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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 7/9/2009 2:49 PM (GMT -7)   
I have good news for everyone!  Because of my new Nerve pain medication I am now down to a 7 on the leg pain!!!  Wonderful news eh??  I am tickled pink with this new found pain relief and am considering revising my idea about getting the SCS.  I have heard many postings regarding problems with the SCS and I won't deny that it bothers me tremendously. 
 
So......I guess what I am wondering is.....are all you that have Stims having problems or only a few?  What are the chances of having problems?   Is this something I have to worry about?
 
Just curious friends.  I do not like to hear that my friends are in more pain from the stim then they were before or that something was botched and that they are having lots of problems now.  Since I will MAYBE (underline and bold LOL) get the stim in a year or 6 LOL, I was wondering if this needs to be addressed before I get ready to go through it.  The last thing I want is to have more problems then what I need.
 
Ok....enough of that.  Let's see what else is going on here in KS.....OH my youngest son starts back to College this fall!!!!  AND.....he is getting married in two years!!!  I cannot believe that he's going to get married....He's the last person in the world I would have thought that would settle down after all the problems I had with him LOL.  My oldest is getting divorced and will be going to WI after he is released from the Fed. facility that is currently holding his freedom (hahaha, gotta love Kids).
 
My flower garden is so beautiful!!  I have so many flowers that are now blooming.  PA...you would love it!  I've been walking.....doing my stretches and getting acustom to life in KS.
 
Anyway...I've made this post entirely to long so I will close with this:  God bless each of you and I pray that your pain will decrease soon.
 
Hugsssss
 
Scarred
What doesn't kill us only makes us fight back harder! :P


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/9/2009 5:41 PM (GMT -7)   
Congratulations, Scarred!! That is such wonderful news!! I was actually thinking about you yesterday, so I'm glad that you posted an update! I wish I could see your flower garden. It has been unseasonably cold here (it's not even making it much past 75, and usually we are at 95++ this time of year... It supposed to be in the 40's tonight!). I planted a small veggie garden, but due to the cold & the obsessive amounts of rain that we have been getting, the plants either haven't grown much, or have died. sad

I hope things keep improving! Keep us posted!

hugs,
Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/9/2009 10:02 PM (GMT -7)   
Scarred,
Great to hear you're getting some relief! What medication is it that's helping?

You're right - I'd love to enjoy your flowers...or anyone's as long as I don't have to plant or tend to them! LOL

Keep enjoying your life!

PaLady

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2279
   Posted 7/9/2009 10:31 PM (GMT -7)   
Scarred,

So glad to hear the good news!

As for my SCS, I do/did have some problems (which I consider to be minor), but they are nothing compared to the debilitating pain I was in before I had the SCS implanted. Yes, it took me a year to get my SCS programmed right, I had problems getting used the the sensation, a trapped nerve (it's still trapped, but they've since zapped it with RF so it can no longer transmit pain signals), a keloid scar, etc., but the SCS has given me a huge amount of freedom. Like anything, there are always trade-offs. It is surgery & comes with risks. If you have any non-surgical, or less invasive surgical options available to you, take them! If not, I think it's at least worth going through the trial to see whether it will work for you or not.

The only other advice I can offer is that is really is essential to get plenty of rest after the implant. Cheating on the super-strict restrictions only brings trouble. Of course, no one ever listens to the restrictions & we always end up paying for it in accordance with the level of our infractions. ;) Other than that, I would say to make sure you pick a great surgeon who has done these plenty of times before, interview extensively, get a second opinion if possible & then don't look back. We can all second guess our decisions, but ultimately for me the benefits that I have gotten out of the SCS far outweigh the negatives. Also, please remember that input from members here at Healing Well is likely to be skewed negative. There are a lot of people out there who were helped so much by the SCS that they don't feel the need to join a Forum to talk about their much improved pain.

Take care & keep feeling better,
Frances
Moderator -- Depression Forum


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/9/2009 11:31 PM (GMT -7)   
Such wonderful news to have some low pain days. I have had two afternoons of 7 last week when I was camping and it was such great relief.
Good luck with your stim.

Suzane

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 7/10/2009 12:45 AM (GMT -7)   
Hi Scarred:

I'm going to keep this short and sweet - I have had several issues crop up with the SCS, but regardless of any problems I've had, I wouldn't ever want to be without it.

I think at least going through the trial would be well worth it.

Lorie

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/10/2009 12:07 PM (GMT -7)   
Scarred, I left a post for you last night, at least I thought I did but when I was following up today it apperas that I must have done someting and sent it to the black hole for posts. I sent you a big YAHOO for the pain reduction. I have had relief in the form of the SCS covering up the leg and foot nerve pain but the pains in the area where the SCS was implanted right now over rides the overall effect. We are still not sure what is going on as I have not been able to see a doctor. I also wanted to say something about what Frances posted. "No one ever listens to the restrictions" I am not sure who she could be talking about. I find it alarmimg that that there would be some of us who would not listen to the restrictions. (Just kidding Frances) I am the one who recently ripped my leads loose doing something I should not have done. It is probably wonderful to have all those flowers and be in a condition where you can actually enjoy them. Have a great day.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/10/2009 1:20 PM (GMT -7)   
Oh, Fatherjohn, listening and obeying are two different things!

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/10/2009 2:13 PM (GMT -7)   
PAlady, That is so true. It comes down to the painful facts.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2279
   Posted 7/10/2009 5:02 PM (GMT -7)   
John,
I included myself in that statement, you'll notice the "we" in the second part of the sentence. :)
I did take more time off work than you, but still went back in half the time my doctor wanted me out for. It's so hard when you pin all your hopes on the SCS changing your life to then have to go through surgery & then wait more months more until you get the promised relief. :) But hang in there, it does get better. They just have to figure out what's going on. If you didn't have that quack PM, things would have been easier on you, but unfortunately life doesn't always go the way we wish it would. I hope you get a hold of someone to look at you soon & get to feeling better.

Scarred,
I hope you are feeling well today too. I am praying that perhaps this is finally the turn-around we've all been hoping you will find.

peace,
frances
Moderator -- Depression Forum


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/10/2009 5:18 PM (GMT -7)   
Frances, my discharge orders stated to resume my normal activities in 2 to 3 days. I was not told to take a week or weeks off and now my surgeon will not even do a follow-up. It makes me wonder what the normal time to recouperate after the surgery to implant the SCS is. It is hard to listen to the limitations if you are not given any. I loved your comment about how 'we" don't listen to the limitations.  

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/10/2009 6:06 PM (GMT -7)   
FJ,
I know your quackologist cancelled your follow-up appointment, but are you saying the surgeon is refusing to reschedule it????

That sounds like negligence to me. Maybe you do need an attorney.

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/10/2009 6:44 PM (GMT -7)   
 
 
   Dear Scarred,
 
     Good evening *huggs* I am very glad to hear about your pain level. THAT is quite an accomplishment! *high five* I do not know anything about the SCS implants other than what I have learned about them here from the HW Community. Sorry I cant help there.. It was just so wonderful to read about all youve accomplished latly! SooOOoo you know we all want to know.... What color are you gonna wear to the wedding? yeah
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


BionicWoman
Regular Member


Date Joined Jul 2008
Total Posts : 243
   Posted 7/10/2009 9:56 PM (GMT -7)   
Piping in on the SCS portion of the topic... wink

I'm thrilled with my SCS and even if I had to go through 10 times as much to get to the point I'm at now, I'd do it in a heartbeat. When I think back over the last 5+ years of medications, I can still clearly recall every single horrible reaction I've had along the way - well, except the couple of drugs that left me really screwed up, which aren't entirely clear. smhair It's really funny because I've had my SCS for a little over a year and I've had some issues along the way, but when I try to think back to those issues, nothing really jumps into my mind waving a big ol' OMG! sign, and it's not because my memory is impaired or anything. In the grand scheme of things, the problems/issues/frustrations I've had with the SCS have been totally insignificant, especially compared to the positives that have come out of it for me.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/10/2009 10:25 PM (GMT -7)   
Scarred, please, please give us the name of this new medication. I am just thrilled to hear something good is happening for you.

I don't know about you, but my flowers are so calming for me. I get out there very early, usually right at day break due to the heat, and get them watered. I am constantly trimming on them. I have one large bed that goes along my sidewalk, and a very narrow bed on the other side. That one was full of monkey grass and I dug it all out two years ago and got rid of it. about all monkey grass is good for is the mosquitos. I have Mexican Petunias that has sprouted up everywhere from seed, I have to keep them pulled out or they will take over the entire front. Despite the heat my flowers are thriving. I even bought a red and a yellow tropical hubiscus this year and set them out them in larger pots. They are beautiful. The red one should draw me in a hummingbird, they love the red ones. My perrenial plants payed off this year, I have separated & moved many to a bed on the side of the house and I have filled it up nicely. If you ever find a plant called "Society Garlic" buy it, its so hardy and produces like crazy, can take full sun & has a pretty lavender flower. I did move my peony bush and it nearly croaked-they don't move well. Now, it may be 2 years before it will ever bloom-makes me sad. Took 2 years before to get it to bloom lol. Take care and do let us know about the new medicine.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.

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