i need some advice on managing chronic pain and chronic fatigue

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cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 7/12/2009 11:24 AM (GMT -7)   
cry  i need some advice on handling my chronic fatigue and pain. i have 2 many illnesses and meds to list. when i awaken in the am i can barely walk. i am hunched over and my feet hurt sooooooo bad. it gets better after a while, but if i ever have to walk or stand 4 very long, the pain is overwhelming. exercise is out of the ?. i hurt all day, every day. im on hydrocodone 3 times a day which gives me some relief but doesnt last very long. i am miserable. i am not able to do many things with my husband and 19 yr old daughter. i am supposed to go to hawaii in oct. with my husband and some of his partners and their wives. i want to b able 2 do the things everyone else does, but i know i wont be able to. ill have to pick and choose just as ive done on trips in the past. if ANYONE has any good advice i would love to hear it. what im livi ing is never the life envisioned for myself. im 49 and ive been sick for the last several years.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/12/2009 12:37 PM (GMT -7)   
Hi, Cbear,
I can't remember if I've ever welcomed you to the Chronic Pain forum, but if not consider this a welcome!

It's unclear from your post what's causing the fatigue. Have you been diagnosed with CFS? It does sound like you may want to ask about seeing a pain management specialist, again, depending on your diagnosis. You say you have too many meds and illnesses to list, and I can relate, and about all I can say from your post is you have to keep teling your doctors about your pain, and that the current treatment isn't working. I also wonder if you need to see a Rheumatologist. You may also find useful advice on the fibromyalgia part of the forum, but a lot really depends on what the primary cause(s) of your pain and fatigue are.

I do know that for pretty much all of us this isn't the life we envisioned. It is a long road, and I'm still at the beginnin of it even though I've got 10 years on you, to making some peace with that fact. Finding out what we can do, what we have to grieve and set aside, what's worth pushing through the pain....those are tasks that take a long time. And that's what we can help with on this forum - or at least we hold hands and struggle together. Some people are further along that road, and I learn from them. I still have a lot to learn. And it seems dealing with doctors and the medical system is an uphill battle for many of us.

I don't know if any of this helps. Seeing a therapist who specialists in pain may also help you make these adjustments as well as teach you a few skill to help manage the pain, but most of us don't have a cure. At least not most of us on this forum.

Please feel free to join in and we'll offer all the support we can.

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/12/2009 1:44 PM (GMT -7)   
Cbear, I would just like to encourage you to follow the advise that PAlady gave you. Being honest with your doctor and making sure you are seeing the right doctor is so important. We have had several threads in the past few months about dealing with the struggle of what our lives have become with chronic pain. You do not mention how supportive your husband is or your daughter. On your trip in October, I hope your husband knows your limitations and helps support you during the times when you are not feeling as active as others. Most of us here are well aquainted with choosing what activities to be involved with and which ones will cause us consequences that we don't desire. We as well know that there are times when we choose to do things that we will pay for later but we still want to be normal like others. It is not that we don't believe or want to be healed, it is that we have fought this fight for years and have accepted to some degree that life is what it is and we choose to continue in whatever fashion we can. It is not easy and don't lose hope.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/12/2009 2:49 PM (GMT -7)   
cbear
I think we can all empathize with you, most if not all of us do or often do feel miserable, and can not do the things we would like to, and we often regret and and feel disappointed that we can not keep up with others! You also mentioned that you are hunched over, I can relate to that, I walk bent over with a cain,( I cannot stand up straight) and with my rather long white beard, well you get the picture! As for advice to handling your chronic pain, well I would suggest that you talk to your Doctor and if he is not able to keep your pain adequately under control then maybe going to a Pain Clinic and seeing a Pain specialist is in order!
 Anyway you know the saying misery loves company? Well at least  here  at this Chronic Pain Forum you can have all the company that you would ever want! That is what makes us like a family here, we do understand what you are going through, and even though we can not heal you, we can listen and support you! And be company to you when you are miserable! So Welcome to this forum! I do hope you will post often and join in our family!

I really am sorry you have pain, but I am glad  that you have found us! Again I Welcome You to this forum!

White Beard


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 7/12/2009 4:01:41 PM (GMT-6)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/12/2009 5:03 PM (GMT -7)   
Hi Cbear,

I can really sympathize with the constant fatigue & pain. No one wants to live like this! I'd rate my energy level at about a -10 right now. Just walking up & down the stairs, or walking around the house is a huge effort for me, and my pain isn't even in my back! Are you seeing a pain management physician? If not, you may want to consider it. The hydrocodone that you are on is a short acting medication, meaning that you will have highs & lows, in terms of the level of meds in your system. A PM doc may be able to switch you to a longer acting medication to provide you will better coverage of your pain, in addition to the short acting meds that you could then use for "break-through pain" (pain not controlled by your normal meds). Additionally, PM docs usually work with you as an entity, rather than a body part, so they may prescribe things like anti-depressants, sleeping aids, & nerve medication, all of which are aimed at controlling both your pain & the "side-effects" of your pain (insomnia, fatigue, depression, etc, etc). They may also be able to do nerve blocks or injections to help relieve some of your pain at specific locations.

If you're not having any luck with mainstream doctors, there are other things to try as well. There are vast fields of alternative medicines & therapies, such as acupuncture, chinese herbology, homeopathy, osteopathy/craniosacral work, massage, etc, etc, etc. Not everything works for everyone, so it may take some experimenting to find a treatment or treatment modality that is right for you, but don't give up! Things have got to get better! Just remember that your doctors are working for you, so don't be afraid to reach out to someone new, if your doctor is unwilling to provide you with the support that you need.

Best of luck!

Skeye

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/12/2009 6:46 PM (GMT -7)   
Dear cbear,
I think pretty much that we can all have felt some of the ways you have. Chronic pain has got to be the hardest and cruelest of diseases,
it brings with it depression and a whole lot of other things. Have you considered maybe talking to a pain management psychologist in help finding
relaxation techniques that might help some, tens units and heating pads at times can help.. the others have mentioned many many good things to look into.

There are always new procedures to try, with the hope of getting some relief and Skeye mentioned quite a few...
Hope this info helps and hope you can get a low pain day soon!

Lots of soft hugz...
(((((((((((((((((((((((((((((((((((((((((((((((((Cbear)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 7/12/2009 11:09 PM (GMT -7)   
While working as a home health aide one of my clients was going on a trip. Her PM doctor prescribed a prednisone pack before her trip to try to help her comfort levels short term for her vacation. As I said she did this with the help of her doctor though cause she was on numerous pain meds already for a rare disease. This did help her and she was able to enjoy her trip more. Maybe this could be a possibility for you. Have a nice vacation. I have been to Hawaii and it is just beautiful.

Jag

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/13/2009 10:08 AM (GMT -7)   
 
 
    Dear CBear,
 
     Good morning *huggs* It is good to see you again. I do hope your fatigue has lessened a bit today.
       confused    I too have an increadible amount of fatigue.  confused   And continual "sore / tenderness" through my leggs & hipps for years. fortunatly thou... My mobility issues were greatly helped by slow continual exercise added in with a rigerous pain management plan . Took a VERY long time, at first I could only exercise once every 4 days for 15mins. *shruggs*   I used to hate that I took my time about everything... Now my friends giggle that it just a part of me. I love to walk, it feels so good! I love heat up my legg and hipp muscles... But, I go slow. My limbs feel heavy alot...  When I was at the peak of my "pain" I had a chair in each room of the house. 3 of which had heating pads. High "stools" for sitting at key places where I had to bend over~ bathtubs , bed (changing sheets), Laundryroom (transitin to dryer was always a pain!). I just kept at it 20min spurts all day for a few years until I finally got some help. I guess I am trying to say that... Do what you can today. What you do have control over no matter how small.
     I use Arnica Gel on my hipps. It helps me alot!!!! Plus no yucky residue, no weird smell, and it lasts 1 to 1.5hrs. Perfect for a stroll to the feild for flowers.
     Mr.T is a blessing. Mr.T after a slow walk or slow exercise... *whistful sigh*I think, for you, it might be worth looking in to. Most commonly called TeNs Unit or Transcutaneous electrical nerve stimulation.
I would also like to mirror what others have already said... Need to tell you doctor the extent of the trouble you are having.  
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 7/13/2009 10:16 AM (GMT -7)   
its me again! i cant believe how many of u kind people cared enough to share ur time with me. i may have listed my illnesses and meds on another place. i was so desparate last night. forgive me if i did. i obviously did not say enough about my situation and why im so down and frustrated. i have gone to all the types of drs. u all mentioned, and have tried just about all the "alternative" ideas 4 dealing with everything ive got. to answer ???. my husband is very supportive. (im thinking of nominating him 4 sainthood!) my 19 yr old daughter struggles sometimes. she wants the mom she used to have. shes so thoughtful and acts mature when she deals with others, but usually not me. it may just b because im her mom. she needs to grow up some. even though my husband is supportive, there r times when he gets frustrated,too. he misses the wife he used to have. hey. i miss her, as well! but evidently that is not going to happen. i find it difficult to keep on trying new drs. and new things. sometimes i think i should just accept where i am and deal with it. you all have given me the wherewithall to go back to my pm and try again. i will list all my illnesses and meds and if anyone sees anything i should pay special attention to. thanks to all for everything! asthma, fibro, restless legs syndrome, irritable bowel syndome, TMJ, hypothyroidism, anxiety, depression, bi-polar, chronic fatigue and pain, high cholesterol, sleep apnea, acid reflux meds include; effexor, pravartatin, seroquel, xanax, lamictal, clonazapam, temazepam, armour, amitiza, buspar, lortabs, estradiol, albuterol inhaler, prevacid, multi vitamin

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/13/2009 10:39 AM (GMT -7)   

cbear

It looks like you are being treated for most if not all your listed problems, is your Chronic pain managed well and under control? That is an extremely important area to addressed!  I also see  that you have Sleep Apnea listed,  but I do not see any treatment listed for it, are you being treated for that with CPAP, BiPAP or ASV treatments?  I also have sleep apnea, moderate to severe complex sleep apnea, and it is very very very important to have that treated as it can affect and even be the cause of many other problems!  So if you are not currently being treated for it I would highly encourage you to do so! I am sure that others will also chime in and give you other very helpful  suggestions and advice.

cbear I don't think you will find a more caring and compassionate group of people any where than what you will find right here, on this HealingWell Chronic Pain forum! so again I  Wecome to our family!

White Beard


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

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