Need Advice Really Bad

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LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/18/2009 9:15 AM (GMT -7)   
Ok I really really need some advice.
 
Some of you know that my life is a circus.  My husband being diagnoised with Fibro, Oldest son has mental issues, father was in jail up until this morning, 2 more teenagers going through normal stuff, my kidneys, my heart and chronic pain.  I go to so many different specialist it seems I have appointments all the time.  My supervisor at work has a black soul and is mean as the devil.  I could go on and on with all the things that I deal with on a daily basis.
 
HealingWell is my excape from my life to where I can go to talk to people who understand more then anyone else around me.
 
Heres my problem....  I had to get a new PCP.  The one I had before went to work for a pain clinic 80 miles away.  She was so wonderful and understanding.  She deals with CP in her own life after her xhusband tried to kill her.  She ended up with her hand being mauled by him, he did that so she couldn't become a surgeon.  She lost two fingers and had a prostecic hand.  This was 5 months ago that she left her practice.  SO I want on a search for a new PCP.
 
1st one I had fits with.  I posted about them regarding how long it took them to get my pain clinic referal done.  The made me come in once a week to get a refill on pain meds.  The refused to refill even though it was their staff who sat on the referal.  So after a month I droped them.  Before I left them I had refills on all my kidney and heart meds.  Well I've been looking since then.  My husband found an office that he thinks is wonderful so I went on friday.  BIG MISTAKE
 
For one thing he didn't like that I was on 19 different medications.  Ok I understand that.  But he was wanting to cut out my lasix, three blood pressure meds, migrane meds and so on.  He wants to get it down to under 10 meds a day.  He disagreed with all my specialists.  He told me he was not a PA but a doctor so hes just not there for colds and broken bones he was there to control all my meds.  He wasn't happy that I even went to a pain clinic.  He refused to refill some of my meds pending a blood test.  Ok fine but he made my blool pressure go up.  It started out at 150/90 then he checked it close to me leaving it was 162/102.  He looked at me and said "See all your BP meds are not keeping it controlled."
 
Of course its not going to be controlled he made it go up.  My cardiologist says situational increase in BP is fine as long as it doesn't go above 200/100.  He believes in BP at resting rate to see where you stand.  Plus there is a cause of White Coat increase.  Some people has increases just going to the doctor.
 
I know I can just replace him but am I just being parionod?  Do you think he might be onto something?  He also trains students from Vanderbilt University.
 
I have so many things going on in my life that this just seems like BS coming from this doctor and I so not want to deal with finding a good PCP.
 
Any advice would thrill me right now.....
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/18/2009 9:30 AM (GMT -7)   
Ok I am not good for too much pain control stuff.  But I do have white coat syndrome and it was causing all my docs to be concerned.  I was told to get the wrist type blood pressure cuff.  They are quite accurate according to my PC.  He had me take my blood pressure three times a day and keep a journal.  I was very honest as I know how serious high BP can be.  MY BP was sorta on the edge. 
 
They new lower recommendations for BP put me at risk.  I run around 130 - 85.  He put me on 12.5 hydrochlorothiazide and now I run about 117 - 65.  I can run up to 145 - 90 when doing the white coat thing.
 
So, you might consider getting the wrist type blood pressure cuff and monitoring yourself and see what you run on average.  Then you can inform your doc.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/18/2009 9:40 AM (GMT -7)   
My cardiologist had me take my BP every morning before I got out of bed to get the at rest BP. Before he increased and moved around alll me BP meds it ran 150/90. Not including all the spikes I had throughout the day. Then he changed the meds and had me do it all over again. The average went down to 116/70. then the spikes I have during the day are not even close to the average before.

Heres where my problem lays I already went through all the journals and med changes and this doc wants to take all the meds away and leave only the Bystolic.

Thats scary. I take Bystolic 5mg, Lisinopril 40 mg, Hydralazine 50 mg and one other i can't place right now.

I always wanted the wrist cuff. I need to look into that....

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/18/2009 10:05 AM (GMT -7)   

Hi Girl,

Well you are in a spot but it also sounds like this guy has a very big ego in my opinion. I think its great when a PCP can manage all medications, but you have other health issues that require you to see specialists. Would your specialists, say the kidney dr want him rxing your meds? What about the pain dr, would he? Or does this new guy plan to take you off of all pain meds. I would have to be leery somewhat, I would certainly want to know in advance what meds he intends on keeping me on. I too have the extensive lists of daily meds, but I have numerous health problems that requires these medications. I too have batted high BP since I was 28.

You may consider staying with him long enough to see what his intentions are in the medication area. Sorry, I do not feel I have helped you. Good luck.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/18/2009 10:44 AM (GMT -7)   
LLPLUV
 
You know oppinions are like.......well.......and everyone has one! What we think and what all the Doctors think doesn't matter, it is what you think counts and what your comfortable with! Just because this Doctor is a teacher doesn't mean he is the greatest or special! So get that thought out of your head. It is funny how this guy is suppose to be a PCP but yet seems to know more than all your other specialist? And doesn't agree with them on what meds they give you? WOW he must be fantastic if he knows more that each one of the specialist you go to! Do you know what I mean? THis guy doesn't even really know you, sees you for the very first time, and then says you should not be on all these medications that your taking? I am only speaking for my self now, but Laurie that send up red flags all over the place for me! Maybe after I seen him a few dozen times and he changed things slowly after he really got to know me and what was wrong with me, then yes maybe that would be OK, but to make such rash broad statements right off the bat without ever really haveing a chance to really get to know you???? For me that just would not seem right.
 
I had a Doctor like that once, and he was so full of himself, first time I seen him he said I had diabetes, and a whole bunch of things and I didn't. He even had me on Parkinsons medications for 2 years, and I don't have Parkinsons, for a year and a half I found out the Sleep Center was recommending a Adaptive Servo Ventilator ASV machine for my sleep apnea, but he did not believe in the techonology because it was to new, so he refused to prescribe the treatment for me. When I found all this out, he was now longer my Doctor! Looking back (hindsight is usually 20/20) I should have realized that he wasn't correct, the red flags were all there! But I have learned and I am more alert an cautious now!
 
12 years or so ago a couple of doctors said I might have Fibro,along with degenerative disc disease, anyway I was sent down to St. Louis to see this Neurologist who was a Professor at teaches medicine at a well known teaching hospital. He told me he did not believe in Fibro, and it was just a diagnoses that was made up to satisfy people, when what they really needed was  psychiatric help! He also told me that  most people did not have chronic pain and if they didn't want it that it would go away! I knew then that this appointment was going to be a waste of time, I traveled 200 mile for absolutely nothing!  By the way I was right, even my PCP was shocked and disagreed with this supposedly specialist!
 
Anyway just becare Laurie and don't jump into things! A good PCP can be a Great asset to have to co-ordinate with all your other Doctors, a bad one can make everything a nightmare! In the end it is what and who you are comfortable with! Thatr is what counts!
 
Good Luck to You
 
White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/18/2009 11:02 AM (GMT -7)   
Straydog....  Thats what my husband said that his ego is out of control.  My husbands doctor is another one in the office she was the one I really wanted.  And yes he acted as though all my specialist were crazy.  He would look over my file on the laptop and shake his head mumbling things like "Why?" "So many meds."  Its like he just couldn't believe someone was on so many.
 
Whitebeard once again you are so right.  Thats why I posted my red flags went up and I felt very uncomfortable throughout the whole appointment.  Then when I sat down and thought about it I started with the what ifs?  What if he knows what hes talking about?  What if I could decrease on these dreaded meds?  What if's started killing me.  I was also thinking maybe I was just scared on having med changes.  I don't do well with big change regarding my medical treatment.
 
I just want a GOOD PCP is that to much to ask?????
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/18/2009 1:03 PM (GMT -7)   
LLPLUV
 
The "what ifs" will get you every time! You are wise to be scared of sudden med changes! If you have been on these meds for some time, and  you are doing OK Why do a sudden change? Just because some know it all Doc that doesn't even know you, glances  at your chart and doesn't  like or understands what he sees? Is that a ggod enough reason to change your medications? Because he doesn't understand why the other Doctors did what they did and prescribe the meds they did! Well instead of second guessing them, ( and that is what he was doing) he should of called them up and descussed your problems ( thoroughly) with them so he would understand,  why they prescribed what they did, and what was wrong with you, and what they hoped to achieve in treating you!  Being your PCP he should  that with all the other Doctors that are treating you! But  you know LLPLUV that takes time and effort and most Doctors don't have the time and will not make the effort! But if they just second guess, like this Doc appears to be doing then he is putting your health and well being at risk! Please don't accept any one that would do that, it is your health that is at stake not theirs!  Please be CAREFULL!
 
I also want you to have not just a Good PCP but a really Great one!
 
You will find one, just keep looking!
 
I wish you only the best!
 
White Beard
 
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/18/2009 1:31 PM (GMT -7)   
Laurie,
I am in 100% agreement with White Beard and Susie. I think this doctor is bordering on malpractice, if you want my opinion! I mean to override your specialists at the first visit? Fact is, my PCP won't touch meds that are prescribed by any of my specialists. She just sends me back to them. Course she hardly wants to do anything BUT colds, flu and sinus infections!

White Beard has it right. If - IF - there were possibly some meds that would be worth decreasing or discontinuing, it should be done first in consultation with the specilialists who prescribed them AND you. And if you and your PCP agreed to a program of over time reducing SOME of the meds you're on - and had a good reason other then you're on "too many" meds! - then that might be something to consider. But not the way this guy is doing it. The fact he teaches at Vanderbuilt means nothing to me. There's white coat syndrome and there's ivory tower syndrome, and he's got the latter!

I also do not have the kind of PCP I want, but I tend to only go see her when I absolutely have to, and manage my own care through the specialists, although I'm not even thrilled with some of them. However knowing I was losing my health insurance I knew it wasn't a good time to make switches, as people aren't going to take you on knowing that's coming. I had one last appointment with my PCP before my insurance ended just to get scripts for allergy meds and let her know what else was going on health wise, and that I was filing for disability.

What was the reason you didn't get to see the doctor you wanted to see in the practice? My guess is if she's any good she's not accepting new patients and there's a reason your PCP has time slots open. I'd say try to switch to her, but I wonder with them being in the same practice how much influence he would have over her. One thing I'd suggest is get a copy of your records from him of that first visit. You want to see what he's put on paper. It actually may help you if another PCP sees at the first visit this guy wanted to take you off all these meds other specialists had prescribed. And you're not just talking pain meds. either, so that's a plus (I mean in the sense that a PCP isn't going to think you're just shopping for pain meds). I can't believe this guy wants to take you off the meds your cardiologist put you on!

I apologize that I can't remember your complete story, but can you get scripts for these meds from the specialists who prescribed them, even on a temporary basis as you look for another PCP.

This shouldn't be so hard. You're absolutely right. You know, if I were you I'd go onto ratemd.com and leave a comment - not in the blog or forum section, but in the doctor ratings. Maybe - maybe - you might also find another PCP there. I think they're also doing a doctor listing on angie's list.

You know, I think we all have to get more proactive about using these sites to rate our doctors - the good ones and the not so good ones and the horrible ones. It's the way we can take some control in this whole arena, and a way we can help eachother.

Hugs!

PaLady

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/18/2009 3:50 PM (GMT -7)   
 
 
Hey there neighbor....Will you give me a call, or send me an email (email is at profile) so we can talk about this Dr. situation??  We are pretty close and I may be able to give some ideas....
 
Rhonda
758-5634

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/18/2009 5:42 PM (GMT -7)   
 
   Dear Laurie,
 
   Good evening! *huggs* It is good to see you again.  I do hope you can find sometime for youself tonight. :-)   Is sound to me like you are the Heart of the House. But!! Even the strongest of Hearts need a little time to themselves.
 
   So! I hear your new Primary care physician walks on water! That is a fantastic feat!   smilewinkgrin   Inquiring minds want to KNOW!  ~~> Is he available for birthday parties? devil   We can call him G jr. for short.  smilewinkgrin
 
    You did not need this right now. You most definatly dont have spare time on your hands to "entertain" an extremly nieve and uneducated young man. I am sure that for a flu or a broken limb he could possibly preform his duities. But! I do not feel in my heart that any man or woman should pretend as thought full decades of another persons life (or any moment in time!), simply doesnt exist. It is inapproiate behaviourshakehead   dangerous stuff.
 
     I am so sorry you have to look for another new primary care all over again. WEEKS of time you just don't have to give. If there is anything we can do to help or help research.....   Anything atall. Tell us! Were right here :-)
 
  *Warmest Huggs*
     dani
    
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/19/2009 11:57 AM (GMT -7)   
Thank you everyone. This is what I plan on doing. I will get my blood work done. Then see him on Friday as planned. I will see if he had spoken to my other doctors to learn why I am on all the other meds. If I don't like him and what he wants to do I will go to the receptionist and ask for an appointment with my husbands doctor and fire this one.

I don't play with my health he would have to have REALLY good reasonings to not stay on my meds as I have been for 2 yrs now.

Once again thank you all for your advice and support on this subject he really did throw me for a loop. More then likely I will fire him....LOL

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/19/2009 5:44 PM (GMT -7)   
Laurie,
your last post said it all "Fire Him!" the sooner the better...
WhiteBeard said it all well and we are all so lucky he's here to help us..
Good Luck in what you choose to do, we'll stand behind ya...
Lots and lots of soft hugz..
((((((((((((((((((((Laurie)))))))))))))))))))))))))))))))))))
HUGZ
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/19/2009 6:39 PM (GMT -7)   
Hi Laurie,

I really don't have anything to add, other than what has been said, but I just wanted to send you some hugs & let you know that I'm here for you! Don't let that doc mess with your meds without having talked in detail with each & every specialist & then having agreed on a plan together (ie, your pcp, your specialist(s) & you). (((((((((((Laurie)))))))))))

hugs,
Skeye

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/20/2009 7:31 AM (GMT -7)   
Your all so right.  I will go on Friday but if he hadn't called and talked with my other doctors I will fire him on the spot.  I'm not at all afraid to tell an egotistical MD that they are full of themselves.  Just like PAlady said I have the option of going to my specialists to get my meds refilled.  I need to see them any how I missed both my nepherologists appointment and cardiologist.  My BAD I know.  But I just missed them last week I can go in Friday...lol
 
They would love to hear about this so called teaching doctor..
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/20/2009 10:07 AM (GMT -7)   
Laurie,
Ok, that clarifies things for me. Before you make any changes to your meds, PLEASE keep those follow-up appointments with your specialists. Talk to them in person because if it were me I wouldn't trust what this hot shot PCP tells you. He's going to filter whatever info. he gets.

Can you get into your specialists again soon? (and apologize for missing your appointments - they tend to not like that :-) ). Because if you can I think I would postpone the PCP appointment and see the specialists first. My guess is they will tell you to get another PCP! But again, that's just my opinion on things.

PaLady

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/20/2009 10:14 AM (GMT -7)   
I didnt think about that!!!!  Thank you  I can get into my specialist without a problem and ask them first.  This new PCP can say he talked to them and really not have...
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all

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