Very Scared, advice needed!

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shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 7/28/2009 6:16 AM (GMT -7)   
Hello everyone! It's been a while since i last posted!
 
To bring u all up to date, i am still walking around w/ the hernia which my surgeon will not repair until i can gain weight back to my origional weight of 100lbs.
 
I did mention last time that i had sought the help of a eating disorder specialist (EDS)since i had lost soooo much weight, had NO appetite and no urge to eat.  I am also threating to flare with my ulcerative colitis right now on top of everything else.
 
Anyways, the reason i write, is that my new EDS is also an addictions specialist. Now, mind u, deep down, i know there is no problem, i take my meds as prescribed, have a good relationship w/ my PM, ect. However, i am soooo worried that someone of that profession would only feel one way towards pain meds??? Has anyone had experience with this?  In session we have lightly discussed my chronic pain w/ my foot, and my current chronic pain w/ my hysterectomy, trapped nerve surgery and hernia repain, and current hernia, but im so worried that this doctor might see ANY long term use of pain meds as a bad thing? I have signed papers to allow him to speak to all of my doctors, including my PM, do u guys think this was smart, or should i have not?  The EDS seems like a very nice, caring, understanding doc, but im terrified that he might say something that might make my PM jumpy??? I don't know....
 
anyways, insight would be helpful. hugs to you all!!!!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/28/2009 7:49 AM (GMT -7)   
Shannon,
Welcome back> GREAT to hear from you! I'm so sorry to hear you are having such a hard time.
I surely am no expert but in my humble uneducated opinion, you shouldn't be worried at all! I believe being truthfull is the best way to go because if you are not and the doc or docs find out, it's usually goodbye> do not pass Go> do not collect $200.!!! Besides, you have very legitimate health problems that need to be adressed! Your percocet of 15mg a day is such a low dose, I doubt it will even raise an eyebrow! Please try not to worry about things you have no control over! The docs are there to help you get healthy, not to riddicule you for the meds you take. I know in this day and age w/ what you hear about pain meds all the time in the media, it's hard to not get upset, but you were prescribed these meds for a ligittiment reason and I truely think you have nothing to worry about! Please try to get yourself healthy enough to get that hernia fixed! I had one done last Feb. in my abdomine, it was a breeze!!!
Hang tough and get well!!
Your old buddy,
Pete
PS> Sure wish I could send you some weight, I've got plenty to spare!!!
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis back in Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/28/2009 9:33 AM (GMT -7)   
 
 
Hey Shannon,
Welcome back...I agree with Pete.  Be very careful...i have never seen a specialist about addiction but I guess it could go either way.  Be honest about your pain issues and you won't go wrong.
 
Glad you're back but sorry you still have so much pain...
 
Me.

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/28/2009 10:21 AM (GMT -7)   
 
   Dear Shannon1,
 
     Good afternoon. *hugg* It is good to see you again. I hope it is a nice day outside where you are. It is georgous here.  :-)
 
     However, i am soooo worried that someone of that profession would only feel one way towards pain meds??? Has anyone had experience with this? 
 
     I do not get that impression from any medical personel so far.... I get the distinct impression it is an assessment of the patient ~ What the patient needs physically to survive. Sometimes that involves oral medications.
 
     long term use of pain meds as a bad thing?
 
     I get the distinct impression (Big help hua? LOL) that the unified "goal" is to remove the pain or make it more managable with as little interverntion as possible. I truly believe the "goal" is to treat the "source" as well as possible. Thus increasing the quality of life of the patient. Just my "impression".
 
      I have signed papers to allow him to speak to all of my doctors, including my PM, do u guys think this was smart, or should i have not? 
 
     ALL of my doctors communicate. That is what *I* require of them. Peroid. There is a standard form you can print out on all major hospital websites. Just make a bunch and mail em to all your doctors and care providers each year. No, I really don't care that some do not like what a few scattered doctors have "negativly" had to add to my medical records in the past. It ALL NEEDS to stay. I value the opinion of ALL those who I have run across during this journey. I care not if it is "good, bad, indifferant." I require those who are currently over seeing my care to all communicate.  I do not posses the time nor the energy to relay information for them. I will not pretend like I have any kind of medical traing or back ground. That is their job. I would be very frightened if I ran any medical professional that felt they didnt need to communicate. *shiver*
 
     I also think that ALL states should convert to registry for ALL medical records, tests, and medication / vaccinations. That would make my life a thousand times easier.
 
     but im terrified that he might say something that might make my PM jumpy???
 
      I do not think that that would be the case. These men and women train and study for decades before we "meet" them.  Relax. It will be fine. Communication is a good thing.  :-)
 
*huggs*
dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/28/2009 12:46 PM (GMT -7)   
Hi, Shannon,
I'm sorry you're still struggling with the pain from that hernia. Regarding the EDS - is he a psychiatrist or psychologist, clinical social worker? (a psychiatrist is an M.D. who would be able to prescribe medication to you) The reason I ask is the psychiatrist has a little more power when it comes to medications, but like others have said you still want to be honest about everything - including your pain symptoms.

Eating Disorders are seen as addictions by many EDS, although there is a strong neurobiological component. I'm also not an EDS specialist, and don't know if yours is a true Eating Disorder, or related more to all the other health problems you're having that affect your appetite. If you have no history of an ED (I don't see it in your signature) then it becomes more complicated what's causing the low weight. However, the EDS can still help you with putting on weight.

If the EDS starts to indicate he thinks your taking of pain medication is an addiction, then he really needs to talk with your PM - with your input. You're not making up all these health problems! But hopefully this EDS is open-minded and sees that people do have legitimate reasons for taking long term pain meds. You may need to help him learn!

Anyway, the honesty is best, and then try to relax and take it one step at a time. Let us know how it goes.

PaLady
p.s. White Beard's comments are great. He was able to detail what I was clumsily (is that a word? LOL) trying to explain!

Post Edited (PAlady) : 7/28/2009 3:06:59 PM (GMT-6)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/28/2009 1:59 PM (GMT -7)   
shannon1

I would not worry about the "what ifs" to much! If you don't abuse your pain meds and you take them only as prescribed, then I would not be overly concerned! Knowing you have UC are they sure you even have an eating disorder? or do you have problems with digesting and retreiving the nutrients from the food. UC itself can cause a loss of appitite! not to mention bone and joint pain and list of other things! Even if you have an eating disorder, I am not sure I see how your EDS even with being an addiction specialist will have any relationship with you taking pain meds, especially since you are under the care of a pain specialist! One should not affect or over ride the other, as long as there is no other issues involved.

We are all guility of doing this, we worry about the "what ifs" and I know I also do it and I fight with myself to not let the "what ifs" take over and ruin my life! Right now I have allot of "what ifs" in my life and it seems to be a constant battle to not be over whelmed by them! But I can not and will not live my life based on "what ifs" So please don't let that happen to you either! "What if" your EDS does talk toyour PM? You can do do anything about that anyway!, It is completely out of your control, so please don't let that ruin anything for you

We are all here to support you!
Good Luck to you shannon!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/28/2009 4:01 PM (GMT -7)   
Shannon, I read your post
and tried to think what could I say..
So from me, lots and lots of soft hugz, a shoulder to lean on
and you'll be in my thoughts and prayers...
hugz
((((((((((((((((((((((((((((((((((((((((((((((((Shannon))))))))))))))))))))))))))))))))))))))))))))))))))))))))
I agree if your this worried talk it over with your pain management doctor, then
at least you'll have peace of mind....
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 7/28/2009 4:40 PM (GMT -7)   
thanks so much everyone! You guys always have the best advice!!!!

I still have no diagnosis of ED, but the doc did feel that he could still treat me. He is aware of my UC, and how it affects me, (moderate joint pain, stomach pain, vitiman deficient, ect). I meet w/ the nutritionist on the 15th,so im sure she will have more input in that regard to.
The EDS can prescribe meds, so i guess he is an MD. We have discussed using a antidepressant, but im so worried to add more meds to the mix. If i have no appetite now from meds(not sure if htat is it or not), but i don't want to add more junk into my body, but also don't want to be dealing w/ depression that might cause lack of appetite....who knows what is right...

i think it is a great idea to discuss this w/ my PM! Thank you so muchChartreux for bringing that up! I will call them and talk to them about my fears!

again, thank you to all of you for all the support! I wish i had more time to spend on this site to get to know all of u better, but w/ two kids at home, things are really busy! (and painful) lol
I do check on all of u often and read the posts. Gentle hugs for all of you, and again, thanks for taking the time to help me!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 

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