Post Edited (White Beard) : 7/27/2009 2:41:36 PM (GMT-6)
Boy this is something that we all can relate too. I'm sure that some of us have better experiences then others when it comes to our friends and family...and PALady you hit it right on the head...Everybody thinks your strong so they don't try and comfort you... They think you don't need it. And that couldn't be farther from the truth.
I know that I have distanced myself over the years to maybe a handful of friends...and they're dwindling too. I might have 2 friends that do understand what I am going through, as much as they can. And then there are the ones who try but fail miserably when it comes to compassion. Why? I think they get scared...scared that it might happen to them one day. I would never in a million years wish my pain on anyone, but sometimes I do wish that if some people could get just a taste of what it's like...well, anyway.
My family is so supportive when it comes to me having Diabetes and High Blood Pressure and other mainstream illnesses and diseases, but when it comes to CP....they think it's all in my head. That I take pain pills for the "high" or that I just don't want to work... That is not the case.
Do you think that they would choose to be in pain? Choose to not be able to play with their kids, clean the house (maybe that one), but I know that I would change this in a heartbeat if I could. CP has caused my son problems and my mom doesn't understand what I'm going through....so she downplays it. Take an Advil she says when I can't get up or can't stand at the sink without leaning on the counter... She doesn't want to use the Handicapped Placquard when we go shopping because she thinks that walking will do me some good....
So, that's my contribution to the thread....I hope it helps someone.
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen