Can I come back?

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Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/27/2009 5:00 AM (GMT -7)   
I posted for a short period of time last year and received great support and encouragement. Unfortunately, for many months, it was all I could do to just survive each day - and I wasn't able to continue posting. Between all of my health issues (I have many, in addition to CP); doing the best I can to care for my six kids (ages 5 to 14); and just too many other things to name right now....I felt like I was drowning.

I'm in a better "mental" place now, and just try to take day as they come. And I'd love to "rejoin" things here on the board, if you'll have me!

The "quick" version of my chronic pain journey is... I'm 36 years old. My health issues stem back to having a severe reaction to the Hepatitis B Vaccine at age 19, while in nursing school. That same year, I was involved in a "freakish" accident, and fell approx 20 feet onto concrete. After about a year of dealing with all of that - my health stabilized and I went on to get married and have the kids. In mid-2003, during my last pregnancy, I had a flare up of all of my health problems..... And it has pretty much remained that way for about 6 years now.

The biggest thing I'm dealing with currently (in regards to my pain issues) is whether or not to get the pain pump implanted. I stopped posting shortly after having my trial last September. I had a successful trial; however, I ended up with meningitis and couldn't get the permanent one implanted until I recovered. That was my third battle with meningitis. I spent 30 days in the hospital, recovering; and then spent about 4 months with a HUGE increase in my migraines.

My pain doctor understands my fear in trying the implant again. It's just been in the last three months or so that I can say I'm "stable" again. There's no way to tell if I'll get meningitis again. Just the thought of going through all of that again makes me cringe. On the flip side, I had a really good trial and am convinced that the pump would REALLY help my pain levels decrease (I'm at a 7 to 8 on most days, 24/7 - despite a ton of meds). So, I just continue to pray about it...and hope I'll get the courage to perhaps try again.

Well, if you've made it this far - thanks for reading my post!
Tina

Pain Issues: MANY neck/back issues; chronic migraines; severe carpal tunnel syndrome; fibromyalgia; myofascial pain syndrome
Other Health Issues: POTS/dysautonomia (heart condition & malfunction of my nervous system); severe hypertension; hypothyroidism/Addison's disease; central sleep apnea; reactive airway disease; glucose intolerance/"pre-diabetes"; etc etc
Meds: MS Contin (420mg/daily); MSIR (15mgs; 6x/daily); Soma (as needed); and many other meds - including Atenolol 100mg/daily and Midodrine (both for my heart issues)
Pain Meds I've tried: Literally, ALL of them. Oxys; Dilaudid; Duragesic/Actiq/Fentora; Methadone; etc etc
Long term Goals: Intrathecal Pain Pump (w/ Dilaudid); had successful trial in 09/08 (however, got meningitis from the trial; haven't tried again since).
Other helps: Wheelchair, when necessary.

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/27/2009 5:34 AM (GMT -7)   
Momto6boys, Ofcourse you can come back!!! We would love that. I am so sorry you have been having so much going on. But I am very glad you posted and hope to see more of you around. I do hope that you are able to post as often as you want to. I know for me, being here helps me out alot-both easing pain levels and emotionally.

Meningitis three times... that is almost unheard of, I think. I know that was scarey for you. And I am so glad that you are doing better now. That truly is a horrible illness. I've never had it, but we have had many patients that have. I know being away from your family, being in the hosp. for a month was extra hard.

Do you have to do another trial with the pump? I do hope that if it worked for you before that it will again. Will this be done soon? Sorry for all the questions, just wondering. Anyway, I do hope you the best. This seems to be a good choice for pain control for many.

With having 6 boys, I know that keeps you extra busy. I have always admired big families. But I can barely handle the 2 that I have. We have 2 more on the weekend(husbands' kids), and it sure makes a big difference around here-in every aspect.They haven't been coming quiet as often in the past couple weeks. Having a large family and living with the chronic pain I imagine is hard to juggle. But please come and post here whenever you are able. I look forward to reading more about you. I wish you a low pain day. And a welcome back hug
((((((((((((((((momto6boys))))))))))))))))
Anice

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/27/2009 8:39 AM (GMT -7)   
Welcome back you were missed! since your doing better now, can you get the vaccine for meningitis?
was wondering about that, I had my daughter vaccinated two years ago for it cause she has a heart condition..
any of your boys in High School yet? cause your life will get busier when they are in High School...I thought that
when they'd get a driver licence my life would be less busy, NOPE! she was in marching band and I did
not want her to drive home tired from an away game from which she'd get home around 1 am, and for all
the home games I'd have to take her dinner to her and then come home so I could go back with husband to watch the game...
and I'd help had out the marching uniforms every Friday or Thursday or Saturday concert events, it was hard
and I need my cane to get up to the bleechers, here if the marching fails to show up for a High School football
game, the the game gets forfeited, yet the football players had all the scholarships before anyone else!
so get your boys in either football or baseball, that's where the scholarships are!
anyways glad to see you back sorry I rambled, hope you don't mind...
sure hope you can get that pain pump!
HUGZ
lots of them soft hugz
((((((((((((((((((((((((((((((((((((((((((((((((((((((((Tina)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/27/2009 10:36 AM (GMT -7)   
Tina,
Certainly you can join us whenever you want or are able! Gosh if I had 6 children and was healthy I don't think I could find time to post, let alone if I had CP and other health issues on top of it.

Don't ever worry about just coming on every now and then. Lots of people do it. We understand.

I can't help any with advice on the pump, but I know there have been several old threads on it, and others here who have it
will probably post.

I'm glad you're back!

PaLady

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/27/2009 11:38 AM (GMT -7)   
Thanks for the kind words, everybody.

Anice: Thanks for the post. Yes, there is a lot of emotional support here. That is mostly what I need at this point in my journey. Yep, this is definitely not the life I imagined when we had a big family. My life is a 180 from where it used to be....who I used to be. The last few years have been me working towards accepting the "new" me, the severe limitations that I have, etc. My older two boys remember me when I was well. The younger four - not so much. That's frustrating.

Re: the pump - no, I don't have to go through the trial again. Just need to schedule to get it implanted. I'm not sure when I'll have it done. Like I said, it's really hard to mentally gear up for it, knowing what happened last time. If I only had meningitis once, I'd say it was a fluke. But that was my third time.

Chartreux: Thanks for the nice post! -- Re: the meningitis vaccine: I initially got ill from a bad reaction to a vaccine; my immune system essentially crashed. So, it's been recommended that I don't put any vaccines in my body; I can't even do the flu vaccine. Re: the boys.... my oldest one is starting 9th grade. Wow, just reading your post exhausted me! Unfortunately, I am pretty limited in the things I can do due to my illnesses. I don't drive much. There are times that I'm in bed for days. Somehow, though, we manage. It's not easy sometimes, and some days, it's all I can do to just get through the day - but I'm doing the best I can do.

PaLady: Good to talk to you; and thanks for the welcome back. I hope you are having a low pain day.

More later, but thanks again...
Tina

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/27/2009 12:46 PM (GMT -7)   
 
     Dear MomTo6Boys,
 
     Good afternoon. My name is Dani. It is very nice to meet you. I am new here. I am always excited to meet new people. I am very glad you decided to come back. I do hope to get to know you better as time goes by. Welcome Back.
*huggs*
dani
 
    
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/27/2009 12:56 PM (GMT -7)   
Tina,
 
I am newish to this board (but not to HW).  I am very glad to meet you.  Anyone with 6 kids has my interest, sympathy and support!  LOL .....I love kids.  It is nice to have you here.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/27/2009 1:57 PM (GMT -7)   
Momto6boys

Isn't there a saying? "once family always family!" or something like that? Tina if you were here before and you came back then obviously something inside you never really ever left! What do you think? Maybe that is something to ponder? Anyway, Glad you are here! and hope to see many more post by you!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/27/2009 4:29 PM (GMT -7)   
Dani: Nice to meet you! Thanks for the welcome back; I look forward to sharing more with you...

Gretchen1: Thank you, too, for the welcome. BTW, I read your other post re: no new lesions....that is such good news. I like your quote in your signature line.

White Beard: Nice to meet you. And good food for thought re: the "once family, always family"! I look forward to talking w/ you more....

--Tina

Post Edited (Momto6boys) : 7/27/2009 11:10:07 PM (GMT-6)


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/27/2009 9:53 PM (GMT -7)   
Hi Tina,
Sorry I'm late showing up for the wecome back party! I sure do remember you! How could I forget someone w/ CP and 6 boys! I'm so sorry to hear what you've been through> Holy Cow!!! What a nightmare! But it's great that you came back to us! If I remember correctly, you used to post every day last year well. please don't overdo it or think you have to post all the time now that you're back! I come and go for days even weeks at a time now when I used to post every day religiously! We all have pain or we wouldn't be here and understand how some days just need to be rest days!
great to hear from you!
STAY HEALTHY & PAIN FREE!
Your old Pal,
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis back in Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/27/2009 10:09 PM (GMT -7)   
Pete - Thanks for the "welcome back"! I wasn't trying to make a big deal about it; but I didn't want to just posting without catching up on things.

Thanks for the reminder re: posting when we feel like it, etc. I absolutely agree. There are days when I am on the couch w/ the laptop because I'm too sick to do anything else. Those days it's easy to be on the computer frequently. But, I try to preserve ANY extra energy that I have for the boys... So, there will be definitely be gaps here for me, too.

My neck/back are in a major spasm tonight....I could scream. Looks like another insomniac night for me....

Looking forward to catching up on things. Thanks again for the kind words, Pete...
Night!! --Tina

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/27/2009 10:21 PM (GMT -7)   

Hi Tina,

Welcome back gal. I am so glad that you remembered us and decided to come back. Its the same place with lots of new people which you will get to know.

Yes, I do rememer when you did the trial for the pump and got sick with menigitis. OMG how awful. I totally understand your fear and it is very much warranted. You poor thing, of all goffy things to happen during a trial, wow.

Well, I have my pump, you mostly likely did not remember that. Let me tell you, my former PM dr went back into anesthesiology and gave up PM. Boy, was that a blessing in disguise. I really liked him too and was so upset & sad when he told me he was closing down. What he did do was refer his 45 pump patients to a retired neurosurgeon here in my town. OMG, she is totally awesome. I started seeing her Jan of this year. She has over a decade of experience in pumps, knows compounds does her own mixing of medications for the pumps. She handles pump patients only. She has my pain under the best control ever!! I cannot say enough good things about my dr. One thing I will tell you up front. If you decide to have the pump put in, please know this. If for some reason you decide you want to change drs, let me tell you finding a new dr to take you on is very difficult. I assumed one of the others drs in the clinic would take on my care and asked my dr this, he said no they would not take me on. I asked why, he said other drs do not like taking on an existing pump patients. I did not know this and was not told this before surgery either. Knowing this thank goodness he found another dr to take us pump patients over. I know people on the Pumpsters site are having a difficult time trying to find new pump drs. I wanted to let you know about this. If you have any questions you want to hear from an existing pump patient, I will answer if possible.\

So good to have you back.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/27/2009 11:55 PM (GMT -7)   
Susie - I absolutely DO remember that you have a pump.... I gained invaluable knowledge about it from you!

Re: meningitis... Since then, I've done more research and have found out that meningitis IS listed as a risk factor in regards to implantation of the pump. I can't remember where I found all of that info; maybe on the pumpsters site? I can't remember now.

Yes, I've heard the exact same thing regarding switching PM docs. I am so glad that you have a good PM doctor, Susie - don't let her go!! It is so good, and encouraging, to hear that your pain is being managed so well. I hope to say that one day!

I need to take care of some other dr. appts. and get some dental work done. After that, I am going to start working on the pump issue again. At some point, I'm just going to have faith and give it another try. I'll never know unless I just do it.

Anyway, I'm sorry if I didn't let you know it at the time...but I really did learn so much from you and your personal story. Thank you being here to offer that support to others :)

I'm glad to be back, and look forward to sharing more....
--Tina

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/28/2009 12:25 AM (GMT -7)   
Tina no problem. I am just so glad you found us again. Oh girl, I know how lucky I am to have my pump dr. Its still almost like having a dream instead of reality. lol. She made major jumps in my meds and it made all the difference in the world. You will know when you are ready to make your decision.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/28/2009 7:24 PM (GMT -7)   
Tina,
9th grade will be very hard on your son and I would look for a click or after school activity
for him to try to get into, perhaps one that you could car pool to make the driving easier.
it's important that he gets the feeling of belonging and the right click or group can help.
It might be hard but well worth it, just a thought. Here they kept the ninth graders
seperated from the HS, had a seperate 9th grade campus..
Hope you get a low pain day and lots of soft hugz...
(((((((((((((((((((((((((((((((((((((((((((Tina))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/29/2009 2:45 PM (GMT -7)   
Tina,
 
This is my attempt at impulse control........I am posting here instead of on that "other" thread.  You have a great sense of humor.  Does that come from living with way too much testosterone???  I can't believe you have 6 boys!!!  And non of them are twins!  Have you figured out how much of your life you spent pregnant?  You are my hero!  Two was almost too much for me! 
 
Where in cal do you live?  I am in southern cal.  Once you have decided I am not a stalker....I say we get our boys together.  There can't be much difference between 6 boys and 8.  Mine would fit right into the brood.  Or would it be a case of the boys WAY out numbering the adults?  (the inmates running the facility?). 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/29/2009 3:08 PM (GMT -7)   
Gretchen,

I have to laugh and try to maintain a sense of humor; it's the only way I survive this crazy life of mine!! You sound very much the same...

Let's see....if you add it all up - I've spent a few months shy of FIVE years being pregnant. I also nursed all of the kids...so, literally, from 1994 through 2004 - I was constantly either pregnant or nursing a baby. Believe me - my body has the "war wounds" to prove it.

The stalker comment made me laugh -- because it's totally something I would say. I am in the SF Bay Area. Honestly, after you have six...throwing a few more in is NOTHING. Your boys would fit right in. How old are yours??

I feel outnumbered everyday, Gretchen.... everyday is a new adventure. I am an only child....I grew up in a neurotically (spelled right?), clean, QUIET household. Even though I've been a parent for almost 15 years now -- I still can't believe the noise that kids can create. (As I type this, there are doors slamming, kids laughing/playing, TV blaring, AHHH). I've spent the night at my parents house a few times over the years - and I can't sleep there. You can hear a pin drop - and the silence is deafening. How I've changed.

If you are ever up this way...the door is always open!

--Tina
I'm a Christian wife and mom to six boys, ages 5, 8, 10, 11, 13 and 14... I've been ill/disabled since my last child was born in 2004...

Chronic Pain Issues: Severe neck/back pain; chronic migraines; carpal tunnel syndrome; widespread joint/muscle pain, burning nerve pain in hands, arms, feet
Diagnosed with: POTS/dysautonomia (heart condition, nervous system disorder that has my whole body out of whack: heart rate, breathing, pain issues, body temperature issues, etc); CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea etc etc
Meds: MS Contin (480mg daily); MSIR (15mg/6x day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...
Past Meds: I've been on every pain med there is... Oxys, Dilaudid, Duragesic patches, Actiq, Fentora, Methadone and so on... I've also tried almost every muscle relaxer, nerve meds, sleep meds, etc.
Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/29/2009 3:19 PM (GMT -7)   
Tina,
 
My boys are 12 and 15.  See?!  I told you they would fit right in.  I can't imagine the noise you have!  My two are quite loud.  They are very sweet boys. 
 
I live about half way between LA and San Diego.  We are slightly inland.  Did you try at all for the girl or did you just assume after the first couple that boys is all you were going to get.
 
I knew I wanted just two children.  So the second time pregnant I wanted that girl bad!  I didn't know what I was have having either time by choice.  I left that up to God.  I saw my youngest son's face and I was horrified!!  He was the ugliest baby I had ever seen!!!  I was praying big time........"Oh Lord.....I know I was asking for a girl but I take it back !!!!!!"  When they had him all the way out and I could see that he was a boy, I was so relieved.  You can have a goofy looking boy baby but not a girl!  Oh by the way, yes I loved him completely even though he was like igor.  And, he is very cute now. 
 
Tina, I would love to email you.  I have my email in my profile.  (muahahaha..........really I am not a stalker!!!)
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/29/2009 5:13 PM (GMT -7)   
Gretchen,
For a miniute I thought you were saying YOU had 8 children! I was adding 8 plus 6! LOL I have no children, a large extended family. My life is much too quiet, but I can see that Mom has made up for me! I just cannot imagine 6 boys. A friend of mine had 5 children, worked full time, and in the middle of it all her husband decided to go to law school 2 hours away, and he would stay at school Mon.-Fri. I never knew how she did it, but she did. When I would visit her my head would spin. Oh, I forgot to add the animals, too! LOL

Ok, I just figured I had to get in on this thread. I am exercising restraint myself these days. smilewinkgrin

Oh - I love San Francisco! I tried so hard about 10 years ago to get a job there, but with no luck. I have a great friend who lives there but I haven't seen her in over 10 years. Course California now is having its own problems. But Pennsylvania still hasn't passed its budget either. shakehead

PaLady cool

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/29/2009 7:50 PM (GMT -7)   
Ha ha and neener neener neener........calif has its budget in place!  It sucks of course!!!!  Hahahahaha.  I am so getting out of this mad house!
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/29/2009 8:05 PM (GMT -7)   
Gretchen....

That story is funny.... Well, we knew we wanted a big family.... I did have hopes for a daughter. I always found out via ultrasound what I was having. By my 3rd baby - they didn't even need to tell me what I was having. I looked at the screen and could see the "boy parts"!

After I found out baby #5 was going to be a boy....I drove around w/ my husband and cried for about two hours. I went over EVERY reason why I wanted a girl. "I'll never get to fix my daughter's hair..." "Never have mother/daughter talks" "Never help my daughter w/ her wedding" and on and on the list went. After getting it all out of my system...it's like God lifted that off of my shoulders.

The funny thing is that I now know THIS is the family I was meant to have. They are incredibly good boys. Having a sick mom has been hard on all of us - but, it's also taught them a lot about being selfless, patient, flexible and so forth.

Anyway, I'm good w/ e-mail, too... I'll e-mail you soon!

Hope you are having a good evening...
Tina
I'm a Christian wife and mom to six boys, ages 5, 8, 10, 11, 13 and 14... I've been ill/disabled since my last child was born in 2004...

Chronic Pain Issues: Severe neck/back pain; chronic migraines; carpal tunnel syndrome; widespread joint/muscle pain, burning nerve pain in hands, arms, feet
Diagnosed with: POTS/dysautonomia (heart condition, nervous system disorder that has my whole body out of whack: heart rate, breathing, pain issues, body temperature issues, etc); CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea etc etc
Meds: MS Contin (480mg daily); MSIR (15mg/6x day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...
Past Meds: I've been on every pain med there is... Oxys, Dilaudid, Duragesic patches, Actiq, Fentora, Methadone and so on... I've also tried almost every muscle relaxer, nerve meds, sleep meds, etc.
Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/29/2009 8:14 PM (GMT -7)   
PaLady...

I think the grass is always greener on the other side. SF is beautiful and such.... But it's just too darn expensive here. It's expensive everywhere, I know - but especially here.

We lived in Colorado for two years and loved it... People were so friendly, neighbors knew each other - we were amazed!! And the cost of living was so much better (compared to CA)... Colorado also suited our politics much better than here...

Many years ago...we took the boys and traveled through the US for 6 months... we went to 37 states. (long story short - it was before I got a firm diagnosis... for awhile, I thought it perhaps was the stress of our high-paced life...so we sold our home and traveled before moving to CO). I remember really liking Pennsylvania. We went to the Amish country. The boys really liked Hershey (of course). What else did we do there? I can't remember now... My memory is shot. But I put PA up on my list as one of the states I liked best.


Tina
I'm a Christian wife and mom to six boys, ages 5, 8, 10, 11, 13 and 14... I've been ill/disabled since my last child was born in 2004...

Chronic Pain Issues: Severe neck/back pain; chronic migraines; carpal tunnel syndrome; widespread joint/muscle pain, burning nerve pain in hands, arms, feet
Diagnosed with: POTS/dysautonomia (heart condition, nervous system disorder that has my whole body out of whack: heart rate, breathing, pain issues, body temperature issues, etc); CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea etc etc
Meds: MS Contin (480mg daily); MSIR (15mg/6x day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...
Past Meds: I've been on every pain med there is... Oxys, Dilaudid, Duragesic patches, Actiq, Fentora, Methadone and so on... I've also tried almost every muscle relaxer, nerve meds, sleep meds, etc.
Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/29/2009 8:26 PM (GMT -7)   
Hi Mom! Welcome back! I do remember you from when you were posting this fall! We're more than happy to have you back! I hope all is well.

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/29/2009 9:36 PM (GMT -7)   
Mom,
Pennsylvania really does have many beautiful areas, and I live right up on the shores of Lake Erie. Can see Canada on clear days. The only downside now to me are the harsh winters. Can be big time snow here. Too hard on me at this stage of life and with CP!

PaLady
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