Does having fibro + Crohns mean I get to talk here?

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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/29/2009 10:32 AM (GMT -7)   
Hehehehe...seeing as both are chronic and painful? turn
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


Centurion45
Regular Member


Date Joined Jul 2009
Total Posts : 23
   Posted 7/29/2009 11:13 AM (GMT -7)   
Welcome Joie1

LOL - I do hope your laughin too - I can't think of a more painful double wammy!

Seriously - I do hope you feel better! David
25+ Years, Sciatica, Lumbar back pain, Severe Stenosis L3-L4, DDD, Chronic pain - because the acute pain was never treated, Duh!


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/29/2009 11:21 AM (GMT -7)   
 
 
   Dear Joie
 
      Good afternoon. It is good to see you *huggs*Yes! Come over to the dark side! devil
    Im just kidding, we don't bite ... well ~~> maybe white beard, but just little nibbles really scool
 
         smilewinkgrin
 
     *huggs*
         dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/29/2009 11:21 AM (GMT -7)   
I'm trying...today's an evil evil day. I can't even pass out to escape my back. Add in the fact that I'm a female and still got my working parts...you know...the girl parts...and the fun fun joy joy of that monthly agony to depend on. Hehe...during my third surgery...I apparently started my period...and the drs...were all crazy worried at the dropping and then rapidly rising blood pressure. I spent the night in ICU where every other hour they were pouring pain meds or muscle relaxers into me. They didn't realize that I had female pain to add on the abdominal surgery pain until they moved me the day after that into a new bed. Today...kinda equals that. Sitting here...half joking to myself that it hurt worse then...but at the same time...wishing Fate would pull my thread so to speak. I'd bang my head on a wall if it'd actually make things better...but my headache isn't vanishing LOL.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/29/2009 12:58 PM (GMT -7)   
Hello Joie1 and nice to meet you, sure wish it was
under better circumstances, but we all care about each other
and hope you'll feel that..

have you tried a heating pad it can help??

Hope you don't mind me asking but what is Pentasa,? it doesn't sound
very good..
Lots and lots of soft caring hugz...
((((((((((((((((((((((((((((((((((((((((Joie1)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/29/2009 1:06 PM (GMT -7)   
Hi Joei1,

Nice to meet you... I'm sorry you are having a bad day.

My back is screaming today, too. Not fun.

Feel better...

Tina

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/29/2009 1:10 PM (GMT -7)   
Holy moly!  What a surgery story!  You certainly know how to do it up good!  I am so glad you have posted.  Please stay and let us get to know you!  I love your attitude.  I love how you talk.  ( if that makes any sense at all)
 
Welcome to the CP board! 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 7/29/2009 4:28 PM (GMT -7)   
Thanks...and Pentasa is nothing much. It's an anti-inflammatory that's really ONLY for the digestive system. It doesn't really cause me troubles actually. No side effects that I can see. If I don't take it...though, I feel sick inside and I know it. I can actually feel it. Your welcome Gretchen. I went and laid down for a few hours...eventually fell asleep for about an hour actually. Not much difference except that my headache's right on the edge of migraine now though. Just trying to take today as easy as I can.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 7/29/2009 4:50 PM (GMT -7)   
Joie1 welcome aboard to the CP forum. Yeppers, I understand your CD totall
yy. Isn't it a lovely disease to endure. They added UC to my CD in June of 05, life sure has been interesting with the two. Odd are less than 5%, well, I guess I fall in the odd category. At least you landed in the right spot, we all understand how pain effects us. I don't get to the CD forum alot, shame on me, but I sort of hang my hat here. When I look at the different categories to post from, gee, its a tough choice to make, because I fit in with so many other forums here at HW lol.
 
I do hate to see the Fibro dx with the CD, jeez that's enough alone. Thats a tough cookie to crack and hard to treat. We are really a frieinldy bunch here and we try to help each other out as much as we can. The old saying "birds of the feather flock together"  scene, thats us lol.
 
I do hope you will hang with here too. Take care and keep us posted on how you are doing.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/29/2009 5:26 PM (GMT -7)   
Hi, Joie,
Welcome! You certainly can post here - I appreciate the fact you already responded to my thread. That's very caring and thoughtful of you, despite the fact you're having such a bad day.

I hope you can find some relief from your headache. Layers of pain. That's how I think of many of these things. We just get one layer added on top of another.

Hugs,

PaLady
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