Welcome Back Skeye

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fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/28/2009 3:40 AM (GMT -7)   
Skeye flies home today and I know she will making her way and checking in at some point. I wanted to start a thread welcoming her home, hoping the trip was realitivly pain free and that her presentation went great. We are looking forward to a full report and how the eye did while on the trip. We miss you on the forum Skeye!!!!!

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/28/2009 5:55 AM (GMT -7)   
!!!!!!!!!!!!!!!!!!!!!>>>>>SKEYE<<<<<!!!!!!!!!!!!!!!!!
Welcome back Little Sister! I just know your presentation blew them away! Hope you had a great trip!!! Can't wait to hear all about it!!
Hugz>
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis back in Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/28/2009 7:03 AM (GMT -7)   
HUGZ
and Welcome back Skeye......
Hope you knocked their socks off!
rest up a lil then post back...
((((((((((((((((((((((((((((Skeye))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
Thanks FatherJohn!
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********

Post Edited (Chartreux) : 7/28/2009 6:36:18 PM (GMT-6)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/28/2009 8:07 AM (GMT -7)   
Skeye!!!
Welcome back!! You have been missed! And we want to hear all about your trip as soon as you catch your breath.

I'm spillin' the beans on fatherjohn a bit...something about wading in the ocean?? :-)

Hugs and Cheers,

PaLady
FJ - thanks for starting this!

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/28/2009 8:48 AM (GMT -7)   
 
We want Pics!!!!!!
*warm huggs!*
yeah  
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/28/2009 9:41 AM (GMT -7)   
Welcome back, Skeye. I hope your trip was great. I know your presentation was wonderful,too. Get nice and rested up and then let us know everything about it.
Anice

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/28/2009 10:00 AM (GMT -7)   
Welcome back.  I hope you had a wonderful time. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Mystic_Duck
Regular Member


Date Joined Jun 2009
Total Posts : 52
   Posted 7/28/2009 3:22 PM (GMT -7)   

YAY!! i completely forgot that u were coming back today! idea ahh i hate these memory issues! but i was so happy fj remembered the date and that he started this thread!!! YAY welcome back, i hope u had an AMAZING time and also that u had no pain wat so ever during ur trip! (ok, so maybe thats not realistic...id settle for less pain? hehe just joking!) BUT be sure to let us all kno how awesome u had, so we can live vicariously (sorry for the spelling issues...) BUT only when uve rested, in low pain, and feel up to it! Im so glad ur back, and cant wait to hear from u and just see ur name on the board again! ok, and one last time......

  yeah      WELCOME BACK!       yeah

Missed U!

Katherine


 
"In God's hands, in God's time."
 
"The scourge of life, and death's extreme disgrace, the smoke of hell, that monster called Pain."


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/29/2009 4:53 PM (GMT -7)   
Wow! Thanks for all the welcome back's guys! I actually just got home not too long ago (yes, a day late). I had some issues with my car (although I almost didn't make it back to the state at all, thanks to our first plane being told to circle the airport for a half hour before landing, but fortunately the pilots of our next flight had been in a similar situation & we were able to get on the plane, despite making it to the outgoing gate 5 minutes before the scheduled take-off time!). I ended up having a flat tire & a flat donut spare, AND a dead car, thanks to water in the gas line. Thankfully, AAA was able to come out & pump up my spare & transfer tires, and I got my car started with the help of several bottles of dry gas, but by that time, it was too late at night to find a place to get a new tire. Fortunately, this all happened at my professor's house & so I just spent the night there, before getting up at the crack of dawn this morning to find someone to fix my tire! But I made it home with 5 minutes to spare before I had to leave to see my neurologist to get my test results.

I had a great time out in Oregon! The conference was wonderful. I learned a lot & had a lot of fun times with a small group of close knit scientists (most of whom I had already met at a previous conference). My presentation went very smoothly & was well received. It was a trying trip for me, in terms of pain, though. I was at the conference from roughly 7 am - 6 pm every day, with oral presentations being held from at least 8 am - 4 pm, and posters from 4 - 6pm. It was hard, having to watch & read all the powerpoint slides (especially from across giant rooms), and they couldn't have made the font in the program any smaller! But nonetheless, it was worth it! Part of my pain was my own fault, as I forced myself to read some on the plane rides! I apparently, also chose the hottest time of the century to visit Oregon! It was sunny & well into the hundreds on Sunday & Monday, although surprisingly, it didn't feel nearly as hot to me. I suppose it was because there was no humidity, or at least not like back home. Dry heat is glorious, humidity, on the other hand...

I was also lucky enough to met & spend an afternoon with our wonderful fatherjohn, and his lovely wife & daughter! He was so kind as take time out of his busy schedule to drive all the way up to Portland to see me, and then take me on a scenic tour of the state! And yes, Palady, fatherjohn drove me out to the ocean & I did stick my feet (dress pants included) into the water! Brrr! I'd never seen the Pacific coast before, and among other things, it is much colder than the Atlantic! We had a fabulous time together, and I am so grateful to fatherjohn, especially since it was neither a short nor easy trip for him, I am sure!

Hopefully everyone is well & had a good week! I sure do have a lot of reading to do, to catch up!

Oh, and a quick status update. All of my test results from my lumbar puncture & other brainstem test are back, with exception of the MS panel (which is of course, the one that I am really concerned about). Everything tested negative, which is good, but... Here we go again, essentially. I do have to make some phone calls this week, though. Even if we don't know what this is (still!) we have two new ideas in terms of treatment options. One being lidocaine injections behind my eye (or so I hear via my pcp, regarding the conversation that he had with my ophthalmologist just before I left), and another being some sort of neurostimulatior that could be modified to affect certain facial nerves, most specifically the trigeminal nerve (assuming that the neurosurgeon concludes that I am a candidate). So hopefully August brings us closer to some kind of "solution," at least for the pain.

Hugs to all! I missed you guys!

Skeye

Uh, oh! I hear a thunderstorm coming! Back to the rain, extreme humidity, thunderstorms, and unseasonably cold weather; gotta love New England! I miss Oregon already! Maybe I won't be doing much catching up tonight after all...

Post Edited (skeye) : 7/29/2009 5:58:11 PM (GMT-6)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/29/2009 5:02 PM (GMT -7)   
Skeye,

WELCOME HOME!!! As you can tell, you were missed, but I'm so glad you had a good time out there and that you got to meet fatherjohn (our social butterfly!) and tiptoe into the ocean. What a journey home, though! AAA pays for itself on those occasions. I've been there!

I wonder if your doctors are thinking about a modified vagus nerve stimulator? They use them to control some forms of epilepsy that don't respond to medications. I'm just glad there are some options opening up for you!

Oh, it's so good to have you back!

(((((((((((Skeye)))))))))))

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/30/2009 10:46 AM (GMT -7)   
Skeye, I am glad that you made it home ok. travel is hard enough sometimes without the help of delays, uncertain connections and late arrivals. I am glad that the tires were found flat at your Prof. house instead of while you were driving home. The options for relief sound encouraging and I know we all hope that you will be able to find the right one to give you the escape from pain as you continue to fulfill your dreams. Wow! The chocolates were soooooo good, thank you. Now I will have people wondering.  

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/30/2009 12:22 PM (GMT -7)   
Skeye,
nice to see you back! lots and lots of soft hugz...
take a day or so to get back in the swing of things...
HUGZ
((((((((((((((((((((((((((((((((((((Skeye))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/30/2009 4:35 PM (GMT -7)   
Fatherjohn,
I can take a pretty good guess. It at the very least involves chocolate traveling into your mouth and through your system!

I hope you had some extra for me, since it's now a no-no on this new eating plan! sad

PaLady smilewinkgrin

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/30/2009 5:35 PM (GMT -7)   
PAlady, it was tough to endure but someone had to eat them. I even tried to save my wife from the terriblr effects of chocolate. What a sacrifice.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/30/2009 6:28 PM (GMT -7)   
fatherjohn,

I'm glad that you enjoyed them! In my own personal opinion, that stuff is the most amazing chocolate on Earth! smilewinkgrin

Skeye <---- who's patched up, good-to-go tire is now flat, AGAIN!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/30/2009 9:11 PM (GMT -7)   
Oh, Skeye! I had to replace two tires over the past year. Slow leaks in one case that kept returning. And then my clipping a curb didn't help! I hope it can be fixed!

Fatherjohn - you are indeed a martyr to be admired! :-)

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 7/30/2009 11:37 PM (GMT -7)   
skeye
It is good to have you back! I am glad you had a good time! I will be interested to see how your MS panel comes out. I do hope thsy can give you some relief soon!

             Ok out with it fatherjohn what kind of chocolates were they? And how many did you eat?  Martyr my foot, when it come to eating chocolate there is no such thing!! smilewinkgrin Just Chocolate-hogics! yeah
 
White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 7/31/2009 12:40:39 AM (GMT-6)


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/30/2009 11:46 PM (GMT -7)   
Good to hear from you Skeye, I forgot to ask if you enjoyed Harry Potter all those weeks ago???
My kids and I loved it and then I had to re read the 7th book to answer all the questions they were throwing at me. It's such a good series. But I'm waffling, fingers crossed for your MS results when will you know? Was the spinal tap horrendous?
So glad you had a good presentation and journey, did you get to eat chocolates too or just FJ?
Lovely to have you back, golitho

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/31/2009 12:43 PM (GMT -7)   
I totally agree with you WhiteBeard, Chocolate hogics
maybe we need a chocolate anon. group meeting eh...
If FatherJohn won't tell then you should, Skeye...
HUGZ...
You'll get soft hugz after passing around that Chocolate...
Yum........
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/31/2009 5:48 PM (GMT -7)   
I did have to replace the tire. I took my mother's car to work (a ~120 mi round trip) & left mine home. Apparently, the tire got progressively worse throughout the day & was practically undriveable by the time the car got to the tire dealer! I guess that patch was a waste of $25!

Golitho,
Believe it or not, I haven't gotten to see the new Harry Potter movie yet! I'm hoping to go this weekend. I just had too many things to do & worry about before I went away. Oh well. The theater will probably be much less crowded now anyway & I'll probably enjoy it that much more!

I do not know when the results of my MS panel will be back, but I'd expect sometime next week, as it has been 2 1/2 weeks since I had the spinal tap done! If I don't hear from my neurologist by the middle of next week, I will give her a call. I am expecting it to be negative, but it is still quite worrisome. Although in a way, it would be better if it was positive... Then at least I'd have an answer, a real treatment plan, & know what to expect in the future. Not to say that I want to have MS, I certainly don't. I just want to know what is happening with my body & why, & be able to do something about it! I feel so helpless!

The spinal tap itself wasn't too bad. That's not to say that it was fun, but I've certainly had worse. I've never had an epidural, but I'd imagine that it is similar. The lidocaine injections prior to the tap were almost worse that the tap itself, although they did have a hard time finding my intervertebral space, so they had to do a bit of digging around! All in all, it was much easier than I expected, and I was lucky enough not to get a spinal headache!

Skeye

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/31/2009 6:48 PM (GMT -7)   

Skeye, keep us posted as you hear more next week. Again, I am so glad that the tire did not blow out while you were driving. Before Danyel and Sarah took off this morning, I went out and checked the air in the car for them. Sarah had her hair cut shorter *the first time). All I know is there were tears at the start but she loves it.

I have a slight problem, I have chocolate all over my key board and I am not sure how to clean it off.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/31/2009 7:33 PM (GMT -7)   
Skeye,
 
Lumbar punctures should only take about a week.  Call!  I am praying you don't have MS.  I know you are looking for answers but let's hope this is something more treatable than MS.  I know you have probably talked about this on other posts, but have you had an MRI?  I am watching for your posted results.  Good luck.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 8/1/2009 10:10 AM (GMT -7)   

Hi Skeye,

So you are now a member of the official FatherJohn fan club...along with Pete and I.  Isn't he amazing and his beautiful wife is as well!

I am praying for a positive outcome to your testing!  Haven't been posting much but had to say hi and give you my hopeful wishes!

XXOO
Patti


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/1/2009 11:50 AM (GMT -7)   
Skeye,
I am hoping for a picture of you and fatherjohn to be put on that website, too! I really wanted to see one of you wading into the ocean. I was creating this painting of you in my mind....

Patti - did you and fatherjohn take any photos? And what about Mrs. Fatherjohn? And Mrs. Pete's trips? Course, I guess they'd need to sign releases! :-)

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/1/2009 12:14 PM (GMT -7)   
OK fatherjohn the next thing your going to tell us is you licked your keyboard clean! I have noticed that you still haven't told us wht kind of chocolates and how many!!

skeye how long did they have you laying flat after the spinal tap? I know allot of people have problems with spinal headaches after having them if they don't keep laying down for a period of time.

I do hope you get your results soon!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

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