what should i do?

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cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 8/5/2009 12:59 PM (GMT -7)   
cry  hi i need some help. i have been having severe pain for the lasat 4-5 weeks. i wont even talk about how badly my reg. dr. let me down. i have so many illnesses and am on so many meds. i have several chronic pain conditions and several psychological ones. because ive gone so long with untreated pain, my bi-polar and other psych. conditions have gone haywire. i called a suicide hotline. just to talk. ive done a couple of other scary things over the last couple of days. i whole-heartedly believe that if my pain had been dealt with effectively when i 1st went to my " dr." i would not be in this shape now. i do have an appt. with an anesthesiologist/pain dr. tomorrow. im so hopeful that he will be able and willing to help me. my question is this: what things should i do or say during this visit to get the optimum positive outcome for my situation? here is a list of some of my illnesses : fibro,chronic pain and fatigue ,neuropathy, hypothyroidism,high cholesterol, restless legs syndrome, asthma,tmj, anxiety, depression ,bi-polar, sleep apnea, acid reflux.     my meds. include;seroquel pravastatin,xanax, klonopin, temazapam, levothyroxine, amitiza, buspar, lortabs, estradiol, albuterol inhaler, prevacid, zanaflex               please, if youve ever been in my position or even if you havent, if you have any thoughts or suggestions let me know. im excited to go and get relief, but im also scared ill do or say the wrong thing. ps. my husband is going with me!                                                                                                                                       

Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 8/5/2009 2:18 PM (GMT -7)   
The best thing you can do is be open, honest and upfront in how you are feeling, how the pain is effecting your life, etc and be open to any and all suggestions and be prepared to give them an honest chance to work.

The worst thing to do is to go in demanding a specific treatment or drug therapy.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 8/5/2009 2:24 PM (GMT -7)   
I agree Cbear...the worst thing you can do is tell them a specific drug that you want. All u can do is tell them the truth. If you have pain that is constant, say that...if it radiates, say that too. If you have trouble sleeping because you are in pain, say that. If you feel like your current pain meds don't help, tell them...there is no set script to read off when you see a Dr. especially a Pain Dr. They have heard it all, and they know when you are lying for whatever reason...so don't lie. Just be honest and you will do fine.

Good Luck...I am going to my appt. tomorrow also and I will be thinking of you..

me.
I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/5/2009 2:32 PM (GMT -7)   
First and foremost, let this new doctor know that 1. your pcp has been trying to help with your chronic pain up until now,
when it seems very very bad, and ask if he would take over your pain management care, you'll know if he will be willing to help,
I sure hope he'll do you good with your treatment and if not you can always try someone else..
Good Luck tomorrow and keep us posted as to how it goes..
Take a list of the medicines your on as well as what your allergic to, so far my list takes up only one page typed.
Lots of soft hugz
(((((((((((((((((((((((((((((((((((((((((((((cbear))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))0
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 8/5/2009 4:58 PM (GMT -7)   
hello. i want thank the 3 of you who responded to my post. i have always been honest with all my drs. ive been with all of them for several years. i keep all of them posted on all my test results, all my illnesses and all my meds. i carry around a sheet of paper with all the info.i know you are all right about that! im afraid i may be expecting too much. i really need some relief, but i dont want to seem desperate. i do have a list of meds. that i have written down that io got off several blogs on here. should i ask about them or not even take it with me? i dont want to do the wrong thing. as i said my husband will be with me so i will have his support which will help. again, if anyone else has any other suggestions, please let me know. im so hooking my wagon to this star. thanks again.

Smoochie
Regular Member


Date Joined Jun 2009
Total Posts : 71
   Posted 8/5/2009 8:12 PM (GMT -7)   
I took a list of medications with me and went over it with my doctor and he explained what would be good with my problems and what would not work in my situation and if you by chance have a doctor that will not discuss it with you then find a new one right away because he will not be of any help if he has a closed mind. Make sure you let him know what current medications you are taking and how they work or don'r work for you. Let him know that your pain is still coming through even with your current medication. How long have you been diagnosed bi-polar? What medications do you take for that? My daughter is bi-polar and she has alot of unexplained pains (joint and muscular) that they can't find any explanation for so I was just curious. Remember you have to be an advocate in your own health care, I found that it also helped when I took my husband with me as he also explained my situation from a loved ones viewpoint and the doctor was impressed by him. Okay keep us all updated and if we don't hear from you before your appointment, good luck to you and we wish you the best.

Kel
 


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 8/5/2009 9:36 PM (GMT -7)   
I dont have much to add then whatever has been said, but good luck with the doctor and be truthful, dont keep anything about your pain back, thats what they're there for. Tell them how it's affected every part of your life, eating, sleeping, social life, work, chores, just plaine daily life. And dont ask for a certain med as that sends up red flags, and hopefully your doctor hasnt been jaded by too many drug seekers as sometimes they are and it can take a while before they will prescribe anything if anything, and dont get offended if they ask for a drug test or prescription history as sometimes thats just what they do. My last doctor had to have ALL of my prescription history and notes from the last doctor that prescribed pain meds.

-carmen

Chronic Pain Moderator

-Stress is when you wake up screaming....and realize you haven't fallen asleep yet.

-What if the Hokey Pokey really IS what it's all about.

-Is it time for your medication or mine?

-Underneath it all....I'm pretty much naked.


infinite
Regular Member


Date Joined Jul 2009
Total Posts : 84
   Posted 8/5/2009 10:44 PM (GMT -7)   
Although it wasnt the 1st trip to my PM Dr, I took a laundry list of terms, ideas, and questions to my last appointment. I hope you have had time to go through a lot of posts here and compile a similar list. As was previously mentioned, please mention not only your physical pain, but also how it is affecting you emotionally. I mentioned to my PM how I thought that the wellbutrin wasn't doing anything, but he didn't budge, and I am glad he didnt. Between the Lyrica and wellbutrin, I don't want to know how things would be different without them.

Best wishes to you with your appointment today, and let us know a) how it went and b) if there is anything we can do to help with how you are feeling!

N8

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/6/2009 8:32 AM (GMT -7)   
Hope things go good for you!
Keep us posted, got my fingers crossed and well wishes being sent
to you, lots and lots of soft hugz...
((((((((((((((((((((((((((cbear))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 8/6/2009 6:22 PM (GMT -7)   
you all rock! im so appreciative of all the interest, suggestions, and caring. i took alot of your advice to heart and made sure i handled myself well with the dr. as i said my husband went with me for support and also as a kind of "eye witness" to all my suffering. this dr. seemed to "get it". he said, as my husband and i have both been saying to ALL my drs. im on too many meds! he did seem to belive everything we said and didnt treat me like a druggie. he prescribed oxycodone for me to take 3 times a day, as long as i agreed to limit my hydrocodone to 1 at bedtime. duh! i had no problem with that. the hydrocodone that i take is for my restless legs syndrome. its alot worse at night and the other he prescribed should take care of any daytime symptoms. he also made some suggestions about what meds. i might taper off. im excited about this protocol. i think some of my meds. are actually making me worse. i think if i can get a handle on the pain i will have more energy and just feel better in general. thanks to all of you for caring enough to take the time to let me know you care. to answer the question about my bi-polar: i had a psychotic break after a long period of almost no sleep, followed by a bad fall, and a regimine of steroids. ater the 2nd day on steroids, came the break. my husband took me to a psych. drs. office and she put me on seroquel and lamictal. i slept that whole night for the 1st time in months. the next day my husband said he could tell i was "back". i was still very sick but was able to get better at home without a hospltal stay. my dr. told me that what happened to me was tantamount to a heart attack and that it would take me 6 months to a year to get well. she also said that had become bi-polar and that i would probably have to live on these meds. for the rest of my life. there is no cure for bi-polar disorder. i have my ups and downs and my dr. keeps a fairly close eye on my condition. i hope your daughter will receive the best of care and that she will be surrounded by caring and understanding people. its obvious that she already has a great start! be proud of yourself for loving her so much. thanks again to everyone! its been a long time, but im finally. cautiously optimistic about the future! ill keep you posted!

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 8/6/2009 10:31 PM (GMT -7)   

cbear,

I am so happy to read your post, you sound positive and hopeful!  Sounds like you found a caring Dr. which makes all the difference IMO!

Keep moving forward.... tongue

XXOO
Patti


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/6/2009 11:20 PM (GMT -7)   
Cbear, wow,
I agree with what edt said, and it sounds like your heading in the right direction, that always helps..
Don't let it bother you when they say you'll be on these medicines for the rest of your life, the Important
thing is whether the medicines are helping...I wish you continued success...
well wishes and hugz...
((((((((((((((((((((((((((((((((((((((((((((((((cbear)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 8/8/2009 7:58 AM (GMT -7)   
I'm so happy your appointment went so well. I know how you felt when the doctor listened and set up a treatment without thinking you were a drug seeker. I was so scared about that and even started a thread my first week on HealingWell cuz I felt so nervous and scared. Everyone helped me through that moment in time and now its months later and many PM appointments later.

Once again I'm so thrilled you made it through the first steps.

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 8/18/2009 3:28 PM (GMT -7)   
thanks to all of u who replied to my post. you all gave some good advice and gave me the courage i needed. i wanted to update u on what has happened since. i met with my pyschiatrist, and my pyschiatrist nurse practitioner, and another dr. at the pysch. office. they said, and my husband and i agreed, i need to come off some of my other meds. and then my pain specialist can better deal with my pain. the onle thing that really upset me is that they are taking me off xanax, which i use rarely for severe panic atacks. they want me to learn how to deal with severe panic attacks in other drugless ways. this scares me alot. they want me to start intensive psycotherapy. i can remeber having panic attacks as young as 6 yrs. old. i have depression at least all my adult life. the thought of delving into my past since i was a child, is so scary and depressing, i dont know if i can do it. i know its in my best interests to do the therapy.but im worn out at the thought. ive never gotten the kind of support and love that i needed from my parents. that layed the ground work for all the things to come. there were obviously other things that happened to get me where i am today. my therapist said that it would not be easy and that i would have a great deal of suffering because of all this. she is being very caring and says she wants to see me once a week at least while im coming off all the other meds. she said once i came off alot of these meds, they will be able to give me more pain med. relief. im scared but i feel somewhat better at the thought of having my life back. all i do right now is try to sleep as much as possible to escape the pain. they want me to get my life back and thats what i want, too. but going through all the c--p to get there i am not looking forward to.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/18/2009 9:44 PM (GMT -7)   
cbear

Thnks for the up date! It sounds like you have your work cut out for you, and although what you are about to go through might be difficult and you might not be looking forward to it, in the long run I am sure it will all be for the best! Just one step at a time and one day at a time! I sure do wish you all the best, and I do hope it all works our well for you! Please keep up posted on your progress, you have family here that does care about you, and we are all here to listen and support you!

Good Luck to You

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 8/24/2009 10:39 AM (GMT -7)   
smoochie,sorry its taken me so long to respond. my drs. appt. with thw pain specialist was a disaster, but thats another story. i want to address what you asked me. first of all im so sorry to hear your daughter is bi-polar. ive always had issues, but did not become bi-polar until an accident plus steroids caused me to have a psychotic break. that led to my becoming bi-polar. did anything like this happen to your daughter? you asked about my meds. i take 400 mg. of lamictal, actually the generic. also i take 400 mg. of seraquel. in my opinion, and my husband's and dr's, these meds. kept me from a stay in the hospital. i didnt start out at these strengths, but have had to have them tweaked over time. that being said, there are alot of other great meds out there that may help your daughter. how old is she? i was diagnosed 5 yrs. ago. i was 44. most people with bi-polar have first episodes in their late teens or early 20"s. As for your daughters aches and pains, i was wondering if she might have fibromyalgia. i have that too and you might want to have her tested. however, i do know that emotional pain can also cause physical pain. i hope ive answered all your questions. i hope your daughter gets the help she needs, whatever that may be. you, obviously love your daughter very much and can be a great support that she will need. good luck to both of you. please keep me posted and thanks again for answering mine.
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