and they really still are doing good for me... my bdoc also said that we can try going back to the oxys this fall, cuz my body had time to get rid of all that tolerance it had built up, so it might work lik it used to when i first started it! so always keep that in mind that u could maybe rotate... i also hav tried dilauded and i did not hav good pain control with that i had much more luck with the mscontin and msir... if ur not on something for lik a baseline control lik oxycontin or mscontin i would definately mention that to ur doc to see if u could try that too!

I also wanted to let u kno that i hav actiq too because my pain spike to lik 9 -10 about ever other week or something and it does work gvreat for me, when these spikes used to happen i would end up in the ER and needless to say was treated lik crap... but it was a lifesaver! i dont know if ur pain ever does this but if it does that would be when to use it not lik a daily spike thing... if ur pain spike hugely every now and then, i would definately talk to ur doc to see if actiq would be worth it for those days!

Hope this helped some and good luck with ur doc! i hope u get some relief and plz if ur up to it let us know how it went and what happened and if u got some relief!!!
Katherine
I also ha
 
"In God's hands, in God's time."
 
"The scourge of life, and death's extreme disgrace, the smoke of hell, that monster called Pain."


Mystic_Duck
Regular Member


Date Joined Jun 2009
Total Posts : 52
   Posted 7/8/2009 7:28 PM (GMT -7)   
sorry forgot to say also that make sure u definately make it clear to ur doc that u need something different, u cant get relief and u really need some!
 
"In God's hands, in God's time."
 
"The scourge of life, and death's extreme disgrace, the smoke of hell, that monster called Pain."


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 7/8/2009 8:34 PM (GMT -7)   
Rhonda, I am on Dilaudid 4mg can take 1-2 pills at a time for BT pain. These have worked vey well for me. But, I also have Dilaudid in my pump. I would make it clear that regardless whether its the knee or whatever thats causing the pain, you need relief now not later. Not sure what your dr is think ing on the Supaartz anyway, it takes time for it to kick in and work on the knees. It is not an instant fix and I wonder why your dr is thinking it will be. When I did the Supaartz it was five injections in each knee spread out over two week intervals.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 7/8/2009 8:39 PM (GMT -7)   
Dear Me...

I would use caution at your next appointment with your PM. If I am not mistaken, this doctor had some serious issues about your need for extra medication because your son destroyed yours. It appears your doctor took the stance that he would rather have you experience detox without assistance then replace the missing medication. I would becareful about going in and asking for stronger pain medications by name. I am a firm believer that you should explain your pain control problems, but let the doctor recommend a plan of action and select what meds he or she feels would be appropriate. After he or she makes their recommendations, you can then discuss your concerns. I think many PM doctors are leary of patients that come in asking for specific medications by name and strength. This next appointment could be tense, so you do not want to do anything that would make him or her question whether or not you are a drug seeker.
 
Good luck.


Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 

Post Edited (Stella Marie) : 7/8/2009 9:42:35 PM (GMT-6)


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/8/2009 9:44 PM (GMT -7)   
 
 
Okay, first of all thanks for the info. on the BT meds...and I am on Methadone for the long term pain control 120 mg. a day.  I first started on Lortab 10, then Percocet 10, but the tylenol in it made my tummy hurt so he switched me to Oxycodone 15 mg.  I have been taking that for about 6 months and at first it seemed to give me headaches, then it worked for a little while, now not so much.  On my last visit I saw a new Nurse Practitioner and she was going to change me to the 30 mg. tabs but changed her mind because of someting to do with my knee and the Supartz...????? Don't have a clue why.  Anyway, I am a little worried about bringing up the BT pain meds since all of this crap happened with my meds.  I think it will be okay since I have brought it up before. 
 
They also tried to change me from Methadone to Morphine a couple of months ago and that was a disaster!!! And that is an understatement.  So I went back on the Methadone right away.  The Oxycodone just really hasn't helped in a long time so I need to see about something else....
 
I don't want to tell the Dr. that I want a certain med. because I don't want to seem like a "junkie".  So, how should I handle it?
 
Me/

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 20 units at bedtime with Solostar Pen                                                                   

 


Mystic_Duck
Regular Member


Date Joined Jun 2009
Total Posts : 52
   Posted 7/8/2009 10:10 PM (GMT -7)   
i think u and stella r absolutely right about not asking for a specific med or by name...i really didnt mean that, i was jsut trying to give u as much info on what i went thru and what worked or what happened with me so if ur doc brought up one of those meds, u would know about them! r u seeing this same np? or ur doctor, lik the regular one? i would just tell him how much pain ur in on a daily basis and just stress that its not ok, and u need some relief, that they need to help u! if they say the same thing about not uping the oxy cuz of the other med, just say thats fine, but is there another med that would work and not hav those risks? Just be honest, tell them this is not working, and that u guys need to do something else... thats what i did in my situation i didnt ask for any specific things, cuz the doc will kno the best route to take, and u never want to give them any reason to be suspicious! do u keep a pain diary? if u do take it and show them how its not workiing and how hard it is to function in that much pain and that u really need some relief! if not i would definately start one, its always good for patterns, to show to ur pain doc, for things lik med changes and doses and just all other things! good luck and really i think if ur honest and tell them how much u hurt and how much something needs to be done they will help u! it is their job! let us kno how it all turns out and i wish u luck!
 
"In God's hands, in God's time."
 
"The scourge of life, and death's extreme disgrace, the smoke of hell, that monster called Pain."


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/9/2009 6:11 AM (GMT 0)   
 
 
 
   Hey Me!
        *huggs!*   Its good to see you again! No gem of advise from me  nono   Riding the Clueless Express over here... I could be taking sugar pills and not know it.  But! I did want to say I hope your appointment goes well. And even more so, I hope you can come to a comprimise that you are both comfortable with. 
 
*huggs*
dani
 
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/8/2009 11:36 PM (GMT -7)   
Me,
My thoughts are along Stella's lines. I would honestly explain in person what happened (including the fact you keep a lock box already) but also what you have been through these past couple of weeks. I would try to stay calm, but really say how difficult it has been for you, and how you'd like to get back on a stable pain management path. If you're wanting to return to the methadone, then I would just say that that was working well for you except maybe for BT issues, and what would he/she suggest. Just say what was and wasn't working for you, and I don't think it would hurt to mention what you've been dealing with in regard to your son. Maybe that will make the doc a bit more sympathetic. Maybe.

I might consider tactfully - after a pain management strategy has been planned - mention how difficult it was trying to get in to see him, and what could you do differently in the future.

Just some of my thoughts.

Good luck!

PaLady

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/9/2009 1:33 PM (GMT -7)   
 
 
What a GREAT DAY it is!!!  Yes, my Dr. appt. went better then I expected.  She only mentioned what happened in passing...like it wasn't a big deal!!  I then told her about what I had to go through but that I made it.  She was very understanding about what happened and was also upset that I couldn't get in to see her or even talk to her on the phone.  She says it won't happen again. 
 
I then asked about the BT meds and she changed me to the 30 mg. Oxycodones.  She says that if they are too strong that I can cut them in half.  I just took my first one and Boy can I tell a difference already.  I think I'll be cutting them in half alot.
 
So, thanks for the support throughout this mess.  It helped me just to have people that cared.
 
I had my first of three Supartz injections in my right knee today...It wasn't nearly as bad as I thought it would be.  Now I have to stay downstairs for the rest of the day and night...no stair steppers nfor me.  I also gained about 11 pounds in the past month.  That darn Lantus!!! My regular Dr. told me that I would gain weight.
 
Anyway...I am back and better then ever!!!!! Thanks to all of you.
 
Me/.

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 20 units at bedtime with Solostar Pen                                                                   

 


ohthepain
Regular Member


Date Joined Mar 2005
Total Posts : 353
   Posted 7/9/2009 1:45 PM (GMT -7)   
So good to hear that your appointment went well! Congrats!
~ Carina~

Fibromyalgia, Bulging Discs (L4, L5-S1), DDD, Spinal Stenosis, Facet Joint Disease (Overgrowth), Osteoarthritis, Acid Reflux, Hypothyroidism, ADD, TMJ, Migraines, Depression and Anxiety.

Opana, Lorcet, Abilify, Cymbalta, Lyrica, Zanaflex, Klonopin, Armour (thyroid), a diaretic, Nexium, Triliplix (cholesterol)

“Any society that would give up a little liberty to gain a little security will deserve neither and lose both.” –Benjamin Franklin


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/9/2009 1:51 PM (GMT -7)   
Me,
That's GREAT! I hope she reads her staff the riot act about how to handle these matters in the future - for you or for anyone! You shouldn't have had to go through all that, but aren't you glad you didn't resort to "alternative" means?

I'm also so glad she gave you the stronger oxycodone so you can at least have some choice in moderating your pain.

I'm not sure if it's the same thing, but my cousin gets a series of 3 injections in her knees every few months. A lot of the time she even goes back to work, and she works as a pharmacist, although she tries to get the seated job at the computer on those days. The injections I know have helped her maintain working, but she is also obese which doesn't help. I know they're painful, but hopefully the series will work for you. Ice, ice, baby!

Hugs and Cheers!

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/9/2009 5:26 PM (GMT -7)   
Hi Me,

I'm so happy to hear that everything went well at the doc's today & that you can put this whole mess behind you! We were all worried about you! It sounds like maybe things will be even better now!

hugs,
Skeye

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/9/2009 9:31 PM (GMT -7)   
 
 
These shots are called Supartz...and they are made from the cone on a rooster...I know, it sounds kinda strange... I had cortisone shots about a year ago and they weren't anything like these.  This stuff is so thick and the needle was so big.  But I got through it ok.  And the Doc, her name is Kim, was verynice to me.  She didn't hesitate about giving me stronger meds.
 
The only thing I am worried about is having the EKG done.  If it shows up that I have something called "Prolonged QT" I will have to be taken off the Methadone.  When I asked her what meds I would take she told me that there were NEW meds out that worked very good.  Because I tried the Morphine I'm scared that she will put me on something that's not nearly as strong or doesn't work like the Methadone..... Any ideas what meds she might be talking about?
 
My insurance used to pay for 80 of the 120 Oxycodone 15 mg. pills...Now they only pay for 40 of the 120 because they are 2 times as strong.  That sux... My scripts were about 125.00 today... I need to find something that TennCare will cover.
 
So, have a nice night....I'll be thinking about you all...and thanks again...you are my family.
 
Me.

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 20 units at bedtime with Solostar Pen                                                                   

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 7/11/2009 1:21 AM (GMT -7)   

Rhonda,

I finally found your post. I am so glad to hear your appt went well. I know all of us were a little worried about what would happen at the appt. So, glad you told this NP or whatever she is, what happened and what you went thru. Lets hope she she let it be known patients are not to be put off when they call as you were.

WOW, they have changed the Supaartz dosage up I see form your post. I had surgery on both knees in 1994 three weeks apart, then 6 weeks post-op started the Supaartz injections and they hurt like hell, plain & simple. But, granted both knees were hurting to begin with. Back in 1994 the injections were 5 injections in each knee done two weeks apart. Did they spray the cold stuff on your knee before the injection? Synvisc is also another medication similiar to Supaartz and it is made from the rooster cone. My ortho claimed Supaartz was better then the Synvisc and thats all he would use. It took a long time to be able to tell the difference but the stuff really worked for me. I sure hope it works for you.

I wouldn't start worrying until I had to on whether or not you will have to come off the Methadone.  I have not had any recent alerts on new pain meds from the FDA site, but that does not mean anything either lol. Take care and keep us posted on how you are doing.

 


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/11/2009 5:44 PM (GMT -7)   
Rhonda....
 
I'm so glad you got everything worked out.  I was so worried about you.  When the doctor said it will never happen again well heck it shouldn't of happened in the first place.
 
Now when you feel up to it we can go out to lunch I'll buy.... yeah    As long as you don't want to eat a horse or something.  I like horsies....lol  Anything else is fine...
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/12/2009 1:19 PM (GMT -7)   
 
 
Okay, a short post for now because I am on my way to the store....I think the only reason I am only getting 3 of those injections is because of my insurance... I have TennCare and they will only pay for 3 instead of 5... Cheap asses!!  No, not really.  They have paid for both back sureries, and many many procedures...Not to mention everything else I have done.  So, I am grateful..
 
The Dr. was pretty upset about the way I was treated... And that new NP that did it all was fired....I don't know why exactly, all I know is that she is gone... Hip Hip Hooray..
 
LL,
Lunch is on you...But I don't eat horses...just in case ur wondering.....We'll talk later...
 
Thanks guys, you are really a Godsend to me.
 
Me.

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 20 units at bedtime with Solostar Pen                                                                   

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 7/13/2009 2:03 AM (GMT -7)   
Awesome so glad to hear the trouble maker was given the boot. Now, if we could get all drs offices to handle those kind that way, life would be a little better for us.

Rhonda I see you are taking two Glipizide in the AM, they had my husband do the same thing in the beginning, well they figured it out and split it up one in the am and one in the pm, did much better after changing it up. Really improved his numbers, basically he was getting everything all at one time rather than being spread out. Consider calling and talking to the nurse at your drs office.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/13/2009 10:39 AM (GMT -7)   
 
 
Straydog,
I actually take 2 Glipizide in the AM and 2 in the PM...Along with Metformin ER 1000 mg. in the PM.  Plus I take 30 units of Lantus at night.,  and my numbers are still out of whack....  I know that my diet isn't the best but that darn Lantus is making me eat eat eat..... I have gained back the 15 lbs. I lost and it sucks!!!
 
I think I need to ask if there is another kind of insulin that won't make me gain weight.,,  what do you think?
 
Me.

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 20 units at bedtime with Solostar Pen                                                                   

 

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