Bad Test Results

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Mystic_Duck
Regular Member


Date Joined Jun 2009
Total Posts : 52
   Posted 7/17/2009 1:14 PM (GMT -7)   
Ok guys, im seriously scared and really needed some help and support.... I had a Dexa scan done about a week ago to check my bone density, a normal score is around a -1, -2.5 and below is osteoprosis range... and then there r two scores your P score is compared to all other people who hav had this test done, lik where u fall on the average of everyone... and then your Z score is compared to the ave of people who are your age, sex, height, race, and so on... so a more specific score and the one thats most informative... ok and for some background so u all know im a 19 year old female.... my score (the Z score) was a fricken -3.8!!!!!!!!! shakehead Ahhh im seriously freaking out rite now, and ive been reading some but wanted to kno if any of u hav osteoporosis or anything lik this???? ive been having all over pains and im wondering if anyone knows or who has osteo has pain with it?? im so so worried... i get more blood tests done early next week to see whats causing this, but im so scared... they dont think its going to be reversible..they mite be able to raise it some, but not back to normal ever again....AND another very odd thing is that I TAKE CALCIUM SUPPLEMENTS!!! so im even more scared cuz wat would hav happened if i wasnt! Im also freaking out cuz lik r my bones dissolving? Y havent i broken anything yet if they're that brittle???? (Im very clumsy...) Im so scared u guys... i do not need anything else to deal with, cuz my pain is escalating again anyways.....pls let me kno if any of u hav had any kind of exp with this or any suggestions or just support! i could really use any of it rite about now!
Thanks u guys...
Katherine
 
"In God's hands, in God's time."
 
"The scourge of life, and death's extreme disgrace, the smoke of hell, that monster called Pain."


infinite
Regular Member


Date Joined Jul 2009
Total Posts : 84
   Posted 7/17/2009 1:39 PM (GMT -7)   
I don't have much to offer as far as experience with what you are dealing with. But I wanted to offer my support as you are dealing with it. Any type of reaching out really needs at least a response! Sorry I don't have advice to offer, just a n ear to lend...

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/17/2009 2:18 PM (GMT -7)   
Whoa, hold on Katherine,
Now important thing is to calm down, so take a lil breather...
1. make a list of questions to ask your doctor..2. take it with you to the doctor...3. how worried
is your doctor about this tests and could it been read incorrectly? are the results in error
and can you possibly re take it??? I think pain can be increase with low calicum scores and I
take a suppliment too, so the suppliment should be helping, if not ask about another one..
Try not to panic yet till you've seen your doctor and had a talk with him/her...
Hope this info helps and ya know we all care about you...
lots and lots of soft hugz..
((((((((((((((((((((((((((((((((Katherine))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/17/2009 2:45 PM (GMT -7)   
Mytic,
I agree with Chartreux, although I know not panicing is easier said than done. Howevever, you may want to be reviewing with your doctor just what supplements you're taking and when, what you may be eating/drinking with them. There are a lot of things that could affect absorption including Vit. D. Plus the body can only absorb so much at once, so if you take more than that it may not be helping. You may need to be spreading it out. Just make sure what you're taking is being absorbed.

I know it's hard, but try not to feel so hopeless for the future. There are new treatments coming out all the time. Some of the meds like boniva I think even help reverse bone loss. I'd also read in credible complementary medicine programs about other things you could be doing. Dr. Christiann Northrup is a great source of info, as is Dr. Andrew Weil, although I would say use this in conjunction with your doctor's advice. The problem needs to be found and then there may be a solution, especially to stop and even reverse some of it.

But we'll be here to offer support and hugs!

((((((((MysticDuck))))))))

PaLady

Boxerlover
Regular Member


Date Joined Dec 2006
Total Posts : 274
   Posted 7/17/2009 4:44 PM (GMT -7)   

Hey Mystic,

Don't worry, I was in a similiar boat.  First off it's a good sign that you have not broken any bones.  Second the machines used to check your bone density vary from one machine to the next.  You may ask for another test at a different place and see what your scores are there. 

If you do have osteoporosis, they will want to figure out why at such an early age.  It can be either a primary or secondary problem meaning there could be something else causing the bone loss.  Your doctor should want to do more tests to figure out what is going on.  I would assume he will start you on one of the meds for osteoporosis and have you keep taking your suppliments.

Hang in there and wait until you get all the info!!

Melissa

 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/17/2009 5:41 PM (GMT -7)   

 

  Dear Duck,

Good evening!! *warm huggs* I do hope you have gone to the store for some cammomile tea. Or atleast go a lil exotic and get a valerian root and kava kava mix. Relax *huggs* it is going to be okay.  I am so very very glad they found it now. Rather than later. I think, my friend, you may have just saved yourself alot of damage.   shocked  

  I do not know about the "normal ranges" of the bone test and blood tests. Even if it is osteoperosis,(which is OK), you can restrengthen your bones in a year flat. It is my understanding that once the bones / teeth are broken or crumbled that those cannot be saved. BUT you can re build and heal your bone mass. But reguardless off the results of all these tests? You will stand tall. You will embrace it. You are far too strong willed to let anything bring you down. And between you and me? I'd be applying for the Boniva commercials! Make some cash, stregthen some bones, host a HW party for us all to finally meet... wait !!Getting off track!!

  You got this! You will come out the other side more radiant than you already are.  :-)

*warmest huggs*

 

   Dani

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

*more huggs*

 



TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood

Post Edited (Dani Henson) : 7/17/2009 6:44:34 PM (GMT-6)


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/17/2009 5:46 PM (GMT -7)   
Hi Kathrine!

Sure was fun to see you in chat last night. I had NO idea you were dealing with this and are so frightened. I don' t blame you, but like others have said....please try to relax...OK?? Like ya...how do I do that??? rolleyes First, by knowing we are all here and other people have experienced this too and are living a wonderful life. Next, take the most luxurious bath ever! Put some candles in the bathroom, pour in some bubblie if you have some or bath oils...whatever...even baking soda is very soothing. Then lay back and relax. Keep the water warm...drain some out when it gets cold and add piping hot til the take is running cold...lol Too bad for the next person. YOU need this and deserve it.

I'm sure this is frightening, especially when you don't know what, why, when, if, all of the questions...but one thing at a time. Wait until you have more information. Like Melissa said, ask for another test to confirm the first one. That's a very reasonable thing to ask for. Once you get the information THEN start with your doc and learn all you can about treatment. You are lucky to live at a time when something like osteoporosis is becoming well understood and there are great treatments for it...if that's what you do have.

You said something about "all over body pain". Can you talk more about that? How long has that been going on? Just since this bone density problem came along? If it's something that has been with you for quite a while why don't you head on over to the fibromyalgia forum and do some reading. (OK...correction here...I just found your post over there...sheesh..now you know what fibro fog is...lol) The trademark of Fibro is widespread body pain. It's not quite that simple but if you read a thread at the top of the page called "Fibromyalgia 101" you may get some answers.

And finally...please email me if you'd like. I'm here every day and often close to my computer. I would be pleased to hear from you. Even if I have no solutions or definitive answers you may lean on me any time. Hey...I "adopted" Sassy as an extra daughter...I would love another! We can break the news to "dad" another time...lol

Please keep in touch...you are not alone!
Chutzie smilewinkgrin
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns

Post Edited (Chutz) : 7/17/2009 6:49:53 PM (GMT-6)


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/18/2009 1:24 AM (GMT -7)   
Hi Katherine, You have already been given some great advice and encouraging words. I don't have much to add to what has already been said. I agree with everything that has been given. I do want to encourage you that early detection is a great asset. There are so many new products out there. Once you have all the details and diagnosis on the table, your doctor will point you in the right direction. Hang in there! You certainly have your age on your side. That is a big plus. We will be here for you. You will make it. I know it is hard to relax. But try that relaxing bath Chutzie talked about. It will help you to relax and it sure feels good!
Anice

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/18/2009 6:57 PM (GMT -7)   
 
 
 
nono   No No! No hiding from Us! We are worried! check in! nono
smhair   Smoke signals? smhair
 
    Okay, maybe that is a little dramatic....
 
    *huggs!!!!!*
        dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 7/19/2009 8:27 AM (GMT -7)   
I would ask to be retested, Yes, you are young for it and thats why I would insist on another test. There is medication by rx that can stop the progression of further damage. I use one that is in nasal spray form. Try to calm down there is so many things you can do yourself that can
help out here-you are not the the end of the road honey.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/19/2009 6:06 PM (GMT -7)   
Hi Katherine,

I'm so sorry to hear about your test results! That is really scary! I agree with the others, in that I'd want to be retested, as your results were so extreme & don't quite match your history! Hopefully these results will give your doctor(s) a better idea of what is going on with you & they will have a new plan of attack. Hang in there!

hugs,
Skeye

Mystic_Duck
Regular Member


Date Joined Jun 2009
Total Posts : 52
   Posted 7/19/2009 8:52 PM (GMT -7)   

hey all, thank u to all of u who posted, and thanks so much for being there for me, its helped more than u know!

cry  Unfortunately im just not in a good mental state rite now, one thing i forgot to let u guys kno is that part of my treatment for the endometriosis- which is what most of my cp is from- are lupron injections...they hav been a true lifesaver for me, i missed 2 months of school before i was on them, and it was a HUGE component in me being functional again...well these shots send me into menopause, which means all the side effects hot flashes and nite sweats and so on but it also means there is a risk for losing bone density...however its VERY unlikely that these shots could hav caused me to lose that much density, which is why im getting these blood tests done tomarro... but to conteract this side effect normally they put u on some type of estrogen or birth control pills called add back therapy...well luck me, i cant tolerate synthetic estrogen (only my own) and ive been on 3 diff types of pillls, 2 patches, and even the lovely nuvaring...all with progressively lower doses down to .0025mg and every single time, about 4 hours after the estrogen is in my bloodstream i am very violentlly vomiting...so much fun... cry

ANyways the reason i wanted to let u guys kno all that was because it partly explains the density loss but its also making my mental state absolutely in the toliet... it seems lik no matter what happens its not gonna be fun, its going to be long, somewhat redunant and i just dont kno if i can go thru that again.... well, they r going to want me to try estrogen again.... which i kno wont go well (some of the latest exp were just a few months ago) no matter what which isnt going to be fun.... soo in addition to that there r 3 roads that look lik my future for the next few months...(there r 2 things that they r testing for with the blood both which ive beeen reading a lot about) so here we go...

1.) It could be one or more of my parathyriod glands, which means surgery to take out the "bad" glands and then trying to rebuild the bone density with fosamax or boniva and supplements.... well doesnt sound horrible but still not really something i would want to go thru, plus im so sensitive to meds i dont want any more, plus added side effects...

2.)It could be a malabsorbtion prob in which i just can absorb vit D or calcium or both... which means.... more tests to figure out why that is and o yess,,,,, more pills to try to correct that prob.... in addition to the pills lik fosamax and boniva and all that whoo-haw....

3.) OR it could be just the lupron that is doing this, which means after unseccesfully trying the estrogen, they will want me to go off it! well huge issue rite there!!!! i was in such a miserable state before i had these injection...i was bedridden for 2 months because of the constant pain and i really really dont want to go back there...Not only that but my periods were freakishly heavy (lik soaking a heavy duty overnite pad in 4 hours plus a supersized tampon....) I mean when i went to sleep i had to sleep with  towels in my underwear to absorb all the blood! and not only that but they lasted for a good 7-9 days, and the best part! PAIN PAIN PAIN it was so unbelievable, i would be on the bathroom floor thats it that where i sleep during my period and i cannot move, my mom has to bring me food! and for the week prior! i get to be in the same state just in my bed.... That alone is too much for me to even think about handleing.... shakehead

BUT WAIT! it just gets worse, more than likely they r going to want me off the lupron no matter what cuz its just going to make it very hard to gain density while on it.... which means all those things i just said in the last paragraph... AND just the fricken icing on the cake............ is that they just gave me my 3 month injection.... which means its going to wear off RIGHT IN THE MIDDLE OF FALL TERM!!!!!! rite around midterms actually..... so i can see how in the world im going to be able to deal with all of this! and even if i get to stay on the lupron all the surgery or further testing is going to happen rite when school is starting! yay.... shakehead

AND, if that wasnt enough, i hav an appt aug 20th to see a rhematologist to figure out whats been happening with my joints and my all over pain and my immune system .... which means not only m i going to hav to go thru all this crap for the osteo stuff BUT  its going to be a the same fricken time they r going to want to do all these tests to figure out what else is wrong.... and if something else is wrong...which it has to be with all these symptoms.....thats gonna mean more test then more drugs!!!!! and more side effects!!!! i cant push this out cuz its going to run into the start of term as it is but these other issues are really painful and bothersome in their own right, that they need to be figured out! and on that bad note, they put me on preidnisolone (sp?) to try to see if it would help my pelvic pain cuz there was sooo much inflam. last surgery, that im about 3 days into it, and my joints feel A TON better!!!! which yea i guess u could say thats some good news, but that implies that its an inflamation prob with my joints which means Rhuematiod Arthritis!!!!!! AHHHHHHHHHHHHHHH shakehead

OK. so i think ive explained and vented suffiecently for u all to get the ENTIRE picture of what my life looks lik medically rite now, which is pretyy darn sucky....which is why i feel lik absolute poop and im worried sick...my panic attacks hav come back now even! ARRGH and my anxiety is thru the roof, which im working on cuz i went back to my therapist now that the panic attacks are back.... O more docs!!!! I just dont want to do this, i dont ant to think about any of this but its all i can think about! im so worried and so scared and its way to much for me to handle! i cant go thru all this testing again, once was horrible and i just cant do it again!!!! AND esp on top of school!!!!!i dont kno how the helll im supposted to deal with all of this crap and do well or even just get to class1!!!! im just in such a bad meental state, and really really just want to get away, i want to go away i want it all to just stop all to just go away! (no, btw im not suicidal, i kno that last sentance didnt sound so good) BUT i just want it all to stop. i really dont think i can take this or even make it thru these next few months with all this crap coming.....

confused  Sorry the post is so long, im just really in a bad way anyway u look at it and m so frustrated and dont kno what to do and just really want to get away form EVERYTHING!!!!!!!!!!!!!!!!!!!AHHHHHHHHHHHHHH!!!!!!!!! cry cry cry

OK, thanks again for all ur replies and support...i think ill be relying on a lot of it if im supposted to get thru the next few months....thanks again

Katherine
 
"In God's hands, in God's time."
 
"The scourge of life, and death's extreme disgrace, the smoke of hell, that monster called Pain."


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/19/2009 10:22 PM (GMT -7)   
Mystic,
I'm so sad to read all that you're going through. I am pretty sure, though, that the lupron is only meant to be taken for short periods of time exactly because of some of the side effects you're describing. I'm not saying it's all caused by the lupron, but a good portion of it could be.

Have you seen an Interventional Radiologist to maybe try something like ablation of the uterine lining? That's about the only other thing I can think about that maybe could give you some relief - but even those may not last.

I'm glad you're back seeing your therapist. There's a lot on your plate, and I know you don't want to hear this but maybe you might have to lighten your load at school or skip a semester until your health is back on track.

I hope you find some answers soon!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 7/19/2009 10:49 PM (GMT -7)   
Aw Katherine no wonder you are stressed to the max. I just read the above and you have every right to feel like you do. But, as hard as it sounds honey, take it one day at a time. I know easier said than done. All of the unknown, the whats if's will absolutely swallow you up if you let it. You have alot going on. Just keep coming here and letting it all out that why we are here. I know about Lupron and what it does to a female, I saw the hell my sisterinlaw went thru when on it. Hugsand prayers coming your way.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/20/2009 12:54 PM (GMT -7)   
 
 
Dear Ducky!
 
   **HUGGS!**
  Good afternoon. Im very glad to see you. I will admitt, I was a little worried you may have packed you bags and gone to hawaii! :-)
 
      Did I tell you I just finished getting my parathyroid checked? It wasnt so bad really, and the tech was kinda cute too. Other than taking time outta by days (grumble grumble) it wasnt so bad. But took them.. Oh just ender a month to completly rule out the parathryoid. I also got the impression they were sure that would be the culprit, but alas. No Deal!  Any way, lemme find my posts...
 
 
 
 
  So.. try really hard not to laff when they say "Now this is perfectly safe.." when they open the tube, inside a tube, in a glass tube... and out comes this tiny pill the tech refuses to touch!
 
 
*warm huggs*
Dani
 
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/20/2009 3:32 PM (GMT -7)   
Hi Katherine,

I can completely understand about all the stress regarding school. Although we have completely different conditions, we face some of the same challenges. Every semester I've thought about dropping out (I was never able to make a decision, which was always a decision in itself), but I knew that I'd regret my decision either way. And I did. I've had to make a lot of changes & sacrifices. Right now, almost every doctor of mine is telling me NOT to go back; to take at least a year off, and then go from there. I'm about ready to agree with them this time, except that I only have one year left, and with my present state & 'prognosis,' things are only going to get worse for me with time. I'm waiting until mid-August at least to make any decision though, as hopefully we'll know more then.

What I'm trying to say, is that it is not an easy decision at all[/[], but you might want to consider taking some time off from school -- whether it is a semester or longer. If you can find some way to get things with your body under control, then perhaps you should allow yourself adequate time to do so. My doctors often bring up the point that I would be easier to treat if I was not actively in school, because I would have more time to give things a try & we'd have to worry less about side effects, etc. This is part of why I'm already planning on taking at least a year off after I graduate (assuming I can make it until then). There really isn't any great option in these kind of situations. But definitely take some time to think about it.

I hope the tests today provide you with some more answers!

hugs,
Skeye
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