SSD and my Doctors

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Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 8/7/2009 9:00 PM (GMT -6)   
Hello everyone,
Hope Y'all are having a peaseful low pain Friday evning! As I mentioned in my last post, I saw 4 of my doctors on Weds. to tell them about my aplying for SSD. My first at 10am was Wonderboy neuro surgeon who did the fusion on my neck. After filling out change of insurance paperwork I was taken into a examination room where I waited for about a half hour for his assistant to come in find out why I was there. I explained that my neck was hurting really bad although not the same as prior to my surgery and that I've been going downhill since I fell in that big hole at work. Then I told her that I had to quit my job because I could no longer do everything that was expected from me with all my pains, not just my neck. She then gave me all manor of flexability, ballance, and nerve sensation tests. I was cringing in pain w/ just about everything she did to me. After she left I waited another half hour before my doc finally came in and just looked at me, he could tell I had been crying or his assistant surely told him. I asked if she had talked to him and he nodded his head yes. Then I said to him, so what the hell do I do now doc? He said that he was sure I would get better just like he did back in May after the accident when he gave me a note for my boss stating that nothing was physically wrong w/ me from the fall and I could continue to work. I was crying by now and he just kept saying you have to give it time and I should get another x-ray. And exactly what good is that going to do doc except lighten my pocket by another $300. so you can tell me again there's nothing wrong??? He was vissably shaken as he knew I was very upset. I told him that I didn't blame him for what had happened but that he had to realize that it didn't get better like he said it would and that anytime I do anything it acts up and gets worse. Also that I knew it was my falt for overdoing it all the time but it's getting worse, not better. Then I told him about SSD and how I need the money because I just can't work in this condition. He then turned on the computor and pulled up my file. He said it would take a while and that he would be right back as he closed the door behind him. I waited and waited and finally opened the door. I could hear him in a room across the hall talking to another patient!!! GRRRR! Then he opened the door and asked the girl to walk down the hall while he watched her. He could see me sitting there snearing at him so when she got back into the room he told her he would be right back and came back in my room!! He said he would do anything he could to help me w/ SSD but there was nothing he could do for my pain, I jusrt have to be patient!  I really don't think he will help me when they ask him if I'm permenantly disabled! Bad news there friends! I left mad, upset and in tears w/ my sunglasses on! As soon as I got on the highway my phone rang, it was his assistant telling me to come back for an x-ray. X-RAY??? What are you talking about?? The doc said he wants you to come back. I can't I'm late for my next Dr. apt I told her, besides we agreed that it wouldn't do any good and would just cost me more $$$ that I don't have! She didn't understand and told me that she would ask him again and call me back! A couple minutes later, she called and said he wants you to come back and get an x-ray in his office and I wouldn't have to pay for it because he knew I couldn't aford it!! Feeling guuilty doc??? I told her to tell him thanks but there was no way I could do it today w/ 3 more dr's tio see and made haste up the hwy!!
I bearly made it to my 1:00pm apt. with my PCP who looks just like the Pres! I explained the sittuation to him and he looked me in the eyes and said> "Pete, you have suffered enough, I'm behind you 100%" and the dam broke as a river of tears poured out as I hugged and thanked the man! He said he would fill out any paperwork and get my file ready for them. Yes!!! There not all bad!!!! Two down, two to go!
Next was my Urologist who gives me monthly testosterone shots and understands the condition my prostate cancer surgery left me both physically and emotionally! But the office was packed and there was no way I could wait to see him and still get to my PMP at 3pm!! So I talked them into getting a nurse to shoot me full of high test and I was on my way, I'll write my Uro a letter explaining things, I'm pretty sure he'll help me!
So I got to the pain management office about 10 minutes early, good I had to change insurance again anyway. Only problem was it took 45 minutes to athorize the insurance for some reason so I fell asleep in the waiting room. Then to my dismay, no doc today! I had to settle for a PA who explained that they get SSD requests all the time and that w/ my records of years of treatment, I surely would have no problems getting it! We'll see about that>??? So thats where I stand now untill today when I got a letter from SS stating that I have my initial hearing or meating w/ them on Aug 20th!!! I couldn't believe it happened so fast! The lawer's girl I spoke to tiold me 2 - 4 months!!!  So now I have to get all the papperwork, reports, health history and such done in the next couple weeks! This is something the lawers people didn't tell me about!!! I asked them about health history and she said they only care about what's wrong w/ you now and what dr's your seeing!! I'm pissed about that as I could have taken care of a bunch of that this week had I known while I saw my doc's!!! GRRRRRRR, lawers!! What good are they??? I have a very long history of disliking those bottom feeders! They will hear from me on Monday!!!
Well kids, my fingers are tired, ny neck & back are killing me and I'm starving so I'll see Y'all  monyana!!! Thanks for listening to my blabber!!
Hugz and kisses to the girls and manhugz to my Bro's!!
love you Gize!!
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis back in Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 8/7/2009 11:12 PM (GMT -6)   
Oh, Pete!!!!

Wow, what a day!! I can't believe you even made it to all four appointments - that's a feat worthy of some kind of prize!

So sorry about the way your NS treated you, but I am really glad you spoke up to him. I think sometimes the surgeons don't realize all we're going through - after all the promises that have been made. The one thing I might suggest though, is finding a way to get that x-ray. Maybe you could have it somewhere where it's lower cost, but the X-ray will tell him whether your neck is fusing properly. MRI's don't do that. The other reason is that if it's noted in your chart that you're refusing to follow your doctor's orders, it may not look good with SSD.

As far as attorneys, don't get me started!! But Susie (straydog) has much more expertise with all this and a much more positive experience with attorneys!! LOL I wonder if you'll have to collect all the records or just sign releases, considering how soon the hearing is. It would be hard for you to get them all, especially since you're living quite a distance away. Maybe Susie can advise you what to expect at this first hearing.

I hope you get to relax a bit for the weekend!!



Veteran Member

Date Joined Dec 2007
Total Posts : 1228
   Posted 8/8/2009 1:09 AM (GMT -6)   
HI Pete,
I may be able to help with the SSD stuff. Make sure that you get signed releases for each of your doctors that you currently see. You will need the office address, the doctors name, telephone and fax number if they have one....most do.
Call each of their offices on Monday, tell them that you need a copy of your file. They should provide you with one copy free. After that, they can charge you a certain amount per page if you need additional copies. What I do is obtain that free copy and them make copies of all tests, results, consults, etc. , get copies of your MRI films on a disc if you can, and the reports as well. EMG studies, blood test results for the prostrate problems, x rays and reports, etc. Those are the things that you will need for SSD. Also your prescriptions currently and your history if you want to bring it.
It sounds like you are being fast tracked, which means that you may not have to wait months for your disability to kick in. If your paperwork is complete, they will send out the papers to the doctors to fill out, and once that is done, they will either approve or deny, but if you are being fast tracked, it usually means that they are pretty sure it is going to be approved.
Also because of the depression if you are seeing anyone in regard to treatment or therapy, you might want to include that as well.
Best of luck to you,
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.

Tony McGuire
Regular Member

Date Joined Feb 2009
Total Posts : 483
   Posted 8/8/2009 9:04 AM (GMT -6)   
I wouldn't worry too much about SSD and doctors. I got approved first time around, and they never contacted my doctor(s).

I was proactive and had my PCP fill out the form for doctors to fill out. He didn't like it, but he did it - mainly cause I just kept sitting and waiting expectantly for him to fill it out.

Anyway, I truly wonder if the SSA contacts any doctors at all.

Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 8/8/2009 2:01 PM (GMT -6)   
Wow, Pete! Sounds like you had a crazy day! Four appointments in one! I'm sorry that things are still going poorly with your neck. I agree with Palady. A lot of surgeons are out of touch. They do their job, fix the problem, and then expect everything to be okay; over & done with. But it just doesn't work that way. The body is a complex thing & it does not like any disruption of homeostasis! There are so many other factors that need to be taken into account before, during, and after a surgery is performed & everyone, and every case is different. Sometimes I think that surgeons forget that. It is so easy for them to just see a body part, and not a person.


Post Edited (skeye) : 8/8/2009 7:20:06 PM (GMT-6)

Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 8/8/2009 4:12 PM (GMT -6)   

Ahhh Pete,

I'm so sorry, I know the devastation you must feel!


Hang in there!!


Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 8/8/2009 5:50 PM (GMT -6)   
Can't help with any practical advice as I'm in Australia as you know but I decided you need a big cyber hug anyway! Well done managing your neck surgeon, I can't stand the arrogance of some drs we see. Do you think he's worried you're going to sue him? Good luck with all the paperwork and like Patti said just hang in there! Golitho yeah
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