newby and want to say hello to everyone

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greatgrandmatoo
Regular Member


Date Joined May 2009
Total Posts : 58
   Posted 7/21/2009 2:21 PM (GMT -7)   
This is certainly all very new to me.  I am nervous about posting, and hope I don't bore anyone.  I have been doing some reading on what topics I think would be beneficial for me.  This forum has helped me with some questions, and I sure appreciate it. I have a questions or two for now though. Also I hope I am not breaking any of the forum rules.
 
What are breakthrough meds?  How does one ask for meds to stay pain free when I am already on pain meds ?  I just live with it and try to learn to live with it.  I just for the first time saw a PM Specialist in June, and I like her. She knew I was scared and really nervous.  I am very timid and hate to tell people I am in pain.  She put me on Vicodin 5/325s every eight hours.  I was previously  (3x daily) on vicodin 5/500s for about 14 years, and was satisfied and toughed it out, but in the last few months I have been suffering with the most horrid pain day and night and I am scared to let her know as I know there is so much puclicity and negativity regarding pain meds.I don't like doctors looking at me like I am seeking pain meds for reasons other than to kill this pain.  My pain level now and for the past few months has been at a level that I can't walk.  Last October I was hospitalized for a kind a bacteria in joint fluid that made me very sick.  Without boring anyone, I guess I need to learn how to let these docs know I can't stand the suffering anymore. 
 
I have felt enlarged lymph nodes in my pelvic area just recently with all of this body pain.  I call it bone pain....cuz I can't stand to touched my bones anywhere; they hurt so badly.  Do I call my PM Specialist or my Rheumi doc?  I can barely move ......What would you all do?
 
Pain in Virginia
granny
 
  

Disabilities include Degenerative Joint Disease, Osteoporosis, Rheumatoid Arthritis, Supraventricular Tachycardia SVT (cardiac), Artherosclerosis, Peripheal Neuropathy, Polycystic Kidney Disease, (waiting on test results for possible liver disease and/or pancreatic disease). C5,6, and 7 compression, herniated L5, 6 and 7.  Multiple broken bones from arthritic diseases.


Centurion45
Regular Member


Date Joined Jul 2009
Total Posts : 23
   Posted 7/21/2009 2:33 PM (GMT -7)   
Hello - welcome, new here too but.

Normally in pain management there is a period of figuring out what dose of meds will give you some relief. The issue is not to make you pain free, but get it down to where to you can stand the level. I have a high tolerance to pain, therefore, I get by on what I use presently.

Once the Dr has figured out what you use in Instant Release form, they normally convert this over to a Extended Releease form of the same medication,

BreakThrough Meds are the Instant Release that you are given to add to the ER meds when you have a pain spike - which can be - one hour to one day to one week. It really depends on the problem and how your Dr figures he or she can help you.

I hope you feel better! -
25+ Years, Sciatica, Lumbar back pain, Severe Stenosis L3-L4, DDD, Chronic pain - because the acute pain was never treated, Duh!


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/21/2009 2:50 PM (GMT -7)   
Hi, Grandmatoo,
Welcome to the chronic pain forum of healing well. I'm glad you decided to post, although sorry about all your pain and health issues.

It sounds like you have a good start if you've found a pain doctor that you like. That's a huge part of the battle! Now you have to learn that it is not only OK but absolutely necessary for you to be honest with your doctor about your pain levels, and how it affects your life. The point of pain management is to help give us back as much quality and functioning as is possible. As Centurian said, we often don't get rid of all of our pain, but that doesn't sound like what you're expecting. If anything, you're allowing yourself to be in more pain that is likely necessary by not telling your doctor.

As to whether to call your pain management doctor or your rheum., you might need to call both. This is just my opinion, but I'd probably call the PM doctor first, especially if the rheumatologist is expecting the PM to manage your pain. However, the rhematologist may want to do more testing, etc. Right now, you want better pain management, so call your PM, and then ask her if you should also call your other docs.

Breaththrough (BT) are just that - medications for when pain breaks through what may be our main source of pain management. That may be a longer acting (extended release - ER) medication, as the last poster said, but it can also be a different type of medication. For example, if vicodin controlled your pain for 6 hours, you may just need BT medication to get you through that two hours. It's a very individual process, but for sure your pain's not being managed. You may try writing down your pain levels throughout the day, how long the vicodin lasts, etc. It's not the strongest of the opiods, and the doctor probably will keep your tylenol dose at the lower end (325 vs. 500) or put you on plain oxycodone or even oxycontin. There are other options, especially taking into account your personal medical history.

I hope this helps a bit. We're not doctors, but can offer great support here, so call your PM doc and also your rheum. (if you want) and let us know what happens. But do be honest about your pain - you are not one of the abusers. It's a shame the stigma prevents someone like you from speaking up about your real pain. That's the saddest part of all this!

Hugs,

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/21/2009 3:19 PM (GMT -7)   
 
 
   Dear GreatGrandmaToo,
 
     Good evening. My name is Dani. It is very nice to meet you. I am glad you found The Healing Well Community. I hope you decide to stay and get to know everyone. This is a great place for support and knowladge.
 
     I'm afraid I don't know a darn thing about medicines  smhair   Might aswell be reading road signs in Italy. It all looks the same to me.  The other folks will thou, for sure.     :-)
 
      Do I call my PM Specialist or my Rheumi doc?  I can barely move ......What would you all do?
 
     Honestly? I would call both. Give each other, the others number and tell them to communicate. When they have come up with ideas to call you back as soon as possible. Maybe the two of them together can come up with a plann that wiill adress the problems you are having.
 
     It really is very nice to meet you. I look forward to getting to know you more as time goes by.
 
*warm huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/21/2009 4:46 PM (GMT -7)   
Hi Greatgrandma!

You're in good company around here...lots of us are grandma's but I'm not so sure how great I am...lol Seriously, I'm sorry you are in so much pain but there is no way you need to live like that. That is exactly what a Pain Management doc/specialist is for. And there is no way they know how much to give you if you don't tell them.

Pain management is like getting married in a way. You cook this wonderful supper for your new hubby...roast beef, mashed potatoes, corn, rolls, and homemade apple pie for desert. Who wouldn't like that?? Well, it seems hubby doesn't like beef to begin with and is allergic to corn, plus he had apple pie at work and isn't interested in having it again! Your feelings are crushed! But how would you have known any of these things....he didn't tell you and you didn't ask. Same as pain management. The doctors have no idea what sort of medicine meal to put together for you if you don't tell them how much pain you have and where it's located. Plus you need to tell them of allergies or you will have big problems. Make sense??

A very easy way for anyone who is shy is to use a pain journal. It shows how much pain you have and where it hurts on a daily and hourly basis. Below is a link to a free one you can download and use. Copy one page for each day and fill it out before you go to bed. Now comes the important part. Each and every time you go to the doctor...any doctor...take it with you and ask them to read it. This not only keeps you from being shy talking about it but it gives them a much better picture of your pain and medical needs.

Do not keep suffering...there is no need.You deserve to have a life and if it takes some medicine to do it then so be it. If you had Parkinson's you wouldn't hesitate to ask for medical help so why not now. There are good methods of pain control that are safe and appropriate. Don't let the fact that some goofballs who decide to steal them and make the new stop you from the medicine you need. If that was the case and people started stealing insulin I would be in BIG trouble. ;-)

OK, I babbled on long enough but I hate to see you suffer. Please keep posting and stay in touch. Read and join in our daily Koffee Klatch. We have some great fun there. Also join our Chat Night on Thursdays. It's a time to chat about anything we like and get to know the forum family. Also, feel free to email me if you want. I do understand pain and being shy about meds...I used to be.

Hugs,
Chutz



http://www.painfoundation.org/Publications/TargetDailyLog.pdf
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

If you ask what is the single most important key to longevity, I would have to say it is avoiding worry, stress and tension. And if you didn't ask me, I'd still have to say it.
George Burns


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/21/2009 10:06 PM (GMT -7)   
Chutzie,
I love that analogy - a medicine meal! Good one!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 7/21/2009 11:19 PM (GMT -7)   

Hi Great Grandma and welcome to Healing Well. I am so glad you found us but hate to hear of the problems you are having with pain too. At least here on this forum you are in good company.

Like the others that have come on board you just have to be honest with dr and let her know your pain is not being covered with your current medications. I know most pain mgt drs like to start us patients out on a low dose of something and then work up from there. But, unless you are upfront you will not get the care you deserve or need. we all know very well the stigmas attached to pain medications, yes it is a hard road to walk at times. The good news for you is you have won half the battle by liking your dr and being comfortable with her. I have been very lucky in this area too.

I am not sure if your dr had you sign what is called a Contract that sets out the rules of her practice or not. But, pain mgt drs like to be the one in control of rxing your pain medications to you.  Even when I have had dental work done I asked my pain mgt dr if the medication I was on would handle any potential pain from the dental work. Others have done the same when having surgery.  Its pretty much using 1 dr for pain meds, 1 pharmacy to get meds filled at, random UA tests, not giving your medication to another person, not accepting pain medication from another person, such as friend or relative, taking meds exactly as prescribed and not taking more than what is rx'd, I think you get the picture.

I do not know if you have an appt coming up real soon or not with your pain mgt dr. If not, perhaps you need to call and get an earlier appt set since you are not doing well. No point in letting yourself be in pain if you can get it changed. There are so many different pain meds out there available to us, hopefully you can get one that will improve your situation. Its all done by trial and error till you hit on the right one.

Take care and let us know how you are coming along.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/22/2009 6:35 AM (GMT -7)   
 
 
Grandmatoo,
I have been suffering from Chronic Pain for many years..I have been seeing the same Pain Dr.'s for almost 5 of them and I still get scared to ask for pain meds too.  Its only natural.  People have made us feel like "Junkies" for having to take pain meds.
 
As far as the BT meds....Most of us take what we call "Long-term" pain killers and then take something called "Breakthrough" pain killers to take the edge off...I take Methadone for the LT pain which is good but doesn't last for the full 24 hours so I take Oxycodone 30 mg. 4 times a day to help with that.  That's why they are called BT meds....
 
Don't be afraid to talk to your Dr. about needing something that works better.  Pain is not something we want... So, tell your Dr. that the meds just aren't working and she will more then likely give you something better....
 
Good Luck...and Welcome to the family.
 
Me.

 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


greatgrandmatoo
Regular Member


Date Joined May 2009
Total Posts : 58
   Posted 7/22/2009 12:32 PM (GMT -7)   
Wow I am pleased with all the responses to my posting.  I have been laying down a lot just to help alleviate some of the pain so I haven't been online since Tuesday. Thank you all so much.  I am sure though that I will have more questions to ask as I write them all down.  Like I said, I am not medically literate.  I was once told by a Doctor in Illinois (my home state) that it was all in my head and I needed a psychiatrist to work this out.  I needed to be strong and live with this pain because it would make me stronger.  I went home crying of course like a little baby.
 
Anyway, I feel at home here and if you don't see me in here, it's because I am fighting for relief or sleeping when I get the chance to do it.  Thank you for the support and for understanding the way I feel.  I use to think I was the only person to suffer this kind of pain and that maybe it really was in my head.  I have called my PM specialist and am waiting for a call back.  I have been thinking about what you all said about being truthful to my docs, and letting them know this medicine isn't working.  Will they creep me up just a little for now to see if this helps?  I hope so as I am scared to take really strong pain meds. I realize that it takes awhile for the meds to really work or as you say, I may have to try different things to go along with the meds.  I am all up for that.
 
I like the Koffee Klutch and am looking forward to getting involved in the chat rooms.  Thanks and bless you all
Disabilities include Degenerative Joint Disease, Osteoporosis, Rheumatoid Arthritis, Supraventricular Tachycardia SVT (cardiac), Artherosclerosis, Peripheal Neuropathy, Polycystic Kidney Disease, (waiting on test results for possible liver disease and/or pancreatic disease). C5,6, and 7 compression, herniated L5, 6 and 7.  Multiple broken bones from arthritic diseases.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/22/2009 12:43 PM (GMT -7)   
Greatgrandmatoo,
Glad you're joining in. Remember Healing Well is here 24/7, so whenever you feel the energy you can post. It usually doesn't take a long time for someone to respond, although it's not like the chat room with everyone there at the same time.

It's so inaccurate for doctors to say it's all in our heads. Mind and body are one; the biochemistry of the body (including the biochemistry of pain) affects emotions, and vice versa. That's why anti-depressants can help. They can help both depression and sometimes the right ones can help a little with pain. It shouldn't be an "either/or" thing, and for a doctor to tell a patient that they should stay in pain because pain makes you stronger is cruel, and IMHO negligent. Not based on science but on the doctor's beliefs, and that's not what a doctor is there for. You'll find many of us have experienced that.

Some medications do take time to build up a level in the body, but vicodin is a short-acting medication so that's not the case there. You really are on a very low dose, which isn't a bad thing. Doctors will start us out that way but with our feedback should gradually increase or change medications until a good fit is found that manages the pain enough so we can function. That's what you want to strive for and you have every right to do that.

Looking forward to having you with us! This is a great support group!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 7/22/2009 12:54 PM (GMT -7)   

Grandma so glad you were able to post back to us. Oh, forgot to tell you, I am a grandma too and just love it. I have a 4 yr old grandson.

I hope you hear from your dr soon to see what she can do for you in terms of relief.

Oh yes, many of us have been told that line before its all in your head. I am not allowed to write here what I told that dr. He!He!

Pleae let us know what your dr tells you. Feel better soon.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Mrs arthur Itis
Regular Member


Date Joined Jul 2009
Total Posts : 41
   Posted 7/22/2009 4:50 PM (GMT -7)   
Hi Greatgrandmatoo - I'm a greatgrandma too! I also am new here - I don't have any answers but I do have a listening ear and hugging arms so feel free to lean. Being in here is great - just like a lovely warm bath with cuddly arms.
Mrs Arthur Itis 
 ‘Whether the human and kindred animal races survive till the exhaustion or destruction of the globe … pain to all upon it, tongued or dumb, shall be kept down to a minimum by loving kindness.’
 
 
Conditions: polyarthritis , rheumatoid arthritis, osteoarthritis, ankylosing spondilitis, fibromyalgia, costochondritis, degenerative disc problems, occipital neuralgia, sjogren's syndrome, osteoporosis, detached retina, macular degeneration. Mobility problems, wheelchair user outsaide home
 

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