Not good, not good at all.

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Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/24/2009 9:30 PM (GMT -7)   
Some may recall me mentioning having to lug my 3 y/o around everywhere for several days when we thought he had broken his leg and how I was really feeling it. It was almost two weeks ago now that we found out it was a misread X-ray but everyday the pain in my spine has been getting a little worse and today and I have started to have daily headaches as well which are radiating up from my upper back/lower neck area. Combined with the pain in my lower back that likes to shoot down through my hips and into my upper legs it has not been fun lately at all.

I have been trying to take it as easy as possible but today was one of those days where I had to get out and go and do the shopping. Normally when I go I just get a couple of days worth of food since I don't want to be pushing a loaded cart all over the store or having to carry 50 sacks in and put it all away, but I ended up doing a pretty big trip today since my wife was with me and she could push the cart and help carry things in. Little did I know when we left that I made a big mistake in my thinking. By the time we were done and got to the checkout lines I was hurting so bad it was all I could do not to cry. My wife could tell I was hurting, though I never told her how bad, and suggested I go on out to the truck while she checked out.

On the way out though I came really close to falling. First time this has ever happened to me. It was like all the nerve impulses stopped for a split second and my legs tried to buckle, but just as I was sure I was going down everything started "working" again and all I did was this weird half shuffle step. I know it was not muscle related as I have had my legs give out due to that and also due to spasms before in both the leg and back muscles a few times. My best theory at this point is that for some reason one of my bad discs somehow managed to momentarily pinch my nerves hard enough to interrupt the impulses they carry.

Once we got back home I have spent the rest of the day doing nothing more than using every ounce of energy I have trying to relax and using every little trick I know about relaxation and mind/body control trying to get things to ease up a bit. It took over 8 hours before I was able to fully get the pain to drop a single point and that is where it has stayed.

I am suppose to make a 2 hour trip tomorrow and attend my niece's 10th b-day party, but at this point I think it is not going to happen. On an average day when I had my pain meds that trip was hard enough on me, and since I not longer have anything to help with pain that does any good and with as bad as I have been feeling the last couple of weeks I think I will just stay home and the wife and kid can go without me.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/25/2009 2:42 AM (GMT -7)   

Hi Jim,

It certainly sounds like things are really on the rough side in your neck of the woods. I think if my legs start buckling, I would get me an appt to get in & see my dr, thats generally is not a good sign. Like you, toting the little one around was really hard on your back. I am glad to know the poor guy is ok.

I have to ask and probably have missed something, but why are you not any medication for your pain? With the pain you have described you need something. I am having a little trouble wrapping my brain around the no medication path. Is this something the drs chose or you or both.

Yes, I think I would have to duck out on the birthday party. I am with you, riding in a car is something that is really hard on me. I have a soccer game in the am and an early birthday party right afterwards. I am going to attend one of these and thats it. This would entail a bit more rding in the car than I am willing to do right now. I lifted on the grandson this week-now I am feeling it. Oh, what we can do w/o even thinking about it.

I do hope that somehow you are able to get this pain down.

 


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/25/2009 6:47 AM (GMT -7)   
I am sort of in between doctors at the moment. My last doctor discontinued providing me services several months ago and it was only in the last couple of weeks I found a new practice. I am seeing a NP who is currently overseeing my general health issues but there is not much she can do for the type of pain management I need. I have an appointment with an MD there but not until October though I am trying to get the moved up.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/25/2009 12:04 PM (GMT -7)   
Oh Jim, that is just totally unacceptable, they can't leave you hanging like that, come on. I do not know where you live but I do believe someone posted that WebMd has different drs listed by practice in different states & cities. I think I would be checking that out , along with letting with hitting the yellow pages. I just do not see how you can handle this.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/25/2009 12:33 PM (GMT -7)   
Maybe THIS TOPIC will explain.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/25/2009 2:55 PM (GMT -7)   
Jim,
I know about struggles finding doctors and insurance issues. I know it's easier said than done. I read through the thread you linked, but I admit not through every post, just mostly yours.

You mentioned needing a referral from your PCP to get to a specialist. Could you ask the NP you saw to make a referral (if you find someone who will take your insurance) so you don't have to wait until October for relief? Maybe the NP can't prescribe what you need, but would make a referral under these circumstances.

And I think someone had mentioned being sure you're on the cancellation list for the PCP. When this happens to me I ask for that, and often call back once a week to see if anything has openned up, as sometimes they don't get a chance to call people.

That's about all I can think of for the moment other than ideas others have already given, but I would say that yes, you need to take it easy a bit more and moderate your activities. I know you don't want to stop them all and sit on a couch all day, and I'm not suggesting that. But maybe going too much in the other direction isn't helping, either. We all have to forego things we want to do, and even things we need to do. None of us likes this aspect of CP. Doing some things with your children while recognizing what's too much may be the best you'll be able to do, especially right now without pain meds.

I hope you can get some help sooner than October.

PaLady

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/25/2009 8:19 PM (GMT -7)   
Jim, I think you need to see a pain management doctor. Waiting until October is far too long to wait to get treatment. You should not have to live with this pain until then. I did read the prior post explaining your circumstances. I think that you should not have been fired(maybe that isn't the right word) by that doctor. You missed appts. I am sure you aren't the only one to do so, and it isn't that you intentionally didn't show up. I understand from the doctors' office stand point as well, but they should have allowed you to explain what happened and why. I feel an exception should have been made in this case. Anyway, I know that is not helping you any. I just wanted you to know that I think you were treated unfairly.

I understand that you have had a hard time finding a new doctor. That has got to be frusterating... I do hope that you can get into see a pain management doctor. You have to try again. Do not give up on this. You have got to be seen.You should not have to suffer this way, especially without any meds to give you atleast somewhat of a relief. You get up bright and early on Monday morning and get that phonebook out and start all over again making these calls... I don't mean to tell you what to do. That came out all wrong. I just don't want to see you have to suffer for this long.

I will be thinking about you. I do hope you can get in to see a doctor soon. Please be persistant and keep trying. Don't give up on this. And in the meantime, you post here as often as you need to. We will be here for you to offer support. We do care for you and want you to get the treatment you need and deserve.
Anice

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/25/2009 8:49 PM (GMT -7)   
Don't worry gang. I take what is said here with a "spoonful of sugar" so to speak. I do my best to remember that everyone or most everyone is dealing with their own crap and sometimes things can come out a little wrong at times, or just not sound quite the way we intended. I know the worse I feel the harder it is to keep from getting short or irritable, etc at times, and then other times the old brain just wants to go in low gear and try to do 5 mph in the fast lane. turn

I have a follow up appointment next week with the NP and I am going to let her know how bad things have been the last few weeks and see what she suggests and can do. If nothing else maybe she can have a talk with the MD I am suppose to see in Oct and get me squeezed in a lot sooner. They should have my medical records by now so that may help things along a bit. At least prove I am not making this stuff up.

As a backup plan I am going to try to find a list of pain specialists in the area, other than the quacks at the local pain clinic, and if nothing else see if I can get a referral to one of them and hopefully get in sooner, but with my luck the earliest appointment will be in November. rolleyes It took almost 4 months to get into the pain clinic here for those worthless injections that only made things worse.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/26/2009 1:38 AM (GMT -7)   
Jim I read your post and remember now what happened. There just has to be someone available to you before Oct.. What are these people thinking stringing a patient that far out, it is beyond me. Do you really think you can "hold out" till Oct with your present situation? I feel so bad for you over whats happening with this appt business. Did you checkout that website I told you aboutit? I cannot for the life of me remember who posted it before. I can't imagine taking care of a little one on top of it all. Sure wish I had one of those majic wands or pixie dust, I would be sending it straight to you. Morphine was not friendly with me either, it was awful. I sure hope something fast happens for you. Hang in there.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/26/2009 6:04 AM (GMT -7)   
Jim, I'll hope that when you see the NP that she'll see your pain and help get you in sooner, so fingers crossed for you.
Car trips are very hard on me as well and I'll not be able to make the 5 1/2 hour trip (one way) up North to see my
daughter off to college in August and so it's already hitting me hard ..So we do really care and know what it's
like to have to miss things and I sure wish I could tell you it would get easier, but I will hope you get a low
pain day soon...
lots and lots of soft hugz and keep us posted after you see the NP, (or I'll pester ya..just jokin)
(((((((((((((((((((((((((((((((((((Jim)))))))))))))))))))))))))))))))))))))))))))))).

however, Susie (straydog) is right and I'll hope you follow her advise..
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/26/2009 10:09 AM (GMT -7)   
 
Dear Jim1969,
 
     Good Morning *huggs* I hope you are albe to somewhat get around today. I just wanted to stop by and say a quick hello. I don't have much producttive to say, my face and booty hurts! LOL But *huggs for you and the lil guy.
 
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/26/2009 7:38 PM (GMT -7)   
Jim been thinking about yor plight and no meds. Have you considered going to a one the vitamin shops and speaking with someone there about a "natural pain medicine'. I wish I could think of the name of it. I did try it and they also had ome for muscle spasms and they gave some relief. Just a thought-hate to think about you hurting.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/26/2009 8:01 PM (GMT -7)   
Jim, I hope I didn't offend you with what I wrote. If I did offend you or hurt your feelings, I really am sorry. It certainly wasn't my intention. I do hope that you had a good day today and that your pain levels have been low. Good luck to you in your search for a new doctor. And I do wish you the best!!! Post here as often as you need to.
Anice
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