2 much pain 2 bear

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cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 7/12/2009 8:04 PM (GMT -7)   
cry   i dont know how much more i can take. between the constant pain and fatigue i really dont have much of a life. im not suicidal, but i just sometimes ? what my purpose is? i have a wonderful husband and a lovely 19 yr old daughter, but i feel as though i am constantly failing them. our house is a wreck and i seldom cook. i have so much pain in my feet i really cant exercise. i am overweight and seldom get out of bed. im trying to push myself to do a little more each week, but its hard. i have really only 1 friend left that i do things with. im on so much medicine already but want to know if there is anything out there that anyone knows of that might give me some quality of life. thanks 4 ur time, cbear      my illnesses include, asthma,fibromyalgia, restless legs syndrome, irritable bowel, TMJ, hypothyroidism, anxiety, depression, bi-polar, chronic fatigue and pain, high cholesterol and sleep apnea.                My meds are, effexor xr, pravastatin, seroquel, xanax, lamictal, lyrica, klonopin, temazepam, armour, amitiza, buspar, lortabs, estradiol, albuteral inhaler, prevacid and a multi vitamin                                                                  

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/12/2009 8:36 PM (GMT -7)   
Cbear,
I'm not a doctor and can't give medical advice (none of us can) but I just wondered who's overseeing all your medications. I do have some background in mental health and your doctor, in conjunction with input from you, is going to know what's best, but some of the medications seem to overlap and I wonder if they're being prescribed by different doctors and has someone looked at all of them, looked at you, and put together one plan for you. For instance, the xanax and klonopin both have sedating effects. White Beard is also very knowledgeable about sleep apnea and if that's not being treated that could certainly cause a lot of fatigue.

It's possible your depression is not being effectively treated. Sometimes anti-depressants need to be adjusted or even changed over time. But again, all of this needs to be discussed with your doctor. Do you have confidence in your PCP or whoever is your primary doctor in all this?

Also, many people feel guilty about failing their families, and seeing a good pain therapist could help with that. You certainly DO have a purpose in life, even if it's not to keep the house clean.

I don't know if this is helping at all. But keep posting and hopefully we can support you through this time. It just seems like you're not getting the medical care you need, and that's a struggle for many of us. You are NOT alone!

Hugs,

PaLady

ladywriter
Regular Member


Date Joined Jun 2009
Total Posts : 112
   Posted 7/12/2009 9:23 PM (GMT -7)   
cbear,
I'm not a doctor either, but -FYI-my psychiatrist recently took me off xanax and put me on klolopin and said under no circumstances was I to take the two at the same time.

I'm usually on the Rheumatoid Arthritis (RA) forum, having been diagnosed with RA 12 weeks ago. Great, one more pain thing to deal with. But I've had chronic pain from an auto accident for 12 years (I'm 49), and spent them all until recently under the care of the same neurologist (who prescribed my pain meds) and was reputed to be the best in the Denver area, if not the state. Long story short, she apparently gave up on me, undermedicated me, told me I was crazy (used those exact words) and said that the pain I felt was emotional pain mixed in with physical pain and my body couldn't tell the difference. Did I mention that I was very undermedicated and as such barely functional?

I got a new doctor, highly recommended by my pain management counselor, and the new doctor immediately put me on Opana ER (Extended Release), which I take every 12 hours, regular Opana that I take once or twice a day for breakthrough pain, and I have my life back. More or less, because the RA is currently kicking my tail, but that's for another forum. Back to the subject, the Opana ER is controlled released oxymorphone, a very controlled substance (Schedule II), and very effective. I don't know if it's new, but I'd never heard of it before my new doctor mentioned it.

I have psych issues as well, and was switched to Cymbalta for depression back in January because my shrink said it had the capacity to relieve muscle pain. It seems to have helped some. I have permanent muscle damage from the accident. I don't know if any of this will help, but for me, getting a new, more knowledgeable and compassionate doctor made all the difference in the world. Good luck to you.

ladywriter
Rheumatoid Arthritis, Chronic Pain, Chronic Major Depression, Generalized Anxiety Disorder, Schizoaffective Disorder, Recovered Alcoholic w/15 years Continuous Sobriety


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/12/2009 9:45 PM (GMT -7)   
Hi cbear and I'm glad you came here to talk. Being in constant pain can wear you down so fast but you shouldn't have to give up everything you love because of it. I agree with the gals above. Your doc needs to take a second look at all of your medications. Then, I would suggest a pain counselor. Yep, they have pain counselors. No, I don't think you're a mental case, but I do think you are like the rest of us and from time to time have a hard time dealing with chronic pain.

Please talk to your sweet hubby, and possibly your daughter about this and ask them to go with you for some help. Your condition is not being managed correctly. You should not be like a zombie all the time. With them at your side you can fight to get your life back. Many of us are living examples that it can be done.

And the third thing is to keep coming back here where people do understand your pain. Keep in touch and let us know how you are doing..ok?
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 7/12/2009 9:54 PM (GMT -7)   
Hi CBear, I have been feeling very much the same as you for the past 2 months. If you can, look at my post 'struggling", some of the posts that were written to me really helped through the last couple of days. I just kept reading them over & over. Our feelings of frustration, worthlessness, etc., are identical. I have been feeling that my family would be relieved of a huge burden if I was not here anymore. And maybe they would, but I know it would devestate them as well. I hope that u get some relief soon. Until then, keep posting & we will support u in any way we can. Lorie

Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 7/13/2009 4:08 AM (GMT -7)   
Hello cbear,

I also dont understand why they have you on so many diffrent kinds of meds for anxiety? It looks like you need something that's a bit less sedating for anxiety but helps it alot better. And I see your just taking hydrocodone, a very weak pain med, is it even doing anything for your pain? I find with meds like hydrocodone that they dont last very long so your up and down with pain, maybe you need something more long lasting thats meant more for chronic pain. But like everyone else said, I would get a 2nd opionin on all these meds your taking, you may just need a whole new regimen of meds. I really hope that these meds are either being prescribed by the same doctor, or doctors that are in close contact with each other, I sure wouldnt be taking so many sedating meds a once, and that could be your problem with the depression and making it worse, atleast I would think so.

-hellokitty

Chronic Pain Moderator

Dx-Gallstones at age 14 that caused Fibromyalgia in 1998. Chronic Pancreatitis at age 15 from Pancreatic Divisum. Fell down cement basement stairs on my bottom in 2001. Got severe migraines after the epidural from my 2nd childbirth in 2002. Was rear-ended by a lady doing 55mph in 2004 then 2 months later rolled my car down a hill and did even more damage to my back. Depression caused by having chronic pain. Asthma from allergies.

meds- Suboxone for pain, Cymbalta for pain and depression, Lyrica for pain and migraines, Imitrex for migraines, Ibprofen for migraines, Ventolin Albuterol inhaler for asthma. Phenergan for nausea, Seroquel for sleep.

"I know God will not give me anything I can't handle. I just wish that He didn't trust me so much."         -Mother Teresa

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