Kinds of pain?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 7/30/2009 1:46 PM (GMT -7)   
Do people ever look at you like you can't be in pain cause you look so healthy.  My pain is a constant ache in my lower back and lower cerival area.  Bending causes the muscles on the sides of my lower spine to pull causing pain.  It aches just sitting here and standing in one place is pretty much impossible.  Not sure why but walking is about the only time I am relatively pain free.  Anyway, I guess people expect you to be screaming out in pain constantly.  I've been living with this condition since 2002 and I guess I've gotten used to it.  Believe me I have tried am still trying to find the way to stop things from getting worse.   So anyway, I was curious to see what kinds of pain you experience and if people look at your outside self and not realize what goes on inside of you.
 
Jag

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 7/30/2009 2:58 PM (GMT -7)   
I think most people living with chronic pain experience this at one time or another, and not just from people on the street but from supposed health care professionals as well.

I can't count how many times I have went to a doctor appointment and the nurse will ask me how I am feeling and I tell her that my back is killing me, or I have a splitting headache and have her take my BP and go..."Hmm. You blood pressure is up. I imagine the doctor is going to want to put you on BP medicine for that." I have even had doctors say things like that. I am like: Ok let me break a couple of your fingers and lets see what happens to your BP.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 7/30/2009 3:27 PM (GMT -7)   
This happens anytime we, CPer's leave the house....parking in a handicap parking space is the worst kind of degradation there is.  If you can walk 2 feet people think you have to be faking just to get that "Great" parking spot...What a joke!!!  Most places don't have enough of them and you have to park 100 feet away anyway, and if you're lucky enough to get a spot you get the look....it doesn't matter where you are... Then the Pharmacy.... shocked   If it's not the pharmacist it's the other people picking up their scripts...If they happen to overhear what you are picking up wow.... nono   and you know what they're thinking...."Junkie", or "I wonder what they sell them for?".  I hate going to the pharmacy...One day I was at the same pharmacy that I have been using for years, when some new people came in...they were scragly looking, torn clothes, dirty, and very inpatient.  They were even asking things like "do you have the round ones or the rectangular ones".  I guess one is better then the other.... Then when they were told it would be like $800....they flipped out.  Her husband said...loud enough for everyone to hear, "we can sell these and get our money back"... rolleyes   I could not believe what I heard!!!!  And nothing was done...they paid and left without a blink of an eye.  I'm sure they went straight out and sold their stuff... These are the ones that make everyone look at "us" the way they do... I even said something to the pharmacist...she said unless they heard it they wouldn't be able to prove it. 
 
Why?  Why are they able to get pills that they really have no business having and some people that are in real pain can't get a Darvocet?  It takes us legit CP patients sometimes years to get a good Pain Dr. to take us seriously, and then the people that lie just to get narcotics come along and screw it up for us.... What can we do?
 
Me.

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/30/2009 3:38 PM (GMT -7)   
smhair  All my pain is in my mid-section.  I work long and hard days at work for 10 hours.  Thank god they got rid of the 12 hours shifts for now.  I hide my pain really well.  Only my closest co-workers can tell if I'm having a bad pain day.  I make light about my condition with almost everyone.  So no I really don't get strange looks from people around me.
 
But on the other hand when I go to the doctors office, my regular PCP who is new but then I fired him I felt uncomfortable.  The nurse had to take a seat while I named off everything,  I started to get nervous while telling her all this.  It took forever, then the doctor made light about all my kidney issues in regards to the pain. sad    He was more worried about all my crazy doctors prescribing techniques.
 
So yes I feel the strain of being looked at funny when it comes to regular PCP offices.  I look healthy and always have a smile on my face but they can't seem to see past that and stay focused on the medical issues at hand.......
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/30/2009 7:31 PM (GMT -7)   
For the most part, I hide my pain really well when I am around other people. Only if you know me well, are you able to tell that I am not well. My family can tell, and my doctors can tell, but most other people cannot. I suppose it is "easier" for me to hide my pain than for some others, because my pain is in only a small area of my body & it is not somewhere obvious. But with a trained eye, you can pick up a lot of "clues" from just looking at my eye from the outside. And I'm told that I just look sickly in general, compared to my norm, just based off of my coloration, etc. It's not always a good thing that I hide my pain (as well as my emotions) so well.

Skeye

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/30/2009 11:27 PM (GMT -7)   
 
 
  Hey Jag,
 
     Yes. hehe get it alot.  LOL. And honestly noone notices that I sit often or that I dont talk or smile much. I probably look like a young "Lolly gagger" hehe. No one ever notices anything is amiss until they take a closer look. So far not so bad.
 
*huggs*
    dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 7/30/2009 11:54 PM (GMT -7)   
That's what I thought. It's not noticeable that I shift around in my chair alot trying to keep comfortable or that I will shift from one foot to the other when standing to alleviate the back pain. Laurie, I too worked 12 hr shifts for 9.5 yrs & was a single parent for many of those but finally said I can't do this anymore. After two fusion surgeries and DDD I was scared of where I'd be in ten yrs. Maybe we need adhesive arrows to stick on our bodies pointing at the sore spots. Thanks for all the replies as usual I see I am not alone.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc C-2/3


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/31/2009 12:09 AM (GMT -7)   
Because my pain is mostly in my knees and hips I sort of hobble around and when its bad I can only take little steps, my students some of whom I've taught for years (PHD) tell me they know when I'm having a bad day by looking in my eyes. But people I don't know seem to never see anything and to be honest I'm happier like that, its just too exhausting to "explain" to strangers why you can't do things. I'd rather brush over it. Being in pain can be too tiring to explain at times... golitho

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/31/2009 1:53 AM (GMT -7)   
I am told you can see it in my face how much I hurt. My pain is lower back, left hip and buttock. And I am not walking "right". My steps are small althogh they are getting somewhat faster. I had an laminectomy in April. I still haven't returned to work yet. I guess the pain I am dealing with now is nerve pain. It is always there.Sometimes in the store a complete stranger will ask me "what's wrong with you?" And then some of my friends from work will say"are you still hurting?" I am so tired of these questions. Yes, I still hurt. And I would relish the day I woke up and didn't hurt anymore...That day may or may not come.But I keep trying and keep hoping. No one likes being in pain. But this has become our lives. This is what we are now...
Anice

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 7/31/2009 2:32 AM (GMT -7)   
Jim1969 said...
I think most people living with chronic pain experience this at one time or another, and not just from people on the street but from supposed health care professionals as well.

I can't count how many times I have went to a doctor appointment and the nurse will ask me how I am feeling and I tell her that my back is killing me, or I have a splitting headache and have her take my BP and go..."Hmm. You blood pressure is up. I imagine the doctor is going to want to put you on BP medicine for that." I have even had doctors say things like that. I am like: Ok let me break a couple of your fingers and lets see what happens to your BP.

 

From Hara: OMG you just made me laugh at the breaking your fingers thing and lets see what happens to your BP.  For sure. I can be in pain and have a normal BP and my doc takes my pain meds away. He's such a dork.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/31/2009 8:12 AM (GMT -7)   
 
   Dear Jag,
 
     Maybe we need adhesive arrows to stick on our bodies pointing at the sore spots
 
    Hehe, all I have to do is smile or stand and move my strategically placed messenger bag... WHOA nelly! folks start looking right away hehe. I don't care really, but will  be glad when I get back to "looking" normal-ish. LOL
 
   *huggs*
      dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/31/2009 12:52 PM (GMT -7)   
Jag,
the hardest part for me is when people come up and touch me on the shoulders
which makes me cry out, at times, my mom is notorious for doing this, going around
and touching you..after I've told her to please stop, just talk to me or yell at me, but
please don't touch me, slight touches just hurt...those adhesives sound nice but would'nt work
for when my mom's around!!!

a tee's shirt with red letters and stop signs on it might work better..

HUGZ
Hope you get a low pain day...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/31/2009 1:36 PM (GMT -7)   
Jag,
I think this is so common. Each of us has a little different experience with it, but the basics are the same. I know people think when I do start limping it's becasue of my back, when in reality it's because my feet are getting numb - from too much sitting or standing or walking or whatever. Only time they don't is when I'm in bed.

I also think people who are close to us can see it in our faces, our eyes when we're hurting. I have a photo that was taken about a year before I fell. It was with one of my cousins and my eyes were bright and I was smiling. I know my eyes have lost their brightness, just as my walk has lost it's bounce. But few others really know or see this.

PaLady

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/31/2009 3:18 PM (GMT -7)   
PaLady, I can sure relate to your post. I don't have the picture but I have it in my head,my life before being consumed with pain. I remember being relatively happy and a great deal of energy. It seems like a lifetime ago...My eyes have also lost their brightness...

This life sure does take its toll on all of us. We all know how it used to be and how it is no longer that way anymore. It is sad no matter how you look at it. It's like losing a big part of yourself,of what once was and yet no longer is.
Anice

cansurvive
New Member


Date Joined Jul 2009
Total Posts : 5
   Posted 7/31/2009 6:48 PM (GMT -7)   
Disabilities come in all shapes and sizes - I myself am a 28 year old 3 time cancer survivor diabetic with severe neuropathy, and  therefore I know exactly how you feel - I  have experienced it too. Many times people will get mad at me for parking in a handicapped space because they look at me and I seem "normal".   It also happenned several times in buildings when I ask where the elevator is and people immediately answer - "Oh, the stairs are right over there". If I could use the stairs I wouldn't have asked about the elevator!!! I feel that as a person with a disability, I have to be more assertive than able-bodied people - stand up for my rights and demand that I recieve them.  So I think parking in a handicapped space is just fine - especially since I have a permit.

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 7/31/2009 7:02 PM (GMT -7)   
Cansurvive, I want to encourage you to start your own thread and introduce yourself. We all want to welcome you here to the forum. I am so glad you found it, but at the same time sorry that you have a reason to be here. I do think you will enjoy it here. Feel free to post as often as you would like. I find personally it does help. And to know you aren't alone helps tremendously. Please start your own tread and let everyone welcome you. I am glad you are here. And I look forward to getting to know you better.
Anice
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 9:47 AM (GMT -7)
There are a total of 2,735,880 posts in 301,336 threads.
View Active Threads


Who's Online
This forum has 151440 registered members. Please welcome our newest member, Ian88.
268 Guest(s), 7 Registered Member(s) are currently online.  Details
Girlie, reminder, ChickNorris, pmm73, Fairwind, Mustard Seed, k07


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer