Just thought I'd post....and has anyone ever done home infusions of antibiotics??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 7/30/2009 12:33 PM (GMT -7)   
I haven't posted on here in a LONG time.
I have been on A LOT of pain meds in my 24 y/o life, from everything to simple over the counter to Fentanyl suckers.
My pain is still there but i'm learning to live it. I finally had to start getting off of so much medicine and that when my pain finally started to getting somewhat tolerable. I'm down to just a few Hydrocodone a day which is HUGE.
(The main reason I had to get off of so much was tolerance and signs of addiction. It was really hard to be to take my meds as prescribed.)

I still have pain, still have TONS of medical problems though. I wonder why friends I HAD are getting married, having kids, working and I'm stuck at home on disability. I wonder why God made my journey so hard but I just have to keep going.

I hope you all find peace in your journey.

Ang

PS: I'm on home infusions of antibiotics for pneumonia and staph, and its making me really sick to my stomach. Has anyone done home infusions before? What did you do for nausea? I have Phenergan and Zofran but its not helping.
 
Migraines, Ovarian Cyst, repeat and multiple jaw dislocations, depression/anxiety, PTSD, and the list goes on
On Jan 17th I had a very traumatic situation ending in a colostomy. had the reversal which put me through months of hell, but better now
Meds: Celexa, Klonopin,Zanaflex, some pain meds.

May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.


TDoern
Regular Member


Date Joined Jul 2006
Total Posts : 495
   Posted 7/30/2009 1:23 PM (GMT -7)   
Ang,

I have never done a home infusion anything, is it IV? I know when my pain get's bad I get really nauseated and can't take anything orally to help with it, so my doctors gave me anti-nausea suppositories that helped. The one that helped the best was called "compro". If they are oral medications make sure to eat something before you take them if you can. For me two pieces of toast or plain bread and big glass of milk helped with oral antibiotics.

Good to you for getting off so many pain medications and seeing that you were heading down a road you didn't want to.

Isn't it amazing how chronic pain shows us who are real friends are? I wish it wasn't so. The thing is that for some seeing someone in pain that doesn't go away is more than they can take. Most people cannot, or don't want to, see pain as anything that two tylenol and good night sleep won't fix. Everyone wants to believe that everything can be fixed somehow, and it makes people face their own fears when they realize that there isn't a magic pill for all ailments.

The best thing you can do is what you've done, take your life back from the chronic pain. As you said you are learning to live with it, but possibly try to live to spite the pain. The way that pain has invaded every part of my life really angers me sometimes, tasks as simple as getting out of bed sometimes are taken over. I made a decision years ago that the pain was not going to change who I AM. I am still the girl that trys to see the bright side of everything, even the pain that I battle. I still laugh, and I still smile even on my very worst pain days, because I will not let the pain take that from me.

Also remember that it's easy for us to shut out the world without knowing we are doing it. Sometimes it's just easier to push people away than to let them see the things that we deal with. You may have done that and not even known it. My husband has learned that those are the times I need him the most, because I'm pushing people away to protect them from seeing me hurt, when I really need someone there to help me with it. Not sure how you feel about dating sites, but if you are looking for a relationship of any king you might look there. I met my hubby 13 years ago on the internet when I was only 15, I'm 29 now (okay so I guess it was 14 years ago). I lost a lot of friends from 2000 when I first injured my back and the following years. It took me reaching back out to them to find them again.

Just know if nothing else the people here at healing well are ALWAYS here for you!
*hugs*
"When we come to the edge of the light we know, and are about to step off into the darkness of the unknown, of one thing we can be sure; either God will provide something solid to stand on... or we will be taught to fly.'"

Dx: Degenerative Disc Disease, Polycystic Ovarian Syndrome, IBS-d, Ruptured & Fused L4-L5-S1, Bulging/Ruptured L3-L4, Sciatica, Neuropathy, Costochondritis, Reflux, Gastric Bypass Surgery 12/6/07
Rx: Kadian 50mg - every 12 hours, Percocet 5/325 - up to 4 daily, Baclofen 10mg - 3 daily, Amitriptylene 200mg - at bedtime, Prevacid Solutabs - 1 daily, various vitamins.


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 7/30/2009 3:28 PM (GMT -7)   
Oh I am sorry about the nausea.  That is a horrible feeling.  I have never had IV antibiotics only the IV steroids.  Those come with a whole different set of side effects.  You might post on the lyme board.  Those members have a ton of experience with IV antibiotics.  They may have suggestions as to how to deal with the side effects.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/30/2009 4:12 PM (GMT -7)   
I just wanted to jump in and say Good for YOU!!!! Seems you are heading down a path that suits you.

Best Wishes
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 7/30/2009 5:55 PM (GMT -7)   
From my experience Zofran usually does the trick. Ar over $4000 a month, it thens to be the gold standard for chemotherapy nausea and vomiting. It was a miracle drug for me. Talk with your doctor about alternatives, but I was under the impression that this was the best.

Good luck in your search. How much longer will your home infusions last?

Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 


AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 7/30/2009 6:59 PM (GMT -7)   
thats what the doctors say, about the Zofran. BUt it doesn't work for me. I was in the hospital getting it IV and phenergan AND reglan and I still was throwing up all the time.
Did you know hospitals are only giving 6.25 mg of Phenergan IV now, rather than 25mgs they used to give b/c too many people were dying and stuff. At least thats the case in the hospital i was in. Crazy.
<S> </S>
Migraines, Ovarian Cyst, repeat and multiple jaw dislocations, depression/anxiety, PTSD, and the list goes on
On Jan 17th 2008 I had a very traumatic situation ending in a colostomy. had the reversal which put me through months of hell, but better now. I have had over 12 pretty major surgeries, 100's of "procedures", my immune system is a NO GO. I've been in and out of the hospital for the last 10 years. I have no real Dx's really. I have a lot of "Psuedo" (sp?) symptoms, so they say. This in just 24 years and its just half the story. (Violin's playing yet?)

Meds: Celexa, Klonopin, getting off pain meds.
(to date doing IV home infusions of antibiotics for pneumonia and staph)

May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/31/2009 3:47 AM (GMT -7)   
I have a port a cath in my chest because I did Remicade infusions for crohns disease, had terrible veins. I had to do home antibiotics for cellutlitis in my legs. When I was released from the hospital. I was on vancomycine and it never made me sick at my stomach. I am sorry you ar having such a terrible time with it. I too take Zofran and its been a life saver for me.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/31/2009 8:30 AM (GMT -7)   
 
   Dear AngMichelle,
 
     GooooOOood Morning! *huggs* It is good to see you again. I think we met last month, but my memory isnt the greatest smilewinkgrin   I am sorry you have had to deal with so much these last months. I sure do hope things slow down for you. That is alot to go through.
 
     Has anyone done home infusions before?
 
     Nope! In fact the closest to home anything I get is little bottles of antibiotics that smell like eggs.. and the farts?!?! Girl, I can clear an isle at the store in one blow!
 
     I know not much help. I just wanted to stop by and say hi :-)
 
*huggs*
   dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/31/2009 11:53 AM (GMT -7)   
I've had a PICC line in/out over the years - I need fluids on a regular basis. There's been times that I've done them at home. Right now, I just go in as I need them...

Re: the nausea - Zofran works wonders for some, not for me either. I use the Phenergan suppositories (lovely, I know...); the oral meds don't work for me when I'm in a bad cycle of nausea/vomiting.

When I go to the hospital... they still do 25mg of Phenergan for me. There was a time long ago that it would wipe me out for the rest of the day/night (major drowsiness)...but now, it doesn't do that. But, yeah - I've heard that some hospitals don't like to use it.

You wrote "I wonder why God made my journey so hard but I just have to keep going" - I've been there definitely. I still have my moments...this week has been particularly hard for me. So, I don't have any major words of wisdom right now - only that I do understand what you are saying! Hang in there, Ang....

Thinking of you -
Tina
I'm a Christian wife and mom to six boys, ages 5, 8, 10, 11, 13 and 14... I've been ill/disabled since my last child was born in 2004...

Chronic Pain Issues: Severe neck/back pain; chronic migraines; carpal tunnel syndrome; widespread joint/muscle pain, burning nerve pain in hands, arms, feet
Diagnosed with: POTS/dysautonomia (heart condition, nervous system disorder that has my whole body out of whack: heart rate, breathing, pain issues, body temperature issues, etc); CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea etc etc
Meds: MS Contin (480mg daily); MSIR (15mg/6x day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...
Past Meds: I've been on every pain med there is... Oxys, Dilaudid, Duragesic patches, Actiq, Fentora, Methadone and so on... I've also tried almost every muscle relaxer, nerve meds, sleep meds, etc.
Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/31/2009 5:57 PM (GMT -7)   
Yes, I've had IV Antibotics and visiting nurse to help with it..was for 3 weeks, I didn't get sick, because the infection was so bad
in my body, so I can't help out with the nausea issue, sorry...Pneumonia is no fun I've had that 3 times too...
I hope your feeling better soon...
Well wishes being sent your ways
and lots and lots of soft hugz....
((((((((((((((((((((((((((((((((((((((((((((((AngMichelle)))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 5:45 PM (GMT -7)
There are a total of 2,732,780 posts in 301,056 threads.
View Active Threads


Who's Online
This forum has 151206 registered members. Please welcome our newest member, KrazyKorean5.
347 Guest(s), 10 Registered Member(s) are currently online.  Details
Psilociraptor, dacarte3, mtm3461, ChickNorris, lymedriven, Fairwind, ks1905, trumpet123, NotQuiteAntonio, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer