Just wanted to say hello.....

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Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 8/1/2009 11:37 PM (GMT -7)   
Hello everyone! I've been "lurking" on this site for quite awhile now and finally decided to join up. I am very cautious when it comes to online forums (especially those related to medical topics/chronic pain) and this one is, by far, one of the best and "nicest" I've seen.
 
Like many of you, I live with chronic pain, and have for over 20 years. I have Degenerative Disc Disease (mostly in the neck/cervical region) and Pelvic Adhesive Disease/Adhesion Related Disorder. DDD runs throughout my family and the ARD is the result of 5 c-sections and 2 exploratories. It actually began affecting me after my first (botched) c-section, but was misdiagnosed/ignored for several years. I am sure some of you know what I am talking about: the pain is just "in your head", "we can't find anything wrong with you", "I'm referring you to a Psychiatrist", etc, etc. I was in and out of emergency rooms and the last time I went, the doctor flat-out accused me of "pill-seeking" and was REALLY rude about it. about a month later, I went under the knife and my surgeon was amazed (for lack of a better word) at what he saw; several of my organs were literally stuck together - bladder and uterus were the worst. Anyhoo, long story short, they cleaned up the best they could, I "recovered" and when I felt better I went back to that emergency room, found the doctor who accused me of pill-seeking and (literally) threw my surgical records at him. He remembered me and he apologized. I told him that he needed to listen more to his patients and stop looking at them as a part on an assembly line. Unfortunately, new adhesions formed and there really is no "cure" except for more cutting, which gets more dangerous each time. So, between these two conditions, I am stuck with pain medication for the rest of my life - oh joy.
 
Ok, enough babbling from me. I usually don't talk about my health with anyone, so it felt good to vent a bit!
 
Have a peaceful day!

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 8/2/2009 12:06 AM (GMT -7)   
Welcome Splashdancer!

I glad you decided to join the family here at Healing Well. I had a very similar ER experience. I went to the Ombudsman at the hospital the next day with my complaint. No offense to Ombudsman, I like your solution better. I was looking for an apology for my horriffic treatment and got a nod and pat on the head. Atleast your tormentor did apologize.

Having worked in hospitals, I realize the number of pill seekers they get is unbelievable. I also understand that over time that tends to make some people calus. But come on - they have to see real pain too! I know there is no litmus test - no can't they contact our doctors for verification that we do have histories of being junkies. Why can't they call our PM doctors? Why do they always jump to the conclusion we are the walking wasted and are just taking up their precious time and space. It would only take on phone call!! Is that really too much to ask?

Oh well, I am finished ranting and I am so sorry about your experience. Please pull up and chair and stay awhile. The light is always on here at HW.

Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/2/2009 12:28 AM (GMT -7)   
Hi, Splashdancer (love the name!),
Welcome to the forum. Since you've been lurking awhile, you probably know a bit about us, which is great. It's also nice to hear compliments from others about the site here. I agree completely it's the best forum I've seen (well, ok, I haven't seen many but the few I have I didn't stick around long!). I think some of the reasons are the people, and also the way the administrator has set it up, including our wonderful volunteer moderators. Non-moderated forum I find can get off track or downright nasty very quickly.

Ok, I'm off track! I'm so sorry for all you've been through with all your surgeries, and the resulting adhesions. And as you say, more surgery just creates more problems, including more adhesions. That's what I've got left from my lumbar fusion, and that was a minimally invasive procedure. How sad you were treated the way you were in the ER, but if felt good to read how you were able to validate yourself! I like throwing the records in someone's face, too! Stella is right; we don't often get an apology either.

I hope you'll stay posting with us. Feel free to jump in and post anywhere, and thanks for coming on board!

PaLady

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 8/2/2009 12:41 AM (GMT -7)   
splasdancer, very cool name! welcome to HW, you will come to find this place a great area to vent.... no one can quite understand chronic pain until they have actually walked a mile in your shoes. and everyone here has on their nikes. i too have had a recent bad experience with an ER for almost the same reason even though my cat scan supported my reason for pain. my PCP was irate when i went and saw him the next day (which he did admit me and gave me IV pain meds) he knows i don't ask for them unless i am really hurting. ultimately, i did file a complaint against the dr on staff, but i would have given ANYTHING to see what you did! BRAVO! these drs need to decipher a little better the seekers and the real people who are in pain. especially when we are armed with proof, cat scans, xrays, etc. its especially hard lying in those beds for hours- my back always hurts in the ER. those really stupid excuses for a bed. i have diverticulitis a lot so i am constantly in and out of the ER, most of the nursing staff knows me. by the time i have to drink the dye for the cat scan 6 hours has passed by and i am writhing in pain from the cramping and my back adds to it from those awful cement slabs called beds. sometimes i can get a sympethetic dr who will go ahead and give me pain meds while i am waiting on my cat scan. and then there are the other ones. we have all had a run in with them at some point.
anyhow, glad to have you on here..... you will come to see we are all friends on here. we are all on common ground. pain. so chime in anytime and vent when you need to. it helps a lot and people on here are very knowledgable when it comes to treatments, meds, etc.
RX's: Pain  Pump (morphine & baclofen on next round); Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 4x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Lorazepam 1mg (bedtime); Bentyl 25 mg 2xs daily; Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 8/2/2009 1:22 AM (GMT -7)   
Thanks for the Welcomes! Might as well tell you how I got my screen name, it's kinda funny (although not at the time!). I used to be a CADD draftsman, working on "cubicle row". From time to time, the draftsmen would have to meet with the out-of-state bigwigs of the projects we were working on. So, on the day of one of these big meetings, I overslept. We had a huge thunderstorm and my alarm went out with the power. I woke up and grabbed my clothes, but couldn't find my bra. No big deal I thought - glanced in the mirror and couldn't see through my blouse or anything. Jumped in my car and raced to work in the pouring rain. Got to work - no umbrella! I ran across 12 miles of parking lot (ok, a little exaggeration) and got to the building, soaking wet. I was already late so I had to go directly to the conference room. You gotta picture the big, long table with the "suits" filling every chair. I walk in as I am shaking myself off and everybody is staring at me (I assumed it was because the meeting had already started). Well, everyone continued staring as I made my way to my seat and no one said anything - until I sat down. Jim, my supervisor leaned over and whispered, "Look down at your shirt.". Guess you can figure out why everyone was staring! White shirt + no bra + rain = OOPS! I was MORTIFIED! If it was just our "regular" gang, we would have all had a good laugh cause we were kind of like family. But these were our out-of-state guests - the flipping president of the utility company was there!
 
After the meeting, I got an email from my supervisor and he titled it to "Splashdancer".
 
Sorry if that was totally off-topic, but hopefully it made someone laugh. tongue

Post Edited (Splashdancer) : 8/2/2009 2:25:27 AM (GMT-6)


Smoochie
Regular Member


Date Joined Jun 2009
Total Posts : 71
   Posted 8/2/2009 6:58 AM (GMT -7)   
Splashdancer, welcome to the site, everyone here is very nice to say the least and they will always have an open ear for you to chew on. I know exactly what you have went thrugh I am currently fighting an ER with my Attorney for the way I was treated, not tolerable by any means. I dont want money, just a verbal and written apology from the ER doctor and her assistant for being uncaring,rude,suggestive etc. I am so glad you decided to say hi, I hope you stay a while.

Kel
 


Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 8/2/2009 8:37 AM (GMT -7)   
PAlady: you are right - I did feel validated when I got in the doctor's face. Although I had been to the emergency room a few times prior to the night of the "incident", it was obvious each time I went that I was in pain - very elevated blood pressure (kinda hard to fake), increased pulse rate, rigid abdomen, sensitivity to touch, writhing in agony, and tears streaming down my face. That last doctor also told me: "Oh, just relax and stop crying, it can 't be that bad!". Now, I am not a violent person, but I really wanted to shove the vaginal speculum (sp) I saw nearby somewhere that would make him a soprano and then tell HIM to relax! And kttn251977: yes, the look on his face when I threw my records at him (and told him what I thought of his bedside manner) was priceless. I don't know if his apology was genuine, or if he was just trying to placate me, but it didn't even matter - I felt like I had stood up for myself, and every other patient he had treated so badly. It felt gooood yeah . Smoochie: I'm sorry for how you were treated. I hope you get that apology - go gettum! You deserve respect and compassion any time you go to an emergency room (or any medical facility).

Post Edited (Splashdancer) : 8/2/2009 9:41:34 AM (GMT-6)


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/2/2009 9:13 AM (GMT -7)   
Splashdancer,

Your "screen name" story made me laugh; that sounds like something that would happen to me!

Welcome to board... I agree w/ you; I have lots of medical issues and am on a few health boards. The people here are wonderful; very compassionate and understanding. Also, I agree w/ PaLady - that the way the site is set up and moderated is one of the reasons I like this boards so much.

Your conditions sound VERY painful... I'm sorry for the experiences you've had w/ certain doctors. If you've been reading the board, you'll know many of us (me included) have had very similar things happen. It's incredibly frustrating. The good thing is that you stood up for yourself. I'm like that, too. Still - it's frustrating that we even need to do that....

I've had multiple sections as well (6 c-sections). It's almost six years since my last, and I'm still so guarded around that area (lower abdominal region). My docs say it's related to all the scaring and adhesions, and such. But I've never heard of ARD.

Well, I'm glad you are here and welcome to the board. Look forward to getting to know you better.
--Tina
I'm a Christian wife and mom to six boys, ages 5, 8, 10, 11, 13 and 14... I've been ill/disabled since my last child was born in 2004...

Chronic Pain Issues: Severe neck/back pain; chronic migraines; carpal tunnel syndrome; widespread joint/muscle pain, burning nerve pain in hands, arms, feet
Diagnosed with: POTS/dysautonomia (heart condition, nervous system disorder that has my whole body out of whack: heart rate, breathing, pain issues, body temperature issues, etc); CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea etc etc
Meds: MS Contin (480mg daily); MSIR (15mg/6x day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...
Past Meds: I've been on every pain med there is... Oxys, Dilaudid, Duragesic patches, Actiq, Fentora, Methadone and so on... I've also tried almost every muscle relaxer, nerve meds, sleep meds, etc.
Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/2/2009 9:28 AM (GMT -7)   
Your screen name story made me smile too, but so sorry you had to go through that..
I had to make a speech one time and the whole podium shook so bad as I was that nervous
they thought they were going to have to call an ambulance, I never made a public speech
after that...
nice to meet you sure wish it was under better circumstances, they're are
a lot of nice people here, so Welcome...
lots and lots of soft hugz..
((((((((((((((((((((((((((((((Splashdancer)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/2/2009 9:36 AM (GMT -7)   
 
 
   Dear SplashDancer,
 
     Good morning. My name is Dani. It is very nice to meet you. I am glad you decided to joing the Healing Well Community. Even better the Chronic Pain Forum. ... in case you didnt know were the "cool" ones!  wink
 
     It sure sounds like you have been through the ringer! I can understand when a doctor is confused and doesnt know why you are there. I have it happen alot. They seem to like tests more than what we say... *sigh* I think we al have huge time frames where our voices went undeard. I am, however, releived youw ere able to finally attain a diagnosis and being treatment plan. That is a small blessing, but here in CP forum we will take blessing in any size!
 
     It was a pleasure to meet you and I do hope to get to know you better as time goes by.
 
   *huggs*
       dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 8/2/2009 2:30 PM (GMT -7)   
splashdancer, i kinda thought your name was somewhere along the lines you described. i kept thinking of the scene from flashdance when she has the bucket of water dumped on her. i bet you were mortified. i think us women have all been through that once or twice. i hope you got a raise out of it, lol. i mean salary raise......
RX's: Pain  Pump (morphine & baclofen on next round); Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 4x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Lorazepam 1mg (bedtime); Bentyl 25 mg 2xs daily; Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/2/2009 2:53 PM (GMT -7)   
Splashdancer,
Your story about your name made me smile and I sure could use that today! Maybe you could have told your boss you were just trying to make a memorable impression on the bigwigs? rolleyes smilewinkgrin

It reminded me of an incident when I was in high school and my parents were away for the evening. We had a small pool in the backyard, and I had some girlfriends visiting - with strict instructions from the parents about "NO BOYS". Well, of course we figured they'd be gone late, so we had a few "friends" stop over of the opposite gender and all of us a sudden it turned into an impromptu pool party, with us being tossed in with clothes on. It was fun until my parents pulled in the driveway early! Of course we all tried to scatter but I had to go up to the car to try to "explain" and of course I had a white blouse on. Need I say more? My father was livid!

I love your idea about the use of the speculum (guys here may not know what that is, but suffice it to say it's bigger than a proctologist's finger!). smhair

If only we all lived closer. We could take eachother to doctor appointments and E.R. appointments and such and we would KNOW how to advocate (especially if splashdancer keeps giving us more and more ideas!) for one another. yeah

PaLady

kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 8/2/2009 3:01 PM (GMT -7)   
PAlady- you naughty little girl! i would have never expected that! *grins*
RX's: Pain  Pump (morphine & baclofen on next round); Oxycontin 80mg 2x's daily; Dilaudid 8 mgs 4x day; Zanaflex 4mg 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed/nausea); Reglan 10 mg. (30 minutes before meal/nausea); Cymbalta 60mg 2x's daily (pain from fibro); Lorazepam 1mg (bedtime); Bentyl 25 mg 2xs daily; Prilosec 30mg. & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 8/2/2009 3:01 PM (GMT -7)   
Hi and welcome-

I know that that can be awful. Adhesion's happen for my aunt as well. I don't bother with ERs ever. Wish I'd gone downstairs to the one I'd been to 5 times in a month after my first surgery. Stupid jerks always gave me a shot of demerol and phenergan in the butt and sent me home. Drove me crazy that I'd be puking all night after eating one slice of bread and no one would run a single test. They'd just put me to an IV and shot in the butt and home. Tell me to talk to my regular dr. I think a lot of the ER docs are idiots. Seriously. They don't look closely enough. They just have to make sure you're not going to die right then and there. That's what they're trained for in the ER. Long story short...either an abscess or my appendix ruptured and rehealed itself...and caused me to have a 6 month long infection. Can't have kids in a normal way so you're lucky you have a bright-eyed sweetie of 10.

I hope you feel better soon.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Allergies and Asthma my whole life
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008.
Pentasa
Fibromyalgia Dx'd: July 21, 2009
Lyrica
Hydrocodone
Prenatal Vitamin
Allergy meds


Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 8/2/2009 3:18 PM (GMT -7)   
PAlady said...
 
I love your idea about the use of the speculum (guys here may not know what that is, but suffice it to say it's bigger than a proctologist's finger!). smhair
 
 
My beloved and I had a discussion the other day about physicals for men and women. He told me how lucky women are that we don't have to go through the "bend and cough" exam that men have to do. I almost rolled on the floor laughing! I proceeded to tell him about having a very large pair of salad tongs inserted, then having the doctor tell us to "hold on a minute" while he leaves the room, while said salad tongs are exposing us to the world. And of course there is the ever popular, "You might feel a little bit of 'pressure'" . smhair
I love him to death, but he just doesn't have a clue.

Post Edited (Splashdancer) : 8/2/2009 4:23:48 PM (GMT-6)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/2/2009 5:18 PM (GMT -7)   
Hi Splashdancer,

I don't have much to add to what has already been said, but I did just want to welcome to you HW! I'm sorry to hear about your pain, but glad that you were at least able to make the best out of a bad situation! Stick around & post with us! This is a great place!

Skeye

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/2/2009 9:11 PM (GMT -7)   
Hi Splash!

I am so sorry for the hand you were dealt and the miserable medical care you have gotten. But you are such an amazing woman! In the think of it all you have held on to your sense of humor and self respect. I would love to have seen you throw those surgical records at the ER doctor! You are a marvelous example for all of us to behold. I am very glad you have joined us.

Hugs,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums ~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis, collapsed disk, and a few other side dishes.

(\__/)
(='.'=)
(")_(")

"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

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