ER and my new pain pump

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 7/28/2009 9:38 AM (GMT -7)   
oh my gosh last week you guys will NEVER believe what i went through in the ER. I had an attack of diverticulitis (as usual) on the weekend so I had to go to the ER. the dr was adament on not giving me any pain medication because of the recently installed pain pump in my spine. i kept trying to explain it does not affect me that way, only my spine. she said "i don't want to get into this topic with you" rolled her eyes and walked away. THE DR!!!!! she did not admit me, and my PCP was furious when i told him what happened and they never even called him to see if he wanted to put me in, with all the vomiting i could barely even walk by monday when i went to my PCP. he put me in immediately and gave me 4 (CCS?) of dilaudid.... which the nursing staff was also a little nervous because of the pain pump. once they saw i could take everything they relaxed. i opened up to one of the nurses about my ER experience and she called the director of nurses who then went to the ER director, there was no call for eye rolling. but the nurse was nice enough to get all my info on my pain pump and put into my file so there wouldn't be another issue. my husband was outraged over the treatment and i kep telling him, she is not a pain specialist and dosen't understand.... as angry as i was too, i didn't deserve the label i was getting that night. even with my cat scan showing diverticulitis i felt like they thought i was after pain meds. i chose the pump to get off these pills eventually to help with the stigma we get for being on these pills. i feel like i can't win! i don't expect a nurse to understand my pain pump but i really think a dr should get the mechanics right.
RX's: Pain  Pump (morphine & baclofen on next round); Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 4x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Lorazepam 1mg (bedtime); Bentyl 25 mg 2xs daily; Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/28/2009 9:59 AM (GMT -7)   
Oh kttn,
 
I am sorry!!!  That sounds miserable.  The questioning of all meds for pain is so hurtful!!!  I can't believe they didn't call your PCP.  I hope this gets resolved.
 
Tell them you will consider letting this go if they buy you a kindle!  On a serious note,  I hope you are feeling better real soon.  Diverticulosis is serious and painful!!  Take good care.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/28/2009 10:00 AM (GMT -7)   
 
 
Oh KTTN....I am so sorry about how you were treated.  Unfortunatley it happens way to often to CP patients...especially at the ER.  I know that I have chosen NOT to go to the ER because I know what will happen...even if they do help, it takes so long to make them understand and they give you the 'LOOK' nono eyes ... and u know what I mean.
 
You deserve to be treated with respect no matter how anyone else views the issue about CP...When I cut my finger open in Feb. and had to go to the ER for stitches, I got this DR. who took one look at my meds. history and started preaching...She had been in a horrific car accident that broke both of her legs and smashed her pelvis...But she "chose" to do it without pain pills... and she was back at work in a matter of months.  She made it perfectly clear that she thought I was on too much Methadone and Oxycodone and I was really afraid that she was going to get in touch with my Dr. and tell him that.  She really freaked me out.
 
I told the nurse about it and she said she did that to everyone who has a history of CP or taking pain meds....the nurse told me to ignore her because it didn't matter what she thought.  I was so glad I had a nurse who understood.
 
We are treated like Junkies whether we want it or not...
 
I hope you are doing better today...and I hope that never happens to you again...
 
Me. yeah

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 7/28/2009 10:57 AM (GMT -7)   
she gave me that lecture, how "if i took that much dilaudid i would die" and "i don't like the path i see you going down, its dangerous with all these pain medications" i tried explaining that was my reasoning for getting the pump, to drop the pills eventually but i have only had it 2 weeks, they haven't began tapering my drugs yet. she did give me 1cc of dilaudid after the 6 hours for the cat scan. unreal. you can't fake a cat scan. i was in a lot of pain too. the cramping from your stomach is unreal, i have had both kidney and gallstones and they aren't as bad as diverticulitis. i get it a lot too, they see it on my file. i go to the same place because my drs office is next door to the hospital, so i stick with the same hospital to keep the same GI and PCP drs. i just think its unfair to make someone writher in pain when a normal person would have already had pain medication for the same symptom. if anything they should know that we can handle those stronger meds and will be ok with it. its discrimination!
RX's: Pain  Pump (morphine & baclofen on next round); Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 4x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Lorazepam 1mg (bedtime); Bentyl 25 mg 2xs daily; Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/28/2009 12:25 PM (GMT -7)   
Kttn,
That's beyond lousy that you were treated that way! It's frightening, too, because each one of us knows we can end up in an E.R. for lots of reasons unrelated to our CP issues, and yet that's the first thing that will be eyed by the nurses and doctors, and everything else will be framed by that. I'm so glad you spoke up, though, and that something may have been written not just in your record, but maybe the people who treated you in the E.R.

I had my gallbladder removed after having numerous attacks as the result of gallstones and those were horrendously painful and I was young - only 19 - able to handle a lot more. If diverticulitis is even worse.....OUCH!

(((((((Kttn))))))

PaLady

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/28/2009 1:57 PM (GMT -7)   
I totally agree with PALady in that you we're treated beyond lousy and you should considered getting a
lawyer involved,,I don't usually like saying that but you have a good case against that ER staff at least
file a complaint against that ER staff inculding that Doctor, it has me boiling mad, that oooooooooohh,

Anyways, sure hope your doing better and getting a low pain day...
good luck with that pump and keep us posted...
Lots and lots of soft hugz
((((((((((((((((((((((((((((((((((((((((((((((((((((((((((Kttn))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 7/28/2009 8:14 PM (GMT -7)   
Most ER doctors do not have lots of experience with pumps. Make sure that you always have your last printout with you. This way the doctor knows exactly what medications, concentrations and rate of delivery your pump is providing. Most ER's do not have interragation units so they have no idea what is in your pump. ER docs do not always understand the pump concentrations and conversions to oral. I notice you are taking several oral narcotics, so with what was in you pump and her inexpereince, she may not have been able to calclate exactly how much drug was in your system. There was no need for her attitude, but you are going to find that ER's are not always pump friendly locations. There are not that many out there and your Pain Management doctor should have been called immediately for additional medication advice.

Sorry about the bad expereince.

Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 7/29/2009 4:47 AM (GMT -7)   
I absoutly dislike ER's with a passion. I was told by my best friend who is a nurse at a huge ER in Seattle a while back that if you even bring in a letter from your doctor stating your condition and what you should get, that they still wont believe you cause alot of addicts will write out their own letters with very believable letterheads from a doctor out of state that sometimes doesnt exist, so they will usually just ignore the letter. Even if the letter is from a local known doctor, they will always question it and not follow doctor's orders if they beleive they order too much pain meds as it's the nurse's job to use common sense and if they think it's too much they can hold it form you or give you a smaller dose, or they will put it in the IV bag and let it release over 15 minutes so people dont get a rush from the pain meds, which I thought was a great idea.

One of the last itmes I went to the ER was about a year and half ago for severe stomach pain and vomiting that wasnt getting better. I woke up vomiting about midnight and was vomiting nonstop til 2am and took my kids to my father's house, and drove myself to the ER, and they got me in right away, the place seemed pretty slow, and they right away started an IV to get fluids back in me and a shot of zofran for the nausea, and this was before the doctor even saw me. Well the Zofran didnt work at all and I was forced to wait 4 hours to see the doctor, and I kept asking how long it would be cause I was dry vomiting and it hurt so bad and the place was quiet and they where just sittng there talking and laughing. I should remind you that I was really there to make the vomiting stop, I could handle the pain but I cant handle nausea/vomiting. And I did let the ER know at the triage that I was taking pain meds. Well The ER doctor gave me phenergan and the vomiting still didnt let up. Well they finally got the blood tests back, and the doctor said it was all normal, then she said "I see you take methadone for pain". and I said yes, and she asked who was prescribing it, and I said who, then she goes "well I WILL NOT refill that for you and you should see your doctor for that". I was still so sick, so I was confused but for some reason didnt say anything. So they discharged me and I was still vomiting when I was signing the discharge papers and had to stop once on the way out the ER area to vomit again, but they acted like I was faking. But I dont understand why this doctor said that, I had my pain meds on me, I didnt need a refill or asked for a refill or any pain meds at all, it was just so horrible. Actually I didnt even ask for anything for the pain, actually I told them I didnt want anything for pain in the IV cause narcotic pain meds by IV make me feel very off, and I dislike the feelings it gives. But I guess maybe they where being hit by too many frequent flyers that night drug seeking and right away put me in the catagorie. I just didnt find it fair that I was treated that way when all I wanted was to stop vomiting. Since then I have been to the ER once for strep about a half a year ago cause I couldn get in with my doctor right away, but other then that I advoid the ER like the plague.

-carmen

Chronic Pain Moderator

-Stress is when you wake up screaming....and realize you haven't fallen asleep yet.

-What if the Hokey Pokey really IS what it's all about.

-Is it time for your medication or mine?

-Underneath it all....I'm pretty much naked.


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 7/31/2009 11:58 AM (GMT -7)   
carmen, thats how i felt when everything happened. the dr said she would only give me one shot of dilaudid. well i DID ask for something for the pain, my stomach was killing me. she made the comment that i was on so much dilaudid that it would "kill" her if she took that much. well, not like i just started taking it, i have been working my way up for years. i understand drs are there ultimatly to "do nor harm" but when you can prove you are in pain, why don't they agree pain medicine is ok? i have NEVER had a dr refuse me pain medication when my diverticulitis flairs up. unreal.
RX's: Pain  Pump (morphine & baclofen on next round); Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 4x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Lorazepam 1mg (bedtime); Bentyl 25 mg 2xs daily; Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/31/2009 12:36 PM (GMT -7)   
kttn,

I started a post to you the other day, but the kids interrupted me...and I didn't finish it.

Oh, the stories that I could tell you of similar things I've gone through.... I bet many of us could. I HAVE to go to the ER at times; I hate it. I have chronic nausea/vomiting - and there are times that I can't keep my meds down. So, I have to go in for IV meds to break the cycle. In addition, my pain doctor wants me to go into the ER for IV pain meds if I have a migraine that I can't get rid of or if my back pain is at an 8 or more. (I have severe hypertension, so the increased pain causes my blood pressure to be dangerously high...so it's important that I keep my pain under as much control as possible). So, I too have a note that I carry in my wallet, written on a script w/ all of my doctor's info that says "Please allow (me) to get IV Pain Meds for severe pain; please contact me if you need additional information".

AND, I STILL have issues w/ that. I usually don't like confrontation - but I've learned that I am my own best advocate; that I'm not a drug seeker, addicted, etc etc (whatever the judgment is). Yes, I'm on a HUGE amount of narcotics. They barely touch my pain and I have hardly no side effects from them. I'm not loopy, drowsy, impaired in any way. Unfortunately, my tolerance has built way up over the years (which is actually a scary thing....).

I can't help it if an ER doc has had bad things happen/bad experiences. That's not "my" situation. And, yes, I've heard EVERY comment, too, that you wrote - the "If I was on much XYZ I would die/stop breathing/etc". Like you said, I didn't start out on that amount!!

So, I have to go w/ the mind-set that I'm going to encounter problems. Sometimes I don't - there ARE some wonderful docs that do understand; and I'm grateful for those. But, I have just found it's best for me to go being prepared for the worst, and surprised/happy if it doesn't happen.

The thing that bothers me about reading your post is that my PM doc has said my situation will "improve" when I get the pain pump. That ER docs take patients w/ a pump more seriously... and, thus, I won't encounter as much "judgment". Reading your post makes me wonder if that will be true for me or not.

Frustrating!
Tina
I'm a Christian wife and mom to six boys, ages 5, 8, 10, 11, 13 and 14... I've been ill/disabled since my last child was born in 2004...

Chronic Pain Issues: Severe neck/back pain; chronic migraines; carpal tunnel syndrome; widespread joint/muscle pain, burning nerve pain in hands, arms, feet
Diagnosed with: POTS/dysautonomia (heart condition, nervous system disorder that has my whole body out of whack: heart rate, breathing, pain issues, body temperature issues, etc); CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea etc etc
Meds: MS Contin (480mg daily); MSIR (15mg/6x day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...
Past Meds: I've been on every pain med there is... Oxys, Dilaudid, Duragesic patches, Actiq, Fentora, Methadone and so on... I've also tried almost every muscle relaxer, nerve meds, sleep meds, etc.
Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 7/31/2009 3:18 PM (GMT -7)   
At my nearby ER, their's a doctor there known for being a huge jerk. And he always seems to be working at this ER, so almost everyone I know has encountered him and they all cant beleive his attitude. My cousin went in once cause her knee was swollen and she was in alot of pain, but right by her knee there was a small scratch, and he gave her cream for that and completly ignored her knee issues, and when she asked about it, he told her to follow up with her ortho, which she did call and he sent her to the ER in the first place....

Then once about 4 years ago (witht his same ER doctor)when I was taking Kadian (morphine) and fioricet w/codiene and klonopin, and he did a blood test and of course it came back positve for opiates, benzodiazipines, and barbituates, and he said he was gonna call the 'crisis center' cause he felt that I was gonna overdose cause they where very strong meds and how it would kill a normal person, eventhough I was in the ER for a severe migraine. So the crisis center came by WITH a court order already made to lock me up for 3 days so I can get the 'drugs' out of my system. And I got so angry, I couldnt stop crying, and this place they sent me to was horrible, I begged them to call my PM doctor, but they refused, and I had my mother empty out my medication bottles into baggies and bring in the empty bottles cause I wanted them to see I wasnt lying about these prescriptions being mine and they said they where gonna flush them down the toilet (reason for emptying the bottles). I wrote a huge complaint letter to the hospitals, and of course all I got back was an apology letter, I should of pressed charges as it really traumatize me, I feel that I come to the ER to get "emergency" treatment, and not for them to take over my whole treatment plan I've had with a specialist doctor.

Of course I could go on forever about other terrible stories, espcially when I've gone in for migraines, they must really hate migraines, but I know where I live, one of the few neurologists around isnt a very good doctor for migraines cause I've been seeing her for years with no luck, and my other doctor that prescribes my Suboxone gave me Cymbalta and said he had good results with that for migraines, and he was so right, I hardly ever get them anymore, and when I do, it's absoutly nowhere near as bad.

So thank God I have no reason to go the ER hardly anymore, I've gone once in the past year for myself which was for strep throat (and this doesnt include the several tumes I had to take my kids in) and I know I better have severe bleeding or a bone sticking out or darn near death before I'll ever step back in a ER. Beause When I'm in severe pain, I rather be at home in my comfortable bed moaning and screaming, then be in a small cold room on a very uncomfortable table they call a bed and be treated like garbage and have to listen to babies crying nonstop in the room next to me and people staring when they walk by, and wondering why it's taking so long and hearing all the nurses and doctors out their laughing and talking like they have nothing else to do and have to fight for meds to make me feel better.

-carmen

Chronic Pain Moderator

-Stress is when you wake up screaming....and realize you haven't fallen asleep yet.

-What if the Hokey Pokey really IS what it's all about.

-Is it time for your medication or mine?

-Underneath it all....I'm pretty much naked.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/31/2009 4:38 PM (GMT -7)   
I'm so sorry you had to be subjected to such cruelity... shakehead
 
I live in a somewhat small country community.  Well its growing everyday so I can't call it small anylonger.  The ER here I hate for one reason alone.  It takes forever to be seen.  Not enough doctors with the growth of our town.
 
Before I went to a pain clinic I got looked at oddly.  I thought I could hear whispering if they looked at my history and seen I had been in there more then 3x that year.  I know they thought I was a drug seeker.  Even though you can't fake kidney stones and blood in your urine.
 
Now that I'm seen by a pain specialist all the staff is GREAT! yeah    I bring in my full bottle of pills and tell them the exact time of the last dose.  Last time they told me I didn't have to go that far and bring in the bottles.
 
I wish more ER's were that considerate to peoples needs.  Might be due to the small community for we havent been tainted yet by large groups of drug seekers...
 
Once again I'm so sorry you had to go through that its unacceptable nono
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 8/1/2009 10:02 AM (GMT -7)   
wow, sounds like it happens a lot more than people think. its sad that we are discriminated against just for the fact we take these pills. just because i am on them doesn't mean i am a junkie. i got the pump thinking it would make things a lot better ultimatly for my body and for when i have to go to the er. some drs are ok, but some give me the fifth degree about my meds and how strong they are. i tell them i have several broken and herniated discs, that i am used to having pain- the pills don't work 100%. but when they have done all their cat scans and x rays and can see that there is something wrong, why refuse to give your patient medication they need? anyone else would have had pain medication with no lecture. i'm sorry everyone else has gone through this as well. it makes me so angry, like we asked to be cursed with this pain! walk a day in my shoes is what i want to say.
RX's: Pain  Pump (morphine & baclofen on next round); Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 4x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Lorazepam 1mg (bedtime); Bentyl 25 mg 2xs daily; Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 9:17 PM (GMT -7)
There are a total of 2,736,194 posts in 301,359 threads.
View Active Threads


Who's Online
This forum has 151449 registered members. Please welcome our newest member, iwanttocry.
243 Guest(s), 8 Registered Member(s) are currently online.  Details
Mews2much, PDL17, Lymiemomster, Redwing57, jrpsf, lotdaisy, The king, Mister Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer