been gone awhile

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

The Reverend
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 7/24/2009 4:53 AM (GMT -7)   
Hi everyone I have been away for sometime my pain has been hard to manage but getting by I am over my rhuemy as I will not get back in to see him for quite a few months now and the pain and swelling has increased...Sick Of The System, I will be moving south soon so maybe a change in climate may help.
Has anyone noticed how climate effects their pain?
I have been to the dry outback plains, to the northern humid climates even to the snow in the south and can feel the changes to my body.




Ankylosing Spondylitis, Hypertension, type2 Diabeties, mild epilepsy
My medications are Salazopyrin 3000mg, plaquinal 100mg, morphine 40mg twice daily,coversyl 10mg, diaformin sr 3000mg, actrapid injection sliding scale + 6 units in morning, lantos solostar 20 units morning26 units night,epilum 400mg, omeprazol 20mg, amlodipine 5mg and panadien forte and tremadol 50mg when needed.


Someone started it someone will end it, we must endure till the end

Someone started it someone will end it, we must endure till the end


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 7/24/2009 9:19 AM (GMT -7)   

Good morning Rev and welcome bacfk to Healing Well. wondered where you had slipped off to,lol. Sure hate to hear you are doing so poorly.

Cannot remember but wanted to ask, have you ever tried Humira for the AS? I have a very dear friend afflicted with AS was almost bed ridden. He started on Humira and what a difference it has made in his life.  He is an atty friend of mine that I have known since he was a small boy and he is back being a lawyer again thanks to Humira. I am on Humira for my crohns and so far its helped more than any of the heavy hitters I have tried. It is so dang expensive thats the big kicker. The company does have several assistance programs available too.

Oh yes, climate can wreak havoc on the body like none other. The hot dryer air is the best by far. I know when its going to rain before the meterorologists does. When the barometer starts going nuts so does my body. Arthritis is affected by weather changes too you know.

Please keep posting and let us know how you are coming along.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/24/2009 1:23 PM (GMT -7)   
Nice to see you back! wish you can get a low pain day..
Now as far as your move South, where you headed for?
I'm just South of Houston and the humidity all year long is relatively high,
some days it's 100% humidity and it can hit you different that the stuff up North,
I was born in Michigan so to me the humidity in Michigan is nothing to
this that is here in Houston, period..but our Winter's are nice and I would not trade for that
snow...I always wondered how nice the weather in Kentucky would be, but they get snow...
good luck in your move and post back more often...
hugz...
(((((((((((((((((((((((((((((((((((((((((Rev))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 7/25/2009 3:39 PM (GMT -7)   
Welcome Back. Weather patterns do seem to bother my pain. I have lived in many different climates - I am not sure if there is a perfect one. Less freezing temps and barametric changes from rain seems to bother me most. Good luck on finding the perfect location and do not stay away.

Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/25/2009 6:11 PM (GMT -7)   
The Reverend, I would love to talk with you but not on the forum. My email address is listed. If you care to, send me an email and we can connect. I hope the move makes things easier for you and your wife.

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/25/2009 6:56 PM (GMT -7)   
Reverend, I want to welcome you back to the forum. I am sorry you are having such a hard time with the pain. But I can't think of a better place to be than here with friends who care about you and how you are feeling! I am glad you posted and look forward to hearing more from you. I wish you luck with your move.
Anice

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/26/2009 9:16 AM (GMT -7)   

 

Dear TheReverand,

    Good Morning! My anme is dani. it is very nice to meet you. I am new to the Healing Well Community. I eem to be making myself quite comfortable here :-)  

 Has anyone noticed how climate effects their pain?


Yes, I have a hard time in humid areas in the winter. Yuck!

It was a pleasure to meet you. I look forward to getting to kmnow you better as time goes by.

*huggs*

dani


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/26/2009 12:28 PM (GMT -7)   
Hi, Reverend,
The cold and changes in barometric pressure sure do affect me now. Much more than ever since I had my lumbar fusion. But especially the cold. It seeps into my body and doesn't want to leave.

I don't know what the perfect climate is but I know it's not where there's a harsh winter!

PaLady

The Reverend
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 7/29/2009 8:44 PM (GMT -7)   
thankyou for a warm welcome back everyone and my move south is to NSW Australia I just can not seem to handle the hot humid climates anymore. Look forward to talking to everyone again thanks
Someone started it someone will end it, we must endure till the end


The Reverend
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 7/29/2009 9:13 PM (GMT -7)   
hi, Straydog, I have tried all three TNF blockers humira, enbrel and remicade, rejected the lot so it is pills for me now, more and more pills little ones medium ones and ones as big as suppositries and those lovely needles. Doc thinking of starting methadone

Ankylosing Spondylitis, Hypertension, type2 Diabeties, mild epilepsy
My medications are Salazopyrin 3000mg, plaquinal 100mg, morphine 40mg twice daily,coversyl 10mg, diaformin sr 3000mg, actrapid injection sliding scale + 6 units in morning, lantos solostar 20 units morning26 units night,epilum 400mg, omeprazol 20mg, amlodipine 5mg and panadien forte and tremadol 50mg when needed.
Someone started it someone will end it, we must endure till the end


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 7/30/2009 7:14 AM (GMT -7)   
Oh Rev, I am so sorry to hear the TNF's bombed on you. I bombed out on Remicade after doing infusions for about 3 1/2 yrs. It induced Lupus and now have to take meds for Lupus because the Humira has the same side effect. Gads they get us coming and going. I do hope your drs can come up wioth a solution soon. Methadone can be a great pain reliever, however, like everything else, its comes with alot of baggage. In fact quite some time back a nurse did a thread on Methadone that was one of the best I have seen by far, very detailed. You might try searching for it here. Anyone considering Methadone really needs to do their homework. It is a pain med that is intended for long term use only-please research it well before trying it. I am not against it for pain control, I just think people need to be educated about this drug. I sure hope all goes well, please keep us posted.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/30/2009 6:41 PM (GMT -7)   
Welcome back Reverend! Im sorry to hear that you are not doing well, but glad to have you back nonetheless. I do hope that your move helps with the pain, and that the move itself is not to painful!

Skeye

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/31/2009 5:20 PM (GMT -7)   
 
 
Nice to see you Reverend...Where at in the south are you moving to?  I live in Nashville, Tn and the weather here is not very predictable, especially in Mt. Juliet, where I live.  We have the worst winds, and the rain.....is awful.  Since I've been told I have arthritis in my knee I can really see a difference when the weather changes. 
 
Glad ur back....
 
Me.

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/31/2009 5:45 PM (GMT -7)   
Rhonda not very predictable??? To funny the weather men think they can LOL

My shoulder hurts when its cold and my joints hurt when its warm can't win for losing.... But I love Tennesse

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 11:05 PM (GMT -7)
There are a total of 2,733,365 posts in 301,110 threads.
View Active Threads


Who's Online
This forum has 151249 registered members. Please welcome our newest member, John's Mom.
212 Guest(s), 11 Registered Member(s) are currently online.  Details
MDNative, bluelyme, 0311, msOuchie, Hungrydude, roisin86, ChickNorris, Mokes, John's Mom, (Seashell), julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer