I need help for my poor hubby

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anniebananie
New Member


Date Joined Jul 2009
Total Posts : 2
   Posted 7/13/2009 10:51 AM (GMT -7)   
Good morning everyone!
 
Two years ago it was found that my husband had colon cancer. The tumor was removed but 3 days later (while still in the hospital) his bowels leak into his abdomen and he was rushed to surgery again. He developed sepsis and ended up on life support for almost 6 weeks. He lost 55 pounds in that time. He had to learn to walk again and all that fun stuff.
 
So far the cancer is beat and that's not the problem and he's back at work for the railroad. What is the problem is now is that ever since this happened he keeps getting these episodes of pain that absolutely debilitate him. He says if feels like his lower legs have a feeling of having bengay on open sores. He said it feels like pain wants to shoot out of his finger tips. His top teeth will ache and the joints in his legs hurt.
 
It happens now about twice a week. It had been almost daily. When it hits he takes a darvocet and that will make it bearable. I have surffed the web and asked his doctor too but no one really know what the pain is from.
 
Does anyone have ANY idea what this might be? Has anyone else had this same problem?
 
 

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/13/2009 11:12 AM (GMT -7)   
anniebananie

Your husbands problem sounds misserable to say the least! I am not sure this is the place to looks to find a solution for your husbands problem, but it is the place to get support, for you and especially your husband with his pain. Maybe some one here on this forum has heard of this type of thing and could possible give you support or even some advice on where to get help. But I can only say I wish you and your husband all the best Good Luck to You!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/13/2009 11:18 AM (GMT -7)   
 
 
   Dear Anniebananie,
 
    Good afternoon. My name is Dani. It is very nice to meet you. I am glad you found the Healing Well Community. Perhaps, over time, you can get your husband to join us too. Having support from other in Chronic Pain patients is a very important part of "Whole Life Wellness".
 
     I do not know much about medical conditions. I do not have any firsthand knowladge about cancer or sepsis.
 
     The pain you describe, however. Is indeed very unique. It would be a good idea to get him to a pain management specialist as soon as you can. Also a dentist. Just to rule out common factors. But, as odd as it sounds... be sure the doctor knows about both facial pain and legg pain and that it feels like it is originating fromt he bones. Has his parathyroid ever been checked?
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/13/2009 11:21 AM (GMT -7)   
I really don't have any definitive answers for you but maybe seeing a rheumatologist and/or a neurologist might be a good place to start.

While I am not a doctor, my thinking at this point is that the sepsis may have been severe enough to cause joint and/or nerve damage since it causes the body's immune system to go into overdrive which may have caused the body to end up attacking healthy cells. I don't know. It is just a layman's theory based on a 1 minute crash course.

Of course this could be totally unrelated, regardless though it seems your husband is suffering nerve pain and possibly joint pain so those two specialists would be a good start IMHO.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/13/2009 11:30 AM (GMT -7)   
Hi, Annie,
Welcome to the Chronic Pain forum of Healing Well. Like others, I don't know exactly what's happening with your husband, but he really does need to tell his doctor, and if he's only seeing a PCP he likely needs to be referred to a specialist. My guess might be - and this is just a guess - as Jim said a neurologist or rheumatologist, but considering all he's been through his doctor needs to determine that.

You both have been through so much! Sometimes (no offense guys!) men may not be as open about their pain with their doctors because they don't want to be seen as "weak". So maybe if you go with your husband to his doctor that might help? I don't know.

We aren't doctors here and can't give medical advice, but this is a great support group. You and your husband are both welcome anytime!

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/13/2009 2:08 PM (GMT -7)   

PALady

That is EXCELLENT advice. And no offense taken! You make a very good and I am sure very accurate point.  Because many men do tend to be less open and direct when descussing their pain for what ever the reason. But my hunch is that your reason is correct most of the time!

Annie you might want to start making notes on things that you have observered about your husbands condition, and his reactions to it. When he is experiencing pain how does he act, is he guarding, as in protecting an arm or leg? Then when you go to the Doctor with him you can tell the Doctor about your observations!

Good Luck to You Both!

White Beard


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 7/13/2009 11:57 PM (GMT -7)   
i know my fibromyalgia has a burning feeling sometimes that reaches the tips of my fingers and toes. but its pretty well managed with lyrica and cymbalta. he could have nerve problems, thats what it sounds like to me. i also have nerve issues in my legs from my back, they are burning and aching, and the same drugs help with their pain. you should have your husband see a neurologist. at least go to his primary care (pcp) and get started, sometimes when you deal with nerves it can take awhile. welcome to HW, please keep us updated, i'll be curious to know his diagnosis.... and congratulations on his recovery, what a miracle!
RX's: Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 5x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Ambien CR (bedtime); Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


anniebananie
New Member


Date Joined Jul 2009
Total Posts : 2
   Posted 7/15/2009 10:47 AM (GMT -7)   
Thanks everyone for the in put. My husband has told his doctors about the pain and been very Specific about it too. They give him pain meds to help control it. I was hoping to find out if his type of pain had a name or if it was some kind of sydrome or something. The good news is that it is getting better as the months go by. It use to be daily now it's only about 3 times a week. Lets hope that some day it will be gone. smilewinkgrin

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/17/2009 7:38 AM (GMT -7)   
Welcome anniebananie.. BTW I love the name....

I went through so much with my hubby with his pains and issues. Over time (18 yrs) we finally got somewhat of a Dx. Fibro. I have been researching his symptoms for over 2 years. I will tell you that finding a name for it could take time if not at all.

I wish you luck on your search

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all

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