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anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/24/2009 6:23 AM (GMT -7)   
Hi friends, I have my PM appt this morning. I need to make this quick(nice change,hunh?) so  that I can get ready to go. I am on Percocet 7.5mg, Flexiril, and mobic. I hope that he will either increase the dosage or the amount to take a day. I do not think this is helping me. I hurt still. It is my lower back (left side), left hip and left buttock. It seems like I am hurting all the time. The tens unit is helful, but as soon as I turn it off, pain levels go back way up. I know this is nerve pain I'm dealing with. I do hope that one day it will "vanish", but now I am not so sure anymore. I think it is pretty much here to stay. I haven't given up on the possibility, as I have learned ( from you all), that it can take 2 years for the nerve to heal after surgery. I will let you know later what happens at the appt.
Anice

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/24/2009 6:43 AM (GMT -7)   
Anice wanted to wish you well at the appointment. will
hope you can get some relief and keep us posted as to how it goes...
lots and lots of soft hugz...
((((((((((((((((((((((Anice))))))))))))))))))))))))))))))))))))))))))
fingers crossed
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/24/2009 7:45 AM (GMT -7)   
Anice, another thought they are claiming pain meds do little for nerve pain, you may need something like Neurotin, Lyrica or Cymbalta to get it to settle down. So many others on the forum are on these meds for nerve pain.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 7/24/2009 7:46 AM (GMT -7)   

Anice

Dit-O for me to what Chart says! Chart crosses her fingers I will cross my Toes!

Good Luck!

White Beard


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/24/2009 9:06 AM (GMT -7)   
 
 
     Dear Anice,
 
     Good Morning! *huggs* It is good to see you. I do hope you were able to get a lil bit of rest last night? I ended up going to bed at an odd time myself.
 
      I am so glad to hear your going to your PM today. I hope he can help. But real quick I wanted to tell ya..
The tens unit is helful, but as soon as I turn it off, pain levels go back way up.
 
So, when I am in severe pain, and am using Mr. T, I have to decrease the level on each side by 2 points for last 5-10 mins of my treatment.  Makes the transitions easier for me, maybe for you too?
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


infinite
Regular Member


Date Joined Jul 2009
Total Posts : 84
   Posted 7/24/2009 10:50 AM (GMT -7)   
Hi Anice! I hope that the appointment went well for you this morning. I remember many years ago having a TENS unit, and I believe that Dani is right on in decreasing the levels slowly. Hope you are having a great day and it was nice seeing you in chat last night!

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 7/24/2009 4:10 PM (GMT -7)   
Someone mentioned that opiate pain medications don't work for  nerve pain and she is correct. They don't. Increasing them is not going to ease that type of pain. You  need to try something like Lyrica, Neurontin, Topamax, or they have also found that the old SSRI type anti depressants work well for nerve pain. Cymbalta is another one that is used commonly and they seem to get good results with.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/24/2009 4:23 PM (GMT -7)   
Anice,
I hope you let us know how your appointment went. I know last time you saw your surgeon you were pretty bummed. Hopefully, this will turn out better.

PaLady

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/24/2009 5:29 PM (GMT -7)   
My PM appt. went well today. He changed the dosage for the percocets from 7.5 to 10mg. He mentioned Cymbalta but I think he said it is expensive. He said he could give me samples but wasn't sure for how long it could last. I declined since money is tight right now. I could have taken him up on the offer of samples, but if I didn't have the money to get the rx filled, then I would have to stop. I will try it when the money situation is better. I have tried Neurotin before and had horrible results with it. I had the most violent, just horrible nightmares. I woke up each night before I died in the nightmare... I would wake up screaming. I just couldn't take that. I did notice an improvement with the nerve pain though. But I was scared that I would have a heart attack in my sleep, waking up that way night after night. I tried it for as long as I could then had to quit!!! I know the percocet isn't going to help alot. He mentioned oxycontin but said it also doesn't have a generic... So there really wasn't alot more he could do because of my limited source of income. He did say that at some point and time, a stimulator may be a difinite option for me. I don't think I am ready for that at this point. I just don't know enough about it right now.

He said to continue the meds, PT and the tens unit. I will. Now, again, do you use the tens' unit at high numbers. I have done that, but it caused a increase in the muscle spasms for me. I turn it on until I feel it and it is at a comfortable number. Sorry to ask this again. But I have forgotten what was said on this... too many things going on with me. I use numbers between 4 and 8 usually.

I was drug tested today. I wasn't expecting that and it caught me off guard a little. But I did it and I am sure it will be just fine. I haven't taken anything additional to worry about. I am a little nervous due to the false positive post the other day... And then I go back in a month.

Sorry to ramble on but I just wanted to let you all know what happened. I got my check today. And we went and bought groceries. It sure is nice to have them in the house again. We were about out of everything!!! Oh, and my request for food stamps was declined. It would have been nice for a short time though. And I bought my meds. Now I need to figure out the bills. That should have been done first, I know. but we needed food and I needed my meds. Whichever you do first doesn't matter. It isn't enough for everything anyway. You can only stretch a dollar soooo far!!! I am sure there are others in the same boat or have been there before... I'll be so glad when that part is over, too.
Anice

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/24/2009 5:33 PM (GMT -7)   
I am so glad that the appt. went well today...Sometimes they don't. If the meds don't seem to help then you can call them and let them know..they may up the amount or try something else. Good Luck...

Me.
 I hate Boats!!!!
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/15 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/24/2009 6:39 PM (GMT -7)   

Hi Anice, sounds like the appt went well. So terrible what happened with neurotin, but everyone is so different. I think its awful that we have so many good drugs available and no generic and then people cannot afford them. The meds I need for my crohns no generic available, so I know what you are saying. Perhaps later on your money gets better if still needed your dr can try you either Lyrica or Cymbalta. These drugs can work on nerve pain where pain meds do not.

You are too soon postop to think of a stimulator. I would have dug my heels in on that one too. You haven't even been given the opportunity to try medications for nerve pain.

Like you said, you have to eat and you need your meds. You cannot do without either. So sorry to hear about the food stamps. I am not going to get started on my high horse on that one, I just think its unfair for us that need help can't get it. We are talking something temporary not for our life times. Ok, will shut up on that one.

When I was given my Tens by the rep I was told to turn it up a little high then back it off till it was  confortable. No, turning it up to high is not the way to go. You are trying to help reduce spasms not create more, so do not turn it up high, thats defeating the purpose of the machine.

Have a good weekend.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/24/2009 6:47 PM (GMT -7)   
Hey Anice,
I'm glad the doc appointment went well, you needed that! I can't take neurotin either because of side effects...
Susie has a good idea for your tens unit, but I start mine off low and slowly work up and helps with a heating pad..
Hope you get a low pain day and that your new doseage on the medicine helps..
hugz...
(((((((((((((((((((((((((((((((((((((((Anice)))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/24/2009 8:56 PM (GMT -7)   
Hi, Anice,
I'm glad this appointment wasn't as upsetting as your NS, but sad about the meds. I sure do know $$ issue. One suggestion I have (that I'm also currently doing) is searching for coupon and discount programs for the cymbalta and/or lyrica. I'm searching through the www.pparx.org site (the one Montel Williams promotes) and it gives lots of different links for different meds. Some of the companies offer you even free meds if you don't have any insurance, and some even substantial discounts even if you do have insurance. So it's worth a shot. That's how I'm hoping to be able to get a couple of my more expensive medications, especially the nexium. I think the percocet and other narcotics are a little tougher to get, but sounds like your insurance is covering that.

I'm with everyone else about the stim. I know my PT even lets me adjust his machine when I'm in his office. He leaves it close enough for me to adjust. It takes me a couple of minutes to get used to it, then I slowly increase until it feels uncomfortable or painful, then back down a notch. To me it sort of should feel like a vibrator. If it's causing muscle spasms it's probably too high.

I can't believe you were denied food stamps, especially with children. Make sure you keep updating your information and reapply - like with your husband being out of work, if your benefits decrease, etc. I am afraid, though, that with many state governments as well as the federal being stretched they're going to be cutting back programs, just like in California. They're even cutting back children's health insurance programs there.

You're right, you have to buy your food and medicine first. I had to get my car inspected today and even though it cost me $200 I kind of knew it as I needed brakes. Thankfully, there was nothing else wrong as the car is nearly 12 years old! But my dentist wants at least part of the money for the root canal on Monday, and that wasn't in the budget. It does get scary.

I'm glad I got to meet you even briefly in the chat last night. I hope you can get a little relief and at least maybe try to relax over the weekend. Maybe do something like watch a silly DVD with your family. Keep it simple.

Hugs,

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 7/24/2009 9:33 PM (GMT -7)   
anice
I am glad your appointment went well for you! You know I can't take neurotin either! I was on it for a while and it messed up my vision big time and it did nothing for my pain! So I was taken off of it! Hopefully with the increase in your pain med strength and with the ten unit they will at least try and get your pain down to a manageable level! One can at least hope and pray for that anyway!

Just remember try not and over do it,( I know look who is talking) like most nurses and people in the medical it is do as I say not as I do! ( smile) Seriously though don't try and be super woman! Just be good to yourself! You deserve that! I do hope you start feeling better and your pain gets lower and lower!
I do wish you only the best anice!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/25/2009 12:47 AM (GMT -7)   
White Beard,
We are all going to remember your advice to Anice should you ever try to build another porch by yourself! :-)

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/25/2009 2:12 AM (GMT -7)   
Somehow, I just know the devil made PaLady post the above, lol. White Beard did you dodge that bullet or did she hit ya? lol Hope everyone has a low pain weekend.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 7/25/2009 4:31 AM (GMT -7)   
Susie
I have a feeling that I better never!, ever!,   nono Build another porch in my life!!!!, or at least not let PALady ever know about it!  devil   I  had a feeling I was treading on "Thin Ice" when I posted that to anice! Little did I realize PALady was waiting in the wings!   smhair   I  swear you just can't get anything past her! smilewinkgrin
 

White Beard


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 7/25/2009 5:36:59 AM (GMT-6)


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/25/2009 5:11 AM (GMT -7)   
Anice, I'm sure glad you got to see your Dr. yesterday! Sounds like he listens to you which is a really good thing! Most Dr's I encounter, just don't listen! Anyway, what about your blood pres? I know things are tight but thats one you can't ignor. Sorry if I'm sounding like a geezer again!!!
W.B. I sure could use a new porch down here in sunny> HOT Fla. but there are still these folks telling me to "take it easy" Maybe an expert can come down when the weather gets nasty to help me???? We don't have to tell anyone about it, on the sly, ya know?? Wouldn't want to face the rath of some lady somewhere in Pennsylvania !!!
Sorry Anice, I had to throw that in there!
Hang tough Girl, I know you will!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis back in Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/25/2009 12:15 PM (GMT -7)   
Anice,
I hope you don't mind a little humor thrown in here! I sure don't want to hijack your thread or make light of your problems. Just had to say that. And I'll let Pete be the geezer but I know we're all concerned about your BP.

As far as White Beard and Pete and Florida porch building activities, I have my spies ya know! shocked smilewinkgrin devil

PaLady smilewinkgrin

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 7/25/2009 12:27 PM (GMT -7)   
Hey anice, glad your appt went well! I am always happy when I ask for an upgrade and I can have it, though I have never had the drs say no to me when I ask. I use Lyrica and Cymbalta both..... Lyrica is a miracle for nerve pain. It made me very sleepy the first two weeks I was on it, so beware. After I got used to it I never notice it anymore. Most drs have tons of Lyrica samples since its such a hot commidity. I use the Cymbalta for my fibrmyalgia (as well as Lyrica), I didn't know it was supposed to help with nerve pain.

PALADY- check out Pfizer's website for help with Lyrica. They have a program called Pfizer Pfriends for people who do not have insurance and the card comes pretty quickly. Helps with any Pfizer med.
RX's: Pain  Pump (morphine & baclofen on next round); Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 4x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Lorazepam 1mg (bedtime); Bentyl 25 mg 2xs daily; Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

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